Medical Forum / Diseases and Disorders / Diabetes / December 2006
my son had his first seizure
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Helen - 28 Nov 2006 11:13 GMT Hi, have not posted for ages.. My son had a huge seizure the other day and his levels were low, but only 3.5 mml. They say that this is not really low enough to cause a seizure. Any ideas? He has been in good heatlh until recently and has been getting head aches,tingling and numbness. He is having an EEG this week..I am going out of my mind thinking that he may have developed epilepsy now as well. He has had diabetes for three years.He is nine... Cheers Helen from OZ
shoppa@trailing-edge.com - 28 Nov 2006 13:02 GMT > Hi, have not posted for ages.. > My son had a huge seizure the other day and his levels were low, but only > 3.5 mml. They say that this is not really low enough to cause a seizure. Any > ideas? It is possible that prior to the seizure, his bg levels were much lower.
Different people have different bg levels in different stages of hypoglycemia. And small children have even wider ranges (and their bg levels may fluctuate more rapidly too) from my experience working with local support groups.
I know that when I've been picked up by paramedics that my bg's had already risen up to the 40's (3.5 mml) even though I had gone through the seizure/unconsciousness thing already.
Tim.
Helen - 28 Nov 2006 13:26 GMT >> Hi, have not posted for ages.. >> My son had a huge seizure the other day and his levels were low, but [quoted text clipped - 10 lines] > levels may fluctuate more rapidly too) from my experience working with > local support groups. Yeah, it may be that he dropped very rapidly and hence the seizure.
> I know that when I've been picked up by paramedics that my bg's had > already risen up to the 40's (3.5 mml) even though I had gone through > the seizure/unconsciousness thing already. > > Tim. Thanks Tim, this does put my mind at ease.. It really is a totally unpredictable condition in't it?
Alan S - 28 Nov 2006 13:09 GMT >Hi, have not posted for ages.. > My son had a huge seizure the other day and his levels were low, but only [quoted text clipped - 5 lines] >Cheers >Helen from OZ Hi Helen
Just wishing you and your son well, Helen, and letting you know it's been read. As a type 2 I can't help a lot more than that.
It's 8am in New York and 5 am in LA - so give it time and the US people will be answering.
Cheers, Alan, T2, Pottsville Beach NSW. d&e, metformin 1000mg, ezetrol 10mg Everything in Moderation - Except Laughter. -- http://loraldiabetes.blogspot.com/ http://loraltravel.blogspot.com/ latest: Pompeii, Amalfi, Bari
Jeff - 28 Nov 2006 13:51 GMT > Hi, have not posted for ages.. > My son had a huge seizure the other day and his levels were low, but only [quoted text clipped - 6 lines] > Cheers > Helen from OZ I am sorry to hear about your son's problems.
As another poster pointed out, the BG could have been lower when the seizures occurred.
This is one of those times you have to just wait and see. I know it's hard.
It sounds like an neurologist is involved.
So you will get to the bottom of this and do what you need to help him.
That is the important part.
Jeff
Helen - 28 Nov 2006 22:40 GMT >> Hi, have not posted for ages.. >> My son had a huge seizure the other day and his levels were low, but [quoted text clipped - 11 lines] > As another poster pointed out, the BG could have been lower when the > seizures occurred. I hope this is the case
> This is one of those times you have to just wait and see. I know it's > hard. > > It sounds like an neurologist is involved. Yes, he is under one b/c a year ago he had some numbness in his L side and other odd symptoms. His neurologist called me and said we need to an EEG as soon as we can.He is having it on friday.
> So you will get to the bottom of this and do what you need to help him. > > That is the important part. Thanks...I am not making a big deal of it to him and have explained what an EEG is. He is a tad frightened b/c his dear little couisin ( she was only six) died from a seizure in her sleep back in July. I am sure that this is playing on his mind.He did have an MRI a while ago b/c they suspected a mitrocondrial l disorder thankfully it was all clear, but his neru said that we need to stay in touch. He also wants to do another MRI depending what the EEG shows or does not show. We are lucky that we have a great pediatric diabetic team at Monash in Clayton, Victoria Australia.
> Jeff rk - 28 Nov 2006 14:12 GMT : Hi, have not posted for ages.. : My son had a huge seizure the other day and his levels were low, but only [quoted text clipped - 5 lines] : Cheers : Helen from OZ Hi Helen...
Sorry your son and you had to experience such an event. Unfortunately it more then likely won't be the last. (praying that it will!) What Tim said is very true. With children they have very rapid changes in their glucose one minute they might be 400 and you give them a correction bolus and they can drop to 30 in a matter of a hour. (had that happen to me as an adult, not fun!) I've also been out, forgotten to eat, was stuck on the freeway and everything went all weirdo on me... thankfully after a few I "thought" duh! test you idiot! I did and I was at 31(1.7mmol). I found a hot juice box in the glovebox, drank it and normally this would knock me up approx 30pt but this time for whatever reason it knocked me up 100 or so, anyhow in the end after about 45mins I was sitting at 145mg (8mmol). After talking to my endo about it he explained that even though we aren't aware often, T1's liver's will kick in and dump glucose even if we pass out to help bring us back up and for us to wake up if we go out. Often over time, T1's livers just stop working when we allow them to over-work to keep us out of hypocity. This also happens with Hypo-unawareness which is why when this happens YOU have to allow yourself to run 200+ (over 11mmol) for a few times after a hypo to allow the body to build back up awareness (sadly, this is the ONLY fix!)
As for the numbness and tingling.. it is possible even though your son hasn't been diabetic very long that he might have the early signs of neuropathy. A good neurologist can rule this out with a EMG test. (sort of painful, but needed) What have his bg's been running? If he's bouncing all over (ie:40-400) then it's very possible. From my own observation, T1's that bounce alot have more tendancy to get complications then those of us that either are hypo proned (stay on the very low side) or dka proned (stay on the high side) more then bouncing.
One suggestion... if he is bouncing you might want to discuss with your sons endo about pumping. Many children in the US are put immedately on the pump at diagnosis to help better control their glucose during their honeymoon and after. While it's expensive no matter what country you live in... its about the best thing we have for an artifical pancreas. Studies prove T1's that have rapid changes are often fixed when they begin pumping. As a young boy... it makes it so much easier to play sports and allows them much more freedom to eat as the other kids his age do... of course within reason.. Just a thought..
Maybe call his Endo and further discuss it with them.
Give your son and you our best.. take care.
 Signature Reisa, T1, Animas IR1250 Pumper DX-5/00 ASD-7/00 A1C: 6.2% (8/24/06) Daily CHO: 150-200gm TDD: 34-38u
shoppa@trailing-edge.com - 28 Nov 2006 18:42 GMT > As for the numbness and tingling.. it is possible even though your son > hasn't been > diabetic very long that he might have the early signs of neuropathy. Just to make life complicated, numbness and tingling are also hypoglycemia symptoms. Numb lips is one of the textbook symptoms, and one of my personal non-textbook symptoms is numb calfs.
Tim.
Helen - 29 Nov 2006 05:34 GMT >> As for the numbness and tingling.. it is possible even though your son >> hasn't been [quoted text clipped - 5 lines] > > Tim. Yes, that is correct, but the problem is that when he gets these symptoms he is the normal range.
Larry - 28 Nov 2006 19:02 GMT Reisa: I like the way you sign off with your diabetes profile. I wish everyone did that ie. T1, T2, Prediabetic etc etc. That way we know where someone is "coming from". I am very guilty not doing it but should. Any idea how to get more of us to do it? I suggest age.type.when dx.drugs.a1c. and bcn y/n
Larry/62yrs/T2/DX2000/metformin/actos/a1c7.0/bcn/y (bcn=better control needed)
> "Helen" <nospam@nospam.com> wrote in message > news:456c19e5$1$23531$afc3c87@news.optusnet.com.au... [quoted text clipped - 82 lines] > Daily CHO: 150-200gm > TDD: 34-38u Ozgirl - 28 Nov 2006 20:11 GMT > Reisa: I like the way you sign off with your diabetes profile. I wish > everyone did that ie. T1, T2, Prediabetic etc etc. That way we know [quoted text clipped - 4 lines] > Larry/62yrs/T2/DX2000/metformin/actos/a1c7.0/bcn/y > (bcn=better control needed) I have sigs, forget to use most fo the time as I frequent other newsgroups as well.
 Signature Ozgirl -Type 2 - DX 2000 - No Diabetic Meds - A1c 4.8 Lots of exercise and a nutritious carb-controlled diet. "Remember, just because you say so, doesn't make it true."
Donna B - 28 Nov 2006 20:40 GMT In alt.support.diabetes on Wed, 29 Nov 2006 07:11:52 +1100 in Msg.# <12mp61ld0al51d5@news.supernews.com>, "Ozgirl" <are_we_there_yet@maccas.com> wrote:
> I have sigs, forget to use most fo the time as I frequent > other newsgroups as well. I have that issue, too!!
 Signature Donna B : ^> <*> 06-07-06 Diagnosis T2 hbA1C 8.1, D&E & Metformin 500mg. 09-11-06 hbA1C 5.0
Irregular Verb Conjugation: I am firm in my beliefs. You are obstinate. She/he is pig-headed.
Donna B - 28 Nov 2006 20:14 GMT In alt.support.diabetes on 28 Nov 2006 11:02:24 -0800 in Msg.# <1164740544.160036.40430@j72g2000cwa.googlegroups.com>, "Larry" <boelkowj@aol.com> wrote:
> Reisa: I like the way you sign off with your diabetes profile. I wish > everyone did that ie. T1, T2, Prediabetic etc etc. That way we know [quoted text clipped - 4 lines] > Larry/62yrs/T2/DX2000/metformin/actos/a1c7.0/bcn/y > (bcn=better control needed) So, you don't like mine? <g>
 Signature Donna B : ^> <*> 06-07-06 Diagnosis T2 hbA1C 8.1, D&E & Metformin 500mg. 09-11-06 hbA1C 5.0
Irregular Verb Conjugation: I was mistaken. You were wrong. He/she is an idiot - bless his/her heart.
rk - 29 Nov 2006 12:56 GMT Thank you Larry,
I'm a simple person and still use OE for my ng reader. You can have your sig for a certain ng and that way I don't have to worry about putting it each time.. instead when it needs changing I just modify it and keeps on working :)
I think all we can do is just ask others to do the same. I agree it does make it much easier LOL though, there are only a few of us T1's... so logic of deduction tells me the rest are T2's :) -- how I keep it straight. really isn't that hard. <g>
 Signature Reisa, T1, Animas IR1250 Pumper DX-5/00 ASD-7/00 A1C: 6.2% (8/24/06) Daily CHO: 150-200gm TDD: 34-38u
: Reisa: I like the way you sign off with your diabetes profile. I wish : everyone did that ie. T1, T2, Prediabetic etc etc. That way we know [quoted text clipped - 91 lines] : > Daily CHO: 150-200gm : > TDD: 34-38u Cheri - 29 Nov 2006 18:40 GMT I have OE but it's an old version. 4 point something, which I'm comfortable with, but I've never been able to figure out how to do a different sig for different newsgroups. I wonder if it can be done with my reader? If it can be, could you please explain how? TIA
-- Cheri rk wrote in message <1sfbh.5249$1s6.4850@newsread2.news.pas.earthlink.net>...
>Thank you Larry, > [quoted text clipped - 3 lines] >when it needs changing I just modify it and keeps on >working :) rk - 29 Nov 2006 18:49 GMT I'm not sure either Cheri, but check under at the top toolbar Tools>Options>Signatures and then I put in my signature go to advanced and click on just the newsgroup I want and it's there.. showing up in here.
HTH
 Signature Reisa, T1, Animas IR1250 Pumper DX-5/00 ASD-7/00 A1C: 6.2% (8/24/06) Daily CHO: 150-200gm TDD: 34-38u
:I have OE but it's an old version. 4 point something, which I'm : comfortable with, but I've never been able to figure out how to do a [quoted text clipped - 12 lines] : >when it needs changing I just modify it and keeps on : >working :) Cheri - 29 Nov 2006 22:27 GMT OK thanks Reisa. I think mine is so old that it doesn't have that option. You can get to signature only under stationery in mine, and there are only a couple of things you can do there. Thanks anyway. I appreciate it. :-)
-- Cheri
rk wrote in message ...
>I'm not sure either Cheri, but check under at the top toolbar >Tools>Options>Signatures and then I put in my signature >go to advanced and click on just the newsgroup I want and >it's there.. showing up in here. > >HTH TigerLily - 29 Nov 2006 23:24 GMT tools...... options.......... signatures....... then you can set the signature up for your regular mail and another one for the news groups..... you click on advanced to select which newsgroups and what mail for each signature that you create
i have 3 newsgroup servers.... i can set up a different sig file for each server
kate
> OK thanks Reisa. I think mine is so old that it doesn't have that > option. You can get to signature only under stationery in mine, and [quoted text clipped - 11 lines] > > > >HTH Ozgirl - 30 Nov 2006 00:02 GMT > tools...... options.......... signatures....... > then you can set the signature up for your regular [quoted text clipped - 4 lines] > i have 3 newsgroup servers.... i can set up a > different sig file for each server I set one up for news only and the first email I sent the sig went into it. I can't figure why. Unless you have to set a sig, even a blank one, for every mail and news account. It seemed to take "default" literally.
TigerLily - 30 Nov 2006 00:11 GMT hmmmmmmm i had to go to advanced and select if the signature was for newsgroups or e-mail
i think if you leave it to default it goes to both newgroups and email
 Signature Join us in the Diabetic-Talk Chatroom on UnderNet /server irc.undernet.org --- /join #Diabetic-Talk More info: http://www.diabetic-talk.org/ http://www.diabetic-talk.org/freeveggies.htm I have no medical qualifications beyond my own experience. Choose your advisers carefully, because experience can be an expensive teacher.
> > tools...... options.......... signatures....... > > then you can set the signature up for your regular [quoted text clipped - 9 lines] > set a sig, even a blank one, for every mail and news > account. It seemed to take "default" literally. Ozgirl - 30 Nov 2006 00:39 GMT > hmmmmmmm i had to go to advanced and select if the > signature was for newsgroups or e-mail That's what I did. But when I sent an email it popped into that as well.
Ma¢k - 30 Nov 2006 15:12 GMT [Default] On Thu, 30 Nov 2006 11:02:58 +1100, "Ozgirl" <are_we_there_yet@maccas.com> Maniacally Screamed the following like a drunken "Ozgirl" <are_we_there_yet@maccas.com> into the madness of usenet:
>> tools...... options.......... signatures....... >> then you can set the signature up for your regular [quoted text clipped - 9 lines] >set a sig, even a blank one, for every mail and news >account. It seemed to take "default" literally. Don't set any sig as the default sig. just creat multiple signatures. Then just before click the send button have the cursor where you want to attach you sig and then click the sig button and choose from the drop down list.
 Signature Mâck©® Deltec CoZmore Pumper Type 1 since 1975 http://www.alt-support-diabetes.org http://www.diabetic-talk.org http://www.insulin-pumpers.org http://www.pandora.com enter "Jason & Demarco"
"To announce that there must be no criticism of the President, or that we are to stand by the President right or wrong, is not only unpatriotic and servile, but is morally treasonable to the American public." ...Theodore Roosevelt
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"I don't know half of you half as well as I should like; and I like less than half of you half as well as you deserve." ....Bilbo Baggins
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Ozgirl - 30 Nov 2006 21:18 GMT > [Default] On Thu, 30 Nov 2006 11:02:58 +1100, "Ozgirl" > <are_we_there_yet@maccas.com> Maniacally Screamed the following like a [quoted text clipped - 19 lines] > to attach you sig and then click the sig button and choose from the > drop down list. I don't see anywhere is OE where you can remove the default. I have one sig and it is saying it is the defaullt.
Alan S - 30 Nov 2006 22:33 GMT >> [Default] On Thu, 30 Nov 2006 11:02:58 +1100, "Ozgirl" >> <are_we_there_yet@maccas.com> Maniacally Screamed the [quoted text clipped - 27 lines] >I don't see anywhere is OE where you can remove the default. >I have one sig and it is saying it is the defaullt. One of the few I may be able to help with.
In OE click on "create message"
On your toolbar at the top there should be a button titled "Insert Signature"; it may be shortened to "Insert".
If not, right-click on a blank spot on the toolbar and select "customise". Follow the directions to add "Insert Signature" to the toolbar buttons list.
Then, follow Mack's instructions.
You won't get a choice until you create extra sigs.
Make sure that in Tools->Options->Signatures you have not checked "Add signatures to all outgoing messages" so that you can choose at the time of sending.
Cheers, Alan, T2, Australia. d&e, metformin 1000mg, ezetrol 10mg Everything in Moderation - Except Laughter. -- http://loraldiabetes.blogspot.com/ http://loraltravel.blogspot.com/ latest: Pompeii, Amalfi, Bari
Ma¢k - 01 Dec 2006 20:47 GMT [Default] On Fri, 01 Dec 2006 09:33:31 +1100, Alan S <loralgtweightandcarbs@gmail.com> Maniacally Screamed the following like a drunken Alan S <loralgtweightandcarbs@gmail.com> into the madness of usenet:
>>> [Default] On Thu, 30 Nov 2006 11:02:58 +1100, "Ozgirl" >>> <are_we_there_yet@maccas.com> Maniacally Screamed the [quoted text clipped - 50 lines] >d&e, metformin 1000mg, ezetrol 10mg >Everything in Moderation - Except Laughter. This will work.
Cheri - 30 Nov 2006 00:13 GMT My newsreader is OE 4.72 There is no tools....options....signatures. Mine is tools...stationery...signatures. When you click on signatures, you can set one signature for email, and one signature for newsgroups. There is no advanced option there, but thanks for trying to help. :-)
-- Cheri
>tools...... options.......... signatures....... >then you can set the signature up for your regular [quoted text clipped - 6 lines] > >kate Ozgirl - 30 Nov 2006 00:39 GMT > My newsreader is OE 4.72 There is no tools....options....signatures. > Mine is tools...stationery...signatures. When you click on signatures, > you can set one signature for email, and one signature for newsgroups. > There is no advanced option there, but thanks for trying to help. :-) Cheri - upgrade ;)
Alan S - 30 Nov 2006 01:25 GMT >> My newsreader is OE 4.72 There is no >tools....options....signatures. [quoted text clipped - 6 lines] > >Cheri - upgrade ;) Is it like cars? Is there a re-sale market for antique or veteran email software?
:-)
Cheers, Alan, T2, Australia. d&e, metformin 1000mg, ezetrol 10mg Everything in Moderation - Except Laughter. -- http://loraldiabetes.blogspot.com/ http://loraltravel.blogspot.com/ latest: Pompeii, Amalfi, Bari
Helen - 29 Nov 2006 05:33 GMT > : Hi, have not posted for ages.. > : My son had a huge seizure the other day and his levels were low, but [quoted text clipped - 20 lines] > drop to 30 in a matter of a hour. (had that happen to me as an adult, not > fun!) I can only imagine.
> I've also been out, forgotten to eat, was stuck on the freeway and > everything > went all weirdo on me.. Hell, that's dangerous..
>. thankfully after a few I "thought" duh! test you > idiot! [quoted text clipped - 26 lines] > hasn't been > diabetic very long that he might have the early signs of neuropathy. Yeah, this thought has crossed my mind..I will discuss it with his neuro
> A good > neurologist [quoted text clipped - 3 lines] > been running? If he's bouncing all over (ie:40-400) then it's very > possible. He is all over the place...it does not make an ounce of sense b/c we really monitor his diet and he is active. He is on novo rapid (6 units) and protophane ( 12 units) both AM and PM. We are doing 2 AM BGL's this week to get a clearer picture and he just had his diet reveiwed by the dieticitcan who was hapy with it. He does have coeliacs disease AND an underactive thyroid, so he copped the trippple auto immune thing ( I have a thyroid disorder, nanna has coeliacs and grand dad is type one diabetic..such great geneitc stock huh!)
> From my > own observation, T1's that bounce alot have more tendancy to get [quoted text clipped - 12 lines] > matter what country you live in... its about the best thing we have for an > artifical pancreas. Yes, we have put our names down on the waiting list for a pump...it maybe about a year before it happens,,I think he may do well with it.
> Studies prove T1's that have rapid changes are often fixed when they begin > pumping. As > a young boy... it makes it so much easier to play sports and allows them > much more freedom > to eat as the other kids his age do... of course within reason.. Just a > thought.. It is a good thought and I am quite into the idea.
> Maybe call his Endo and further discuss it with them. > > Give your son and you our best.. take care. Thanks rk. He has the EEG on friday and he is not happy about it...I explained what they do and he has had an MRI before and I told him that an EEG is no way near as intrusive... cheers Helen
Ozgirl - 29 Nov 2006 06:13 GMT He is all over the place...it does not make an ounce of sense b/c we
> really monitor his diet and he is active. > He is on novo rapid (6 units) and protophane ( 12 units) both AM and > PM. Can kids take Lantus? My daughter's partner and a 15 yr old friend both switched and found control way easier.
Helen - 29 Nov 2006 10:17 GMT > He is all over the place...it does not make an ounce of > sense b/c we [quoted text clipped - 5 lines] > Can kids take Lantus? My daughter's partner and a 15 yr old > friend both switched and found control way easier. I asked our endo about this, as my fahter in law is on it and raves about it. Our endo said it is only suitable when kids are on four injections a day, currently he is only on two and we want to keep it that way for as long as we can. I would mean he would have to do them at shcool and he is not yet ready for this maturity wise, He would most likely forget and would most likely resent doing them that many times a day. He does give himself his own needles but still can not draw them up on his own. Lantus is used with a pen, but they still have to dial it up....
rk - 29 Nov 2006 13:11 GMT OUCH!!!...
Okay.. I'm going to play doctor here LOL...
Your endo is TOTALLY WRONG! Lantus is really only to be a ONCE a day shot... but many do better on 2 a day...
another thing from your other post to me was... is he on fixed dosages? If so.. he really needs to be self-adjusting. Do you guys carb count? You'll have to learn this prior to pumping because its really the only way to work the insulin with pumping.. but it does far better then any other method.
if not, I'll give you an example..
You'll see my TDD in my sig.. means I take TOTAL of 34-38u of ALL my insulin a day. which is FAR less then your son..he's smaller (I can guarantee you!) then I am.. LOL
So... say for my breakfast this morning.. I had 1 wheat bagel which was 48gm (I do NOT subtract fiber) 2 eggs w/cheese and green onion with 3 sausages and about 3tsp of ketchup.
Bagel = 48gm eggs = 2gm (1gm each) sausage - 0gm ketchup = 12gm (4gm per 1tsp) --------------------------------- 62gm total
my carb to insulin ratio in the morning is 14:1 meaning I can have 14gm of carbs to every 1u of insulin. So, I take 62/14 = 4.42u for that I would keep it at 4.4u since I pump and can get the 4.4u (nice huh?) Otherwise if I were on injections I would do 4u and do a correction bolus later or 5u and make sure I didn't go to low after. Or if I had syringes that did .5u I'd do 4.5u which basically would be just about perfect.
Now if I were running say a bit too high say 210mg then I would add in my correction factor and add that amount to my insulin dose for my meal to help bring me back down.
This gives you the freedom to correct as needed and make the meal insulin what it needs to be by carbs.
As far as his basal -- honestly I've forgotten how to calculate that since pumping and I've loaned out my one Insulin book that I normally use but I can look it up if you'd like. Because personally.. I think your son is on TOO MUCH basal insulin at 12u 2x a day ... at my weight and height.. I'm only at 18u basal a day and they say I should be on 28u -- and no I'm not sensitive.. I have other health issues that I have to calculate in also... I have the multiple autoimmune problems as well.
I hope this helps... I'll try to help further if you have more questions.
 Signature Reisa, T1, Animas IR1250 Pumper DX-5/00 ASD-7/00 A1C: 6.2% (8/24/06) Daily CHO: 150-200gm TDD: 34-38u
: : > He is all over the place...it does not make an ounce of [quoted text clipped - 15 lines] : He does give himself his own needles but still can not draw them up on his : own. Lantus is used with a pen, but they still have to dial it up.... TigerLily - 29 Nov 2006 16:35 GMT you are forgetting the extra 3 shots for meals...... that makes 4 shots a day, something that Helen said she doesn't think her son is ready for
insulatard aka NPH is a basal AND bolus intermediate acting insulin that covers meals in part and basal in part....... his use of insulatard is spot on
kate
 Signature Join us in the Diabetic-Talk Chatroom on UnderNet /server irc.undernet.org --- /join #Diabetic-Talk More info: http://www.diabetic-talk.org/ http://www.diabetic-talk.org/freeveggies.htm I have no medical qualifications beyond my own experience. Choose your advisers carefully, because experience can be an expensive teacher.
> OUCH!!!... > [quoted text clipped - 52 lines] > > I hope this helps... I'll try to help further if you have more questions. news:456d5e34$1$5749$afc38c87@news.optusnet.com.au...
> : > He is all over the place...it does not make an ounce of > : > sense b/c we [quoted text clipped - 15 lines] > : He does give himself his own needles but still can not draw them up on his > : own. Lantus is used with a pen, but they still have to dial it up.... rk - 29 Nov 2006 17:56 GMT I didn't forget anything and my post was spot on!
 Signature Reisa, T1, Animas IR1250 Pumper DX-5/00 ASD-7/00 A1C: 6.2% (8/24/06) Daily CHO: 150-200gm TDD: 34-38u
: you are forgetting the extra 3 shots for : meals...... that makes 4 shots a day, something [quoted text clipped - 128 lines] : > : own. Lantus is used with a pen, but they still : have to dial it up.... Helen - 30 Nov 2006 01:36 GMT > OUCH!!!... > [quoted text clipped - 3 lines] > to be a ONCE a day shot... but many do better on 2 > a day... Really? I will have to drill him when I see him next..
> another thing from your other post to me was... is he > on fixed dosages? If so.. he really needs to be self-adjusting. > Do you guys carb count? You'll have to learn this prior to > pumping because its really the only way to work the insulin > with pumping.. but it does far better then any other method. Okay, we will most likely learn this when we get the pump.
> if not, I'll give you an example.. > > You'll see my TDD in my sig.. means I take TOTAL of 34-38u > of ALL my insulin a day. which is FAR less then your son..he's > smaller (I can guarantee you!) then I am.. LOL Yeah..you could say that..LOL, but he will one day be of adult size.
> So... say for my breakfast this morning.. I had 1 wheat bagel > which was 48gm (I do NOT subtract fiber) 2 eggs w/cheese and [quoted text clipped - 32 lines] > have > the multiple autoimmune problems as well. Do you, what are they if you don't mind me aksing? You do not have to answer of course...It is a bummer having more than one auto immune condition.
> I hope this helps... I'll try to help further if you have more questions. Thanks, what you have told me is very informative and it really has got me thinking that the pump is the best way to go..I hope we do not have to wait too long... I expressed my concerns about my sons ability to use it and he ( our endo) said "Can he use a computer or a mobile phone?" I laughed and said"Yeah, better than me!" He replied "Then he will have no problems, he will pick it up quickly and his quality of life will improve vaslty" So heres hoping that we get it happening as soon as possible. Thanks for taking the time to answer my questions, address my concerns and explain how you calculate the carbs..' Take care Cheers Helen from Oz
> : > He is all over the place...it does not make an ounce of > : > sense b/c we [quoted text clipped - 19 lines] > his > : own. Lantus is used with a pen, but they still have to dial it up.... rk - 30 Nov 2006 03:00 GMT : > OUCH!!!... : > [quoted text clipped - 5 lines] : : Really? I will have to drill him when I see him next.. yep... feel free to go to http://www.lantus.com to read up more on it.
: > I : > have : > the multiple autoimmune problems as well. : : Do you, what are they if you don't mind me aksing? You do not have to answer : of course...It is a bummer having more than one auto immune condition. I don't mind. T1DM, Ankylosing Spondylitis, Raynaud's Syndrome and Premature Ovarian Failure. As well as being HLA-B27 postitive, which I passed onto my daughter and at 15yrs old she developed Hashimoto's Thyroidism and also has PCOS. She's currently 19yrs old now. Gotta LOVE them genes :) NOT!
: > I hope this helps... I'll try to help further if you have more questions. : [quoted text clipped - 12 lines] : Cheers : Helen from Oz You're more then welcomed.. Yep, he shouldn't have any problems at all. You can let him know that it's such a relief NOT to have to take an injection at mealtime or leaving notes about remembering to take your shot before bedtime. Every 3 days you change your site, fill your set and away you go!!! no fuss no muss.. Gotta tell ya, a time back, I was running high and needed to inject a correction to see if it was the pump or not.. well I actually sat and fussed to myself that it was going to hurt because inserting the infusion set doesn't hurt at all!!! I think I've felt 3 in the 4yrs I've been pumping... Hope you're able to push a bit to get pumping.. I think you'll like the freedom also of knowing he'll do better..
Take care.
Reisa
: > : > He is all over the place...it does not make an ounce of : > : > sense b/c we [quoted text clipped - 19 lines] : > his : > : own. Lantus is used with a pen, but they still have to dial it up.... Helen - 01 Dec 2006 12:40 GMT > : > OUCH!!!... > : > [quoted text clipped - 23 lines] > has > PCOS. She's currently 19yrs old now. Gotta LOVE them genes :) NOT! Oh, sorry to hear that, how are you fairing? I have hashimoto's as well! It started as Graves disease and after years of that, it packed up and now I am on Thyroxin for the rest of my life, as I imagine you ae too? Years ago, my graves disease was so bad they wanted to take out my thyroid, but b/c I am a singer I did not wish to risk my vocal chords being damaged, so I chose the meds...How do you feel if you miss your thyroxin? I feel very , very tired , flat and grumpy...Is this how you feel? I have been feeling heaps better now I am taking it every day... These "defective" Genes are a total pain..
> : > I hope this helps... I'll try to help further if you have more > questions. [quoted text clipped - 43 lines] > > Take care. Thanks Rei..Pumps sound great.. your advice has eased my concerns Have a great week end! Cheers Helen from Oz
> Reisa > [quoted text clipped - 28 lines] > : > : own. Lantus is used with a pen, but they still have to dial it > up.... Ozgirl - 28 Nov 2006 20:08 GMT > Hi, have not posted for ages.. > My son had a huge seizure the other day and his levels were low, > but only > 3.5 mml. They say that this is not really low enough to cause a > seizure. Any ideas? He has been in good heatlh until recently and has
> been getting head aches,tingling and numbness. He is having an EEG
> this week..I am going out of my mind thinking that he may have
> developed epilepsy now as well. > He has had diabetes for three years.He is nine... > Cheers > Helen from OZ Helen, wait for the results of all testing and conflab with endo and neurologist. I hope everything turns out well. It doesn't seem a low enough bg for a seizure but all will become clear after his tests, I'm sure. Hugs.
Helen - 29 Nov 2006 05:35 GMT >> Hi, have not posted for ages.. >> My son had a huge seizure the other day and his levels [quoted text clipped - 17 lines] > doesn't seem a low enough bg for a seizure but all will > become clear after his tests, I'm sure. Hugs. Thanks Ozgirl..The EEG is on this Friday and I hope they can give us the results on the day. cheers] Helen from Oz
Ma¢k - 28 Nov 2006 20:55 GMT [Default] On Tue, 28 Nov 2006 22:13:37 +1100, "Helen" <nospam@nospam.com> Maniacally Screamed the following like a drunken "Helen" <nospam@nospam.com> into the madness of usenet:
>Hi, have not posted for ages.. > My son had a huge seizure the other day and his levels were low, but only [quoted text clipped - 5 lines] >Cheers >Helen from OZ Luckily, testing to rule out epilepsy is simple. So get it done and ease your mind one way or the other. And if he does have epilepsy, the sooner he starts proper treatment, the safer he will be.
That being said, it's most likely as some of the others have said. The kid went lower than was actually tested at which caused the seizure and then rebounded. His liver released some stored glycogen and brought his BG up back up. Unfortunately the other symptoms you are describing "getting head aches,tingling and numbness" are also symptoms of hypos. Low BGs. In Oz I do not know what is available to you as far as BG testing methods go. But you should at this point increase the child's BG testing frequency to find out when he is experiencing these lows. If you have to take a finger stick reading once every hour for 3 days straight to get the patterns recorded then do it. But there is an alternative. Minimed has what is called a Continuous Blood Glucose Monitor System. CBGMS, that you wear just like an insulin pump for 3 days at a time. It takes continuous readings all day and night for up to 36 hours, then you return to your doctor and download the readings to his computer and graph them and you will see exactly how his BG levels are changing and when. With this information maybe with 2 or 3 studies like this spread out over a few months you will be able to fine tune his insulin doses so as to eliminate these hypos. And yes you can use these studies to fine tune insulin injections via syringes just as easily as you can use this to fine tune someone using an insulin pump. Of course you will also be keeping a record of his exact meals, snacks and exercise patterns as well.
Can you tell us exactly what type of insulin the child takes? and how you determine how much insulin he takes per dose? Is it based on a set dose every time? or dose it change based on both his premeal BG reading and his total carbs eaten measured in grams of carbs?
If the doctor has the child taking a set amount of a fast acting insulin every dose regardless of what the child's current BG and meal is, you are running the risk of hypos every time. Fast acting insulins and set doses do not work. If that is the type of medical advice you are getting, you'll need to find a doctor that actually knows what the hell they are doing.
I also do not see the child's age mentioned. When the child hits puberty you will have to pay close attention to changing BG levels. Pumping makes puberty much easier for type 1s.
I highly recommend http://www.childrenwithdiabetes.org and http://www.diabeticmommy.org and http://www.insulin-pumpers.org if you have not already read them. There are a lot of parents and doctors and nurses of type 1 children participating in the insulin-pumpers web site discussion forums. And they will help even if your child is not pumping.
 Signature Mâck©® Deltec CoZmore Pumper Type 1 since 1975 http://www.alt-support-diabetes.org http://www.diabetic-talk.org http://www.insulin-pumpers.org http://www.pandora.com enter "Jason & Demarco"
"To announce that there must be no criticism of the President, or that we are to stand by the President right or wrong, is not only unpatriotic and servile, but is morally treasonable to the American public." ...Theodore Roosevelt
(o ô) --ooO-(_)-Ooo--------------------
"I don't know half of you half as well as I should like; and I like less than half of you half as well as you deserve." ....Bilbo Baggins
DISCLAIMER If you find a posting or message from me offensive, inappropriate, or disruptive, please ignore it. If you don't know how to ignore a posting, complain to me and I will be only too happy to demonstrate... .
Helen - 29 Nov 2006 05:47 GMT > [Default] On Tue, 28 Nov 2006 22:13:37 +1100, "Helen" > <nospam@nospam.com> Maniacally Screamed the following like a drunken [quoted text clipped - 16 lines] > ease your mind one way or the other. And if he does have epilepsy, > the sooner he starts proper treatment, the safer he will be. Yes, I am lucky that he has a good neuro who rang me as soon as he could and orgnaised the EEG as soon as possible.He did say to me on the phone that his BGL was really not low enough to really cause a seizure.
> That being said, it's most likely as some of the others have said. The > kid went lower than was actually tested at which caused the seizure > and then rebounded. His liver released some stored glycogen and > brought his BG up back up. I am hoping this is the case and it probrably is...
>Unfortunately the other symptoms you are > describing "getting head aches,tingling and numbness" are also > symptoms of hypos. Problem is, he gets these symptoms when he is well within the normal range and/or a tad on the high side.
> Low BGs. In Oz I do not know what is available to > you as far as BG testing methods go. But you should at this point > increase the child's BG testing frequency to find out when he is > experiencing these lows. If you have to take a finger stick reading > once every hour for 3 days straight to get the patterns recorded then We have the Optimum testing kits and they give a reading in ten seconds...Our measurements are different, we measure in mml...don't know how that translates to US measurements...
> do it. But there is an alternative. Minimed has what is called a > Continuous Blood Glucose Monitor System. CBGMS, that you wear just [quoted text clipped - 9 lines] > keeping a record of his exact meals, snacks and exercise patterns as > well. That sounds like a good way to go and I will discuss this with his endo at our next appointment. We have already decided on getting a pump next year,
> Can you tell us exactly what type of insulin the child takes? and how > you determine how much insulin he takes per dose? Is it based on a > set dose every time? or dose it change based on both his premeal BG > reading and his total carbs eaten measured in grams of carbs? He is on 6 units of novo rapid and 12 units of protophane AM and PM, we will be most likely adjusting his insulin soon. His last HbAc was higher than we would like, but he has a hypo every day..SO there does need to be a good reveiw of his BGL's, hence we are doing 2AM readings at the mo...We should be doing lunch time readings, however, when he is at shcool he will not do them even though I have asked his teacher to remind him. He is being a tad non complient at the moment..I think he has Burn out. I can't blame him..he has several other auto immune diseases too so he feels very hard done by.
> If the doctor has the child taking a set amount of a fast acting > insulin every dose regardless of what the child's current BG and meal [quoted text clipped - 13 lines] > site discussion forums. And they will help even if your child is not > pumping. Ma¢k - 29 Nov 2006 06:27 GMT [Default] On Wed, 29 Nov 2006 16:47:21 +1100, "Helen" <nospam@nospam.com> Maniacally Screamed the following like a drunken "Helen" <nospam@nospam.com> into the madness of usenet:
>>Unfortunately the other symptoms you are >> describing "getting head aches,tingling and numbness" are also >> symptoms of hypos. > >Problem is, he gets these symptoms when he is well within the normal range >and/or a tad on the high side. then the group needs to hold off on most suggestions except for increased BG testing, until you hear from the neuro doc.
>> Low BGs. In Oz I do not know what is available to >> you as far as BG testing methods go. But you should at this point [quoted text clipped - 6 lines] >that >translates to US measurements... you multiply your numbers by 18 to get my numbers your 3.5 X 18 is 63 mg/dl in my numbers. my 120 divided by 18 is 6.66 in your numbers.
>> do it. But there is an alternative. Minimed has what is called a >> Continuous Blood Glucose Monitor System. CBGMS, that you wear just [quoted text clipped - 12 lines] >That sounds like a good way to go and I will discuss this with his endo at >our next appointment. We have already decided on getting a pump next year, Now I like my coZmore and RK likes her Animas (if I remember correctly). They both have a built in meal and correction bolus feature. My meter is attached to my pump. So when I test it sends the BG reading directly to the pump, then I tell it how many grams of carbs I am eating or if between meals I just tell it to skip that data and calculate a correction dose(bolus) and the pump does the math for me and then delivers the correct amount of insulin. Working closely with the endocrinologist/diabetic specialist when first starting out on a pump is how you get the pump correctly programmed.
>> Can you tell us exactly what type of insulin the child takes? and how >> you determine how much insulin he takes per dose? Is it based on a [quoted text clipped - 7 lines] >be doing lunch time readings, however, when he is at shcool he will not do >them even though I have asked his teacher to remind him. That CGMS will get you around that problem.
He is being a tad
>non complient at the moment..I think he has Burn out. >I can't blame him..he has several other auto immune diseases too so he feels >very hard done by. we all go through that. Do you have anything like diabetic camp in your part of the world? something like this?: http://www.floridadiabetescamp.org/
we have many of them here for all different age groups.
 Signature Mâck©® Deltec CoZmore Pumper Type 1 since 1975 http://www.alt-support-diabetes.org http://www.diabetic-talk.org http://www.insulin-pumpers.org http://www.pandora.com enter "Jason & Demarco"
"To announce that there must be no criticism of the President, or that we are to stand by the President right or wrong, is not only unpatriotic and servile, but is morally treasonable to the American public." ...Theodore Roosevelt
(o ô) --ooO-(_)-Ooo--------------------
"I don't know half of you half as well as I should like; and I like less than half of you half as well as you deserve." ....Bilbo Baggins
DISCLAIMER If you find a posting or message from me offensive, inappropriate, or disruptive, please ignore it. If you don't know how to ignore a posting, complain to me and I will be only too happy to demonstrate... .
Helen - 29 Nov 2006 10:20 GMT > [Default] On Wed, 29 Nov 2006 16:47:21 +1100, "Helen" > <nospam@nospam.com> Maniacally Screamed the following like a drunken [quoted text clipped - 77 lines] > we all go through that. Do you have anything like diabetic camp in > your part of the world? something like this?: Yeah we do, he went on one early this year and had a great time..He is going on one again in Jan next year... They are great!!
Alan S - 29 Nov 2006 08:12 GMT >We have the Optimum testing kits and they give a reading in ten >seconds...Our measurements are different, we measure in mml...don't know how >that >translates to US measurements... Hi Helen
Below I've included a standard post on conversions between our numbers and US ones to help. Before I add that, one place you might find useful is the Reality Check group. They are young adults with diabetes, based in Victoria. Some are type 2 but most are type 1 - their more recent experiences may be helpful.
The web-site is www.realitycheck.org.au, their forum is at http://realitycheck.org.au/phpBB2/viewforum.php?f=1
Now, for conversions:
The conversion rate can be done either by multiplying by 18 (so 5.5 mmol becomes 99, but I usually round to the nearest 5, so 5.5 => 100) or divide by .0555 if you want to get totally accurate. The exact multiplier is 18.018.
Other ones you will find useful here are cholesterol and triglycerides:
Cholesterol divide by 0.0259 or multiply by 38.6 Triglycerides divide by 0.0113 or multiply by 88.5 Glucose divide by 0.0555 or multiply by 18.02
Source: http://www.globalrph.com/conv_si.htm#top
You will occasionally see people here talking about lipids ratios; remember to use those conversions before applying to US numbers. For triglycerides/HDL, good for us is under 1.3, but for US figures it's under 3.
I usually write the corresponding BG figure in brackets for clarity, for example 6.1 (110).
Finally, a quick ready reckoner: 40 2.2 45 2.5 50 2.8 55 3.1 60 3.3 65 3.6 70 3.9 75 4.2 80 4.4 85 4.7 90 5.0 95 5.3 100 5.6 110 6.1 120 6.7 130 7.2 140 7.8 150 8.3 160 8.9 170 9.4 180 10.0 190 10.5 200 11.1 250 13.9 300 16.7 350 19.4 400 22.2
And the other way: 2 36 2.5 45 3 54 3.5 63 4 72 4.5 81 5 90 5.5 99 6 108 6.5 117 7 126 7.5 135 8 144 8.5 153 9 162 9.5 171 10 180 10.5 189 11 198 12 216 13 234 14 252 15 270 20 360 25 450 30 541
Cheers, Alan, T2, Australia. d&e, metformin 1000mg, ezetrol 10mg Everything in Moderation - Except Laughter. -- http://loraldiabetes.blogspot.com/ http://loraltravel.blogspot.com/ latest: Pompeii, Amalfi, Bari
Helen - 29 Nov 2006 10:24 GMT Thanks Alan!!
>>We have the Optimum testing kits and they give a reading in ten >>seconds...Our measurements are different, we measure in mml...don't know [quoted text clipped - 102 lines] > http://loraltravel.blogspot.com/ > latest: Pompeii, Amalfi, Bari Kurt - 28 Nov 2006 21:16 GMT > Hi, have not posted for ages.. > My son had a huge seizure the other day and his levels were low, but only [quoted text clipped - 5 lines] > Cheers > Helen from OZ Hi Helen,
Sorry to here about your son's problems. As much as I'd like to offer an opinion on what the problem is, it would be wrong for me to do so. There are too many things I don't know about your son's conditions that only a doctor who is treating him will be able to take into account. I do know that headaches are one symptom of a hypo but a headache could also be a symptom of many other things. Sounds like you are doing the absolute best you can by making sure that professional doctors are on his side and doing tests to determine what the exact cause of the seizure is and was.
I'm sorry to hear your are going out of your mind, that is a normal reaction no doubt but try to be as calm as possible especially around him. It's tough, I know that from persona experience but until all the tests come in there is not much you can do. All I can really do here is to send out some good thoughts your way...and that's something I will do right now.
Hang in there and my wishes are that you get some answers and they are ones who put your mind at rest.
Best, Kurt
Helen - 29 Nov 2006 05:51 GMT >> Hi, have not posted for ages.. >> My son had a huge seizure the other day and his levels were low, but [quoted text clipped - 21 lines] > his side and doing tests to determine what the exact cause of the > seizure is and was. Yeah, being that it was his first and that he has had some odd neurological symptoms in the past, we can not let it pass. His neuro and endo are both a bit concerned b/c his BGL at the time of the seizure was not that low.
> I'm sorry to hear your are going out of your mind, that is a normal > reaction no doubt but try to be as calm as possible especially around [quoted text clipped - 5 lines] > Hang in there and my wishes are that you get some answers and they are > ones who put your mind at rest. Thanks Kurt. He has his EEG on Friday and I really hope that they can tell us then and there what the results are. You know how they usually make you wait to see the specialist on the follow up visist for the results? , Well I am going to insist that they tell me on the day so that I am not going nuts on the week end. Cheers Helen from OZ
> Best, > Kurt Uncle Enrico - 29 Nov 2006 05:23 GMT Hi Helen,
As a sufferer of both diabetes and epilepsy, my sympathies are with you and your son.
I'm no expert on epilepsy mainly because there are so many varieties and levels of intensity to the condition. I've been diagnosed as having temporal lobe seizures with no obvious lesions or causes that can be seen with an MRI or EEG. My neurologist said, "I dunno why you have them."
There are two newsgroups dedicated to the problem: alt.support.epilepsy and uk.people.support.epilepsy
I haven't been on either group in awhile. I take Tegretol and I'm mostly stable. I'm much more involved with my diabetes.
There are a number of surprising situations that will precipitate seizures including too much television watching, so you might want to do a google search or ask questions on those two newsgroups.
God bless and best wishes.
> Hi, have not posted for ages.. > My son had a huge seizure the other day and his levels were low, but only [quoted text clipped - 6 lines] > Cheers > Helen from OZ parulmca@gmail.com - 29 Nov 2006 06:28 GMT Dear Uncle Enrico your question about 'Diabetes' got me thinking. I know people personally who have suffered due to this but I guess not everyone would understand the challenges till faced with similar circumstances. Anyways, I did a bit of research and found an article which says 'Diabetes is a life-long disease marked by high levels of sugar in the blood. It can be caused by too little insulin (a hormone produced by the pancreas to regulate blood sugar), resistance to insulin, or both'. I found this article at http://medical-health-care-information.com/encyclopedia/D/Diabetes.asp Maybe you would want to read more about it there. I hope it's helpful in some way to you.
> Hi Helen, > [quoted text clipped - 28 lines] > > Cheers > > Helen from OZ Alan S - 29 Nov 2006 08:14 GMT >Dear Uncle Enrico > your question about 'Diabetes' got me thinking. I know people [quoted text clipped - 8 lines] >Maybe you would want to read more about it there. I hope it's helpful >in some way to you. Piss off spammer.
Alan, T2, Australia.
Chris Malcolm - 29 Nov 2006 09:26 GMT > Hi Helen,
> As a sufferer of both diabetes and epilepsy, my sympathies are with you and > your son.
> I'm no expert on epilepsy mainly because there are so many varieties and > levels of intensity to the condition. I've been diagnosed as having temporal > lobe seizures with no obvious lesions or causes that can be seen with an MRI > or EEG. My neurologist said, "I dunno why you have them."
> There are two newsgroups dedicated to the problem: alt.support.epilepsy > and uk.people.support.epilepsy
> I haven't been on either group in awhile. I take Tegretol and I'm mostly > stable. I'm much more involved with my diabetes.
> There are a number of surprising situations that will precipitate seizures > including too much television watching, so you might want to do a google > search or ask questions on those two newsgroups. I see BBC TV has started giving warnings before image sequences that might provoke a seizure. Even a barrage of flash photography in a news bulletin item can do it.
 Signature Chris Malcolm cam@infirmatics.ed.ac.uk DoD #205 IPAB, Informatics, JCMB, King's Buildings, Edinburgh, EH9 3JZ, UK [http://www.dai.ed.ac.uk/homes/cam/]
Helen - 29 Nov 2006 10:25 GMT > Hi Helen, > [quoted text clipped - 17 lines] > > God bless and best wishes. Thank you..we find out on friday...I will post here either way.. cheers helen
>> Hi, have not posted for ages.. >> My son had a huge seizure the other day and his levels were low, but [quoted text clipped - 6 lines] >> Cheers >> Helen from OZ Uncle Enrico - 29 Nov 2006 15:18 GMT > Thank you..we find out on friday...I will post here either way.. > cheers > helen A reassuring note about seizure meds if this therapy becomes necessary.
I take two pills a day and am well controlled. It's like I don't have the problem any more. I rarely think about it. It took me two weeks for my body to adjust to the meds--a little tiredness. But after that adjustment period, I don't notice them at all and life is wonderful. I take a blood test every six months to check my blood level for the med.
Most of the meds have been around for a long time, are well tolerated and often available in low cost generic form.
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