A.V.M.

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charlie and grace - 04 Sep 2003 00:46 GMT

Havn't psoted to this group in some time. I have had two gran mal siezures
in my life. I have been taking 400 mill of diantin for the last 17 years.
Anyone aware of what an AVM is?

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Jennifer Rudolph - 04 Sep 2003 00:57 GMT

I had an AVM. Arteriovenous malformation. In your brain you have arteries
then tubes to thin it out and it turns to a vein. With an AVM that tube is
not there to thin out the blood and so you have an artery shooting straight
to a vein. Too much blood flow. I had two angiograms to find the AVM,
during one of the angiograms they tried embolizing the AVM however it was
progressed too far. It was ready to hemmorage (? spelling). I had brain
surgery back in 1993 to have one removed. I'd be glad to answer any
questions you may have.

Jennifer

> Havn't psoted to this group in some time. I have had two gran mal siezures
> in my life. I have been taking 400 mill of diantin for the last 17 years.
> Anyone aware of what an AVM is?

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charlie and grace - 04 Sep 2003 01:50 GMT

I became a candidate for radial surgery. I go to the VA but their was a
problem with who was going to pay for it. Thats what I think the problem
was. I get along quite well. The last siezure I had was in 1990. They tell
me I was born with it. I have had all kinds of tests to find out what I had.
The 400 mill of dilantin does a good job but I still have times when the
feeling comes on and I have to deal with it for a few seconds

> I had an AVM. Arteriovenous malformation. In your brain you have arteries
> then tubes to thin it out and it turns to a vein. With an AVM that tube is
[quoted text clipped - 9 lines]
> > in my life. I have been taking 400 mill of diantin for the last 17 years.
> > Anyone aware of what an AVM is?

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Jennifer Rudolph - 04 Sep 2003 16:36 GMT

They told me I was born with it too. Alot of people are born with it and it
goes undiagnosed. Most people never develop any problems with AVM's however
there is a risk of hemmorage.

Jennifer

> I became a candidate for radial surgery. I go to the VA but their was a
> problem with who was going to pay for it. Thats what I think the problem
[quoted text clipped - 20 lines]
> years.
> > > Anyone aware of what an AVM is?

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charlie and grace - 04 Sep 2003 23:27 GMT

The last MRI I had a few years ago they had a hard time finding it. I was so
small. But if I don't take the med I feel like I will have a siezure. Wow
that must have been a trip having brain surgery. How do you feel today

> They told me I was born with it too. Alot of people are born with it and it
> goes undiagnosed. Most people never develop any problems with AVM's however
[quoted text clipped - 29 lines]
> > years.
> > > > Anyone aware of what an AVM is?

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Jennifer Rudolph - 05 Sep 2003 17:02 GMT

Doing pretty good. I still have the possibility of having seizures in that
area due to the scarring, however the chances are very small.

Jennifer

> The last MRI I had a few years ago they had a hard time finding it. I was so
> small. But if I don't take the med I feel like I will have a siezure. Wow
[quoted text clipped - 36 lines]
> > > years.
> > > > > Anyone aware of what an AVM is?

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