** I can't imagine who posted that... :-<   Actually several of us have
listed that over last few months. Since once a full CP seizure starts to
generalize, we are aware of little or None of what we do.   That's where the
First Aid charts, etc. come in, and sometimes care needs to be taken with
respect to which sports or activities might prove harmful if we were to have
an Absence or stronger seizure while e.g. on a Motorbike, Driving,  Skating
etc.
  *ALSO, someone might comment here about the effects of Puberty on
Seizures and Medication levels, since I had read that during that period
Body Weight Increase, plus Hormones etc. can mess with some of the anti ep
drugs (AEDs).    Since *my seizures were post Middle Age, I don't have
experience with going through that, but others here did.
*****
   Below is a 'paste from cut' of an earlier list I did of some sites, in
case you didn't see them, in the history queues.   Most of them are provided
or created by people who post here semi-regularly and purloined without
their consent.   If you haven't seen the First Aid ones, those can be
useful.
  The First Aid in water is relatively new.    Those would be particularly
useful if he's into Water Sports or Summer activities that might take him
outdoors to Lake Country or activities where you might not be around.

  Second thing not listed there, but I wondered if they use Medic Alert
Bracelets where you are? and would he *wear one if you got it to give Mom
Peace of Mind?  (i.e. not take it off as the car disappears out of view? )
They need his Blood Type for the bracelet and card, and Teachers or Doctors
can call M.Alert collect from anywhere (in the world) to get Home and Emerg
Contacts,  Doctor's names and contact numbers etc.   There are New ones now
that are plain silver or gold, and don't highlight the Red Snake, but have
the copyright oval  and information that a Medic would recognize, so they're
more like Jewellery than ones from 10 years ago were.
   Some people 'here' have mixed opinions about usefulness of those-- I
found mine paid for itself  from pre-1993  to 1998 when I had my last
seizure. There's a one time charge, and you get reminder once a year to make
sure you didn't move or medical condition didn't change and records need
updating.   (In Canada donations above cost of replacement bracelets are Tax
Deductible under the Charities line on income tax -- don't know if the U.S.
has that deduction too.)
********
   This is the olde post -->  (Note it doesn't include Howdy Dave's website
in this list, my mistake.  Find a recent post of his and his website is
listed at end of posts, click to the site, then click to Add to Favorites,
and keep Dave's Site address there too.)  G./
*****************************
Some weblinks you might not have seen a few days ago, that have useful
information about seizures.  You can likely find your seizure type there
(sounds like Complex Partial like mine?), and it shows that we're not aware
of what we say or do while 'away'.  If it would help any of them you could
print the page, so they'd see how 'easy' it is to make your return more
comfortable and quick, compared to getting into a panic about what to do.
   The main First Aid site I use (Julie put together for us, and Idaho)
is -->
http://www.epilepsyidaho.org/seizure.htm  .
(Check the description of 'what we do' for each type.  That's why I thought
your's would be either Complex Partial (Temporal Lobe) or Grand Mal from
description.)

    If in water (swimming etc.) at seizure onset, there's some differences
what to do, that I think are described at
http://www.epilepsyidaho.org/seizure2.htm  .

    Learning about Epilepsy for people newly diagnosed or helping others
understand. http://www.epilepsyidaho.org/learn.htm  , and the General
doorway that eventually links to all above but may have other stuff for
people near to Idaho is at http://www.epilepsyidaho.org   .

  Those have lots of useful stuff about taking the 'edge' off learning to
handle seizures for people newly diagnosed and people around us -- family
and co-workers, etc.
  If any Medications are prescribed, the U.S. Ep. Foundation has a large
database of info. but also a Medications Glossary within  http://efa.org
site.       G./

Holly,
Well I am owlvee and your son is correct in what he is telling you in
the fact that his seizures "can be" a serene type of sleep probably with
no memory of anything that has happened from the point of dropping or
passing out to the point of waking or returning to alertness.

I have the same feelings during my seizures, no memory, with the only
pain only being usually my tongue afterwards, where I have bitten it,
And now that I am getting older, my body in general:)
Of course there are many other seizures also and I am finding out that
there are almost as many different medications to use. I imagine it is
difficult to get the correct medication with the right body and seizure
type. I know I am still changing, trying to get the right balance with
no luck so far.
But if you look on the epilepsy web sites listed by the ones that post
here then ya will see an whole lot of new medications, reviews, and
support groups.

And hey, ya aren't trying to blame the P-C for any reason are ya:)??

--Not that it couldn't mind you, but it be a cure also-before I get any
responses on the subject--

~..~
owlvee

...

Oh! That's one of the nicest things I've ever heard said :-)

Yours is a lovely introduction, thanks.

Mary

Hi Holly, we have many international members, so in case they were wondering,
you are from South Carolina, (a southern state where they have a beautiful
southern drawl and say things like y'all) am I correct?

I have coped with epilepsy since I was a teenager, but being a girl my seizures
tended to be triggered by my menstrual cycle.  Later I realized other things
also triggered my seizures, so I figured out what to stay away from, take my AED
med and rest when needed, and now I have been seizure free for 10 years.

I was very touched by what your son said to comfort you.  What an endearing
young man.  I am very impressed with him, he has a very good and positive
attitude.

I think for me the worst part about grand mal (tonic clonic) seizures is feeling
that one is coming and having the fear that I have no control and when I come
out of a seizure if I have someone yelling at me (panicked) and I cannot yet
respond, it is frustrating.  So when I feel a seizure may be coming I lay down,
even if that means laying right on the floor, no matter where I am.  That way if
I do have a seizure, at least my body won't have to crash to the floor.  My
husband now knows not to yell at me when coming out of a seizure.

Welcome to our group and best wishes to you and your son.

Julie, Volunteer Webmaster
Epilepsy Foundation of Idaho
http://www.epilepsyidaho.org

Howdy Holly!

The only type of seizure that I'm aware of are simple partials.

To the best of my knowledge, if a person is having a partial seizure and
they are oblivious to the environment around them then BY DEFINITION they
are having a complex partial.

Since I don't get auras as a foreshadowing of T-C seizures, the only ways I
know that I had a T-C or a complex partial is if I hurt myself during the
seizure or if somebody tells me about it afterwards.

Hi Holly,
I have had epil since 8 month old. I remember that my sz's did increase
during my teenage yrs. the CP and the Generlized.
I have forwarded your response to my mom, who was a MSN.
Chris