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Medical Forum / Diseases and Disorders / Diabetes / March 2008Six days of I do not know what to call it ;-/
I am back home. More thankful of it this time than ever before in my life!! I have two posts up, one that is from some journal entry I wrote while waiting for a room, and then a very short one saying.............. There was ***NEVER*** a room for me the whole time I was there! You got it! I lay on a Stryker frame stretcher for the entire six days! What/where I put my body last Monday was the same place where I was when I got up to go home yesterday, Saturday. I've been to hell and back because of one of *my* doctors (that was, and no longer, ever will be again). My time will be tied up with that for some time while I write from my notes and journal entries I did, but I wanted to let you all know I am back home, and seeing a few things to comment on, then I've got to turn my attention over to *my experience* last week. I am barely any better, except I *do* think I've got more of the internal get-up-and-go. Facial muscles are more mobile. BTW my bg was 560 when I entered. Once I had refilled my pump, and was doing fair, *the* doctor never checked my bg again all week. Not sure why Jim and I *needed* this, but we have it (the investigation and letter writing). The stress and travel connected with it has worn Jim out. So, I am off and running to bring all my documentation up to my first post. I'll be checking by, especially when needing a break from all that hullabaloo! Billie Ragdoll Billie on the Road to Remission http://andlifegoesononedayonestepatatime.blogspot.com/ http://www.caringbridge.org/visit/billiewages Striving for a world without Myasthenia Gravis http://www.myasthenia.org/amg_whatismg.cfm > I am back home. More thankful of it this time than ever before in my life!! > [quoted text clipped - 29 lines] > > Striving for a world without Myasthenia Gravishttp://www.myasthenia.org/amg_whatismg.cfm The word is "hell." I'm glad you got back home. Toci On Mar 23, 2:53 am, "Billie" <some...@swbell.net> wrote: > I am back home. More thankful of it this time than ever before in my > life!! > >The word is "hell." I'm glad you got back home. Toci Thank you Toci. I was ready to stop the treatment, and come home, but Jim was able to calm me to complete my treatment. I was not able to write any last night, so I am hoping I can stay awake to do so today. I'm just glad that I kept good notes for documentation. Again, thank you. The nursing staff was excellent, and did all they could in helping me reach a calmness. They were caught in the middle just as I was. Well, more about them and all in my writing. ;) Ragdoll Billie on the Road to Remission http://andlifegoesononedayonestepatatime.blogspot.com/ http://www.caringbridge.org/visit/billiewages Striving for a world without Myasthenia Gravis http://www.myasthenia.org/amg_whatismg.cfm >On Mar 23, 2:53 am, "Billie" <some...@swbell.net> wrote: >> I am back home. More thankful of it this time than ever before in my [quoted text clipped - 10 lines] >in helping me reach a calmness. They were caught in the middle just as I >was. Well, more about them and all in my writing. ;) I'm so sorry you went through that Billie. Oh dear, I'm very nervous, considering the way I deal with things even when the apartment maintenance people lie to me, which is every time. Took me a long time to figure out how that particular game works, but it seems even the ones who got fired and then came back still even remember me. Now I at least know how to get it done calmly, but hospitals are whole different ball of wax, and it's a lot different when you are incapacitated. > "toci" <gina39d@yahoo.com> wrote in message > On Mar 23, 2:53 am, "Billie" <some...@swbell.net> wrote: > > I am back home. More thankful of it this time than ever before in my > > life!! Hi, Billie. Glad to see your Warrior's Attitude! I, too, had an idiot doctor. All he knew to do was prescribe medines for everything (most of which had side effects worse than the ocndition for which they were prescribed. Thus, I never filled them) and order surgeries for unverified conditions (which I never underwent). _Had_ is the operative word. My cardiologist (a test, analyze, discuss guy) recommended my current doctor, who turned out to also be a diabetitian. Perfect! And, finally, a great doctor. Best wishes for your continued improvement,  SignatureNick. Support severely wounded and disabled Veterans and their families! I've known US vets who served as far back as the Spanish American War. They are all my heroes! Thank a Veteran and Support Our Troops. You are not forgotten. Thanks ! ! ~Semper Fi~ > I am back home. More thankful of it this time than ever before in my life!! > [quoted text clipped - 29 lines] > > Striving for a world without Myasthenia Gravishttp://www.myasthenia.org/amg_whatismg.cfm Billie, Although you don't know me, l have sometimes added my 2 cents, wanted or unwanted. My heart aches at the thought of you lying in a hallway ill, and lied to for 6 days. l just wanted to say that is what happened to my husband so many times l lost count. Sadly now he is gone. They overdosed him on insulin. l wish l had your strength of character, cause l could write a book about the horrible state of our overpriced medical system. And the consequences of the errors are permanent. But alas l find it futile, if you complain they try to kill you even faster! Not just MHO. Kathy >> I am back home. More thankful of it this time than ever before in my life!! >> [quoted text clipped - 42 lines] >kill you even faster! Not just MHO. >Kathy If you complain they try to kill you even faster???? Boy that does not make me feel very safe at all. >> I am back home. More thankful of it this time than ever before in my >> life!! [quoted text clipped - 54 lines] > kill you even faster! Not just MHO. > Kathy Kathy, you just put your 2 cents in here at any time. Just let me make one clarification, though, I was not in the hallway, first in an ER cubicle, then into their Admin/Holding area, in a cubicle there, but never admitted to my room on 3rd floor. If you've not read my post http://andlifegoesononedayonestepatatime.blogspot.com/2008/03/going-to-room.html or http://tinyurl.com/2ql2sx that is my actual journaling of last Wednesday as I lie there waiting to go to my room upstairs. I am so sorry to hear about your husband. Sometimes, unless you have some kind of *insider* something or other, you really are at the mercy of those in the upper echelon. Jim has 49 years of hospital administration behind him, and knows what to do. *He* is what calmed me, and kept me on track, and knows the best way to approach those involved.. Thank you once again, and I am glad to meet you. *s* Billie Ragdoll Billie on the Road to Remission http://andlifegoesononedayonestepatatime.blogspot.com/ http://www.caringbridge.org/visit/billiewages Striving for a world without Myasthenia Gravis http://www.myasthenia.org/amg_whatismg.cfm > >> I am back home. More thankful of it this time than ever before in my > >> life!! [quoted text clipped - 75 lines] > > Striving for a world without Myasthenia Gravishttp://www.myasthenia.org/amg_whatismg.cfm Don't mean to sound so cynical, it is just that l am still so broken hearted. l feel so helpless and angry as well. What can l do? Steve was only 52 years old and he is gone forever and there is nothing l can do. l am glad you have Jim and l did reread your post and visit your blog. l hope for only good things for you as well as "remission" Truly, Kathy Billie, Welcome home!!! :-) Cheri Billie wrote in message ... >I am back home. More thankful of it this time than ever before in my life!! > [quoted text clipped - 32 lines] >Striving for a world without Myasthenia Gravis >http://www.myasthenia.org/amg_whatismg.cfm >I am back home. More thankful of it this time than ever before in my life!! > >I have two posts up, one that is from some journal entry I wrote while >waiting for a room, and then a very short one saying.............. > >There was ***NEVER*** a room for me the whole time I was there! Good grief - sorry you had to put up with this stupidity, Billie! Are they seriously saying that it's a complete surprise to them when you turn up each time?! Hope Jim's feeling better, not what either of you need right now! Nicky. T2 dx 05/04 + underactive thyroid D&E, 100ug thyroxine Last A1c 5.6% BMI 25 Welcome back home! Sorry the hosp was so bad :-( <<hugs>> KROM >I am back home. More thankful of it this time than ever before in my >life!! [quoted text clipped - 34 lines] > Striving for a world without Myasthenia Gravis > http://www.myasthenia.org/amg_whatismg.cfm > Welcome back home! > Sorry the hosp was so bad :-( > > <<hugs>> > > KROM Not the hospital - one of my doctors, and his actions behind my back. Ragdoll Billie on the Road to Remission http://andlifegoesononedayonestepatatime.blogspot.com/ http://www.caringbridge.org/visit/billiewages Striving for a world without Myasthenia Gravis http://www.myasthenia.org/amg_whatismg.cfm > Not the hospital - one of my doctors, and his actions behind my back. > > Ragdoll Billie on the Road to Remission Man, Billie, that's such a betrayal, when you're vulnerable and you count on them to be on your side. So sorry. :-( Susan Well she did say her "former" doc now...glad she got rid of him now before he did major damage... KROM > x-no-archive: yes > [quoted text clipped - 8 lines] > > Susan >Well she did say her "former" doc now...glad she got rid of him now before >he did major damage... We all need to start giving these bad doctors critiques: http://ratemds.com/social/ http://www.physicianreports.com/ http://www.drscore.com/about/faqs.cfm and etecetera I am happy with my doctors, but I've done this with teachers and car mechanics. oh especially car mechanics > x-no-archive: yes > [quoted text clipped - 8 lines] > > Susan Thanks, Susan. One of the internal medicine doctors who looks after me while I am inpatient. We don't think my neuro knows yet what happened. He will soon, though. Can you imagine a 65 y/o woman lying on a transfer stretcher for six days in the er? The pad on it was not more than 4" thick, and unless I am a bad judge, absolutely no more than 6" thick, and hard plastic. ohhhhh........ gotta rechannel these feelings into something productive! Ragdoll Billie on the Road to Remission http://andlifegoesononedayonestepatatime.blogspot.com/ http://www.caringbridge.org/visit/billiewages Striving for a world without Myasthenia Gravis http://www.myasthenia.org/amg_whatismg.cfm >Thanks, Susan. > [quoted text clipped - 4 lines] >am a bad judge, absolutely no more than 6" thick, and hard plastic. >ohhhhh........ gotta rechannel these feelings into something productive! G'day G'day Billie, I've spent a few hours in ER recently and left at three in the morning with all the ecg tags still attached. My hand and arms are bruised thanks to blood taking that didn't work quite right. My experience of hospitals is that ER is the worst part for patient care. Once on gets past ER the care usually improves dramatically. Can I imaging a 65 y/o woman lying a transfer stretcher for six days in ER? Well I can visualize it all too well. Rotten narrow uncomfortable things they are. Can I imagine it for six days? I'm trying not to. One day was quite enough. Best wishes, >Ragdoll Billie on the Road to Remission SignatureQuentin Grady ^ ^ / New Zealand, >#,#< [ / \ /\ "... and the blind dog was leading." http://homepages.paradise.net.nz/quentin >>Thanks, Susan. >> [quoted text clipped - 27 lines] >> >>Ragdoll Billie on the Road to Remission Hello, hello, hello Quentin!!! I'm so sorry your body had to defy you like it did, but only *since it did* I have really identified with you, and have liked knowing I could write to you at any time, and you would understand where I might be coming from. I've not experienced what you have, nor you mine, but I do believe we share a kindred spirit in the diseases we'd rather not have, but are blessed with them nonetheless. Do you remember some time back when we talked about "our purpose" and what you said to me upon questioning my purpose? I cannot remember verbatim, but being there for people, or something. Maybe you can say it better than I. Anyway, you would not believe the ones that told me I was an inspiration to them last week because of the way I coped with, and handled the mess that I was caught in. Had a 30 year veteran GOOD nurse who said she had only had ONE other Myasthenia patient in all her years, and never anyone who encountered what I did as I did, and she was so touched (she was almost in tears) by the way I cope and handled everything. There were others. She said she was going home a different person than when she came on duty that morning, and she counted it a blessing to have been my nurse that day. WOW! One nurse came back on duty after being ill, and still didn't feel good. My laughter, and spirit and concern for her personal feelings later, lifted her, helping her to feel better, and get through her 12 hours shift much better, and have a better day (night shift). This is what she said to me after I had gotten so upset at the injustice done to me, and was offering her consultation. Linnie, an African American, hair my same new color, her skin black as could be, mine as pale white as could be, hugged me more tightly, or as tightly as any one of my own family members, pulling me close to her, until my crying, sobbing has lessened, and I was once again making them smile with my light-hearted comments about things - like the snot getting mixed up with the oxygen, and when I blew my nose, which was I blowing out? lol Thanks for all your comments here, Quentin. I am enjoying your book, what little I've been able to read of it so far (ptosis). Liked the picture on the back, and also Tricia's favorite picture of you. Not sure which is my favorite; maybe both in their own sort of way. Hey, you in your recliner, me in my hosp bed, in the same room, couldn't we cover a bunch of discussions! hahaha I'm glad you are able to be up and about more now, though. Thrills, and warms my heart to hear you write about taking the dogs for a walk, even a short one. Thanks for understanding what six days in the ER on a gurney must have been like!! Only the very best wishes to you. Billie bh-wages@swbell.net Ragdoll Billie on the Road to Remission http://andlifegoesononedayonestepatatime.blogspot.com/ http://www.caringbridge.org/visit/billiewages Striving for a world without Myasthenia Gravis http://www.myasthenia.org/amg_whatismg.cfm >Hello, hello, hello Quentin!!! I'm so sorry your body had to defy you like >it did, but only *since it did* I have really identified with you, and have >liked knowing I could write to you at any time, and you would understand >where I might be coming from. I've not experienced what you have, nor you >mine, but I do believe we share a kindred spirit in the diseases we'd rather >not have, but are blessed with them nonetheless. G'day G'day Billie, There are times when I can forget. And there are times when I can't. Challenging times one could call them. >Do you remember some time back when we talked about "our purpose" and what >you said to me upon questioning my purpose? I cannot remember verbatim, but >being there for people, or something. Maybe you can say it better than I. That would be hard to improve on. It certainly describes my purpose here as I believe it does yours. >Anyway, you would not believe the ones that told me I was an inspiration to >them last week because of the way I coped with, and handled the mess that I >was caught in. Had a 30 year veteran GOOD nurse who said she had only had >ONE other Myasthenia patient in all her years, and never anyone who >encountered what I did as I did, and she was so touched (she was almost in >tears) by the way I cope and handled everything. That is an aspect of nurses that has often taken me by surprise. Sometimes one encounters a nurse who at first displays a hard beaten countenance. Doesn't bother to give her name. Just does what she has to do. Then turns out to be a kind and feeling person. > There were others. She >said she was going home a different person than when she came on duty that >morning, and she counted it a blessing to have been my nurse that day. WOW! Now that is impressive. Can't say that has ever happened to me. >One nurse came back on duty after being ill, and still didn't feel good. My >laughter, and spirit and concern for her personal feelings later, lifted [quoted text clipped - 8 lines] >getting mixed up with the oxygen, and when I blew my nose, which was I >blowing out? lol That must have meant a lot to both of you. Even though I'm about a zillion miles away your description is so graphic I can just picture it. >Thanks for all your comments here, Quentin. I am enjoying your book, what >little I've been able to read of it so far (ptosis). Liked the picture on >the back, and also Tricia's favorite picture of you. Not sure which is my >favorite; maybe both in their own sort of way. They are both snap shots capturing a moment in my life. The one on the book was taken a week or so before we went to the publishers. The other one is much older. > Hey, you in your recliner, >me in my hosp bed, in the same room, couldn't we cover a bunch of >discussions! hahaha I'm glad you are able to be up and about more now, >though. Thrills, and warms my heart to hear you write about taking the dogs >for a walk, even a short one. I make the effort for their sake and for mine. >Thanks for understanding what six days in the ER on a gurney must have been >like!! [quoted text clipped - 3 lines] >Billie >bh-wages@swbell.net Best wishes to you, SignatureQuentin Grady ^ ^ / New Zealand, >#,#< [ / \ /\ "... and the blind dog was leading." http://homepages.paradise.net.nz/quentin >> Welcome back home! >> Sorry the hosp was so bad :-( [quoted text clipped - 4 lines] > >Not the hospital - one of my doctors, and his actions behind my back. How horrible. Glad you survived >>> Welcome back home! >>> Sorry the hosp was so bad :-( [quoted text clipped - 8 lines] > > Glad you survived Thanks, Trinkswasser. I survived, but am still battling the aftereffects of the scalawags that got started again because of the changes that took place. Ragdoll Billie on the Road to Remission http://andlifegoesononedayonestepatatime.blogspot.com/ http://www.caringbridge.org/visit/billiewages Striving for a world without Myasthenia Gravis http://www.myasthenia.org/amg_whatismg.cfm yeah i meant the trip in general...least ya got us to vent to! :-) KROM >> Welcome back home! >> Sorry the hosp was so bad :-( [quoted text clipped - 11 lines] > Striving for a world without Myasthenia Gravis > http://www.myasthenia.org/amg_whatismg.cfm > yeah i meant the trip in general...least ya got us to vent to! > :-) > > KROM Yeah, and I took good journaling at first for my blog when I got upstairs to my room. Then when I realized what was happening, I took them for *evidence*. I had prior communication with the CEO and the director of Customer Service because of my emphasis on the hospital last month during the blood drive. We had contact and good communication with the House Supervisor Saturday as we were leaving because we wanted it stipulated on my discharge papers that I was leaving with the severe headaches. Everyone was afraid to breathe where I was concerned. That was from Thursday night onward. Nobody knew what was going on, and was afraid to say anything at all. Jim is taking care of the admin/legal side of things, his 49 year specialty. The good thing about that is he knows what they will be looking for from the hospital side. I'm about to get ready to publish our Sunday outing, then I am going to start writing about last week. Been thinking about the best way to do it over the weekend. Plus, getting out of town yesterday - read about it *s* - helped him and me both have a chance to break away, regroup, and now CHARGE!!!! (that's with the backup of a lollipop right now - lol ;) This doctor changed my schedule that we had established to cut the headaches, and I came home with the scalawags, and I cam home requiring the lollipops on top of the percocet. And we worked SO HARD to reach that point! Well, best to put these emotions to good use in the form or writing it all out and publishing it. I'm just glad I have you all here to "come home to" after blogging. Not much different than my family here, especially Jim. Blogging has engulfed both of us. *s* He is my official photographer now, and he is on the lookout for photo ops, plus good stories. BTW - his surgery is now April 30th, but I'll be reminding. Plus, I am going to the hospital for his surgery. We had a talk. *s* Ain't life GRAND!! Ragdoll Billie on the Road to Remission http://andlifegoesononedayonestepatatime.blogspot.com/ http://www.caringbridge.org/visit/billiewages Striving for a world without Myasthenia Gravis http://www.myasthenia.org/amg_whatismg.cfm Im sorry about the headaches etc..but glad your focused on what to do next..you and hubby are in my thoughts as always! KROM >> yeah i meant the trip in general...least ya got us to vent to! >> :-) [quoted text clipped - 39 lines] > Striving for a world without Myasthenia Gravis > http://www.myasthenia.org/amg_whatismg.cfm > > Welcome back home! > > Sorry the hosp was so bad :-( [quoted text clipped - 4 lines] > > Not the hospital - one of my doctors, and his actions behind my back. Behind your back? I thought that was a guy joke about a prostate exam! SignatureNick. Support severely wounded and disabled Veterans and their families! I've known US vets who served as far back as the Spanish American War. They are all my heroes! Thank a Veteran and Support Our Troops. You are not forgotten. Thanks ! ! ~Semper Fi~ |
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