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Medical Forum / Diseases and Disorders / Epilepsy / May 2005im mad i lost my letter i was writing!!!!!!!!!!!!!!!!!!!!!!!!
i wasnt done not loling but uhuh kinda mad i didnt get to spell checker it errrrrrrr smiles all webtv i love too hate to or is it hate to love it i was a webtv addict before my crash i must of loved it now thank God i can see well enough to see and use it many prayers have been answered ok GROUP about the seizures as i try to remember it seems like i recall crying to my mom they would stop the reconstruction surgery swhich was 18 hours must of been in June i had the seizure 5 they called it granmal is all i know i dont know if it was from the stroke or i hear my family saying its like a boxers injury from banging my head i have had several since then ive been on different meds ok ill end with this ill never be the same and i do need support and encouragement cause i can always be better then who i used to be >i wasnt done not loling but uhuh kinda mad i didnt get to spell checker > it errrrrrrr smiles all webtv i love too hate to or is it hate to love [quoted text clipped - 8 lines] > never be the same and i do need support and encouragement cause i can > always be better then who i used to be Some types of seizures or injuries can get better by themselves, almost like self healing. Some types might need pills or other treatments to get better. The type of treatments that might work, you might find here from other people who have Grand Mal seizures, or other times the Doctor or Neurologist might know some things to try. If you had a Stroke during the operations those can sometimes make seizures worse, since the blood isn't flowing well to parts of our brain (that's what a stroke is). But it can also make parts of the brain not work properly, and give us seizures or fainting spells depending where it happens. There are other people here who have had Grand Mal seizures and others who had operations who might be able to help you, or give you some ideas that might help. That is different from the kind I have, so I don't have very much information about that kind. G./ (This kind of printing is easier to read too !! ) > i wasnt done not loling but uhuh kinda mad i didnt get to spell checker > it errrrrrrr smiles all webtv i love too hate to or is it hate to love [quoted text clipped - 8 lines] > never be the same and i do need support and encouragement cause i can > always be better then who i used to be Hi Nikki, I read your first post too. Congratulations on your recovery. The reasons or causes of most epilepsy is never found. It is true that injuries and certain illnesses can damage the brain enough to create a seizure disorder, but in many cases neither injury or illness can be determined. Sure nice to have you come to our newsgroup. Make yourself at home. Ask any questions you like, and we'll try to help you out. Barb Hi Nikki, welcome to our group. I have grand mal also called tonic clonic seizures. The doctors don't know why I have a seizure disorder, but they have done tests to make sure it is not a tumor. Thankfully I am at a point in my life where my seizures are under control by medication and by watching what I eat and listening to my body. When I need to rest, I rest, and I stay away from things that might trigger a seizure. May you continue to recover and cope with life. I like to think of it this way: like flowers we need to grow and bloom where we are planted. Take care, Julie, Volunteer Webmaster Epilepsy Foundation of Idaho http://www.epilepsyidaho.org > i wasnt done not loling but uhuh kinda mad i didnt get to spell checker > it errrrrrrr smiles all webtv i love too hate to or is it hate to love [quoted text clipped - 8 lines] > never be the same and i do need support and encouragement cause i can > always be better then who i used to be good morning julie nice to meet you i dont get to my neurologist often enough to know what kind of seizures are so i wanted to thankyou for your link about the idaho page my first seizure they called grand mal i had a few since but the last one i did call 911 the emt called it piet one im not sure the difference other then loss of bodily functions both times i couldnt control anything but first time i peed myself and was out of it all the way then they said i had 5 that night since then ive had several there awful hope i dont have another one well julie have a nice day and again ty for responding sincerely nikki Hi Nikki, not everyone has the loss of bodily functions, but for some that is what goes along with their seizures. So be prepared (have a change of clothing handy). Have you noticed any signs that indicate you are going to have a seizure? I get an aura, a funny feeling in my stomach and sometimes a dejavu feeling (I've done this before). Take care, Julie > good morning julie nice to meet you i dont get to my neurologist often > enough to know what kind of seizures are so i wanted to thankyou for [quoted text clipped - 6 lines] > a nice day and again ty for responding > sincerely nikki My name is Phil and I wondered if you know about the VNS (Vagal Nerve Stimulant for Epilepsy, which is a new way to try to reduce the amount of seizures. If you want more details, please ring us on 07798 796566 or ring FABLE who fund raise for this, on 0800 521629. They will be more than please to help you with this. Phil > Hi Nikki, welcome to our group. I have grand mal also called tonic clonic > seizures. The doctors don't know why I have a seizure disorder, but they [quoted text clipped - 24 lines] > > never be the same and i do need support and encouragement cause i can > > always be better then who i used to be Group: alt.support.epilepsy Date: Fri, May 13, 2005, 5:45am (EDT+4) From: PJE@blueyonder.co.uk (Philip John ELVIDGE) My name is Phil and I wondered if you know about the VNS (Vagal Nerve Stimulant for Epilepsy, which is a new way to try to reduce the amount of seizures. If you want more details, please ring us on 07798 796566 or ring FABLE who fund raise for this, on 0800 521629. They will be more than please to help you with this. Phil OMY is this 4 real!?! Orgasms cause muscles to jerk, and you cant control them till you stop what ever your doing thats causing them. why would this be beneficial!?! FREAKY Gee im embarrassed good thing none of yall can see me face to face. After reading abit more i aint sure where my brain was Group: alt.support.epilepsy Date: Fri, May 13, 2005, 5:45am (EDT+4) From: PJE@blueyonder.co.uk (Philip John ELVIDGE) My name is Phil and I wondered if you know about the VNS (Vagal Nerve Stimulant for Epilepsy, which is a new way to try to reduce the amount of seizures. If you want more details, please ring us on 07798 796566 or ring FABLE who fund raise for this, on 0800 521629. They will be more than please to help you with this. Phil OMY is this 4 real!?! Orgasms cause muscles to jerk, and you cant control them till you stop what ever your doing thats causing them. why would this be beneficial!?! FREAKY Look, April Showers (your real name would be more friendly) the VNS is used with benefit by many people here. It's not snake oil, it's a recognised medical method for helping epileptics. It also has nothing to do with orgasms (not that my muscles have ever jerked during one over 45 years). I'm wondering it you read "Vagal Nerve Stimulant" as "Vaginal Nerve Stimulant"? Mary |
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