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Medical Forum / Diseases and Disorders / Epilepsy / June 2005

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tjb - 05 Jun 2005 22:46 GMT
I have a sister-in-law who has seizers and I am not sure what to do about
her.  She only has them in the mornings and at that not very often.  She
gets had to deal with though sometimes because she makes it seems like
it's the end of the world.  She can't drive so she depends on me to take
her to town and this drives me nuts because she thinks she should be able
to drive even though it would put her and her daughter and anyone else in
the vehicle at risk.  Plus she gets mad because her husband can't usually
be in the house in the evenings because of chores outside (we live on a
farm) and he works in town during the day and she needs to bath their
daughter and she gets down right mad about it.  Is there anything anyone
could maybe tell me to help her realize that it's not the end of the world
and she has to think about safety first before herself?  And is there any
good way to let her know my feelings as to why I won't let her drive even
around our property with my son in the vehicle without hurting her
feelings?
G.Ross - 06 Jun 2005 00:09 GMT
You didn't say (bottom) what 'jurisdiction' you're in  (Canada or the U.S.).
If you're in the U.S. they might have some topics under the Ep. Foundation
of America http://efa.org  wrt.  The Law and Seizures.
   In Ontario, for example, if I were to drive, cause an accident and it
was found that I had Uncontrolled Seizures (I don't any longer),  any Motor
Vehicle Liability Insurance I might have becomes void.  It has not been
unheard of here for Judges to award families of a  Killed 'breadwinner'
settlements that would pay equivalent of their income until they would have
been 65.  Those are people outside of her own vehicle, not just her or her
daughter, and the amounts could exceed several times $100,000.

   With respect to caring for her daughter and around their place, there
*might be support services that they could find out through a Local (to
them) Epilepsy Association.  Some of the sorts of things we used to have in
Ontario were listed under 'Homecare Services',  but so far as I remember
they were oriented more to elderly people or people whose Doctor had
completed the forms saying that they weren't able to care for themselves
alone.   Unfortunately, the fact that she's in the Country, away from such
services that are available in a larger city,  might not be regarded as
something the support service is responsible for --   in other words, they
might expect them to have a place in a city, nearer to support services that
might be provided.
  As I said, the levels of support would vary depending on the Country, but
also the jurisdiction if they were different from State to state or Province
to province.  Each of the Provinces in Canada are responsible for their own
healthcare services, so long as they meet the National Minimums set out at
the Federal level.   I don't know (for sure) if the same applies in the U.S.
or not.  I suspect it does.
******
  Have you spoken to her Doctor?   I wondered if they knew that she had
that level of 'need' and was putting it onto you..  The Doctor might be able
to give you input about the Degree of dependence she might have, and You
could give them feedback on what's happening wrt. You, that I'd be very
surprised, for example, that the Dr. would be aware of...
   That's an area that I haven't seen discussed here (effects on rest of
Family and relatives caused by someone's dependence on relatives for seizure
support, with little or no apparent help from institutions or medical
support as their primary contact).  Perhaps this is a good place to start
that discussion.

 Any information you find out, if this thread develops, and approximate
area you live, might be of interest to others who read the group but don't
post often, and since this is an International Board, some of the replies
you get might be specifically what's done in the various jurisdictions
represented and more for general information to you, than necessarily of
direct help.   We have members in Europe, UK, Australia, New Zealand, as
well as North and South America.   Just so ya know.

   Also if we knew the approximate area you live-- Ontario versus Nebraska,
there might be others who are aware of support aids that you might not be
aware of, that are available to them, and could pass on to them.    G./

>I have a sister-in-law who has seizers and I am not sure what to do about
> her.  She only has them in the mornings and at that not very often.  She
[quoted text clipped - 11 lines]
> around our property with my son in the vehicle without hurting her
> feelings?
Patsy and Darryl - 06 Jun 2005 05:17 GMT
Hi.
The subject of driving with epilepsy is one which comes up occasionally on
this newsgroup and there are those who feel it's ok and there are those with
first hand experience like myself, who know it's not. Those who have been
around this group for a while will have heard me say this before...
I've been having seizures for 31 years now - since I was eight years old.
When I got my drivers license they didn't ask if I had epilepsy, so I didn't
tell them. I could always tell when a seizure was coming because I would get
a simple partial before the complex partial hit. During the simple partial I
just experience a feeling like an adrenalin rush, dizziness and a feeling of
detachment.
So I drove my car just fine - when I felt a complex partial coming on I
would have plenty of time to pull over and stop.
This lasted almost 20 years, but epilepsy has a tendency to change without
warning you first. I was driving along in town and a complex partial seizure
struck with no warning whatsoever, so I had no time to pull over. My car
left the road and hit a pedestrian standing on the sidewalk. (His name was
Gregg, and it turned out he was the brother of a friend of mine).
Gregg bounced up off the fender of my car, across the hood and his head came
through the windshield directly in front of my face before he flew into the
air and landed about twenty feet away.
Maybe you can picture me - a burly six foot three man, hairy knuckles and
all, waking every morning for several months afterwards, sitting on the edge
of the bed crying, until I could get myself together sufficiently to get
ready for work.
Gregg survived the accident, but his injuries were so bad that a few years
later he killed himself as he felt he couldn't live like that.
That accident changed my life and I can assure you it wasn't for the better.
It also changed his life and the lives of his wife and four young children.
I can tell you it's not fun getting abusive hate mail from the wife of a man
you have killed by your own selfishness in being unprepared to stay out from
behind the wheel. He would still be alive if I hadn't been so cock-sure of
my ability to control my seizures and control my car.

Not being able to drive is a nuisance, sure. But there are far worse things.

Darryl.

>I have a sister-in-law who has seizers and I am not sure what to do about
> her.  She only has them in the mornings and at that not very often.  She
[quoted text clipped - 11 lines]
> around our property with my son in the vehicle without hurting her
> feelings?
G.Ross - 06 Jun 2005 16:15 GMT
Thank you for posting that (below).  That couldn't have been easy to write,
but it should make a point for some of the lurkers and others who raise that
question, and assume (like driving above alcohol limits that used to be
acceptable 20 years ago),  that they 'can handle it and know what's best'
under all circumstances.
   So long as someone had a 'buddy' along who could take away the keys if
we weren't at 100%, it's better not to even take any keys with us.     The
arguments that we 'really need to drive'  sure lose their significance when
innocent victims are brought into the picture.

   The last CP seizure I had was June 1998, but I haven't gone back to look
at how much cars cost compared to 1987 when I last owned one (pre-seizures).
Although I'm restricted on some social events I can go to without advanced
planning to arrange cab fare or transit,  I hear I'm saving a pile of money
on Insurance and Fuel costs (it was 34? cents a litre when I drove, it's
almost 60 cents now-- ~$2.70 Canadian a Gallon here.)  And I can sleep
nights...   G./

> Hi.
> The subject of driving with epilepsy is one which comes up occasionally on
[quoted text clipped - 50 lines]
>> around our property with my son in the vehicle without hurting her
>> feelings?
tjb - 06 Jun 2005 19:26 GMT
Thank you for the info.  I just wish I could get it through her head that
it's not a great thing for her to be doing.  She feels that because
they're not frequent and usually only in the mornings it's okay.  I wish I
knew a way to tell her it's not without hurting her feelings cuz she's also
my best friend, not just a sister in-law.  We've been friends since
childhood and she gets defensive quite easily.
CyberCafe - 06 Jun 2005 22:11 GMT
> Thank you for the info.  I just wish I could get it through her head that
> it's not a great thing for her to be doing.  She feels that because
> they're not frequent and usually only in the mornings it's okay.  I wish I
> knew a way to tell her it's not without hurting her feelings cuz she's also
> my best friend, not just a sister in-law.  We've been friends since
> childhood and she gets defensive quite easily.

Sometimes the behavior stuff is can be a part of the seizure disorder
itself.  There is also a lot of depression with some types of seizure
disorders, and of course, if there are restrictions in her life that
prevents her from fulfilling her adult responsibilities, that is going
to affect a person.

Barb
CyberCafe - 06 Jun 2005 22:05 GMT
> I have a sister-in-law who has seizers and I am not sure what to do about
> her.  She only has them in the mornings and at that not very often.

What kind of seizures does she have?  In my state, the laws are
outdated.  It doesn't matter (in Wisconsin) what type of seizure
disorder you have, as you initially lose your license until the seizures
are under control.  I know of a few people who have occupational
driver's permits.  There are a lot of seizure disorders where a person's
ability to function, their consciousness is not impaired at all.  Really
need to know the type of seizures she has.  Also, since she is having
problems in the morning I wonder if something could be done to help her
get rid of those.  It might be nothing more than changing the time of
her dosing.  She should talk to her doctor about that.

  She
> gets had to deal with though sometimes because she makes it seems like
> it's the end of the world.  

I live in a rural area where there is no public transportation.  When I
lost my driver's license, I felt like I was under house arrest.  You
can't meet your own needs such as going to doctor's appointments,
getting to church, getting groceries, or anything else if there isn't
someone else around who can drive you.  You can't take care of your
family fully either.  Socialization can be severely diminished, which is
not good for lots of folks from a mental standpoint.

She can't drive so she depends on me to take
> her to town and this drives me nuts because she thinks she should be able
> to drive even though it would put her and her daughter and anyone else in
> the vehicle at risk.  Plus she gets mad because her husband can't usually
> be in the house in the evenings because of chores outside (we live on a
> farm) and he works in town during the day and she needs to bath their
> daughter and she gets down right mad about it.

It sounds like her husband is working day and night and probably
weekends if he's helping on the farm.  When does he have time to help
his wife out?

 Is there anything anyone
> could maybe tell me to help her realize that it's not the end of the world
> and she has to think about safety first before herself?  And is there any
> good way to let her know my feelings as to why I won't let her drive even
> around our property with my son in the vehicle without hurting her
> feelings?

It would help knowing what type of seizures she had and some other basic
information about her symptoms (such as consciousness/awareness).

It's not really your responsibility to be taking your sister-in-law
everywhere all the time.  Is your sister-in-law's husband helping on
your farm???

Barb
tjb - 07 Jun 2005 05:06 GMT
with the type she has she loses time.  She doesn't realize how she gets to
where she wakes up and what not.  It's her husband family's farm so it's
his and his brother's (my spouse) responisbility and since farming doesn't
make much money both guys work out and I am left to take her everywhere.
Her husband tries to but has too much resposibility on the farm as well.
pipercub49 - 07 Jun 2005 15:13 GMT
I don't know if I'm using this right. I am new here.you got to keep in
mind you have a young mother ( I am assumeimg she is young) you did not
state her age. Alone in the country with a child. Plus she has
seizures. Can not drive. That makes for a very long day. Now I am 49
years old. Went long enough 5 years ago with out a seizure (not 5
years). Came home from work and within the hour I had a Grand Mal
Seizure. I was 45 then. After work Iwould usually stay and visit my
aunt she was a resident there. Thank God I did not. I could of been
driving and killed somebody. At the ER a DR. there told my husband if I
was his wife he would not care how long I would go without a seizure I
would not be driving just for the reason I was at the ER that night.
You just never know. But we are looking at someone so much younger
stuck away in the country. Gosh I can remember when my boy's were
babies I needed time away. Once or twice a month someone to feed them
dinner maybe give them a bath. When I would come home they would be
asleep. I did not have seizures then. Also My husband is great taking
me places but sometimes I can just feel the tention and want to scream
I would rather walk. which I can't do. Does your sister-in-law get to
go anywhere that she is not being taken but is asked Hey do ya want to
do this with me. (not meaning you have to do it). But just something
for fun. Is she rushed when she is shopping? She does have to accept
her Epilepsy and her limitaions. But the way some things are worded can
make a person very sad or glad. For example I know you can't drive do
you want me to take you shopping? Or I am going shopping would you like
to come? The later is so much better for me. I get to go shopping and I
do not feel I am putting anyone out. Living in the country has got to
be so hard on her. I live in a small town and there is alot of country
around. I can only imagine how it would feel to be out there with a
child 24/7 and not go anywhere. I would probably try to talk myself
into driving if I was younger but then i would talk myself out of it.
Every young mother has to do something just for them. Maybe she could
sign up for a class and find a way to get there. I have had Epilepsy
since 1997.I was 42 when my seizures started. My life went through so
many changes. I can only imagine how it would of been if I was young. I
do know that possitive actions fromppl make possitvie actions from the
person with Epilepsy. I don't know if this made any sence. I hope it
helped just a bit. But NO driving. Mary Lou
tjb - 08 Jun 2005 06:54 GMT
She is only 24 years old but she is not alone out here.  We all live on the
same quater of land within a 2 minute walking distance.  There's me and my
spouse, her and her husband and then our spouses father and his
girlfriend.  And it's not like I don't offer to take her to things like
her other nephews birdays and what not and really I don't mind.  It's just
when she gets it in her head that it's safe for her to be driving with her
child and mine no less and other peoples children on roads that sometimes
have no one driving on them for hours that it gets me.  I have ulcerative
colitis myself with an illiostomy and have been quite sick myself since I
was a small child but I accept my limitations.  I accept that when I am
sick I can not drive or do certain other things.  We all get bored out
here sometimes and want something to do but there's lots of land right?
We can walk.  It's not like our spouses never take the kids for an entire
evening so we can have time for ourselves.  Why would she feel the need to
do something she knows could kill someone?  I mean we go to town once a
week so it's not like she never leaves the place.  And she knew she had
seizers when she married her husband and she knew where they would be
living.  Why would she be so pissed off about it now 4 years later?
CyberCafe - 08 Jun 2005 20:19 GMT
I forgot to ask you in your previous posts if your sister-in-law was
getting enough sleep.  If she is sleep deprived, this might be
contributing to her morning seizures.  I'm assuming she's the one who
gets up during the night to tend to the kids, but even a romantic spouse
who disrupts her sleep could create problems for her.

> She is only 24 years old but she is not alone out here.  We all live on the
> same quater of land within a 2 minute walking distance.  There's me and my
> spouse, her and her husband and then our spouses father and his
> girlfriend.  

Where are her family and friends?  How often does she get to see them?
  If those are the only people she regularly sees, she is what I would
consider socially isolated.  It's okay if she chose that, but it's not
okay if it was imposed on her.

And it's not like I don't offer to take her to things like
> her other nephews birdays and what not and really I don't mind.  It's just
> when she gets it in her head that it's safe for her to be driving with her
> child and mine no less and other peoples children on roads that sometimes
> have no one driving on them for hours that it gets me.

You can still refuse to let your child go with her.  If she's that bad
off though, she should not be doing a lot of other things as well such
as lawn mowing, cooking, climbing step stools, etc.  Actually, I'm just
being sassy now.  I don't know how your laws are, but in my state a
person with epilepsy can drive on private land.  The driver's license is
really a permit to drive on public property.  You said she was having
problems in the morning; is that when she is attempting to drive or is
it later in the day?

  I have ulcerative
> colitis myself with an illiostomy and have been quite sick myself since I
> was a small child but I accept my limitations.  I accept that when I am
> sick I can not drive or do certain other things.

  We all get bored out
> here sometimes and want something to do but there's lots of land right?
> We can walk.

You and me are lucky that we can get by with that (when I can walk
decent).  There's a lot of folks who just can't.  That's not enough for
them.

 It's not like our spouses never take the kids for an entire
> evening so we can have time for ourselves.  Why would she feel the need to
> do something she knows could kill someone?  I mean we go to town once a
> week so it's not like she never leaves the place.  And she knew she had
> seizers when she married her husband and she knew where they would be
> living.  Why would she be so pissed off about it now 4 years later?

She must have been about my age when I married and left the city.  Had
no experience on a farm except for a few visits to my future in-laws.  I
adjusted very, very quickly, thank goodness.  There are a lot of things
missing in farm life (like recreation, higher education access, public
services, etc.).  To me, it seems like a lot of things I want or need
are not available, period, or are so darned far away they're basically
inaccessible.  Sometimes I have an intense need to get out of here (my
house) and just see different land, different houses, different anything.

She's still young, so young.  It sounds like she was about the same age
as myself when she married.  Love is blind, like they say.  When you're
that young, your goal is to make a life for yourself, so you just get on
with it and any problems take a low priority.  You really don't know
fully what you're getting into.  At least I didn't 38 years ago.  It
reminds me of the ugly wallpaper we had all over this house when we
moved in.  I should have been able to live with it the rest of my life,
but I could only take it so long before the urge to change it resulted
in action; me stripping that stuff off the walls and ceilings and
painting everything lighter colors.

Oops, I've got to stop writing now.  I wish there was a forum for farm
wives because I think a lot of us need it.

Barb
tjb - 09 Jun 2005 01:41 GMT
She knew axactly what she was getting into when she married her husband.
her dad and step mom live only about an hours drive from where we are but
they hardly ever call and come to see her even less, why I don't know.
Her brother and sister-in-law live about half an hour away but she sees
and talks to them as much as she does her dad.  Her mom lives hours away
like everyone in my family.  Another thing that bothers me with her is she
uses her illness as an excuse for almost everything.  I hate talking like
this about her but I need to understand how other people with the same
thing feel.  And as for driving she doesn't get to often unless its haying
season and she takes lunch and supper out to the guys without me going, or
her husband drinks too much at the bar then she drives home.  We live in
Canada by the way.  She's completely illegal when she drives home from the
bar but they risk it anyway cuz she wants to drive so badly.  anyhow,
thanks for reading and trying to help. it makes me feel better.
Dave ©¿©¬ - 09 Jun 2005 04:55 GMT
> She knew axactly what she was getting into when she married her husband.
> her dad and step mom live only about an hours drive from where we are but
[quoted text clipped - 10 lines]
> bar but they risk it anyway cuz she wants to drive so badly.  anyhow,
> thanks for reading and trying to help. it makes me feel better.

Howdy tjb!

Everybody is different!

Some of us (myself included) just abhor sympathy.
Others love to wallow in it.

Signature

Dave ©¿©¬

http://www.howdydave.com

Dave ©¿©¬ - 09 Jun 2005 05:08 GMT
Howdy tjb!

For your enlightenment, here is a list of the different stages I went
through while learning to accept MY epilepsy.

I've asked around and this seems to be a fairly normal sequence of events.
You will probably be able to take a look at the list and pretty much figure
out where your sister-in-law stands:

=========================

Epilepsy! -- What's epilepsy?

Refusal (No I DON'T have epilepsy!)

Why me? / Why is God punishing me?

I'm some sort of freak! / My life is ruined! / I can't do any of the things
that I want to do!

OK I have epilepsy... Guess I'm going to have to learn to live with it! --
Now I'll find out who my REAL friends are!

I am not an epileptic, I'm a person who happens to have epilepsy! -- Lots of
great people have had epilepsy!

Life goes on.

Epilepsy/epileptic what's the big deal? People with diabetes are diabetic;
people with asthma are asthmatic. It's just a word...

Epilepsy is just one facet of what makes me ME! -- This is ME, take it or
leave it!

=========================
Signature

Dave ©¿©¬

http://www.howdydave.com

Patsy and Darryl - 09 Jun 2005 12:33 GMT
> Howdy tjb!
>
[quoted text clipped - 32 lines]
> Epilepsy is just one facet of what makes me ME! -- This is ME, take it or
> leave it!

Yep, that about sums up how it went for me too. Some people seem to get
stuck on one of these stages for a long time though, before progressing.
Some seem just to reach a certain stage then stay there. Depends on the type
of personality and level of maturity I guess.

Darryl.
Dave ©¿©¬ - 10 Jun 2005 18:17 GMT
Howdy!

Driving wasn't that big an issue with me due to the fact that I was 13 when
I was diagnosed.

Sure I was sore when my 2 youger sisters could drive and I couldn't, but I
got over it.

You don't miss something if you've never had it.

Since I've never driven, accessability has always been my primary
consideration when making decisions about where to live and where to work.

I live in a city.
The city must have a good public transit system.
My residence must be right on a busline.
My employer has to be accessable via public transit.
My doctors must be accessable via public transit.
I always live real close to a convenience store & pharmacy so I can just pop
into the store down the street if I run out of something.

Signature

Dave ©¿©¬

http://www.howdydave.com

CyberCafe - 09 Jun 2005 22:41 GMT
> She knew axactly what she was getting into when she married her husband.
> her dad and step mom live only about an hours drive from where we are but
[quoted text clipped - 10 lines]
> bar but they risk it anyway cuz she wants to drive so badly.  anyhow,
> thanks for reading and trying to help. it makes me feel better.

I like Dave's stages of epilepsy because it's pretty on target.  You
know, if someone would have taken away some other priviledge from her
instead of driving, she probably would have problems with that too.  I
hope she's not drinking alcohol when she goes out because that can lower
seizure threshold or make the medications ineffective.

You asked how other people felt about driving or not driving.  For me,
it was absolutely horrible to lose my license because I had certain
obligations, and I couldn't do them without a driver's license.  It was
everything from picking up kids at school, not being able to get to
doctor or dental appointments, trying to cook without ingredients
because I couldn't get to town to by them.  It was a burdon on others in
the household because they had to do the stuff I couldn't do.  No more
running for parts for my husband or doing the banking, etc.  My husband
definitely cannot do decent shopping by himself because he comes home
either without things, with the wrong things (like baked beans instead
of kidney beans). I mean, getting other people in the family to do
things you normally would do is not the answer for a lot of people,
including myself.

The thing for me is that I had been driving for over twenty years being
diagnosed, never had an accident even though I had seizures while
driving (I don't black out).  Yes, I sought medical help many years
before being diagnosed, but they told me to come back when it got worse
because they didn't know what it was.  Then after more years of this
stuff, I'm diagnosed and put on medication, which helped tremendously,
and NOW they decide to pull my license.  To me, loss of my driver's
license seemed more a punishment than anything else.

The statement about the wife driving the husband home is something I've
gone through.  You've got to ask yourself, now, who is the more
impaired.  To me, it would be the person who has been drinking. In
therory, if she knows her seizure pattern, which you said was in the
morning, she really should be okay the remainder of the day (although
it's not something you can trust).  For myself, all the years except for
the couple immediately before menopause, seizures always occured around
my monthly cycles, so the rest of the month I was just fine.

I hate to say this because I know how tight farm families are and the
strong tie to the farm/land, but it might be necessary for your
brother-in-law to leave the farm and move to a place that is better for
his wife and kids.

Barb
tjb - 10 Jun 2005 21:37 GMT
she's never had a drivers liscence.  She was diagnosed the year she would
have gone to get her learners liscence.  As for her husband leaving the
farm, well, that's out of the question.  He's not a big help and he's kind
of a jerk but as long as he doesn't have to pay rent and anser to anyone he
won't leave.  Especially if it gives his brother the enitre farm.  I now
have my limitations too because of my illness but I don't complain and I
haven't had as much time to deal with my problem.  I guess i'm just having
a hard time dealing with her complaining about how she can't do this and
she can't do that and why can't her husband stop fixing fences and
machinery just to do something that she could probably do.  Thanks for
listening and trying to help.
Chris Lesurf - 12 Jun 2005 11:39 GMT
 

> Where are her family and friends?  How often does she get to see them?
>    If those are the only people she regularly sees, she is what I would
> consider socially isolated.  It's okay if she chose that, but it's not
> okay if it was imposed on her.

> Does she know about computer news groups and chat groups ? I live within easy walking distance of most things I need but I was still getting bored and lonely. My husband kept saying that what I needed wa sa computer and he 'connected me' to this group.

Having just been to a conference on the interaction of the media,
disbalities and discrimination, I'm suggesting that the Scottish Civic
Forum sets up a News newsgroup.

There's almost certainly a mothers' newsgroup somewhere. Perhaps your most
helpful action could be to find out about it/them and offer to teach her
how to use it.

My husband has no really close friends although he doesn't live as a
hermit but he prefers to get most of his social contact through the
internet.

Chirs L.
CyberCafe - 07 Jun 2005 17:16 GMT
> with the type she has she loses time.  She doesn't realize how she gets to
> where she wakes up and what not.  It's her husband family's farm so it's
> his and his brother's (my spouse) responisbility and since farming doesn't
> make much money both guys work out and I am left to take her everywhere.
> Her husband tries to but has too much resposibility on the farm as well.

Thanks for clarifying that.  I live on a farm too.  We used to milk cows
and raised our own crops, then switched to beef and crops when my
husband started driving a semi truck.  Now, we just raise crops but have
increased our acres as we took over farming my brother-in-law's farm
after he died a couple of years ago.  We've been on this farm 38 years.
  I've had the same kinds of problems with my husband not being
available because of work or the farm.  Heck, when I had my first baby,
he dropped me off at the hospital and went back home to milk during
which time our daughter was born.  When I broke my foot, I drove myself
to the hospital.  There have been several medical emergencies where he
wasn't available.  It's pretty much like not having a husband.

Some changes in life style will probably have to be made (for your
sister-in-law).  I think you have to change your shopping/purchasing
habits quite a bit in the kind of situation, the farm, we're in.  My
house is overflowing with all kinds of food and cleaning supplies
because I just don't know when I can get to town.  We have more chest
freezers than anyone I know (three conventional and one upright), but I
do use freezers to store rice, beans, cereals, snacks, dried milk
powder, flour, cake mixes, and just about anything else that's not in a
tin can or glass jar.

Then you've got to make your home everything so you don't need to go out
as often.  Our home provides recreation, work (I work at home),
education, and so on.

One of our neighbors doesn't drive, and every Friday she and her husband
go to town and take care of everything for the week.  You know, take
care of the banking, go shopping, get haircuts, etc.  My husband would
never do that, but that's my fault for not laying down the law right
from the beginning.

You know, these guys will take advantage of the situation too, so both
you and your sister-in-law have got to watch that; you're both going to
end up losing a lot of your freedom to come and go as you need.  I'll
bet a lot of the off-farm income is being used to help support the farm
too, which is the case here. Well, I don't want to say more because then
I'll go off in a tangent.

At any rate, it's not your responsibility to take care of your
sister-in-law.  It is her husband's responsibility.  The health and
welfare of human beings comes first although on a farm that's put on the
back burner too many times.

It almost sounds like from your description of your sister-in-law's
symptoms that she has complex partial seizures.  That's the kind I have
too.  I don't lose consciousness (although a few folks here report they
do), but there is altered consciousness, which means you can be aware of
your surroundings, can respond to things, can even continue doing what
you're doing. To me, having a seizure is more like reading a really good
book while the kids are running around the chair you're sitting in.
You're sort of paying attention to the kids but not paying attention at
the same time. Actually, it's a good idea for everyone in the family to
have a little background education on what to do when she has a seizure.
 Usually, the doctor's office has literature for caregivers and
significant others.

Barb
G.Ross - 07 Jun 2005 22:20 GMT
> with the type she has she loses time.  She doesn't realize how she gets to
> where she wakes up and what not.  It's her husband family's farm so it's
> his and his brother's (my spouse) responisbility and since farming doesn't
> make much money both guys work out and I am left to take her everywhere.
> Her husband tries to but has too much resposibility on the farm as well.

 Below is an extract from an older post I did a few months ago, that lists
some support sites including Julie's Idaho website that has a first aid
chart.  Within the chart the symptoms the various types of seizures can
produce, and some of those might help you know which of the types she might
have, plus what to do if any happen when you're there.
  If she has been given any pills to use, there's a glossary under the Ep.
Foundation U.S. site that has detail on a particular pill name.  It's at
http://efa.org   site, if that's not included in older note below ->

 Idaho main site (bookmark it once you click to it) is
http://www.epilepsyidaho.org
 There are 2 first aid charts, one you can look up for First aid in Water
if he swims.
 But Page 2 of above has Basic First Aid Chart.   There's a Printer
friendly button top left to Print this page only, that will format it for
printing.
  You can then scroll down to page 10 for Household Safety ideas that has
tips and tricks I mentioned earlier.   General safety page that might take
you direct there anyway is http://www.epilepsyidaho.org/safety/ .
    G./
Chris Lesurf - 12 Jun 2005 11:26 GMT
Would she not be capable of helping on the farm ?

This would reduce the pressure on both the men and perhaps give them time
for her. Life did go on before there were cars.

Chris L.

In article
<2f01bf61df37571d37656ba3852ff5be@localhost.talkaboutsupport.com>,
> I have a sister-in-law who has seizers and I am not sure what to do about
> her.  She only has them in the mornings and at that not very often.  She
[quoted text clipped - 11 lines]
> around our property with my son in the vehicle without hurting her
> feelings?
tjb - 13 Jun 2005 21:59 GMT
She could help on the farm but neither of us grew up on a farm so when it
comes to most of the farm work we are not to sure on how to do most
things.  plus having a small child to drag around makes it hard to do a
lot of the work on the farm.

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