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Medical Forum / Diseases and Disorders / Epilepsy / May 2005

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Matthew Geliot - 08 May 2005 08:48 GMT
Helle, Ido apollogise for the two previouse tests sent toalt.support
epilepsy,it is the first time I have sent any
message to the internet, and I had no idea how before.

I have suffered from Grand- Mal Epilepsy for 36 years now. (since birth)
I began  taking  Leviteracetam only five years ago and for the first time,
there has been improvement
but nothing significant, only a change from  daytime seisures to nocturnal
seisures. It is only since I started on this new medication
(not long been out) called Pregabalin that I really really experienced any
change. I only started at the beginning of this year and almost immediately,
seisures were decreacing, from one every three nights to one every six
nights. I had only been on 150mg daily (600mg highest dose allowed)
                   I know that not all medication acts the same with
everyone, but I recommend it be tried. It is the first real time in my life
that I have seriously wanted to continue living,
                                               Matthew Geliot.
Julie - 10 May 2005 18:35 GMT
Welcome to the newsgroup Matthew.  That is awsome that the new medication is
helping you.

Take care,
Julie, Volunteer Webmaster
Epilepsy Foundation of Idaho
http://www.epilepsyidaho.org

> Helle, Ido apollogise for the two previouse tests sent toalt.support
> epilepsy,it is the first time I have sent any
[quoted text clipped - 13 lines]
> that I have seriously wanted to continue living,
>                                                 Matthew Geliot.
Sofia - 21 May 2005 01:32 GMT
> It is only since I started on this new medication
> (not long been out) called Pregabalin that I really really experienced any
[quoted text clipped - 5 lines]
> that I have seriously wanted to continue living,
>                                                 Matthew Geliot.

Hi Matt, welcome to the group, but although I'm a 39 year old female, who
has had many types of seizures since I was 9, I've still been on quite
a lot of tried and tested medication and experienced their side effects.

Since I've never heard of pregabalin though, I was wondering about how new
this drug was, and if it's still at a very early experimental stage,
whether it might have some very nasty side effects that doctors don't know
about yet. It does seem to be working a little too fast if you ask me,
so what I'm trying to say is just don't rush things too quickly until you
know a little more about this drug, and do ask your doctor about any side
effects you're getting, just until you know a little more about it.

Sofie

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