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Medical Forum / Diseases and Disorders / Epilepsy / May 2005

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SSI and the Government- owlvee

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owlvee - 05 May 2005 07:47 GMT
I have been quarreling with others on an epilepsy group as to whether or
not I should be entitled to SSI since I am "only having seizures".
I have 2 or more grand mals a month and 2/3 or more petites a week. I am
58 and have applied for SSI. I am awaiting for a hearing now. The other
posting group has people that believe people with epilepsy should NOT
get SSI.
I have been arguing with them on the posting and probably will get
kicked off for doing so. I have referred them to this group.
So I expect to see them to come to this newsgroup to start a new
"conversation" about the whole thing....
So, here I will be...
Just waiting for them, sword drawn...
(and just for security an AK-47 on my hip)
~..~
owlvee
G.Ross - 05 May 2005 15:32 GMT
>I have been quarreling with others on an epilepsy group as to whether or
>not I should be entitled to SSI since I am "only having seizures".
[quoted text clipped - 11 lines]
> ~..~
> owlvee

 They're probably Phishers and you shouldn't be arguing with them anyway...
:-<   What possible business of their's would it be whether you qualify for
Insurance Coverage or not?  They aren't the ones who have to approve it or
would be trained in what conditions or health reports have to say for
approval to be considered....
  I'm not in U.S. but a few people posting 'here' a few years ago said they
sometimes had to apply 2 or 3 times (then) before they were approved.   They
sometimes got new forms, as they went through each Level, for their Doctors
to re-complete to apply for.
  And I *think there are 2 offices to apply to?  SSD and SSI?   "Howdy-1"
might know how the U.S. works... no one Else does...   :-<
   My type of brain damage that preceded C.P. Seizures, was "severe and
prolonged" (in 1981) and qualified for Canada Pension Disablity Coverage
then, dated *back to date of onset (1979).  The Epilepsy didn't start until
1993 in my case, so it wasn't part of my original application here.  G./
David Ruether - 05 May 2005 20:40 GMT
>>I have been quarreling with others on an epilepsy group as to whether or not I should be entitled to SSI since I am "only having
>>seizures".
[...]

>   I'm not in U.S. but a few people posting 'here' a few years ago said they sometimes had to apply 2 or 3 times (then) before they
> were approved.   They sometimes got new forms, as they went through each Level, for their Doctors to re-complete to apply for.

It is common in the US to be turned down the first time for SSD(isability),
but it varies from state to state. Taking a lawyer in helps a lot on the appeal,
as does having the doctor write a "cover" summation letter to go with the
innitial application (in addition to lab results, notes, etc.). There is very useful
information on the US SS web page on all this (they don't try to hide the
"good" ways to go about applying and getting SS - they are friendly folks
to deal with...!;-).

>   And I *think there are 2 offices to apply to?  SSD and SSI?   "Howdy-1" might know how the U.S. works... no one Else does...
> :-<

SSI is for people with difficulty making enough to live on (who may not
have an ailment) - SSD is for those with a disability that restricts working
ability (if I got it right...).

>    My type of brain damage that preceded C.P. Seizures, was "severe and prolonged" (in 1981) and qualified for Canada Pension
> Disablity Coverage then, dated *back to date of onset (1979).  The Epilepsy didn't start until 1993 in my case, so it wasn't part
> of my original application here.  G./

Bleah. But, did you get SSD here? BTW, here they back date payments to
time of first contact with SS, if you later are granted coverage.
--
David Ruether
G.Ross - 05 May 2005 21:28 GMT
>>>I have been quarreling with others on an epilepsy group as to whether or
>>>not I should be entitled to SSI since I am "only having seizures".
[quoted text clipped - 23 lines]
> working
> ability (if I got it right...).
***G* Thank you, I thought I had seen 2 different ones referred to here in
the past. /
>>    My type of brain damage that preceded C.P. Seizures, was "severe and
>> prolonged" (in 1981) and qualified for Canada Pension Disablity Coverage
[quoted text clipped - 5 lines]
> Bleah. But, did you get SSD here? BTW, here they back date payments to
> time of first contact with SS, if you later are granted coverage.
** No.  I'm in the wrong country.  The original poster, this thread, was in
U.S.
 Canada's are part of Canada Pension (Disability Pensions). Our's are
different than SSD.  I was only answering with as much as I 'picked up' from
others posting on the group over the years, until one of you came along to
give them correct information wrt U.S.
  In 1981 when it was approved, I got a check back to date the Doctors had
put as Date of Onset, or previous 12 months toward Encephalitis onset
(Organic Brain Syndrome).  That was a long time ago-- my Memory doesn't go
that far, and Recall was Worse than now by factor 100...    G. /
> --
> David Ruether
Dave ©¿©¬ - 05 May 2005 19:29 GMT
Howdy Owlvee!

What's the point in arguing about it?

Epilepsy IS recognized by the federal government as a qualifying disability.

When I got a lawyer for my appeal I told him about all of my other
conditions, his response was that as long as I have epilepsy and am having
seizures all of the other stuff is irrelavant.

Signature

Dave ©¿©¬

http://www.howdydave.com

> I have been quarreling with others on an epilepsy group as to whether or
> not I should be entitled to SSI since I am "only having seizures".
[quoted text clipped - 11 lines]
> ~..~
> owlvee
Tinker - 06 May 2005 04:11 GMT
: I have been quarreling with others on an epilepsy group as to whether or
: not I should be entitled to SSI since I am "only having seizures".
[quoted text clipped - 11 lines]
: ~..~
: owlvee

Get a lawyer that specializes in disability. It will take a while but if
your having that many seizures and interferes with your ability to work then
you should get it. Sometimes the process is hard, but once you have it it
can make life easier.

Tinker
CyberCafe - 06 May 2005 20:41 GMT
> I have been quarreling with others on an epilepsy group as to whether or
> not I should be entitled to SSI since I am "only having seizures".
> I have 2 or more grand mals a month and 2/3 or more petites a week. I am
> 58 and have applied for SSI. I am awaiting for a hearing now. The other
> posting group has people that believe people with epilepsy should NOT
> get SSI.

That last sentence is ridiculous.  There are always varying degrees of
disability.  I've known folks who can work, take care of their own needs
and so on, but then I know people who can't and never will be able to.

Would you mind sharing the address of that group?  I'd like to read some
of their comments.  If I'm cranky enough, I might give them a piece of
my mind : 0

Barb

> I have been arguing with them on the posting and probably will get
> kicked off for doing so. I have referred them to this group.
[quoted text clipped - 5 lines]
> ~..~
> owlvee
owlvee - 07 May 2005 01:52 GMT
http://groups.yahoo.com/group/epilepsy/

They made me quit talking about it but here is the addresss if you join
and you can go thru the messages.............
Julie - 07 May 2005 19:50 GMT
Thanks for the link.  The first post I saw was speaking against
phenobarbital.  One guy said he " would lay down and die b4 i would let
this drug come into my house."

What a stupid way of looking at things.  Yes, I have problems with words,
but at least I can function.  My neurologist (who happened to be the head
of the local Epilepsy Center) tried me on two of the newer medications and
they made me so sick, I felt like I had a very poor quality of life for
about a year.  I had so many side effects it was ridiculous.  Finally,
after a trip to the emergency room to stop my nausea from one of the new
meds, he said he wanted to put me back on phenobarbital, because it worked
for me, and he got it to a therapeutic level.

Yes, it is an old drug, but for some people that is what works for them.  I
don't see any point in posting this to the Yahoo group, I can see they
would just argue, so there you go.

We have your back, Owlvee.

Hope you get your SSI soon. ;-)

Take care,
Julie

> http://groups.yahoo.com/group/epilepsy/
>
> They made me quit talking about it but here is the addresss if you join
> and you can go thru the messages.............
 
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