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Medical Forum / Diseases and Disorders / Diabetes / April 2007Gastroparesis frustration
Pardon my repeating this part but I guess I must in case there is someone who didn't read this when I posted it before. The gastroenterologist I saw is assuming based on my symptoms that I have gastroparesis. He couldn't do the test for it because it involves eating eggs and I am very allergic to eggs. Also have additional food allergies that limit my diet. My Endo. is the one who first assumed this problem based on my symptoms and he put me on generic Reglan for it. I take it once daily at night. Up till now I've only been throwing up at night, aside from isolated incidents when trying to eat, but I was told the cause of that was most likely GERD. Then I just feel like a bite of food is stuck in my throat and I can't breathe until I puke it out. Okay... So my question is: When you have gastroparesis, how do you know when you're going to be ill? The gastro Dr. didn't give me much advice except to tell me not to eat fiber when I was having symptoms. But I think his advice was so vague because I have studied the diet for it and pretty much know what it entails. When I saw him, I was attempting a raw vegan diet and seeming to do well with it. Well, not so any more. He put me on Priolsec, then Prevacid, now Aciphex for GERD. I didn't even know I had that. The endoscopy showed that and also that my stomach was not moving as it should. Just sat there doing nothing then all of a sudden started moving. Went though a bad patch of about two weeks where the only foods I could seem to keep down were plain white rice, plain potatoes, bread and small amounts of chicken. Daughter was also getting sick and we just learned that there had been a problem with our tap water which may have caused some of our illness. Started feeling better in the stomach dept. but very weak from all the time in bed and eating a not very nutritious diet. Began slow increasing the foods I was eating, following the gastro diet. Then everything seemed okay. Fast forward to tonight. Easter dinner where much of what was being served was something I didn't like was allergic to. They had tossed salad and plenty of raw veggies. So I told my mom I would just bring kidney beans and garbanzo beans to top my salad and I'd just eat that. I did. Also had a few Fritos and some Nacho Chreese sauce (a dairy free cheese replacement made from peas and other things). Felt okay except felt a weird headache coming on right side, like sinus. Played some games. Had dessert. I don't normally eat dessert but for some reason decided to tonight. Normally the mere thought of dessert bothers me and I can't bring myself to eat it no matter what it is. But I'd brought some special cinnamon rolls and chocolate kisses for my daughter. Neither of us are allergic. Also some Just Strawberries. They are dried berry slices. Had 1/2 of a roll (2 bites) and 2 of the kisses (smaller than Hershey's but larger than a choc. chip), a couple of Just Strawberries, then decided to eat the other 1/2 of the roll. We cleared the table and then people began to leave. That's when the instinct came over me that I might puke. I say "instinct" because I didn't feel sick aside from the headache. Stomach actually felt fine. My daughter asked my dad and he brought me a bucket. He no sooner handed it to me and I began a puke-fest lasting a good 1 1/2 hours. I can tell you I will never eat a cinnamon roll or chocolate again. That was all I could taste!!! Now my throat is killing me from upchucking all the undigested food and I still have the headache. So now I am wondering if I can ever eat a salad again! I did have a taco salad a couple of weeks ago with no problem. Have had a couple of dinner salads and things like tacos and tostadas that contain a bit of lettuce and tomato toppings. No problems. So how should I have known I shouldn't have eaten that dinner tonight? It's just sooo frustrating. I know not many here have gastroparesis. But if you do... How do you know what to eat? I wasn't having any symptoms so I assumed it was okay. I don't want to keep on for weeks at a time eating only "white and low fiber" foods because I wind up getting malnourished. Very frustrating indeed. Vent over. > Pardon my repeating this part but I guess I must in case there is someone > who didn't read this when I posted it before. [quoted text clipped - 11 lines] > Okay... So my question is: When you have gastroparesis, how do you know > when you're going to be ill? When you are not hungry. "Hunger is good." -- Holy Spirit Amen. "Blessed are you who hunger now for you will be satisfied." -- LORD Jesus Christ (Luke 6:21) Amen. "GOD humbled you making you hungry..." -- Moses (Deuteronomy 8:3) Amen. May GOD bless you in HIS mighty way making you hungrier than you have ever been in your life after your reading the following: http://HeartMDPhD.com/HolySpirit/overweight.asp Prayerfully in Jesus' ever-lasting love, Andrew <>< -- Andrew B. Chung, MD/PhD http://EmoryCardiology.com May HIS immortal brethren pray for our dying mortal friends and neighbors: http://HeartMDPhD.com/Convicts In memory of our dearly departed Bob(this one) Pastorio: http://HeartMDPhD.com/Convicts/Bob As for knowing who are the very elect, these you will know by the unconditional love they have for everyone including their enemies (Matthew 5:44-45, 1 Corinthians 13:3, James 2:14-17). http://HeartMDPhD.com/Love The Official SMC FAQ List: http://HeartMDPhD.com/TheTruth/FAQ In sci.med.cardiology, Andrew B. Chung, MD/PhD said... > > Pardon my repeating this part but I guess I must in case there is someone > > who didn't read this when I posted it before. [quoted text clipped - 29 lines] > May GOD bless you in HIS mighty way making you hungrier than you have > ever been in your life after your reading the following: Diet with Dr. Chung: http://www.jackanapes.ws/2pdcat.html > In sci.med.cardiology, Andrew B. Chung, MD/PhD said... > [quoted text clipped - 33 lines] > > Diet with Dr. Chung: http://www.jackanapes.ws/2pdcat.html  SignatureSt. Jockofgrapes of Usenet ~ Bondslave of The One True God ~ Born Once Die Twice Born Twice Die Once ---------------------------------------------------------------------------------- WEBSITE: http://76.162.199.209/_/ ----------------- www.Newsgroup-Binaries.com - *Completion*Retention*Speed* Access your favorite newsgroups from home or on the road ----------------- brother Melchizedek wrote: > satan via a sockpuppet (demon) wrote: > > Andrew, in the Holy Spirit, boldly wrote: [quoted text clipped - 45 lines] > ---------------------------------------------------------------------------------- > WEBSITE: http://76.162.199.209/_/ May GOD continue to bless you, dear brother whom I love unconditionally. Prayerfully in Jesus' ever-lasting love, Andrew <>< -- Andrew B. Chung, MD/PhD http://EmoryCardiology.com May HIS immortal brethren pray for our dying mortal friends and neighbors: http://HeartMDPhD.com/Convicts In memory of our dearly departed Bob(this one) Pastorio: http://HeartMDPhD.com/Convicts/Bob As for knowing who are the very elect, these you will know by the unconditional love they have for everyone including their enemies (Matthew 5:44-45, 1 Corinthians 13:3, James 2:14-17). http://HeartMDPhD.com/Love The Official SMC FAQ List: http://HeartMDPhD.com/TheTruth/FAQ In sci.med.cardiology, Andrew B. Chung, MD/PhD said... > brother Melchizedek wrote: > > satan via a sockpuppet (demon) wrote: [quoted text clipped - 41 lines] > > > > > > <hiss sputter hiss hiss> So, Dr. Andy, why hasn't the Holy Ghost convicted me? SignatureSt. Jackanapes of Usenet ~ Bearer of The One True Liver ~ Ordained Minister & Holy Saint of The Universal Life Church ----------------------------------------------------------------- WEBSITE: http://www.jackanapes.ws FORUM: http://www.voy.com/20630/ ----------------------------------------------------------------- Diet with Dr. Chung: http://www.jackanapes.ws/2pdcat.html > In sci.med.cardiology, Andrew B. Chung, MD/PhD said... > [quoted text clipped - 45 lines] > > So, Dr. Andy, why hasn't the Holy Ghost convicted me? You choose not to. Your own free will has you bound. SignatureSt. Jockofgrapes of Usenet ~ Bondslave of The One True God ~ Born Once Die Twice Born Twice Die Once ---------------------------------------------------------------------------------- WEBSITE: http://76.162.199.209/_/ ----------------- www.Newsgroup-Binaries.com - *Completion*Retention*Speed* Access your favorite newsgroups from home or on the road ----------------- > In sci.med.cardiology, Andrew B. Chung, MD/PhD said... > [quoted text clipped - 33 lines] > > Diet with Dr. Chung: http://www.jackanapes.ws/2pdcat.html ~~~~~~~~~~~~~~~~~~~~~~~~ Hello, I suggest that you ask the gastroenterologist to rule in or rule out "cancer of the esophagus" as a cause of your symptoms. It took the doctors from the VA over a year before they finally figured out that my neighbor had cancer of the esophagus. They were treating him for GERD and a Hiatal Hernia before they finally figured out the reason for his symptoms. In his case, the cancer was at level two so they plan to remove the tumor in about two weeks. If the cancer was at a higher level, they would not have been able to remove the tumor. I am not a doctor. If the tests indicate that you do not have cancer of the esophagus, consider reading this book and following the diet program. "The Acid-Alkaline Diet For Optimum Health" by Christopher Vasey, N.D. The diet is designed to reduce the amount of acid in your body. Jason ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > Hello, > I suggest that you ask the gastroenterologist to rule in or rule out [quoted text clipped - 10 lines] > "The Acid-Alkaline Diet For Optimum Health" by Christopher Vasey, N.D. The > diet is designed to reduce the amount of acid in your body. He did a biopsy and that's how he knows it is GERD. I don't think an acid/alkaline diet would help me. My main problem is the gastoparesis. Thanks! Julie, I am glad to hear you had your stomach scoped along this journey. I missed that somewhere along the way. Again, glad to hear it. *Looking* is the best way to know for sure. Sure hope you get some relief soon. Billie : He did a biopsy and that's how he knows it is GERD. I don't think an : acid/alkaline diet would help me. My main problem is the gastoparesis. : : Thanks! > Julie, I am glad to hear you had your stomach scoped along this journey. > I > missed that somewhere along the way. Again, glad to hear it. *Looking* > is > the best way to know for sure. Sure hope you get some relief soon. Thanks. I'm sticking to chicken, rice and broth. Might try some turkey and potatoes for dinner. Whoopie! Now if I could just get my strength back. I need to put laundry away and even that seems daunting. > > Julie, I am glad to hear you had your stomach scoped along this journey. > > I [quoted text clipped - 5 lines] > potatoes for dinner. Whoopie! Now if I could just get my strength back. I > need to put laundry away and even that seems daunting. Once you know in the heart of your soul that "Hunger is good" you will be stronger. May GOD bless you in HIS mighty way making you hungrier than you have ever been in your life. Prayerfully in Jesus' ever-lasting love, Andrew <>< -- Andrew B. Chung, MD/PhD http://EmoryCardiology.com May HIS immortal brethren pray for our dying mortal friends and neighbors: http://HeartMDPhD.com/Convicts In memory of our dearly departed Bob(this one) Pastorio: http://HeartMDPhD.com/Convicts/Bob As for knowing who are the very elect, these you will know by the unconditional love they have for everyone including their enemies (Matthew 5:44-45, 1 Corinthians 13:3, James 2:14-17). http://HeartMDPhD.com/Love The Official SMC FAQ List: http://HeartMDPhD.com/TheTruth/FAQ > > > Julie, I am glad to hear you had your stomach scoped along this journey. > > > I [quoted text clipped - 11 lines] > May GOD bless you in HIS mighty way making you hungrier than you have > ever been in your life. That could only result in making Juile feel guilty and selfish, knowing that there are millions of children in India going to bed with full stomachs tonight. -- cary : > Julie, I am glad to hear you had your stomach scoped along this journey. : > I [quoted text clipped - 5 lines] : potatoes for dinner. Whoopie! Now if I could just get my strength back. I : need to put laundry away and even that seems daunting. Julie, I had some stomach, esophagus problems back in the early 90s, and rice 'n' cheese was about all that I could handle, even having my dil bring it to me in the hospital. Jim found some mashed potatoes low in carbs that I've been eating lately, when necessary only, so I wouldn't get used to wanting them again. Reading your chicken, rice, broth, above, makes me wonder about going back to my rice 'n cheese until I see the gastro on the 27th (I think it is). I know I take insulin, and can cover carbs, and spiking with the rice, but I still eat as if I am not insulin dependent to try to keep my usage and possible highs as low as possible. Make sense? The slightest miscalculation for a bolus sends me sky high within minutes even though I am getting a basal insulin all the time. bummer I've been able to eat so little variety lately, and have such a minimal appetite, my old rice 'n cheese dish sounds so good to me right now. I know you've been eating *out of the box* as far as diabetes, and knew I was going to have to do it somewhat, but I've done so good letting go of the starches for the past six years, this bums me out, but.......... might oughta do it for the next coupla of weeks. Glad you mentioned that. Sorry you cannot have cheese. ;-) How do you feel today? Were you able to eat last night? LOL Did you get your laundry put away? You know, throughout all the years with the kiddos, doing the laundry was no problem, but getting it all put away was! I empathize with your feeling bad and weak, and having to see that before you to do. Loved my kids, but glad those days are behind me. ;-) Enjoying the grands now. Keep us informed. This has been interesting (not for you, huh). I dread going to the gastro myself. :( Had to have my esophagus stretched twice. But he got me all fixed up back in 92, so maybe he will now, too. Dread the evitable tests, though. Billie > Julie, I had some stomach, esophagus problems back in the early 90s, and > rice 'n' cheese was about all that I could handle, even having my dil [quoted text clipped - 5 lines] > wonder about going back to my rice 'n cheese until I see the gastro on the > 27th (I think it is). I did the rice and cheese for a while and also rice with mashed potatoes. That was back before I learned of the food allergies and during a time when for whatever reason I needed to eat a lot of carbs to keep my BG up. >I know I take insulin, and can cover carbs, and > spiking with the rice, but I still eat as if I am not insulin dependent to [quoted text clipped - 11 lines] > next coupla of weeks. Glad you mentioned that. Sorry you cannot have > cheese. ;-) Well, that doesn't sound too good. > How do you feel today? Were you able to eat last night? LOL Did you get > your laundry put away? You know, throughout all the years with the [quoted text clipped - 5 lines] > the > grands now. Yeah, the putting it away is a pain. I feel better today. Did eat last night and had toast for snack. > Keep us informed. This has been interesting (not for you, huh). I dread > going to the gastro myself. :( Had to have my esophagus stretched twice. > But he got me all fixed up back in 92, so maybe he will now, too. Dread > the > evitable tests, though. I don't really want to go back to him. He made it sound like there wasn't anything he could do for me and I'd just have to muddle it out with diet. >How do you feel today? Were you able to eat last night? LOL Did you get >your laundry put away? You know, throughout all the years with the kiddos, >doing the laundry was no problem, but getting it all put away was! We have 3 fit, healthy women in this household - and a pile of laundry waiting to be folded and put away : ) It's one of those universal thingys, I think! Nicky. T2 dx 05/04 + underactive thyroid D&E, 100ug thyroxine Last A1c 5.5% BMI 25 : >How do you feel today? Were you able to eat last night? LOL Did you get : >your laundry put away? You know, throughout all the years with the kiddos, : >doing the laundry was no problem, but getting it all put away was! : We have 3 fit, healthy women in this household - and a pile of laundry : waiting to be folded and put away : ) It's one of those universal : thingys, I think! : Nicky. : T2 dx 05/04 + underactive thyroid : D&E, 100ug thyroxine : Last A1c 5.5% BMI 25 What? Can't MEN fold laundry too? Wendy-who now folds landry with her husband. How else do you get those king sizzed sheets folded? > : >How do you feel today? Were you able to eat last night? LOL Did you > get [quoted text clipped - 12 lines] > > What? Can't MEN fold laundry too? They can and they do. At least this one does. Kids are all grown, but the one who still lives with us does his own laundry. I do my own laundry and I put it away, and my wife does hers and she puts hers away. I wash the sheets (we fold together) and the towels (I fold alone). Since the wife works at least as hard as I do, it's only fair. Jay >What? Can't MEN fold laundry too? Not mine atm - he's got a prolapsed disc, so is getting out of all kinds of chores! Nicky. T2 dx 05/04 + underactive thyroid D&E, 100ug thyroxine Last A1c 5.5% BMI 25 >>What? Can't MEN fold laundry too? > > Not mine atm - he's got a prolapsed disc, so is getting out of all > kinds of chores! Mine does his own laundry. He was just waaay too fussy about the way I did it. For instance, not mixing his clothes with mine or my daughters lest there be cat hairs that might get on them. So he does his own now except for when we are on vacation or making cross country moves or things like that. Then I do it all together and he shuts his mouth. :: >How do you feel today? Were you able to eat last night? LOL Did you get :: >your laundry put away? You know, throughout all the years with the kiddos, [quoted text clipped - 13 lines] : Wendy-who now folds landry with her husband. How else do you get those : king sizzed sheets folded? He does now, along with everything else, but *back in those days* I did it ALL, partly how we were raised, then partly the military life. Learned to fold those big sheets, corner to corner, and we do not have any of those anymore. Billie who doesn't mess up sheets and towels for Jim.... ;-) > Pardon my repeating this part but I guess I must in case there is > someone who didn't read this when I posted it before. [quoted text clipped - 77 lines] > > Vent over. I went through the same stuff. None of the pills worked. They all made my stomach hurt. This was what my stomach doctor said would allow my stomach to heal, if it could. I stopped all carbonated beverages, drank lots of water, ate only mild soups, and stopped all eating after 6pm and I kept my Bg's down. Now my stomach has no problems, as long as I never eat after 6pm. I don't take those pills. It took a couple of months and I also lost the 20 pounds I put on with insulin and inactivity. Signature"I would rather be exposed to the inconveniences attending too much liberty than to those attending too small a degree of it." Thomas Jefferson "History is earmarked by the successes of liberals and mistakes of conservatives." - ETG > I went through the same stuff. None of the pills worked. They all made my > stomach hurt. [quoted text clipped - 7 lines] > those pills. It took a couple of months and I also lost the 20 pounds I > put on with insulin and inactivity. If I stop eating after 6 p.m., my BG won't be down. Most of the time I don't get to bed until 3 a.m. I have other medical problems that keep me awake at night. I can eat some soups, but I don't feel like eating soup all of the time. I am having trouble with my BG being out of control no matter what I do. I am losing weight. I am also somewhat inactive due to my other medical problems. And recently I've been so weak from not eating properly. I can barely use 2 pound weights. The carbonated beverages would be a tough one for me to give up. I don't like water much and it seems to mess with my GERD but oddly the carbonated ones do not. Thanks! <snip> > Started feeling better in the stomach dept. but very weak from all the time > in bed and eating a not very nutritious diet. Began slow increasing the [quoted text clipped - 9 lines] > made from peas and other things). Felt okay except felt a weird headache > coming on right side, like sinus. <snip> > I know not many here have gastroparesis. But if you do... How do you know > what to eat? I wasn't having any symptoms so I assumed it was okay. I > don't want to keep on for weeks at a time eating only "white and low fiber" > foods because I wind up getting malnourished. Very frustrating indeed. > > Vent over. The Fritos and cheese sauce sound a bit suspicious. Are they known safe or are they a new variable? I ask because without a ingredients label, I would assume that they potentially contain 'junk' that may cause a reaction. I am not an expert on gastroparesis, but I have found that if I eat something I shouldn't that it can be very unpleasant, especially the heartburn and then the part about revisiting me during sleep at 2am. Your situation, sounds a lot worse though. I have found that certain foods, even if I don't eat an excess of them, tend to cause bloating and sit around for a while, which is usually a precursor to the nightly 'reflow'. For example, pizza with meat on it causes me problems, but vegetable pizza is a lot of times ok....I was discussing this with another person once who told me that different foods require different digestive juices to break down, with some requiring acid and some requiring base and that if you eat a combination of things that require both then the two tend to neutralize each other and food just sits there not digesting. I don't know if it is true or not, but it sounded plausible. Perhaps you had a combination of things that are normally ok for you, but in combination triggered a problem? > The Fritos and cheese sauce sound a bit suspicious. Are they known safe > or are they a new variable? I ask because without a ingredients label, I > would assume that they potentially contain 'junk' that may cause a > reaction. It wasn't a real cheese sauce. It is made of pea protein and other things. I eat it all the time. I also eat Fritos frequently. They do not contain anything I'm allergic to and I've not had problems with them before. > I am not an expert on gastroparesis, but I have found that if I eat > something I shouldn't that it can be very unpleasant, especially the > heartburn and then the part about revisiting me during sleep at 2am. Your > situation, sounds a lot worse though. I've never had heartburn. > I have found that certain foods, even if I don't eat an excess of them, > tend to cause bloating and sit around for a while, which is usually a [quoted text clipped - 7 lines] > plausible. Perhaps you had a combination of things that are normally ok > for you, but in combination triggered a problem? Most meat seems to cause a problem for me. I can have ground beef, small amounts of chicken and tuna. But I can't eat these things every day. Given my cheese allergy, pizza is out of the question. As for the salad, this is the very meal I used to eat every single day prior to learning of the gastroparesis. I do not normally have dessert though. But I also find it hard to believe that they could have caused the problem. There were a few raisins in the roll but it was made of highly processed stuff and from what I understand, the more processed the food is, the easier it is to digest. I've had the Just Strawberries many times with no problems. And I used to eat a piece of chocolate every day. I gave that up mainly because it stirs up the GERD. Thanks! Was up all night long throwing up and having diarrhea. That was no fun at all. Only got up now to try to see if my meds will stay down. Am having a few pretzels but I don't really feel like eating. BG was high last night but it's down about 100 points so I do have to be careful not to go hypo, especially since I am taking two BG meds. Gah! Always something. > I know not many here have gastroparesis. But if you do... How do you > know what to eat? I wasn't having any symptoms so I assumed it was [quoted text clipped - 3 lines] > > Vent over. Julie, I've had Gastroparesis about 20 years now, and from what you say it seems you have other things likely causing those symptoms. Gastroparesis itself will not cause you to be ill so much based on what you eat so much as how much. There are also medications to specifically treat gastroparesis that you haven't mentioned. Here's my experience, YMMV. If I eat any large meal, I'm going to have trouble. If I eat late, and then go to bed, same thing. I find that movement is my friend. If I walk some after eating a meal, the movement seems to help the digestion significantly. If I eat and just sit on the couch, that's not good. Anytime I eat a big meal, forget it, even the movement is no help. I have a cutoff time for my evening meal of 8:00 pm, and I go to bed around 11:30. Any less time than this and I wake up the next morning nauseated. My doc gave me Reglan years ago, which helps with "motility", stimulating the stomach to process the food. I also tried Propulsid, but it didn't work too well for me. The Reglan (metaclopramide) worked well, but after taking it for about 6 months before each meal, it stopped working. :-( Now, however I find that if I take it only occasionally it works, so at Thanksgiving . . . Ask your Docs about the gastroparesis and those medications. It seems to this layman your symptoms may be related to food allergies or other things with the gastroparesis an added factor. Larry L [in Honolulu] Type-I 45+ years so far Medtronic Guardian RT 522 pump > Julie, I've had Gastroparesis about 20 years now, and from what you say > it [quoted text clipped - 3 lines] > gastroparesis > that you haven't mentioned. I know Erythromycin is commonly used but I've tried it before for various things and it always gives me terrible stomach pain and makes me throw up. > Here's my experience, YMMV. If I eat any large meal, I'm going to have > trouble. If I eat late, and then go to bed, same thing. I find that [quoted text clipped - 4 lines] > and I go to bed around 11:30. Any less time than this and I wake up the > next morning nauseated. Hmmm... I am rarely ever sick in the morning. Up until now it has always happened around 2- 3:00 a.m. This time it was a couple of hours after dinner. That has never happened before. And although my salad was somewhat large I am not sure it would be considered a "big" meal. I had no dresssing and very little fat. Only the fat in the Fritos and I didn't have a whole serving of those. Granted there would have been some fat in the dessert. My typical routine is to have a very small breakfast around 8:00. On the days I don't have to get up that early, I usually just skip breakfast because I've slept in. If I have breakfast, I usually have no lunch. If I skip breakfast, I do have lunch. Dinner is usually around 4:00, but daughter has some dance classes right after school that run later, so we eat after class. On those days I will usually have a small snack like some pretzels or Just Strawberries to keep me from going hypo during class. Also this is about the only time I will feel hunger at all. I have a bedtime snack around 11 to midnight and usually go to bed around 3:00 a.m., sometimes earlier if I am not feeling well. Walking is very difficult for me because I am disabled. Lately it has been harder than usual. I've been so sick and weak I get tired out quite easily. > My doc gave me Reglan years ago, which helps with "motility", stimulating > the stomach to process the food. I also tried Propulsid, but it didn't [quoted text clipped - 3 lines] > however I find that if I take it only occasionally it works, so at > Thanksgiving . . . Hmmm... I honestly can't tell if it is working for me or not. I say this because prior to it being diagnosed, my "attacks" had lessened to maybe once every three months. Before that they were happening every 2-3 weeks. It's also hard for me to tell when it is the gastro and not something else. A few times my daughter was having the vey same symptoms. > Ask your Docs about the gastroparesis and those medications. It seems to > this layman your symptoms may be related to food allergies or other things > with the gastroparesis an added factor. We did discuss them and while he was not thrilled with my taking the Reglan he said it sounded like about the only choice. Thanks! >How do you know what to eat? Until my gastroparesis was diagnosed, I tended to stick to my diabetic meal plan... even when it made me feel bad. My symptoms are not the same as yours; I feel full, some acid reflux, occasional nausea and diarrhea. After being diagnosed and trying all the standard advice, I finally figured out that the main thing is calories. I had to almost totally eliminate vegetables from my diet, and mostly ate bread. I also started to snack throughout the day on junk food, and actually felt much better. Eventually, my gastro felt my small intestine had a bacterial bloom, from bacteria in my colon migrating up the digestive track because of the gastroparesis. He started me on an antibiotic known to work on intestinal stuff, and within 2 days felt better than I had in years. But, a few months later, I visited him again saying my recover seems to have stalled. He said it is likely that my small intestine infection is chronic, and he put me on antibiotics for 1 week of every month. It took about a year before I can say the regimen was really effective. I still have occasional bouts where my stomach doesn't want to empty for a few days, and so I just don't eat much for those few days. I think that eating foods that can be absorbed in the stomach (or just a short way down from the stomach) is important. Joe Dunfee >>How do you know what to eat? > [quoted text clipped - 22 lines] > days. I think that eating foods that can be absorbed in the stomach > (or just a short way down from the stomach) is important. I sure hope I don't need antibiotics. They always cause yeast infections for me. And if the antibiotic is Erythromycin, I can't take it. Makes me really sick to my stomach. Too bad about the vegetables. They are my favorite food! > And if the antibiotic is Erythromycin, I can't take it. Makes me > really sick to my stomach. > > Too bad about the vegetables. They are my favorite food!- Hide quoted text - My Dr. has prescribed various antibiotics over time, saying that the bacteria will eventually get resistant to one. I started on Flagyl (because it would treat giardia, and that was common in my area), and now I am on Zifaxan I can't tolerate Erythromycin either. I too, liked vegetables, and my diet has become rather bland at times. When I am doing well, I can eat normally. Actually, I save my favorite off-diet foods for the week that I take the antibiotic, knowing it will keep the bacteria count down. I suspect part of the issue is the particular kind of bacteria that inhabit your intestines. There is a war going on between the various types of critters there, and sometimes one will win out, and sometimes another. Some product methane, others make CO2, and perhaps some make little or no gas. I am concerned about the yeast thing, because killing the bacteria will allow for the yeast to win the war. I think in my case, the Dr. expects that the bacteria are not totally killed by the antibiotic, only reduced. Joe Dunfee >> And if the antibiotic is Erythromycin, I can't take it. Makes me >> really sick to my stomach. [quoted text clipped - 22 lines] > expects that the bacteria are not totally killed by the antibiotic, > only reduced. Wow. That sounds like a mess. When I was younger, I went to the dermatologist for acne. They kept prescribing antibiotics to me. I also suffered from chronic ear and sinus infections that I now know were caused by food allergies. Like you, they had to keep switching me from one to another. So now when I do need one, it is usually not effective because I've had so many over the course of my lifetime. i'm sorry to hear what you are going through. i don't have Gastroparesis, but i found your post interesting. it helped me because ido have the same symptom as what you posted below. <<Up till now I've only been throwing up at night, aside from isolated incidents when trying to eat, but I was told the cause of that was most likely GERD. Then I just feel like a bite of food is stuck in my throat and I can't breathe until I puke it out.>> i thought it was nerves. thats my answer for most eveything i get! i know that if i eat too fast i'm sunk. i try to eat very small bites & chew. best not to eat when ravenous. everything comes up from me. thank you for posting what you did. |
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