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Medical Forum / Diseases and Disorders / Diabetes / May 2008

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New diagnosis = many questions

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Dancing Hypo - 02 May 2008 15:06 GMT
I have read the group for a couple of days
Here are my questions

I was diagnosed because of frequent dizzy spells which turned out to
be >>> Hypoglycemic episodes

I am in a family with a couple of diabetics cousins Type 1 and a few
older relatives with type 2

Here is my question

I am skinny -- took much convincing to show that while I weigh about
100 I do eat 3000-4000 calories a day -- hate food logs I NEVER knew
how much I eat until I had to journal yuk

I dance ballet, jazz or tap 3-4 hours a day plus am an active college
student

I think I eat right lots of veggies meat with 1 or 2 meals a day and
lots of water no sodas

I have PAGES of information

What should I do first the diet expert lady keeps acting like I don't
eat and so al she talks about is the need to eat -- I may video meals
so she can see I am NOT anorexic

If I have diabetes Type 2 why is my level low?

In the morning I have 120 to 145 before breakfast.

After I eat the 1 hour is usually 105 to 110 at 2 hours things get
wierd could be 180 could be 55

Should I eat a higher or lower percentage of carbs?

is more protien  the answer?

When do your finger tips start hurting like mad from testing

Have any of you ever cried just because you have to test ONE MORE time
before bed?

I am not usually so needy but this is major weird stuff  My parents
are more freaked out then I am so they are no help and my family doc
says there is no way I have this problem because I am skinny active
and young

HELP

Lisa
Andrew B. Chung, MD/PhD - 02 May 2008 15:19 GMT
> I have read the group for a couple of days
> Here are my questions
>
> I was diagnosed because of frequent dizzy spells which turned out to
> be >>> Hypoglycemic episodes

This would suggest that you are insulin resistant because of visceral
adipose tissue (VAT), which can be colorfully described as black fat:

http://HeartMDPhD.com/BlackFat

> I am in a family with a couple of diabetics cousins Type 1 and a few
> older relatives with type 2
>
> Here is my question
>
> I am skinny

Small petite frame people with black fat often have skinny arms and
legs while having a small pot belly (VAT) that is barely noticeable.

> -- took much convincing to show that while I weigh about
> 100 I do eat 3000-4000 calories a day

It is when we are overeating that we accumulate black fat.

Therefore, it remains much smarter to eat less, down to the right
amount:

http://HeartMDPhD.com/BeSmart

For small frame people, this paradoxically results in weight gain
because the black fat has been causing muscle atrophy and when the
black fat is gone, muscle regain their strength with increased mass.

<><

http://HeartMDPhD.com/HolySpirit/Counsels
ray - 02 May 2008 15:53 GMT
> I have read the group for a couple of days Here are my questions
>
[quoted text clipped - 45 lines]
>
> Lisa

I'm certainly no doc and no expert, but it seems to me that if you eat
that much and weigh that little there must be some other things wrong as
well. Have you had a full physical recently?
Priscilla H. Ballou - 02 May 2008 18:23 GMT
> > I have read the group for a couple of days Here are my questions
> >
[quoted text clipped - 49 lines]
> that much and weigh that little there must be some other things wrong as
> well. Have you had a full physical recently?

I think it's well explained when she said:

> > I dance ballet, jazz or tap 3-4 hours a day plus am an active college
> > student

Priscilla
Dancing Hypo - 03 May 2008 07:17 GMT
> > I have read the group for a couple of days Here are my questions
>
[quoted text clipped - 49 lines]
> that much and weigh that little there must be some other things wrong as
> well. Have you had a full physical recently?

full physical -- don't think the med school has any tests I haven't
had in the last few weeks

Dance major -- the calories I logged are probably a little less than
normal the weirdness has kept me from going 100% most days I get about
4 - 4 1/2 hours physical workout some days -- no school even more
climbing or skiing

sorry my first post was very scattered  I knew if I started editing
I'd never post

Lisa
Julie Bove - 02 May 2008 16:14 GMT
>I have read the group for a couple of days
> Here are my questions
[quoted text clipped - 22 lines]
> eat and so al she talks about is the need to eat -- I may video meals
> so she can see I am NOT anorexic

Gee, you are describing how I used be.  I hated being accused of being
anorexic when I was eating like a pig and trying to gain just a pound or
two.

> If I have diabetes Type 2 why is my level low?

Level of what?  Why are you getting hypos?  Because type 2 often starts out
as reactive hypoglycemia.

> In the morning I have 120 to 145 before breakfast.

Could be a bit lower.

> After I eat the 1 hour is usually 105 to 110 at 2 hours things get
> wierd could be 180 could be 55

Interesting.

> Should I eat a higher or lower percentage of carbs?

Probably lower, but what are you eating now?

> is more protien  the answer?

Not  necessarily.

> When do your finger tips start hurting like mad from testing?

Mine never did.

> Have any of you ever cried just because you have to test ONE MORE time
> before bed?

I don't think so.

> I am not usually so needy but this is major weird stuff  My parents
> are more freaked out then I am so they are no help and my family doc
> says there is no way I have this problem because I am skinny active
> and young
>
> HELP

I am guessing that you might not really have type 2 if you are thin. But
there are some thin type 2's.  Have you seen an Endocrinologist?  If not,
you should.
Michelle C - 02 May 2008 20:31 GMT
Hi Lisa,
   Here is why you get low BGs when you're Type 2:
   When a person eats something carby, a non-diabetic's body takes care of
the sugar load immediately, so there is no rise in BG.  In Type 2s, the body
does not take care of the carb load, (no 1st phase insulin) so the blood
sugar starts rising.  Finally, the body gets it in gear to tackle the high
BG, and puts out extra insulin, which slams the BG into the low territory,
and makes you feel like crap.
   In answer to what you should eat, I would avoid foods likely to cause
hypos, which probably include foods made with white flour--breads, pasta,
pastries--rice, fruit juice (has as much sugar as a soda), and potatoes.
However, everyone is different, so you need to test each meal and snack at 1
and 2 hours to see exactly what's happening with your BG, then reduce or
eliminate any foods that spike you.  Check this out:
http://www.alt-support-diabetes.org/newlydiagnosed.htm  It gives detailed
instructions on how to figure out which foods are right for you.  Your diet
sounds fairly reasonable, but you may be eating something that you *think*
is all right, but is still spiking your BG.  For example, a lot of
dieticians recommend brown rice over white rice.  For some people this
works, but for me, I still get a BG spike when I eat brown rice.
   It's also best to eat about 6 times a day--3 small meal and 3 snacks.
This lessens the load on your pancreas.
   Hopefully, Alan will come along and give you information about painless
BG testing.  If he doesn't see this post, ping him.
   Your family doc is wrong.  With fasting numbers like you're getting
you're diabetic--unless you're taking a steroid that's elevating your
numbers.  It's a myth that all Type 2s are fat.  I'm not either.
   Hang in there, Lisa.  You'll get the hang of this.  It's not the end of
the world.  And don't hesitate to ask questions and/or vent.  That's what
we're here for.
Signature

Best regards,
Michelle C., T2
diet & exercise
BMI 21.5

>I have read the group for a couple of days
> Here are my questions
[quoted text clipped - 47 lines]
>
> Lisa
Nicky - 02 May 2008 21:16 GMT
>What should I do first the diet expert lady keeps acting like I don't
>eat and so al she talks about is the need to eat -- I may video meals
>so she can see I am NOT anorexic

The problem with dieticians is that every person's diabetes is
different - and they go by averages. You don't sound average.

>In the morning I have 120 to 145 before breakfast.

That's a bit high. Is it higher than your bedtime reading? Do you
exercise before breakfast?

>After I eat the 1 hour is usually 105 to 110 at 2 hours things get
>wierd could be 180 could be 55

The 1-hour sounds good. The 2-hour sounds like you're going too high,
then crashing - that's the Reactive Hypoglycemia. Is a PITA - we have
a few people who've controlled it; Jan (Ozgirl), Trinkwasser, or one
of the others will be along in a bit. There are diet tricks that are
worth trying.

>When do your finger tips start hurting like mad from testing

If they hurt, you're doing it in the wrong place. If you're doing it
on the pads, try the side - or vice versa! Rotate around all 10, give
'em a chance to recover.

>I am not usually so needy but this is major weird stuff  My parents
>are more freaked out then I am so they are no help and my family doc
>says there is no way I have this problem because I am skinny active
>and young

Don't worry about being needy! We all know what diagnosis feels like,
and it's freaked all of us out. There will be light at the end of the
tunnel... Your family doc might be out of his depth, because you sound
atypical. Can you get to an endocrinologist?

Nicky.
T2 dx 05/04 + underactive thyroid
D&E, 100ug thyroxine
Last A1c 5.6%  BMI 25
Trinkwasser - 02 May 2008 22:41 GMT
>I have read the group for a couple of days
>Here are my questions

Hopefully you've seen this then

http://www.alt-support-diabetes.org/NewlyDiagnosed.htm

Some other interesting stuff

http://www.sequin.pwp.blueyonder.co.uk/Downloads/openlet.htm

http://www.bloodsugar101.com/

http://www.dsolve.com/

http://www.medscape.com/viewprogram/145

(Medscape is well worth signing up to as long as you check who
sponsors their CME papers, some are excellent updates of current
leading-edge opinion, others are thinly disguised advertising flyers)

>I was diagnosed because of frequent dizzy spells which turned out to
>be >>> Hypoglycemic episodes
[quoted text clipped - 40 lines]
>says there is no way I have this problem because I am skinny active
>and young

Check out Jenny's site above. she has some information on MODY.

It may not be that though, in my family there appears to be an insulin
resistance syndrome negatively associated with overweight, I'm skinny
and quite fit and on the borderline between diabetes proper, impaired
glucose tolerance and reactive hypoglycemia (RH is often a kind of
precursor to Type 2 where you can still generate plenty of insulin but
the timing is all wrong, there are not a few of us here)

In retrospect I've had blood glucose problems all my life which have
only slowly gotten worse. One of my cousins is even fitter and more
active and has started to get similar symptoms on his sixties. One of
his daughters is getting more severe symptoms in her thirties - and
she's an actual *athlete*. The full diabetics in the family are
usually poorly controlled which is why I'm trying to get a handle on
this NOW.

I went through the same crap with doctors writing me off as "neurotic"
"hypochondriac" etc. and only by testing my BG after meals did I get a
handle on what was actually occurring, and by using the tests to
determine what not to eat (which was principally Healthy Whole Grains)
I have beaten my BG into normal levels most but not all of the time.

What is your blood pressure like? Again like the BG you can buy your
own meter and the advantage is it doesn't take expensive test strips,
only occasional cheap batteries.

Also you need to get your lipids checked, the classic sign is high LDL
cholesterol, low HDL and sky high triglycerides.

With your family history there's undoubtedly some risk factor.

My specific numbers are a maximum of 15g carbs at breakfast, 30g (50g
on occasion) in the evening, 15g again at night and somewhere between
60 - 100g over the whole day. With your level of exercise you may be
able to manage more, and the ratio through your day may differ.

Stick with it, hopefully you're not yet too damaged and once you can
detect a pattern from your testing and actually learn how to improve
your numbers you can probably cut back on the testing when things
become more predictable.
Ozgirl - 03 May 2008 01:51 GMT
My first question, how on earth do you fit 3-4000 calories into 1-2 meals??

Ok, you don't keep a food log but how about just writing in here what you
ate yesterday, from rising to bed.

To keep bg's stable you need to eat more often and less. I eat 8-9 times a
day with lunch and dinner being the "biggest" even though lunch is usually
plain animal protein and salad and dinner is animal protein and low starch
vegetables.

>I have read the group for a couple of days
> Here are my questions
[quoted text clipped - 47 lines]
>
> Lisa
Dancing Hypo - 03 May 2008 04:25 GMT
WOW thanks for the information!!!

Sorry to kick things off in the middle of my PITY PARTY but thanks for
all your understanding comments

A few things to clarify  so many posts I try to just answer all here

I am seeing an endocrinoloist (sp?)  and next week another endo for
more tests I guess
my family internist is the only doc who doubts I am having glucose
level problems

I eat 4 to 6 times a day but usually only eat meat once or twice -- I
can't imagine eating all that in 1 or 2 meals either.

The last 2 weeks I had to keep a food log for the PA who does the
nurition counseling and also to let the doc know I DO EAT FOOD

before bed my range is 85 to 100 most of the time and bed is usually 3
hours or more after last meal.

Probably I eat a few more calories when I am not doing the dizzy
queasy thing but I burn them off withh dance, intramurals and rock
climbing, skiing

As for the fat thing I am 5' 9" just went to the gym I weighed 102
pounds and as egotistical as this sounds there is no extra fat --
muscle yes I work to keep my body fat high enough so I don't miss
periods but there is no fat in my midsection  Doc told me I am a rare
truely skinny person with diabetes issues.

As far as they can tell my other systems are fine thyroid, cardio
echo, eeg, ekg and vaious scans and such  --- no tumors, no
infections
all my other lab tests are great to normal at the gym I checked my BP
before swimming 110/70, pulse resting was 45 to 55 I am not good at
the whole "rest" thing   The HDL / LDL and ratio stuff was very good
doc envies my numbers -- I will get them when I am in next time
I am rotating fingers now -- I hate needles and the first 3-4 days it
took a couple of sticks to get blood -- like I said sorry for the pity
post:)

I have never been sick other than one or two colds and even then 3
days and back to normal. Always thought I had won the genetics lottery
Strong bones, muscles, parents who love me win, lose, or draw and good
teachers who taught me how to take care of my body -- my favorite
teachers rule #1 "Every day your body needs you to feed it, rest it,
stretch it, work it, rest it then repeat daily for 70 or 80 years"

I have discovered some foods that make the up down rollercoaster
really go -- rice all kinds :( bread other than a oat, flaxseed, nut
muffin --my favorite so that is good!  Fruits are a real puzzle
cherries, plums and pears are no problem but apples, bananas and
grapes are way up way down.  trying to mix up meals cheese with fruit,
vegies with meat or dairy, etc.  I feel like I am a science fair
project

I thank you all for your posts and I know to make sure advice
suggestion from "strangers" needs to be checked with real people.

I am so thankful you are all ready to share your life with diabetes
with one of those who never thought it could happen to "me"

Lisa
Alan S - 03 May 2008 07:19 GMT
>The last 2 weeks I had to keep a food log for the PA who does the
>nurition counseling and also to let the doc know I DO EAT FOOD

It may help others comment if you post a day's log.
Preferably pick a day when you did some BG tests so we can
relate those to the menu timing.

Cheers, Alan, T2, Australia.
d&e, metformin 1500mg, ezetrol 10mg
Everything in Moderation - Except Laughter.
--
http://loraldiabetes.blogspot.com
Latest:Is Testing Worthwhile?
and Cambodia
http://loraltravel.blogspot.com/2008/03/cambodia.html
DonnaB shallotpeel - 03 May 2008 07:39 GMT
On Fri, 2 May 2008 20:25:51 -0700 (PDT), in
<1000f2ee-ed1e-4755-a602-2122f5620f95@l64g2000hse.googlegroups.com> Dancing
Hypo <lisalennic@gmail.com> wrote:

>As for the fat thing I am 5' 9" just went to the gym I weighed 102
>pounds

How often do you weigh yourself?

>and as egotistical as this sounds there is no extra fat --
>muscle yes I work to keep my body fat high enough so I don't miss
>periods

You feel like you have to work to maintain enough body fat to have periods?
Have you had any period of time in the past where you stopped having periods?

>As far as they can tell my other systems are fine thyroid,

Sorry I asked you about your thyroid before I saw that it was included here.

>I have discovered some foods that make the up down rollercoaster
>really go -- rice all kinds :( bread other than a oat, flaxseed, nut
[quoted text clipped - 3 lines]
>vegies with meat or dairy, etc.  I feel like I am a science fair
>project

So, in addition to having roller coaster BGs, you are also having roller
coaster symptoms like nausea? What other symptoms go along with it?

What do you mean about nut muffins being your favorite & that it is a roller
coaster food for you?

But, if you really are a T2, then, it would be what many of us have
experienced in that different foods cause us to spike or not spike & that that
is very individualized. And, that is a pain! LOL  Because then there's no
possible 'list' of spike foods and non-spike foods!

Signature

: ^> DonnaB Yahoo Msgr: shallotpeel <*>  http://tinyurl.co.uk/h193
http://tinyurl.co.uk/wdp8  http://tinyurl.co.uk/byv9

"All men dream: but not equally. Those who dream by night in the dusty
recesses of their minds wake  in the day to find that it was vanity: but the
dreamers of the day are dangerous men, for they may act  out their dream with
open eyes, to make it possible." - T.E. Lawrence

Priscilla Ballou - 03 May 2008 16:32 GMT
> >I have discovered some foods that make the up down rollercoaster
> >really go -- rice all kinds :( bread other than a oat, flaxseed, nut
[quoted text clipped - 9 lines]
> What do you mean about nut muffins being your favorite & that it is a roller
> coaster food for you?

I think she said that bread *other* than said muffin is a roller coaster
food (i.e. sends her up and then down).

Priscilla
DonnaB shallotpeel - 04 May 2008 13:34 GMT
On Sat, 03 May 2008 11:32:44 -0400, in
<vze23t8n-11E8D3.11324403052008@individual.net> Priscilla Ballou
<vze23t8n@verizon.net> wrote:

>> >I have discovered some foods that make the up down rollercoaster
>> >really go -- rice all kinds :( bread other than a oat, flaxseed, nut
[quoted text clipped - 12 lines]
>I think she said that bread *other* than said muffin is a roller coaster
>food (i.e. sends her up and then down).

Gotcha! Thanks. I just couldn't parse it, whether it was this way or that way.
Signature

DonnaB shallotpeel : ^> USA <*> new WIN Vista user
06-07-06 Diagnosis T2 HbA1c 8.1, D&E & Metformin 500mg
Current ................... HbA1c 6.3

"Believe those who are seeking the truth; doubt those who find it." - Andre
Gide

Dancing Hypo - 03 May 2008 23:38 GMT
> On Fri, 2 May 2008 20:25:51 -0700 (PDT), in
> <1000f2ee-ed1e-4755-a602-2122f5620...@l64g2000hse.googlegroups.com> Dancing
[quoted text clipped - 4 lines]
>
> How often do you weigh yourself?

someone asked about weight and since I was near a scale at the gym I
weighed other than doctor's office I can't remember the last time I
weighed myself

> You feel like you have to work to maintain enough body fat to have periods?
> Have you had any period of time in the past where you stopped having periods?

As a dancer one of the downsides can be letting body fat get so low
menstral cycles and other hormones go nuts
I have always had regular -- like 28 to 29 day cycles like my hormones
have ocd :)

Both family doc --BTW I got an email from him today appologising he
spent the last week reading and consulting with endos etc and now
agrees with my diagnosis.  His email was very nice -- I've known him
my whole life and he thanked me for making him get up to date I think
he has a few paitients who  are getting calls this week to come in for
some followups  So my diabetes has caused one doc to learn more --YEAH
TEAM OOH RAHH

my doc and most of my post puberty dance teachers were big on eating
well fuling the body and not letting me over exercise or under eat
Funny until this I had never thought about how much the teachers
focused on health.

When I was having the hypos I felt queasy In the last week I have only
had one time tested was at 72 ate a coupe of ounces of walnuts   I
keep

The oat/ flax/ nut muffin is my friend I can eat a muffin with yoghurt
or cheese and drink milk and the BG level is great 106 to 110 at 1
hour and 90 to 98 at 2 hours

I left my food jouirnal with the PA nutritionist but I'll post a day
when I get it back tuesday

for now I test right  before breakfast 1 hour after and 1.5 to 2 hours
before I have a snack hae added nuts and cheese to what used to be a
couple of pieces of fruit Some one mentioned peanut butter I am going
to try that with bananas to see if I can keep my bananas I am about
the a half a banana and a couple of tblspoons of peanut butter right
now I am at 94 we will see what happens

Adding protein to all tiems I eat does seem to make things stay move
even

Thanks for all the info form everyone
Lisa
Nick Cramer - 03 May 2008 08:25 GMT
> WOW thanks for the information!!!
>
> Sorry to kick things off in the middle of my PITY PARTY but thanks for
> all your understanding comments
[ . . . ]
> I am so thankful you are all ready to share your life with diabetes
> with one of those who never thought it could happen to "me"

You've got a great attitude, Lisa, despite you understandable pity party.

Just think of it a class 6 pitch, not an overhanging sand dune. ;-)

Signature

Nick. Support severely wounded and disabled Veterans and their families!
I've known US vets who served as far back as the Spanish American War. They
are all my heroes! Thank a Veteran and Support Our Troops. You are not
forgotten. Thanks ! !             ~Semper Fi~

Dancing Hypo - 03 May 2008 23:52 GMT
> > WOW thanks for the information!!!
>
[quoted text clipped - 13 lines]
> are all my heroes! Thank a Veteran and Support Our Troops. You are not
> forgotten. Thanks ! !             ~Semper Fi~

My climbing is mostly walls and nice easy places  always not the first
one up I let the crazy folks go first <G>

can't do the really hard stuff I am afraid of heights  climbing is
like a self powered adventure ride  besides once you get to the top
the view is great!  I don't like the rockies for skiing for the same
reason love the view from the lift the admission cost is making it
down the mountain :)

I am getting used to my meter as a safety line -- how people did this
without meters or if they can only test a few times a day is beyond
me.

Right now I am testing as many as 20 times a day until I findout what
dfferent foods do to / for my

The lady at walmart keeps telling me it is nice of me to pick up my
mother's strips I have stopped trying to correct her.  After a few
months she may figure it out

My grandpa is a Marine -- not currently on active duty  early lesson
there is no such thing as a retired Marine

Thanks for your help

Lisa
Michelle C - 04 May 2008 00:11 GMT
> me.
>
> Right now I am testing as many as 20 times a day until I findout what
> dfferent foods do to / for my

Hi Lisa,

Once you get it all figured out, you'll be able to reduce the number of
times you test significantly.  This phase where you're learning which foods
do what is so crucial.  You should give yourself a big pat on the back for
meeting it head-on.  Good job!
Signature

Best regards,
Michelle C., T2
diet & exercise
BMI 21.5

Alan S - 04 May 2008 00:21 GMT
>Right now I am testing as many as 20 times a day until I findout what
>dfferent foods do to / for my

You probably don't need to test quite that often.

Review the tests you've been doing, related to your food, to
see if you can see when you are peaking after meals. It
varies for all of us but it is likely to be approximately
one hour after you finish the meal or snack.

Once you've discovered that timing, you can concentrate on
that. I only bother checking further if that test is
unexpectedly different from my expectations.

Read these again, they may also help you structure your
testing more systematically:
http://www.alt-support-diabetes.org/NewlyDiagnosed.htm
and
http://loraldiabetes.blogspot.com/2006/10/test-review-adjust.html

Cheers, Alan, T2, Australia.
d&e, metformin 1500mg, ezetrol 10mg
Everything in Moderation - Except Laughter.
--
http://loraldiabetes.blogspot.com
Latest:Is Testing Worthwhile?
and Cambodia
http://loraltravel.blogspot.com/2008/03/cambodia.html
Nick Cramer - 04 May 2008 10:21 GMT
> > > WOW thanks for the information!!!
> >
[quoted text clipped - 8 lines]
> >
> > Just think of it a class 6 pitch, not an overhanging sand dune. ;-)

> My climbing is mostly walls and nice easy places  always not the first
> one up I let the crazy folks go first <G>
[quoted text clipped - 4 lines]
> reason love the view from the lift the admission cost is making it
> down the mountain :)

I started rock climbing in the Shawangunks, near New Paltz, NY, on Class
3's. Worked my way up to 5's. I've fallen off some of the best climbs in
the country! Climbing partner always snubbed me up.

"On belay?" "Yes." "Climbing" "Climb." The joke would be "Falling." "Fall!"
(Fondly remembering the 50's and 60's)

> I am getting used to my meter as a safety line -- how people did this
> without meters or if they can only test a few times a day is beyond
[quoted text clipped - 6 lines]
> mother's strips I have stopped trying to correct her.  After a few
> months she may figure it out

> My grandpa is a Marine -- not currently on active duty  early lesson
> there is no such thing as a retired Marine

There are Retired Marines, Lisa. There are no EX Marines. I salute your
Grandfather. TEN-HUT!

Signature

Nick. Support severely wounded and disabled Veterans and their families!
I've known US vets who served as far back as the Spanish American War. They
are all my heroes! Thank a Veteran and Support Our Troops. You are not
forgotten. Thanks ! !             ~Semper Fi~

Nicky - 03 May 2008 14:21 GMT
>I am seeing an endocrinoloist (sp?)  and next week another endo for
>more tests I guess

Excellent.

>before bed my range is 85 to 100 most of the time and bed is usually 3
>hours or more after last meal.

Right, so if you're getting higher readings before breakfast, you're
getting something called Dawn Phenomenon - your liver thinks you're
going too low overnight, and is "helpfully" making a bunch of glucose
to see you right. A bedtime snack of something a little carby, fatty
and protein-rich might help - the classic is some PB on a couple of
crackers. If you're old enough, a glass of wine helps too.

>my favorite
>teachers rule #1 "Every day your body needs you to feed it, rest it,
>stretch it, work it, rest it then repeat daily for 70 or 80 years"

Cool rule : )

>I feel like I am a science fair
>project

Yup, you are :D The prize is figuring out how to control this diabetes
thing so you can get on with your life. Sounds like you're making a
great start!

Nicky.
T2 dx 05/04 + underactive thyroid
D&E, 100ug thyroxine
Last A1c 5.6%  BMI 25
Dancing Hypo - 03 May 2008 23:55 GMT
> On Fri, 2 May 2008 20:25:51 -0700 (PDT), Dancing Hypo
>
[quoted text clipped - 31 lines]
> D&E, 100ug thyroxine
> Last A1c 5.6%  BMI 25

Just learning about the dawn thing

don't drink -- I am flakey enough without any thing extra
nuts and cheese at bedtime have been making the morning hit 102 to 112
so I think it helps nurse says while I am changing how I eat my liver
haas to "learn new rules" for protecting my brain from hypos

Thanks for your suggestions  so many folks I am amazed

Lisa
Michelle C - 03 May 2008 19:27 GMT
Hi Lisa,

> WOW thanks for the information!!!
>
> Sorry to kick things off in the middle of my PITY PARTY but thanks for
> all your understanding comments

HA!  You're not the only one by far whose had a pity party here.  We've all
been where you are now.  :-)

> A few things to clarify  so many posts I try to just answer all here
>
> I am seeing an endocrinoloist (sp?)  and next week another endo for
> more tests I guess

Good!

> my family internist is the only doc who doubts I am having glucose
> level problems
>
> I eat 4 to 6 times a day but usually only eat meat once or twice -- I
> can't imagine eating all that in 1 or 2 meals either.

If I were you, I'd add a smidge of protein to most meals/snacks.  Why?
Because 58% of protein gets converted to glucose, but it happens very slowly
and will not cause a spike.  Due to your level of activity you need the
glucose, but not all in one shot--otherwise you get the dreaded BG
rollercoaster effect.

> The last 2 weeks I had to keep a food log for the PA who does the
> nurition counseling and also to let the doc know I DO EAT FOOD
[quoted text clipped - 10 lines]
> muscle yes I work to keep my body fat high enough so I don't miss
> periods but there is no fat in my midsection

You're one of the 4% of women naturally built like a model.

Doc told me I am a rare
> truely skinny person with diabetes issues.

Think about Halle Berry.  She is a Type 2 also.

> As far as they can tell my other systems are fine thyroid, cardio
> echo, eeg, ekg and vaious scans and such  --- no tumors, no
[quoted text clipped - 21 lines]
> vegies with meat or dairy, etc.  I feel like I am a science fair
> project

Perfect description!  We have all said that we are own experiment.  Sounds
like you're starting to figure out which foods work for you.  As for the
fruits, your experience is very similar to most people on ASD.  Bananas and
grapes are a problem for almost everyone.  As for apples, I can eat half of
one if I put peanut butter on it.  Sometimes you don't have to eliminate a
food completely, but can merely reduce the amount you eat.

> I thank you all for your posts and I know to make sure advice
> suggestion from "strangers" needs to be checked with real people.
[quoted text clipped - 3 lines]
>
> Lisa

Keep us posted on your progress!
Signature

Best regards,
Michelle C., T2
diet & exercise
BMI 21.5

Quentin Grady - 12 May 2008 09:41 GMT
>> Sorry to kick things off in the middle of my PITY PARTY but thanks for
>> all your understanding comments
>
>HA!  You're not the only one by far whose had a pity party here.  We've all
>been where you are now.  :-)

Pity party?    What?    Sometimes I have a comprehension problem
following these conversations.

Lisa.  

You are magnificent the way you've been handling a difficult
situation,  

It must take a lot of courage to handle a situation where you
genuinely need help from a nutritionist and you're accused overtly or
covertly of being an anorexic.   If you feel a tad under the weather
dealing with that situation it doesn't qualify in my book as a pity
party.  Maybe we use the same words but speak a different language.  

Wake up in the morning and before you get to think about dawn
phenomenon remember you're magnificent.  It gets everything in the
right perspective.

Best wishes,
Signature

Quentin Grady       ^  ^  /
New Zealand,       >#,#< [
                   / \ /\    
"... and the blind dog was leading."

http://homepages.paradise.net.nz/quentin

Trinkwasser - 03 May 2008 20:03 GMT
>WOW thanks for the information!!!
>
[quoted text clipped - 7 lines]
>my family internist is the only doc who doubts I am having glucose
>level problems

He's not been keeping up, see a later post I'm about to make about
Reactive Hypoglycemia

>I eat 4 to 6 times a day but usually only eat meat once or twice -- I
>can't imagine eating all that in 1 or 2 meals either.
[quoted text clipped - 14 lines]
>periods but there is no fat in my midsection  Doc told me I am a rare
>truely skinny person with diabetes issues.

No, not rare, just rarely diagnosed IMNSHO. I've read suggestions that
10 - 20% of Types 2s are not overweight but frankly how do they know?
Many doctors won't even consider Type 2 in skinny people therefore
they never test them, therefore they never find it therefore their
prejudice is reinforced . . .

. . . similarly some authorities reckon there may be twice as many
Type 1s diagnosed in adulthood rather than childhood, when doctors
make *that* mistake it can be fatal. :(

>As far as they can tell my other systems are fine thyroid, cardio
>echo, eeg, ekg and vaious scans and such  --- no tumors, no
[quoted text clipped - 6 lines]
>took a couple of sticks to get blood -- like I said sorry for the pity
>post:)

Alan has a good blog entry about painless pricks

>I have never been sick other than one or two colds and even then 3
>days and back to normal. Always thought I had won the genetics lottery
[quoted text clipped - 10 lines]
>vegies with meat or dairy, etc.  I feel like I am a science fair
>project

Yes but unlike many other diseases you have the technology to discover
what works and what doesn't. I overreact to wheat worst, I can only
handle oatcakes and no other form of carbs in the morning but can get
away with sufficiently small quantities of other carbs later in the
day including especially ryebread - but watch the size of the slices,
it's very dense and may weigh more and therefore contain more carbs
than you were expecting. My cousin's daughter can do ricecakes, I
can't. I can do quinoa as a rice substitute, others can't.

Fruits can be a bastard, all my old favourites like bananas and melons
are off the table, apples only in small quantities but strawberries
(and other berries) are quite doable. YMMV.

I can do small quantities of dried fruit mixed with larger quantities
of nuts, or oatcakes or ryebread with nut butter or real butter - the
fats slow down the absorbtion of the carbs in a way I can get away
with and you might - or might not.

Things that generally don't affect your BG

http://www.diabetic-talk.org/freeveggies.htm

also meat and especially fish

Quentin is our dietary expert

Good stuff about GI

http://www.mendosa.com/gi.htm

David Mendosa's site is a good one though enormous

>I thank you all for your posts and I know to make sure advice
>suggestion from "strangers" needs to be checked with real people.

GPs can be very much pot luck in their quality, endos generally but
not neccesarily know of what they speak.
Alan S - 03 May 2008 22:36 GMT
>I hate needles and the first 3-4 days it
>>took a couple of sticks to get blood -- like I said sorry for the pity
>>post:)
>
>Alan has a good blog entry about painless pricks

http://loraldiabetes.blogspot.com/2006/10/painless-pricks.html

Cheers, Alan, T2, Australia.
d&e, metformin 1500mg, ezetrol 10mg
Everything in Moderation - Except Laughter.
--
http://loraldiabetes.blogspot.com
Latest:Is Testing Worthwhile?
and Cambodia
http://loraltravel.blogspot.com/2008/03/cambodia.html
Andrew B. Chung, MD/PhD - 04 May 2008 18:30 GMT
> WOW thanks for the information!!!

Laus Deo

http://HeartMDPhD.com/LausDeo

> Sorry to kick things off in the middle of my PITY PARTY but thanks for
> all your understanding comments
[quoted text clipped - 13 lines]
> before bed my range is 85 to 100 most of the time and bed is usually 3
> hours or more after last meal.

The 100 would be high normal.

> Probably I eat a few more calories when I am not doing the dizzy
> queasy thing but I burn them off withh dance, intramurals and rock
> climbing, skiing
>
> As for the fat thing I am 5' 9" just went to the gym I weighed 102
> pounds and as egotistical as this sounds there is no extra fat --

Would suggest you ask your doctors about "latent autoimmune diabetes
in adults" (LADA).

Be hungry... be healthy... be hungrier... be hungrier:

http://TheWellnessFoundation.com/BeHealthier

Prayerfully in the infinite power and might of the Holy Spirit,

Andrew <><
--
Andrew B. Chung, MD/PhD
Lawful steward of http://EmoryCardiology.com
A latter-day disciple of the KING of kings and LORD of lords.
http://HeartMDPhD.com/HolySpirit/DiscipleNow
Quentin Grady - 12 May 2008 09:25 GMT
>I have discovered some foods that make the up down rollercoaster
>really go -- rice all kinds :( bread other than a oat, flaxseed, nut
>muffin --my favorite so that is good!  

Well done.  You're off to a good start finding out these things
regardless of what final diagnosis you're given.

G'day G'day,

    Count your blessings is something my mother used to say.  Not
sure if she said it to anyone in particular or whether is was a family
saying that she passed on to me.  Anyway I was thinking about that
when you mentioned the way your GP stuck up for you being a genuinely
skinny person who had a blood glucose issue.  

In general a fasting blood glucose reading of 127 mg/dL or more on two
separate occasions is all it takes to be given a diabetes diagnosis.
Just what form it might take is more complicated especially in your
case since various aspects aren't typical.

Finding a GP that appreciates the dangers associated with T2 diabetes
can sometimes be an issue.  For you with your level of physical
activity and genuinely skinny body it could have been even harder. Not
at nice I imagine to be an anorexic suspect.  You can sympathize with
them having to deal with the deviousness of true anorexics on a daily
basis.  I wouldn't fancy that as a job. I'm mentally counting my
blessings in that respect.  <grin>     So count your blessings.  One
hurdle is already overcome. You have a supportive GP.  

Others are that you've been tested for other conditions such as
thyroid malfunctions that can be easily mistaken for T2 diabetes.  

You aren't by any chance on prednisone or some other steroid for an
injury sustained while rock climbing or doing ballet.  These steroids
can give high blood glucose readings.

>Fruits are a real puzzle cherries, plums and pears are no problem
>but apples, bananas and grapes are way up way down.  
>trying to mix up meals cheese with fruit,
>vegies with meat or dairy, etc.  

Berries are the easiest fruit to manage.  Strawberries for instance
almost never spike anyone.  The principle reason is they contain about
7% carb or one fifth of that found in bread.  

Stone fruit such as plum, peaches, nectarines, apricots have about 12%
carbs and are generally easy to handle.   Apples are usually OK but
depend on variety and local growing conditions.  Bananas are on my
restricted list.  Half a banana is my upper limit.  Tropical fruit is
often like this.  The safe amount to consume at one time is often
small.   The most important lesson here is that you're an individual
and YMMV,   your mileage may vary.  It doesn't matter what works for
someone else. It is what works for you that counts.

>I feel like I am a science fair project

The most important one on this planet, no less,

Best wishes,
Signature

Quentin Grady       ^  ^  /
New Zealand,       >#,#< [
                   / \ /\    
"... and the blind dog was leading."

http://homepages.paradise.net.nz/quentin

Oleg Lego - 03 May 2008 06:44 GMT
>When do your finger tips start hurting like mad from testing

I see you have some very good answers to most of your medical
questions, so I'll just address a few points.

My fingers do not hurt from testing; even when I test often after
trying new food or larger portions of foods. The reason is twofold:

1. There are there are (at the very least) 30 good places to test on
your fingertips. If you are ending up with pain, try keeping track of
where you test. Start with the side of your left thumb (for example),
then for the next test, the same side of your index finger, and so on,
for a total of ten tests. Then come back to your left thumb and test
on the other side of it, going on through all ten fingers for another
ten tests. Then come back to your left thumb again, and do the same
thing using the pad of the finger. This will give you nearly a month
of testing before you have to repeat testing on the same site.

2. Try slightly different site on the sides or pads, to see where it
hurts the least. You may even find that you have more tan 30 places to
test, figuring on two places on each pad or side.

3. Try different lancets. Some folks like the one that comes with the
FreeStyle Freedom, for example, but I find it awkward, and think that
it doesn't have a fine enough adjustment for penetration. I prefer the
one that comes with the LifeScan OneTouch. I set mine to 5, and don't
press hard before pressing the trigger. Only occasionally do I find it
hurting, and even then, it's a one-time small pain; not a cumulative
sore finger.

>Have any of you ever cried just because you have to test ONE MORE time
>before bed?

No. I have tried to look on the bright side of this disease and of the
efforts I make to control it. I have lost a lot of weight because I am
eating properly (or at least much better than I previously ate), and I
am doing that by making sure that I know what I can and cannot eat,
both in food type and portion size. It is because of testing that I
know, so I don't worry about the occasional ouch when lancing.

>I am not usually so needy but this is major weird stuff  My parents
>are more freaked out then I am so they are no help and my family doc
>says there is no way I have this problem because I am skinny active
>and young

One thing you will learn here is that everyone is different. The other
thing you will learn is that there are a lot of great people here who
will expend a lot of energy to help you figure it all out. You'll spot
the trolls and twits soon enough, and the ones that aren't, are
golden.

You didn't ask to join this club; none of us did, but having joined,
you've come to the right place. Hang in there and don't despair.

Signature

Larry, T2, Saskatchewan, Canada.
DX 24 Aug 07. D&E
Metformin 2000mg, Ramipril, Simvastatin
Dx A1c 8.1 : Latest 5.1 (4 Mar 08)

Alan S - 03 May 2008 07:17 GMT
>What should I do first

Welcome.

Browse through here:
http://loraldiabetes.blogspot.com/2006/10/d-day.html

and here:
http://www.alt-support-diabetes.org/NewlyDiagnosed.htm

After that you might want to come back with some
questions:-)

You are atypical, as a slim type 2, but that is still the
best suggestion I can offer.

Cheers, Alan, T2, Australia.
d&e, metformin 1500mg, ezetrol 10mg
Everything in Moderation - Except Laughter.
--
http://loraldiabetes.blogspot.com
Latest:Is Testing Worthwhile?
and Cambodia
http://loraltravel.blogspot.com/2008/03/cambodia.html
DonnaB shallotpeel - 03 May 2008 07:26 GMT
On Fri, 2 May 2008 07:06:21 -0700 (PDT), in
<7f4ea6f1-0352-42fd-a1dd-04ac9b90f6a3@x41g2000hsb.googlegroups.com> Dancing
Hypo <lisalennic@gmail.com> wrote:

>I dance ballet, jazz or tap 3-4 hours a day plus am an active college
>student

>What should I do first the diet expert lady keeps acting like I don't
>eat and so al she talks about is the need to eat -- I may video meals
>so she can see I am NOT anorexic

You couldn't really show that you don't have an eating disorder by videotaping
meals. <G> But, you may have been making a joke.

>If I have diabetes Type 2 why is my level low?

Have you been diagnosed as T2?

>When do your finger tips start hurting like mad from testing

I use a test meter that allows for alternate site testing. I don't test on my
fingers. When I am tested on fingertip I have pain & soreness.

>Have any of you ever cried just because you have to test ONE MORE time
>before bed?

No.

Here's two off-the-wall questions: Has anyone ever talked to you about
over-exercising? And, has your thyroid ever been tested?

Hope you find some comfort & good questions to ask your docs, here. And, hey,
Lisa, welcome!

Signature

: ^> DonnaB Yahoo Msgr: shallotpeel <*>  http://tinyurl.co.uk/h193
http://tinyurl.co.uk/wdp8  http://tinyurl.co.uk/byv9

"A real leader faces the music, even when he doesn't like the tune. " - Anon

Robert Miles - 04 May 2008 02:43 GMT
>I have read the group for a couple of days
> Here are my questions
[quoted text clipped - 26 lines]
>
> In the morning I have 120 to 145 before breakfast.

Many of us don't consider such morning levels low.  Mine are usually
between 80 and 100.

I assume you've seen some of the more useful web sites for diabetes:

http://www.alt-support-diabetes.org/NewlyDiagnosed.htm

http://www.diabetic-talk.org/dp.htm

http://loraldiabetes.blogspot.com/

http://www.mendosa.com/

http://www.diabetic-talk.org/freeveggies.htm

http://www.phlaunt.com/diabetes/

Remember to pay attention when your doctor tells you whether
your diabetes is type 1, type 2, gestational diabetes, or one of the
less common types.  It may take some time for him or her to find
out which type it is, though.
Quentin Grady - 13 May 2008 06:31 GMT
>I am skinny -- took much convincing to show that while I weigh about
>100 I do eat 3000-4000 calories a day -- hate food logs I NEVER knew
>how much I eat until I had to journal yuk

G'day G'day Lisa,

Several posters have suggested you might have reactive hypoglycemia.
I think the reason for that is that your blood glucose falls rapidly
at times after a meal.  That happens to some people in the period of
time before they are diagnosed as T2 diabetics.  At that stage they
have high insulin resistance and their pancreas produces high levels
of insulin in an attempt to compensate.  It is rather like driving a
car and not noticing your foot on the brake pedal.  The car doesn't go
too well so to make it go better one puts a foot on the accelerator
without taking the foot of the brake pedal.   It does horrible
unpredictable things to the car engine and other mechanical parts.  

Personally I'm skeptical about that diagnosis. It would explain why
you get irregular blood glucose responses and why you do much better
on certain foods such as the flax meal and almond biscuits.   These
are good sources of vegetable protein by the way which helps stabilize
blood glucose.

Put simply,  I'm left asking what it WONT explain.  

That IMHO is your lack of weight gain.  People with high insulin
levels tend to put on weight like there was no tomorrow.  They say it
happens even when they watch how much they eat carefully.  Some are
skeptical that it can happen like that but it makes sense.   I believe
them.

One group that typically doesn't put on weight before diagnosis are T1
diabetics. They don't have the insulin needed to store fat.   I'm not
saying you are T1.  Far from it.  However it seems to me that you
might have one of the atypical forms of T2 diabetics that I don't know
much about.   It seems to me that rather than having too much insulin
as is the case with reactive hypoglycemics you have too little.  You
may have some kicking in late after a meal which is typical of T2s.

Jenny Ruhl in her book Sugar 101 goes into some depth describing the
less usual forms of diabetes.  Perhaps you'd like to read her book so
you can keep up with the play when talking to the specialists.  

FWIIW, I've been most impressed at the way you've taken responsibility
for finding out what is happening to you.  It's easy to imagine
someone denying there is a problem when the experts can't immediately
pin down the cause.   Glad you haven't gone down that path because
there is so much at stake.

Keep up the good work and best wishes,
Signature

Quentin Grady       ^  ^  /
New Zealand,       >#,#< [
                   / \ /\    
"... and the blind dog was leading."

http://homepages.paradise.net.nz/quentin

 
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