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Patti - 25 Nov 2005 23:22 GMT

Hi all

My mother in law is presently in hospital with renal failure. She is
81 years old. It appears that she will be sent home this next week
but will have to go back into dialysis twice a week from now on. My
husband and I are trying to find information regarding the kind of
diet she should be following. As usual the dietician was useless!

Can anyone suggest a sensible newsgroup or website please?

I am asking because I have always found the people here absolutely
invaluable for advice and hopefully there will be another ng just as
helpful!
Patti
Penzance, Cornwall
On 19u Levemir @ 8pm and 9u Levemir @ 8 am
Novorapid as required
Perindopril, aspirin, Simvastatin,
300mg Quinine Sulphate & 75msg Thyroxin.
A1c 5.3

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Alan S - 26 Nov 2005 00:37 GMT

>Hi all
>
[quoted text clipped - 16 lines]
>300mg Quinine Sulphate & 75msg Thyroxin.
>A1c 5.3

Hi Patti

Try on asd. Dennis Rekuta, who posts there occasionally, has
had a transplant and was on dialysis prior to that IIRC.

I note from a search that he also posts on
alt.support.kidney-failure; that may be a group worth
subscribing to.

Good luck,

Cheers, Alan, T2, Australia.

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Everything in Moderation - Except Laughter.

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Ozgirl - 26 Nov 2005 10:30 GMT

>>Hi all
>>
[quoted text clipped - 25 lines]
> alt.support.kidney-failure; that may be a group worth
> subscribing to.

Actually I'd go straight there and skip asd personally ;)
Still get to see Dennis and a lot more folk.

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Alan S - 26 Nov 2005 00:47 GMT

>Hi all
>
[quoted text clipped - 16 lines]
>300mg Quinine Sulphate & 75msg Thyroxin.
>A1c 5.3

Hi Patti

A post-script.

A google groups search found this from Dennis in an old
thread from alt.support.kidney-failure. Looks like a good
group for you in these circumstances:

http://tinyurl.com/copog
Dennis Rekuta

Larry Krzewinski wrote:

>>Where can I get a diet book for a diabetic on hemodialysis, that is
>>low in potasium, phosphate and allows 500ml fluid allowance per day?
[quoted text clipped - 4 lines]
>>diet if there is such a thing.
>>Thanks

> There is a book that you can buy which will allow you to eat anything.
> In order to stay within the guidelines of a renal diet all you really
> need to know is exactly what is in anything you'd like to eat and
> adjust the portion size accordingly. I bought it and have recommended
> it to many others on dialysis. You can buy it directly from
> Amazon.com here:

> http://www.amazon.com/gp/product/0397554354/002-9788960-9425619?v=gla...

> All dieticians use "Bowes & Church's Food Values of Portions Commonly
> Used" as their bible on nutrition. It breaks down exactly what is in
> all foods, even frozen food and fast foods.

> In order for you to be able to use the book correctly you will need to
> ask your renal dietician exactly how many milligrams of potassium,
[quoted text clipped - 4 lines]
> eat. Once again, you can eat anything as long as you adjust portion
> size to remain within your renal guideline limits.

> Good luck to you. Bon appetite!

> Larry

The makers of E.P.O. (Epogen) also have some ready made
menus available
for download at:
http://www.epogen.com/patient/patient_info/educational_materials/dial...

Here is a list of some Renal Diet Resources at:

http://www.diet-i.com/renal-diet-support.htm

Dennis (Kidney Transplant 1995)"

Cheers, Alan, T2, Australia.

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Everything in Moderation - Except Laughter.

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Nicky - 26 Nov 2005 08:29 GMT

> Hi all
>
> My mother in law is presently in hospital with renal failure. She is
> 81 years old. It appears that she will be sent home this next week
> but will have to go back into dialysis twice a week from now on.

So sorry to hear this, Patti! Hope you work everything out without too much
strain on you and your husband!

No practical advice, I'm afraid - except for wondering if she might find
audio books and an MP3 player helpful for those dialysis sessions?

Nicky.

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A1c 10.5/5.6/<6 T2 DX 05/2004
1g Metformin, 100ug Thyroxine
95/73/72Kg

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Pete - 26 Nov 2005 11:10 GMT

>Hi all
>My mother in law is presently in hospital with renal failure. She is
>81 years old. It appears that she will be sent home this next week
>but will have to go back into dialysis twice a week from now on. My
>husband and I are trying to find information regarding the kind of
>diet she should be following. As usual the dietician was useless!

>Can anyone suggest a sensible newsgroup or website please?

>I am asking because I have always found the people here absolutely
>invaluable for advice and hopefully there will be another ng just as
[quoted text clipped - 6 lines]
>300mg Quinine Sulphate & 75msg Thyroxin.
>A1c 5.3

Sorry to hear of this. My Father died in 1996 after being on
a type of peritoneal dialyisis for nearly ten years
following total renal failure. I don't know much about it
other than this type of treatment allows less frequent trips
to the hospital but does involve a lot of home care and
might not be appropriate in your MIL circumstances.

If not already done - look into getting Attendance Allowance
and Transport Allowances. I am sure you will be informed
about this but its surprising how many never do. it will
help with the additional costs your family might incurr in
caring / assisiting with your MIL.

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Patti - 27 Nov 2005 18:18 GMT

Thanks all for your responses. Husband has checked out the websites
mentioned and I have visited alt.support.kidney-failure and done some
interesting reading!

>If not already done - look into getting Attendance Allowance
>and Transport Allowances. I am sure you will be informed
>about this but its surprising how many never do. it will
>help with the additional costs your family might incurr in
>caring / assisiting with your MIL.

Thanks for that Pete. Unfortunately, to complicate matters, MIL lives
in Welwyn Garden City, Herts. We live in Penzance, Cornwall, a 7
hour drive away. Her older son lives in Bognor and the younger one in
California but is just moving to Australia - my husband is the middle
one - but the one who always seems to be responsible for everything.

We managed to get Father in Law moved down here when he needed care
(divorced from MIL years ago), but I cannot see MIL agreeing to move
as she has many friends and a very active social life - or at least
she had a very active social life until being hospitalised. I am
hoping that she will be able to continue with her outings, if on a
more restricted basis (She has now cancelled her planned Nile cruise
scheduled for February!). Fortunately she has recently moved to a
warden assisted flat and the level of care seems to be quite intensive
if required, with them shopping/helping to bathe/cooking etc. But
nevertheless it is a huge worry being so far away!
Patti
Penzance, Cornwall
On 19u Levemir @ 8pm and 9u Levemir @ 8 am
Novorapid as required
Perindopril, aspirin, Simvastatin,
300mg Quinine Sulphate & 75msg Thyroxin.
A1c 5.3

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Pete - 03 Dec 2005 14:22 GMT

>Thanks all for your responses. Husband has checked out the websites
>mentioned and I have visited alt.support.kidney-failure and done some
>interesting reading!

>>If not already done - look into getting Attendance Allowance
>>and Transport Allowances. I am sure you will be informed
>>about this but its surprising how many never do. it will
>>help with the additional costs your family might incurr in
>>caring / assisiting with your MIL.

>Thanks for that Pete. Unfortunately, to complicate matters, MIL lives
>in Welwyn Garden City, Herts. We live in Penzance, Cornwall, a 7
>hour drive away. Her older son lives in Bognor and the younger one in
>California but is just moving to Australia - my husband is the middle
>one - but the one who always seems to be responsible for everything.

The allowance is irrespective of where you live etc and is
paid directly to the claimants account. It is there to cater
for payment for services - such as house cleaning dressing
etc - that the claimant needs help with.

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