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Medical Forum / Diseases and Disorders / Diabetes / January 2004

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Nerve Decompresson Surgery for Peripheral neuropathy

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Electro - 20 Jan 2004 19:05 GMT
Just spoke with a lady who recently had nerve decompression surgery for
peripheral neruopathy with good results.  Since I'm newly diagnosed with
diabetes (nov/03/T2) and my pn is recent I'm considering having it done.
Anybody have any comments?

Allan
dx'd 11/03
T2
Al Hardy - 20 Jan 2004 19:07 GMT
> Just spoke with a lady who recently had nerve decompression surgery
> for peripheral neruopathy with good results.  Since I'm newly
[quoted text clipped - 4 lines]
> dx'd 11/03
> T2

Just a question. Is this lady diabetic? Possible comment later.

Al.
Electro - 20 Jan 2004 19:19 GMT
> > Just spoke with a lady who recently had nerve decompression surgery
> > for peripheral neruopathy with good results.  Since I'm newly
[quoted text clipped - 8 lines]
>
> Al.

Yes, T2  diagnosed about 10 years ago and takes insulin.
Al Hardy - 20 Jan 2004 19:31 GMT
>>> Just spoke with a lady who recently had nerve decompression surgery
>>> for peripheral neruopathy with good results.  Since I'm newly
[quoted text clipped - 10 lines]
>
> Yes, T2  diagnosed about 10 years ago and takes insulin.

In that case, I would look into it very carefully and optimistically. Since
your lady friend has PN because of the beast, and you do, sounds at the
worst to be hopeful. I got serious PN in feet and fairly bad in fingers, so
I am going to do a web-search.

btw Are you in the UK? I am, and the NHS might not cover me.

Al.
Colleen - 20 Jan 2004 19:46 GMT
I hand ulnar nerve decompression surgery (both arms--six weeks apart) and
then was diagnosed diabetic a few months later.  I didn't know I was
diabetic when I had the surgery.  I think the surgery may have triggered the
diabetes.  I still get the tingling in my arms when under stress or having
problems with the BG.  I don't regret having the surgery, though.  I had an
excellent doctor and it was very successful.  My hands are working like new
again.  For an artists, that's kinda important.
c

> >>> Just spoke with a lady who recently had nerve decompression surgery
> >>> for peripheral neruopathy with good results.  Since I'm newly
[quoted text clipped - 19 lines]
>
> Al.
Al Hardy - 20 Jan 2004 19:59 GMT
> I hand ulnar nerve decompression surgery (both arms--six weeks apart)
> and then was diagnosed diabetic a few months later.  I didn't know I
> was diabetic when I had the surgery.  I think the surgery may have
> triggered the diabetes.

That is possible, afaik. But in view of the fact that t2 sometimes goes
undetected for over a decade before a complication brings it to light, I
suspect you were diabetic for a long time. I assume you are t2? I think I
remember that, otherwise I just made a fool of myself. It wouln't be the
first time lol

>I still get the tingling in my arms when
> under stress or having problems with the BG.

Yes, the bg has more to do with it than bp, again afaik.

> I don't regret having
> the surgery, though.  I had an excellent doctor and it was very
> successful.  My hands are working like new again.  For an artists,
> that's kinda important.

Yeah, it must be so. The only art-form I do is/was large-format photography,
but I can't even cock the shutter now, let alone depress the air-release.

Al.
Annette - 21 Jan 2004 11:11 GMT
> > I hand ulnar nerve decompression surgery (both arms--six weeks apart)
> > and then was diagnosed diabetic a few months later.  I didn't know I
[quoted text clipped - 6 lines]
> remember that, otherwise I just made a fool of myself. It wouln't be the
> first time lol

N,o you are probably quite correct. A lot of the damage from
hypoglycemia starts long before the person finally develops frank
diabetes.   To the extent that certain conditions are now being
looked at as indicators of the future development of T2.

> >I still get the tingling in my arms when
> > under stress or having problems with the BG.
> >
> Yes, the bg has more to do with it than bp, again afaik.

It seems to be so.  Raised bg does seem to affect pain levels in any
kind of neuropathic damage.

> > I don't regret having
> > the surgery, though.  I had an excellent doctor and it was very
[quoted text clipped - 5 lines]
>
> Al.

Sorry to hear that, Al.

I think you are quite right in looking into this possiblilty of
help.  Who knows, it might just do the trick for you?
I bet ANY improvement would be a bonus.

Annette
Al Hardy - 21 Jan 2004 13:23 GMT
>>> I hand ulnar nerve decompression surgery (both arms--six weeks
>>> apart) and then was diagnosed diabetic a few months later.  I
[quoted text clipped - 38 lines]
>
> Annette

I have done a small amount of web-searching and the surgery IS available on
the NHS, and they do not accept anything unless it is well-tested. As far as
diabetes is directly concerned, I found only one NHS team I trust, but for
the complications, neuropathy in this instance, I do trust them.

So I think, despite my spam-trigger being on a knife-edge, this looks
genuine and possibly helpful to me.

Al.
Bay Area Dave - 20 Jan 2004 20:48 GMT
how did surgery trigger your DM??

dave

  I think the surgery may have triggered the
> diabetes.
Colleen - 20 Jan 2004 21:07 GMT
The physical trauma of two general anethesia surgeries, being prescribed
Zyprexa, the shock to my body etc.  I was probably glucose intolerant before
the surgery (or diabetic for all I know) and the series of events triggered
my body into full diabetes.

Zyprexa has been strongly linked to diabetes.  They now have a black box
warning that anyone at risk should be screened for it and watched closely.
I think the surgeries so close together were just the proverbial straw that
broke tha camel's back.

Regardless, I'm now diabetic and have to deal with it.
c

> how did surgery trigger your DM??
>
> dave
>
>    I think the surgery may have triggered the
> > diabetes.
Electro - 21 Jan 2004 00:23 GMT
"Al Hardy" <a.hardy2@ntlworld.com> wrote in message

> In that case, I would look into it very carefully and optimistically. Since
> your lady friend has PN because of the beast, and you do, sounds at the
[quoted text clipped - 4 lines]
>
> Al.

Negative on UK, I live in California.
Julie Bove - 20 Jan 2004 21:32 GMT
> Just spoke with a lady who recently had nerve decompression surgery for
> peripheral neruopathy with good results.  Since I'm newly diagnosed with
> diabetes (nov/03/T2) and my pn is recent I'm considering having it done.
> Anybody have any comments?

Never heard of such a thing.  I do know that after my leg vein problem was
diagnosed, and the subsequent swelling went down, my pain decreased.  One
theory is that the swelling compressed my nerves.

Signature

Type 2
http://users.bestweb.net/~jbove/

Electro - 21 Jan 2004 00:33 GMT
> > Just spoke with a lady who recently had nerve decompression surgery for
> > peripheral neruopathy with good results.  Since I'm newly diagnosed with
[quoted text clipped - 4 lines]
> diagnosed, and the subsequent swelling went down, my pain decreased.  One
> theory is that the swelling compressed my nerves.

Julie, I live in California and the Doctor that does it lives in the
Woodland/Davis area. I did a search on the web for nerve decompression
surgery and came up with several hits regarding facilities that perform it
as well.  For what it's worth, I'll post the Doctors info.

If you wish, I can physically mail it to you or anyone else  the 4 page
document regarding nerve decompression surgery or copy it  with my flatbed
scanner and email the jpegs to you.

----------------------------------------------------------------------------
---------

Tracy Ferragamo, D.P.M, Physician & Surgeon of the Foot
619 Lincoln Ave.
Woodland, CA 95695
Tel & Fax: (530) 666-6000
----------------------------------------------------------------------------
------------------------

-Allan
Electro - 21 Jan 2004 00:39 GMT
A few links I found regarding the procedure

http://www.georgiafootdoctor.com/diabeticneuro.htm

http://www.universityfootcare.com/qst.html
Timmy - 21 Jan 2004 01:08 GMT
> A few links I found regarding the procedure
>
> http://www.georgiafootdoctor.com/diabeticneuro.htm
>
> http://www.universityfootcare.com/qst.html

In reading posts here and elsewhere on the 'net, the foot doctor link
contradicts a lot of what I've read about DPN. Many people note improvement
with neuropathy when their BG is under good control and many have said that
it's went away. The information on the georgiafootdoctor page seems like it
might scare someone into undergoing surgery that is very possibly not
necessary. Just a thought...
Electro - 21 Jan 2004 01:29 GMT
"Timmy" <noone@nowhere.net> wrote in message >

> In reading posts here and elsewhere on the 'net, the foot doctor link
> contradicts a lot of what I've read about DPN. Many people note improvement
> with neuropathy when their BG is under good control and many have said that
> it's went away. The information on the georgiafootdoctor page seems like it
> might scare someone into undergoing surgery that is very possibly not
> necessary. Just a thought...

Timmy, I've suffered with DPN for the last 5 months, it's onset was quick
and have only found marginal relief with neruotin and keeping a sharp
control on my BG. I agree the information seems a bit scary and the person I
spoke about who underwent the surgery received negative feedback from her
diabetic doc when when she asked him about it.  This Friday I will see my
doc and get her opinion regarding nerve decompression surgery.

Allan
DX 11/03
T2 DPN
Timmy - 21 Jan 2004 02:34 GMT
> "Timmy" <noone@nowhere.net> wrote in message >
>
[quoted text clipped - 18 lines]
> DX 11/03
> T2 DPN

Let us know what you learn. I have DPN too and only really have noticed it
after diagnosis (9/15/03) and lowering my BG. I looked into neurotin but my
doc and endo didn't seem like they wanted me to get on it; perhaps my DPN is
not so serious as to warrant it. It is uncomfortable though, especially at
night. I found relief through pain pills that I get off the street. I know
that's not kosher but they provide excellent relief and allow the insomnia
that's come with diagnosis much more managable. Thing is, you can't take
them all the time because of risk of becoming dependant. But, two or three
times a week is enough to get some rest and relief. Sometimes desperate
means call for desperate measures. Don't try this at home kids; try it at a
friends house!
Electro - 21 Jan 2004 03:08 GMT
"Timmy" <noone@nowhere.net> wrote in message

> Let us know what you learn. I have DPN too and only really have noticed it
> after diagnosis (9/15/03) and lowering my BG. I looked into neurotin but my
[quoted text clipped - 7 lines]
> means call for desperate measures. Don't try this at home kids; try it at a
> friends house!

It amazes me the difference of opinion from one doc to another. But then
again, I was  supposedly diagnosed with prostate cancer once and was ready
to undergo a painful prostate biopsy before getting a second opinion from
another doc who re-examined me and found a normal prostrate with normal PSA
levels.  That was 3 years ago and I am still doing fine in that area.

As far as the neurontin is concerned, it may have contributed to the 50
percent decline in DPN symptoms but then again maybe the lower BG level was
the reason.  At the start my A1c was 14.7 when I was originally diagnosed,
now it's  somewhere in the 7 to 9 range. My next A1c will be at the end of
February.
I'm sure both played a part but the simple fact is I still have it and it
prevents me from wearing socks with shoes and keeping my feet on top of the
covers at night.

I was getting extra relief with sodium naproxen, it helped ease the pain but
had to discontinue it's use due to blood tests indicating liver problems due
to long term use of it for my ankylosing spondylitis. (arthritis)
I have a script for vicodin, although it seems to dull the pain, it doesn't
stop the burning, just makes it tolerable.

Allan
DX 11/03
T2 DPN
Guy - 21 Jan 2004 03:29 GMT
I am guessing but I never received help from the
drugs some have reported as a help.  I also respond to
high blood sugar quickly.  I have always had good blood
flow in the extremities. I suspect there are different
components to the extremity pain problems.   From
posts it seems there is a direct effect by blood glucose
and maybe an effect cased by reduced blood flow.
Only a guess but plausible.  I have long noted the
different problems and things that helped some.
Anyone have any ideas?
                                  Guy  
TerryR - 22 Jan 2004 01:15 GMT
I am very curious, just where they would operate to relieve
PN in the feet?  I didn't think diabetic PN was caused by
nerve compression (pinched nerve). It would seem to me than
any nerve compression that would cause PN like symptoms of
the feet would the sciatic nerve, which would be very
different from PN.

TerryR
Type 2

> Just spoke with a lady who recently had nerve decompression surgery for
> peripheral neruopathy with good results.  Since I'm newly diagnosed with
[quoted text clipped - 4 lines]
> dx'd 11/03
> T2
 
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