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Medical Forum / Diseases and Disorders / Epilepsy / May 2005

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April Showers Bring May Flowers - 09 May 2005 20:39 GMT
good afternoon all i see blue spots all the time ive recently been
trying to stop smoking pot my neurologist told me it causes them  and
ive had so much surgery that the high isnt good any more its scary but
old habits are hard to quit i think because it has begun to scare me i
have cut down to a few drags a day compared to a couple 4 or 5 joints a
day when i have a seizure first i see a teal color with a orange color
then they get bigger and smeare i realize whats happening i try to break
my starring they  get bigger and spins like a cd then im blind from it
or i convulse and loose myself  my vision is bad to start with i need
friends im 33 mother of 2 wonderful boys please if anyone out there want
to make friends id like that allot nikki
owlvee - 09 May 2005 22:10 GMT
Nikki,
I smoked pot since Vietnam 1968 and when I got epilepsy a few years ago
I noticed that it seemed to help with my headaches afterwards. I did cut
back though thinking that it might be the reason for my petites. Now I
have stopped altogether because I am applying for SSI and don't want it
to be a reason for denial...
I never seen the spots that you mentioned but it sure helped my
headaches. I even mentioned it to my neuro and suggested to him and how
it helped my headaches and that if it were legal that it might help
other epileptics that have headaches.
He surprised me by saying that they make a liquid form of marijuiana
which was better for you because you didn't get the chances of lung
cancer that smoking caused.
I didn't even ask if it was legal here or not because as I said, I don't
want it to be on my records that I am smoking. It was on my records when
I applied for Medicaid and that is the first thing they brought up, not
even caring that I had seizures all the time, just making a big deal of
me smoking pot. Luckily the Medicaid Officer knew enough about it to
stiffle their case.
When I get the SSI case settled I will smoke again but probably not as
heavily....
~.~
owlvee

> good afternoon all i see blue spots all the time ive recently been
> trying to stop smoking pot my neurologist told me it causes them  and
[quoted text clipped - 7 lines]
> friends im 33 mother of 2 wonderful boys please if anyone out there want
> to make friends id like that allot nikki
April Showers Bring May Flowers - 10 May 2005 13:23 GMT
hey there good morning  well my boys are off to school  so i decided to
take a few drags off a joint cuzz ive always smoked since i was 12 now
33 i got to take 3 puffs before that odd tingling feeling i get that
scares me so much i noticed them before a seizure err it sucks but it
does scare me enough to put the joint out and also i been noticing this
when i wake up in the morning i see more clearer no blue spots  i took
my meds  and with in minutes they appeared  before i hit the joint i
take a generic nurotin 300 3 times a day depakote 500 twice a day and at
bed dilantin 100 3 capsules i was on topomax but wow it made me see cray
i live really far out away from any city and cant drive anymore since i
totalled my car and was injured beyond belief i am always bothering one
of my family members for a ride so its not easy to get to my dr. its sad
i make my reconstruction dr. a must cuzz there so far and hard to
schedule well i put the joint up just to be safe side you know i got a
pile of house work to do but to be honest id rather stay on my webby and
find a friend but seeings how i only got one reply yesterday im coming
to the conclusion i better go do my chores lol
G.Ross - 10 May 2005 15:25 GMT
Hi.  The range of pills you list below won't get to your Kidneys or Liver?
where ever they start getting absorbed for 2-4? hours after you take them.
Taking them at 8 AM and thinking they're 'working' at 830 or 9 AM (below
suggestion) is not them starting to work.  They just can't start that quick.
  If you're having breakfast etc. with the first pills, it's likely the
Blood Sugar or other effects starting to work first thing in the morning.
That's just a guess but I'd be *very surprised if any of those pills, *even
the Dilantin, would start to do anything much before it was past the
Stomach...
  Most of the anti ep drugs depend on taking them at a rate the Dr. sets
out and keeping to that rate to keep stable med. levels in your blood.

  We've only had one other woman here (1997) who used marijuana to control
her type of szrs. since none of the medicines that were out at that time
would help *her type (that I don't remember).
  I haven't seen anyone *else here combining Above with Anti Ep *PILLS
they're already being prescribed, so I don't know if they are interfering
with each other or to what degree they will.
  (More at ***s)

> hey there good morning  well my boys are off to school  so i decided to
> take a few drags off a joint cuzz ive always smoked since i was 12 now
> 33 i got to take 3 puffs before that odd tingling feeling i get that
> scares me so much
**** If you saw earlier posts that list Julie's Idaho website, at First Aid
for Seizures site, check what it says about Simple Partial Seizure Auras or
just Auras. Those *might be warning of a Pending Seizure *starting up.
 The stronger seizures often end in **loss of consciousness* so it's good
you put it out, as you could start a fire.  I worry about absences that
could be happening that you're not aware of (that's why they're called
'absences' -- we are conscious, but lose awareness of being awake or what
we're doing).  Those are ones where we could pose a danger to ourselves or
others. I don't know if those only happened to some of us, like my Complex
Partial ones in 1993-7, or if they also happen with Other types like Grand
mal.  But I could tell my the 'strange writing'  that *I had to have written
some stuff I had since I was the only one home that day.   *I found those
types the most Scary to deal with, as they meant *I* didn't know when they
started, what started them, or what could have happened while they were
happening.  (That's One reason some of the sites you might see suggest
getting Kettles or Auto Cookers that have an Auto Off setting, so we don't
have to worry about leaving them running if we pass out or have an absence
after they've started up.)   /

i noticed them before a seizure err it sucks but it
> does scare me enough to put the joint out and also i been noticing this
> when i wake up in the morning i see more clearer no blue spots  i took
> my meds  and with in minutes they appeared  before i hit the joint i
******************* SEE ABOVE ABOUT "within minutes" *****

> take a generic nurotin 300 3 times a day depakote 500 twice a day and at
> bed dilantin 100 3 capsules i was on topomax but wow it made me see cray
[quoted text clipped - 6 lines]
> find a friend but seeings how i only got one reply yesterday im coming
> to the conclusion i better go do my chores lol

G.  Do you remember Pill times and Which pills to take without help?
  Drugstores sell a 7-day Plastic Pill casex, if you sometimes forget if
you took one of the pills or not.  *I also had to keep a Diary page with 3
columns with the Date/day ,  Pill One (where I write the time of first 3
pills), and Pill two (where I write time of Night time (one)  Pill).   I
used to take these pages to Doctor appointments before my seizures were
controlled.  Since I had written when I had seizures and other auras or
feelings I had been having before the seizure happened I thought that might
help him, with my treatment.    *As it turns out, it helped me (remember to
take doses, watch my reactions etc.).  He already knew what the Aura of a
Complex Partial (what I had) looked like and the feelings *I Had at startup
were all described in Medical Literature, and most of symptoms are also
described in that First Aid site above,  or under the U.S. ep. foundation
site by seizure type -- http://efa.org.  .   G./
April Showers Bring May Flowers - 10 May 2005 16:18 GMT
i dont use to treat or control my seizures with the marijuana i think
they are causing them but im a addict so i hope to be able to stop
smoking (looking for friends)
                           thanx nikki
Patsy and Darryl - 11 May 2005 01:41 GMT
Hi Nikki,

It's great to have you on board, but without trying to sound like I'm
niggling - it would be much easier to read your posts if you use some
punctuation.....the occasional full-stop at the end of a sentence, a few
commas here and there. Lol.
However, it's great to have your input and you're a most welcome addition to
our group.

Cheers
Darryl.

> hey there good morning  well my boys are off to school  so i decided to
> take a few drags off a joint cuzz ive always smoked since i was 12 now
[quoted text clipped - 13 lines]
> find a friend but seeings how i only got one reply yesterday im coming
> to the conclusion i better go do my chores lol
Mary Fisher - 12 May 2005 16:20 GMT
> Hi Nikki,
>
> It's great to have you on board, but without trying to sound like I'm
> niggling - it would be much easier to read your posts if you use some
> punctuation.....the occasional full-stop at the end of a sentence, a few
> commas here and there. Lol.

I agree 100%. Newsgroups are about communication, if we see posts which are
difficult to read they're not communicating.

> However, it's great to have your input and you're a most welcome addition
> to our group.

Yes, but please try harder :-)

Mary

> Cheers
> Darryl.
[quoted text clipped - 16 lines]
>> find a friend but seeings how i only got one reply yesterday im coming
>> to the conclusion i better go do my chores lol
charlie and grace - 15 May 2005 05:16 GMT
you sure are taking alot of meds. I take 400 mill of dilantin a day. I smoke
also but it dosn't bother me. I have an avm
> Hi Nikki,
>
[quoted text clipped - 25 lines]
>> find a friend but seeings how i only got one reply yesterday im coming
>> to the conclusion i better go do my chores lol
charlie and grace - 22 May 2005 03:19 GMT
After I had my first siezure, I wasn't smoking pot at the time but a few
years later I started againg and went to an outside concert with 10,000
people and I got so paranoid, since I have been able to handle it.
> good afternoon all i see blue spots all the time ive recently been
> trying to stop smoking pot my neurologist told me it causes them  and
[quoted text clipped - 7 lines]
> friends im 33 mother of 2 wonderful boys please if anyone out there want
> to make friends id like that allot nikki
 
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