*** I assume the Neurologist also knows of the other headache pills he has
used in the past.  I hope they're able to find a medicine that might help
him with the headaches and source of the pain.  If they can locate where the
migraines? or headaches come from they might be able to find a pill that
will target that area of the pain and reduce it.   Sometimes those can be
hard to find, especially since above tests didn't show any damage or other
problems that might be causing the pain.  (Often if there's a swollen blood
vessel, or other damage, that could cause the headaches and show up on an
MRI or Cat Scan -- then if they treated that area of the swelling (in that
example) the chances of having more seizures can be reduced. /

  The problem is me because I am so

*** Many of these seizure types can be harder on Family or Loved Ones that
on those of us having the seizures.   Is there a Local Epilepsy Association
near where you live?  Some of them might have a Weekly or Monthly Group for
Families of people with Seizures where you could get ideas about how to take
care of You through all this.  Especially if he's not sleeping properly
(since he's not controlled yet),   that will affect how well you can sleep.
Has his Doctor suggested any things you could try that might help you with
this?    You might have to sleep in a separate room so that his night
seizures don't disrupt *your sleep patterns, since you have to work.
    I had to get a Dental insert made  (called an Occlusal Splint) that
protects tongue and teeth, if we have a Night Time Seizure.    My Dentist
said for Kids they could get a Plastic Mouth Guard like Soccer or Hockey
players wear at Sporting Stores --- those cover both the Top and Bottom
teeth.  He only has to cover the Top teeth to protect teeth and tongue if he
has seizures at night.    So he can cut the Mouthguard in half
horitzontally so there are now *2 of them, and he only needs to use one.
   Above type should cost under about $30. if you can find them.   The
Dental version is about $200. because of the Dental Imprint cost, Lab cost
and the first Splint.   A second or third can be made for another ~$30.
before a new impression is usually taken (of his teeth that the Guard is
made from.)

.   (That's why the Sports Version is Cheaper, to see *first if something
like that will help him with Night Time seizures.   There would be no point
spending the extra Dental costs if the cheaper splints don't protect his
teeth and help him with night time seizures. If they help, and he wants a
better 'cushion' that helps keep teeth from grinding during the night the
Dental type works better.   If you have Dental Insurance (some places have
for employees or their families),  most of that cost might be paid by the
insurance --   I've had 80% to 100% paid depending on local (Canada)
Insurance company that was being used at the time.)

He had another seizure the other night and

***  What do you mean that each seizure is Different?   That Might mean that
the pills he's using are getting *better at controlling his seizures.
Sometimes they can take 2-3 weeks at a particular amount of pills in Morning
and at Night,   before our Body gets used to the new amount, then we sleep
better through the night,   or have less seizures durng the day.
   I wondered if these Different seizures you're describing above mean that
the Pills he's getting now from the Doctor, are starting to get better for
him.
   *Most of the pills, you shouldn't **Stop or Change when you take them
without the Doctor telling you.   Some pills, if he's to take them in
Morning and at Night, he should take exactly as the Doctor says, and not
*miss any doses or  not take them if he's feeling better.  He needs to take
them all the time, so that the Blood Level of the pill he uses **stays the
same** to work properly.   Also if the Doctor does any Blood tests,  they
are measuring how much medicine is in his Blood,  and if he doesn't take the
pills when he's supposed to,  the Doctor will tell him to take More Pills
than he needs,  if they think he's taking them correctly above.

    If you tell us which Pill Name he's using, there might be someone here
who uses the same kind of pills, and can tell him if there is anything to
watch out for with them.   (Tegretol that I use for example, shouldn't be
mixed with Alcohol or Grapefruit Juice.   Either of those will affect the
way my Tegretol works for me.  Other pills might have things like that, we
could tell you about if we know the pill names.)
   Some people don't read the group every day, so read these messages until
about Sunday to see if there are other replies to your message.   If you
have any other questions or new ones, ask them here too, as some people will
see them over the weekend and can answer them for you.
   People from Europe, North and South America, New Zealand and Australia
sometimes post here, so answers might come in over 2-3 days as different
parts of the world see your message.  G./

Hi Lynn, welcome to our group.  Sorry to hear about your husbands migraines
and seizures.  It could be that you can't sleep because you are so worried
and fearful about your future.  I hope that connecting with this group will
give you some support, but it would also be a good idea to gain as much
knowledge as possible about seizure disorders.  Knowledge is power.

Many of us have been coping with seizures for twenty, thirty, or more years
and some here are newbies, like yourself. When our seizures are controlled
(most by medication) we get to the point where we can drive again.  I've
gone without a tonic clonic seizure for 10 years now.  I still take my
medication and I have days when I feel like I need to take it easy and
listen to my body.

Do you live here in the U.S.?  The Epilepsy Foundation may have an
affiliate near you.  If you live in one of the other beautiful countries
represented by this international newsgroup, maybe they can tell you where
to find additional support.

Take care,
Julie Walton, Volunteer Webmaster
Epilepsy Foundation of Idaho
http://www.epilepsyidaho.org

It can take a long time to figure out what medication, combination of
meds, and dosage works best.  It took about a year in my case, and that
was without other health problems to work around.  They also try to
utilize the least amount of medication possible, so it can kind of be a
guessing game sometimes if the medication and dose will meet a person's
needs all the time.

Please stop worrying.  Actually, there is no reason to worry because the
MRI and CAT scan were fine.  He is in good hands and at least making
forward progress in getting all this resolved.  All you can do is learn
about your husband's type of epilepsy and then try to make (or have him
make) his environment safer.

Since he's not working, what is he doing?  Is he helping around the
house or what?  You might want to check with your county to see what
they offer in sheltered work opportunities (they generally provide the
transportation) or retraining in another occupation.  My brother-in-law
attended a hospital-sponsored retraining program and learned an
occupation he could perform from his home if he wanted.

Barb