 |
 | Home | Contact Us | FAQ | Search & Site Map | Link to Us |
 | Sign In | Join | Other 45 Sites in Network |
Medical Forum / Diseases and Disorders / Diabetes / August 2007I did it!!
I managed to get online in the hospital!!! Had another "full hospital admission" where I had to spend the night in the ER overflow room. It really was not too bad; nice seeing the staff again I had before, and having the one on one service. Got my first infusion there Monday night. The pharmacy got it all messed up, though, and told them to run it for six hours instead of ten hours, and it gave me the unwanted side effects which I was not having prior to the infusion. Even with my doctor spelling out the directions on orders, they did it again on this second infusion - I refused to take it like that, and I had a good nurse, and I am getting it at the right pace. It is from you all that I am learning to speak up for myself in the hospital!! lol Even for non-diabetic things!!! Just looking out for number uno! I felt better going into this treatment than any of the previous ones, so I am feeling very optimistic about this one. About half way through a bag, I begin to "feel" it, so I get something for the pain. That only last a few hours afterwards, and yesterday/this morning I did really well.... no pain at all. Could see better / no diplopia / ptosis better. Arm/leg strength not a big improvement, but that's okay; have diabetic neuropathy complicating that. Will have the gastric emptying done while I am here so we do not have to make the trip to Memphis again Monday just for that x-ray. Yeah! Still fatigue easily and quickly, so will go for now and start ready posts. Miss you all and hope you've been being good. Jim has taken to reading here.... *smile* Says Dr.** posts a lot doesn't he? Told him I will have to set up a filter for him when I get home. Gee, with him, and then Ashley, I will have to be on my "p's and q's" from now on. No, I want them to read here. They need to hear from more than just me. Hugs Billie "Striving for a world without Myasthenia Gravis" Myasthenia Gravis Foundation of America http://www.myasthenia.org Muscular Dystrophy Association http://www.mda.org/disease/mg.html http://www.mda.org/publications/fa-mg-treatment.html Myasthenia Gravis Association UK http://www.mga.superbuilder.net/mgaforum.html > Miss you all and hope you've been being good. I have been, Billie, but those other kids are baaaaad. ;-) Susan Oh, yeah......... everyone's out of step except my Johnnie, eh..... make that Susan, eh? I can just hear the sugar dripping. Go lower carb, Susan, you're overflowing. he he I'm feeling silly, euphoric. The doctor was just in, and agrees with my optimism. Says I'm looking better in all the ways I've noticed. Said some people just take longer to respond. Agreed that with feeling better at the beginning this time, I'll probably see better results, and if it continues this way for the next three treatments, the improvements will improve relatively. I brought up the falls, thinking they were neurology related, but he said they were mg related, and I needed someone near me every time I am up. That big fall, I was not even moving, just standing, then 'plop' (goes fizz, fizz) down she goes! And, oh, I feel sooooooooo bad! He was gone all last week because his father died. While he was talking to me I thought about it, and was waiting for him to finish to offer my condolences, and guess what.......... in *my* own excitement, I FORGOT!!! I am mortified!!! What a thoughtless, self-centered patient!! Lashed with a wet, soggy noodle, then sent to the corner. 300 cc left to this bag, then I am untethered Billie "Striving for a world without Myasthenia Gravis" Myasthenia Gravis Foundation of America http://www.myasthenia.org Muscular Dystrophy Association http://www.mda.org/disease/mg.html http://www.mda.org/publications/fa-mg-treatment.html Myasthenia Gravis Association UK http://www.mga.superbuilder.net/mgaforum.html : x-no-archive: yes : [quoted text clipped - 3 lines] : : Susan > I managed to get online in the hospital!!! > [quoted text clipped - 21 lines] > > Still fatigue easily and quickly, so will go for now and start ready posts. You will be in my prayers, dear neighbor Billie whom I love unconditionally. > Miss you all and hope you've been being good. Jim has taken to reading > here.... *smile* Says Dr.** posts a lot doesn't he? All praises and glory belong to GOD, Who makes me able :-) > Told him I will have > to set up a filter for him when I get home. Sad to read that you believe that Jim needs a filter to keep him from reading about the truth, Who is LORD Jesus Christ. > Gee, with him, and then Ashley, > I will have to be on my "p's and q's" from now on. Being truthful would have been wise from the outset. > No, I want them to read > here. They need to hear from more than just me. May GOD bless you and them in HIS mighty way making you healthier (hungrier) than ever: http://TheWellnessFoundation.com/PressRelease Prayerfully in Jesus' awesome love, Andrew <>< -- Andrew B. Chung, MD/PhD Cardiologist Billie wrote in message ... >Still fatigue easily and quickly, so will go for now and start ready posts. >Miss you all and hope you've been being good. Jim has taken to reading [quoted text clipped - 6 lines] > >Billie You always mind your p's and q's Billie, so no worries there. Glad you're able to post from the hospital. Take care. Cheri > I managed to get online in the hospital!!! Hi Billie, Glad you made it! It certainly is a picker-upper, just reading your opimistic post.... How long are you going to be in the hospital this time. We are doing our best to behave in your absence ;-) Will, T2 I'm good. It's Will and Loretta and Johnnie that are always pulling my hair ... WB "Billie" <mynewsaccount@swbell.net> a écrit ... >I managed to get online in the hospital!!! > [quoted text clipped - 51 lines] > Myasthenia Gravis Association UK > http://www.mga.superbuilder.net/mgaforum.html >I managed to get online in the hospital!!! > [quoted text clipped - 32 lines] > >"Striving for a world without Myasthenia Gravis" Billie, I think of you every day. Gal, you have spirit. Guy >Myasthenia Gravis Foundation of America >http://www.myasthenia.org [quoted text clipped - 3 lines] >Myasthenia Gravis Association UK >http://www.mga.superbuilder.net/mgaforum.html >It is from you all that I am learning to >speak up for myself in the hospital!! lol Even for non-diabetic things!!! >Just looking out for number uno! Good for you, Billie - I bet you've got them all organised : ) Fingers crossed that this one works as well as you feel it will. And, Hi, Jim :D Hope you're doing well too... Nicky. T2 dx 05/04 + underactive thyroid D&E, 100ug thyroxine Last A1c 5.6% BMI 25 Thinking of you every day Billie. Cheers, Alan, T2, Australia. Yay!..hiya at the hosp! Hope they get it together better for ya! Keep em on thier toes billie! KROM >I managed to get online in the hospital!!! > [quoted text clipped - 51 lines] > Myasthenia Gravis Association UK > http://www.mga.superbuilder.net/mgaforum.html |
Reply to this Message |
 Sign In
 Join
 My Latest Posts My Monitored Threads My Blog My Photo Gallery My Profile My Homepage Start New Thread Enable EMail Alerts Rate this Thread
|
©2009 Advenet LLC Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.