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Medical Forum / Diseases and Disorders / Epilepsy / June 2005For people with or know someone with Epi
Owlvee wrote this: (Real quickly for you Mary... Mary, this is another Mary, Mary on another epilepsy group named Mary,in response to the letter below that she, that Mary, posted not you, this groups Mary renown.) Owlvee wrote this: "Yes!", You can be aware of yourself during a seizure. I will get the information and post it on the group (this is you Mary and this group) for you (this is her that other Mary)and the others (that is them the other epilespy group) but you (them the other epiilepsy group)can definitely be aware of it because I have done it. Mine are not for a long period of time but I am aware sometimes.. I will ask my friends (that's you on this group) on my other news group (that's this news group)to respond with information I can relay :) to you (that's them the other news group) and others, that's anyone interested.... Sooooooooo. Kan't remember my name sorry! Please show me......... :) ~..~ ::::::::;She wrote this under the subject line:::::::::: I have a question about seizures. Now when I have a seizure I do not remember anything at all. I am sore and tired and very confused after wards. I have Grand Mals. My friends daughter was taking care of a friends child. she said she did not feel good and went and layed down. the child is 8. She started making some noise and my friends daughter wnt in the room. she says the girl was having a seizure but during the seisure the girl could tell her just how she was feeling.She could feel her whole body was shaking and her eyes were rolling in the back of her head and she could not quit biting her tongue. Now she was saying this as all this was happening. she was taken to the ER and was told that she did not have a seizure she had a panic attack. My friends daughter thinks it was because the little girl has no health insurance that the did not do any test to make sure it was not a seizure. but from my experience I would never of been able to tell anyone during a seizure what I was feeling. I have gone to the ER and had test done because of seizures with out health insurance. So I just don't know what to think. Can you have some type of seizures that keep you aware while you are having them? Mary F. I've been having between 1500 and 6000 complex partial seizures a year, for the last 31 years. During them I'm usually aware of what's going on and can sometimes talk, though not very well. Occasionally I can't remember things that happened during the seizure, but this isn't usual for me. (And for those who would argue that these must be simple partials - I've tried arguing that point with several neurologists over the years, but have always been assured that my type of seizure is a complex partial, though I do also experience S.P's as well). However, when I used to have grand mal seizures (at age eight) I was unaware of my surroundings and afterwards had no recollection of what had happened. Darryl. > Owlvee wrote this: > [quoted text clipped - 41 lines] > don't know what to think. Can you have some type of seizures that keep > you aware while you are having them? Mary F. > I've been having between 1500 and 6000 complex partial seizures a year, > for ******************************************** > the last 31 years. During them I'm usually aware of what's going on and > can sometimes talk, though not very well. Occasionally I can't remember > things that happened during the seizure, but this isn't usual for me. ********************************************** > (And for those who would argue that these must be simple partials - I've > tried arguing that point with several neurologists over the years, but > have always been assured that my type of seizure is a complex partial, > though I do also experience S.P's as well). Hi. I guess some of it can get down to 'splitting hairs'. *My understanding of a complex partial (from descriptions what they look like on Julie's First Aid for seizures Chart -- address posted a few days ago), or from the U.S. Ep. Foundation of America site somewhere ( http://efa.org ) was that if it isn't controlled and *was happening (in your case) at rate of 6000 times a year, that you'd experience *permanent brain damage within some amount of time? Maybe that's wrong, but if it's not can they explain how you could have 20 a day (6000+ per year) without suffering permanent damage ? (****s at top line here) The CP seizures *I had, before they were controlled -> the reason they were most frightening to myself and (especially) my Family, was that once I drifted off the 'Simple Partial' (*I thought you might be having if you can remember what you do), into the "Twilight Zone", where a seizure had generalized (spread) to a full Complex Partial seizure from my Right Temporal Lobe to other parts of my brain as the waves spread out, was that I didn't know 'who I was', where I was or what was happening. There was no fear of injury since I was completely unaware of my surroundings. ) Now so far as I remember, my Dr. classified mine as CP (temporal lobe-based in the right side was older term), or Simple Partials (Auras) and he never mentioned Grand Mal seizures to me. I *did, though, have MRIs and EEGs run during onset in 1993-5. (The MRIs were run, since Encephalitis I had, first affected my Rt. Temporal Lobe in 1979. The EEGs were run either while they were waiting for access to an MRI (at a different hospital) or to measure how frequent or disruptive the Electrical part of the Seizure waves were for me. I would expect them to do something like that to see if e.g. waves I had were Sporadic and might clear up on their own, *or were from permanent damage they were looking for *before they saw damage at the Rt. T. Lobe. (I was 'out of it' for the first 3 weeks I was in hospital in 1993, so not aware what tests they were doing or where I was at that time... I just know that tests were done during that period and my Neuro did the interpreting etc. *I didn't see the waves, pictures etc. as they wouldn't have meant anything to me. ) G. (Continued 1x below) / > However, when I used to have grand mal seizures (at age eight) I was > unaware of my surroundings and afterwards had no recollection of what had [quoted text clipped - 42 lines] >> insurance that they did not do any test to make sure it was not a >> seizure. **** G. -> Meandering -- is there any chance (in New Zealand?) that if her Insurance didn't cover e.g. Epilepsy, that they might have "Called it" a Panic Attack (if that was covered) so they could do minimal tests and Medicate her? As listed (I think under the First Aid for Seizures Chart at Idaho site, or efa.org (U.S.) describing some of the main seizure types), I thought the *only seizure type where someone can talk with a Dr. or understand what someone is saying near them, is a Simple Partial type. I don't know if G.Mal can do that, and didn't think *any of the types of Complex Partial ones could. End rambling. / but from my experience I would never of been able to tell >> anyone during a seizure what I was feeling. I have gone to the ER and >> had test done because of seizures with out health insurance. So I just >> don't know what to think. Can you have some type of seizures that keep >> you aware while you are having them? Mary F. >> I've been having between 1500 and 6000 complex partial seizures a year, >> for [quoted text clipped - 17 lines] > not can they explain how you could have 20 a day (6000+ per year) without > suffering permanent damage ? (****s at top line here) I don't know and am not particularly concerned about what label my seizures can be given, I only know what I've been told by all the neurologists I've seen over the years, many of whom have witnessed the seizures. And that they are extremely disruptive to my life. > The CP seizures *I had, before they were controlled -> the reason they > were most frightening to myself and (especially) my Family, was that once > I drifted off the 'Simple Partial' (*I thought you might be having if you > can remember what you do), I also have simple partials which only involve strange feelings, like an adrenalin rush, dizziness and a feeling of detatchment. These usually, but not always, precede a complex partial. (Or what the experts refer to as a complex partial at least) into the "Twilight Zone", where a seizure had > generalized (spread) to a full Complex Partial seizure from my Right > Temporal Lobe to other parts of my brain as the waves spread out, was that [quoted text clipped - 7 lines] > MRIs were run, since Encephalitis I had, first affected my Rt. Temporal > Lobe in 1979. Mine were also brought on by encephalitis I had as a child, and affected my right temporal lobe. The EEGs were run either while they were waiting for access to an > MRI (at a different hospital) or to measure how frequent or disruptive the > Electrical part of the Seizure waves were for me. I would expect them to [quoted text clipped - 57 lines] > a Panic Attack (if that was covered) so they could do minimal tests and > Medicate her? Not sure if you are asking me if that could happen here in NZ ?? In New Zealand the public health system is free, so whatever tests were required would be done. Insurance is only required for private hospitals where you would get an appointment faster. (And nicer meals :-) Darryl. > As listed (I think under the First Aid for Seizures Chart at Idaho site, > or efa.org (U.S.) describing some of the main seizure types), I thought [quoted text clipped - 8 lines] >>> don't know what to think. Can you have some type of seizures that keep >>> you aware while you are having them? Mary F. /////////////// Major snippage ///////// >>>> Owlvee wrote this: >>>> "Yes!", [quoted text clipped - 35 lines] >> it" a Panic Attack (if that was covered) so they could do minimal tests >> and Medicate her? *****G.* Owlvee is in the U.S. I mixed them up with you in New Zealand ! What I wondered (for them) was if the Dr. called the condition "Panic Attack", if it would get a different (*quicker) priority for Testing and Treatment, than if they just called it "Suspected seizures"... In other words, if it would move them more quickly through the waiting list for advanced equipment/testing. With more of us Aging Baby Boomers, many of the Hospitals and Advanced equipment (MRIs, EEGs etc.) in Canada are running 24 hours a day now --> and **waiting lists for a 'general test' a Doctor requests can take up to 4-6+ weeks, versus an Emergency Case or more serious case the Doctor identifies, as eg. "possible Panic Attack" which might be tested for in 2-3 week's time. That was what I think I meant earlier today on my other (longer) note (above at ***s). I was mixing up owlvee (in U.S.? in my timezone) and your notes on same thread in New Zealand. G./ > Not sure if you are asking me if that could happen here in NZ ?? > In New Zealand the public health system is free, so whatever tests were > required would be done. Insurance is only required for private hospitals > where you would get an appointment faster. (And nicer meals :-) > Darryl. Not sure if you are asking me if that could happen here in NZ ?? > In New Zealand the public health system is free, so whatever tests were required would be done. Insurance is only required for private hospitals where you would get an appointment faster. (And nicer meals :-) > Darryl. owlvee wrote: Depends on whether the "grits" are being served with "sugar and milk" or "salt and pepper" as to if ya are having the "nicer meals" or not heh :) ~..~?? owlvee > Not sure if you are asking me if that could happen here in NZ ?? > > In New Zealand the public health system is free, so whatever tests [quoted text clipped - 7 lines] > ~..~?? > owlvee Umm....pardon my ignorance, but what the hell are grits?? :-/ Down here we get bread and water if we're lucky.... Darryl >>Not sure if you are asking me if that could happen here in NZ ?? >> [quoted text clipped - 14 lines] > Down here we get bread and water if we're lucky.... > Darryl Grits is like cooked cereal. It's kind of like Cream of Wheat cooked cereal or Malt-O-Meal cooked cereal. I had grits for the first and only time a few years ago, and they served it plain (no seasonings although they provided syrup as a separate condiment). The grits they served me was like a congealed pile of rice as it was all stuck together. It kind of tasted like plain old slow cooked rice without any seasonings. Barb Grits is (are?) a heavenly substance when prepared and served correctly. It's ground corn; much coarser than corn meal or polenta. Yellow grits are my favorite. They need to be cooked slowly till thick enough to coat the spoon, and served hot with butter and cheese. Bacon and scrambled eggs complete the meal. ;-) Holly -- Holly F. Sox, RN, RAC-C Clinical Editor Careplans.com www.careplans.com > > Not sure if you are asking me if that could happen here in NZ ?? > > > In New Zealand the public health system is free, so whatever tests [quoted text clipped - 12 lines] > Down here we get bread and water if we're lucky.... > Darryl > I've been having between 1500 and 6000 complex partial seizures a year, for > the last 31 years. During them I'm usually aware of what's going on and can [quoted text clipped - 8 lines] > > Darryl. Good grief, that's a lot of seizures!!!!! Are you actually able to recover between them? I was having fewer seizures than you per day and just was not even remotely getting back to normal between the seizures. I don't understand how you're not dropping over just from sheer exhaustion; don't you have a need to sleep after a seizure? Barb >>Owlvee wrote this: >> [quoted text clipped - 41 lines] >>don't know what to think. Can you have some type of seizures that keep >>you aware while you are having them? Mary F. >> I've been having between 1500 and 6000 complex partial seizures a year, >> for the last 31 years. During them I'm usually aware of what's going on [quoted text clipped - 18 lines] > > Barb Hi Barb, I'm quite fortunate in that I recover within a minute or so after a seizure. Once it has stopped I'm just shaky for a while and a little tired, but it goes away pretty quick. It can be tiring physically, but I've gotten used to it. :-) Darryl. >>>I've been having between 1500 and 6000 complex partial seizures a year, >>>for the last 31 years. During them I'm usually aware of what's going on [quoted text clipped - 26 lines] > > Darryl. Thanks for responding because I just couldn't understand how you could function. Barb > Owlvee wrote this: > > (Real quickly for you Mary... Mary, this is another Mary, Mary on another > epilepsy group named Mary,in response to the letter below that she, that > Mary, posted not you, this groups Mary renown.) Another Mary F even! Mary :-) Hi Owlvee, not sure if this applies to this person, but there are other reasons for people to have seizures, non-epileptic seizures. And some people actually have both epileptic and non-epileptic seizures. http://www.epilepsyidaho.org/nonepileptic.htm In my case, I have never been conscious during a tonic clonic seizure. Take care, Julie, Volunteeer Webmaster Epilepsy Foundation of Idaho http://www.epilepsyidaho.org > Owlvee wrote this: > [quoted text clipped - 41 lines] > don't know what to think. Can you have some type of seizures that keep > you aware while you are having them? Mary F. |
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