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Medical Forum / Diseases and Disorders / Diabetes / December 2006

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my son had his first seizure

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Helen - 28 Nov 2006 11:13 GMT
Hi, have not posted for ages..
My son had a huge  seizure the other day and his levels were low, but only
3.5 mml. They say that this is not really low enough to cause a seizure. Any
ideas? He has been in good heatlh until recently and has been getting head
aches,tingling and  numbness. He is having an EEG this week..I am going out
of my mind thinking that he may have developed epilepsy now as well.
He has had diabetes for three years.He is nine...
Cheers
Helen from OZ
shoppa@trailing-edge.com - 28 Nov 2006 13:02 GMT
> Hi, have not posted for ages..
>  My son had a huge  seizure the other day and his levels were low, but only
> 3.5 mml. They say that this is not really low enough to cause a seizure. Any
> ideas?

It is possible that prior to the seizure, his bg levels were much
lower.

Different people have different bg levels in different stages of
hypoglycemia. And small children have even wider ranges (and their bg
levels may fluctuate more rapidly too) from my experience working with
local support groups.

I know that when I've been picked up by paramedics that my bg's had
already risen up to the 40's (3.5 mml) even though I had gone through
the seizure/unconsciousness thing already.

Tim.
Helen - 28 Nov 2006 13:26 GMT
>> Hi, have not posted for ages..
>>  My son had a huge  seizure the other day and his levels were low, but
[quoted text clipped - 10 lines]
> levels may fluctuate more rapidly too) from my experience working with
> local support groups.

Yeah, it may be that he dropped very rapidly and hence the seizure.

> I know that when I've been picked up by paramedics that my bg's had
> already risen up to the 40's (3.5 mml) even though I had gone through
> the seizure/unconsciousness thing already.
>
> Tim.

Thanks Tim, this does put my mind at ease..
It really is a totally unpredictable condition in't it?
Alan S - 28 Nov 2006 13:09 GMT
>Hi, have not posted for ages..
> My son had a huge  seizure the other day and his levels were low, but only
[quoted text clipped - 5 lines]
>Cheers
>Helen from OZ

Hi Helen

Just wishing you and your son well, Helen, and letting you
know it's been read. As a type 2 I can't help a lot more
than that.

It's 8am in New York and 5 am in LA - so give it time and
the US people will be answering.

Cheers, Alan, T2, Pottsville Beach NSW.
d&e, metformin 1000mg, ezetrol 10mg
Everything in Moderation - Except Laughter.
--
http://loraldiabetes.blogspot.com/
http://loraltravel.blogspot.com/
latest: Pompeii, Amalfi, Bari
Jeff - 28 Nov 2006 13:51 GMT
> Hi, have not posted for ages..
> My son had a huge  seizure the other day and his levels were low, but only
[quoted text clipped - 6 lines]
> Cheers
> Helen from OZ

I am sorry to hear about your son's problems.

As another poster pointed out, the BG could have been lower when the
seizures occurred.

This is one of those times you have to just wait and see. I know  it's hard.

It  sounds like an neurologist is involved.

So you will get to the bottom of this and do what you need to help him.

That is the important part.

Jeff
Helen - 28 Nov 2006 22:40 GMT
>> Hi, have not posted for ages..
>> My son had a huge  seizure the other day and his levels were low, but
[quoted text clipped - 11 lines]
> As another poster pointed out, the BG could have been lower when the
> seizures occurred.

I hope this is the case
> This is one of those times you have to just wait and see. I know  it's
> hard.
>
> It  sounds like an neurologist is involved.

Yes, he is under one b/c a year ago he had some numbness in his L  side and
other odd symptoms. His neurologist called me and said we need to an EEG as
soon as we can.He is having it on friday.

> So you will get to the bottom of this and do what you need to help him.
>
> That is the important part.

Thanks...I am not making a big deal of it to him and have explained what an
EEG is. He is a tad frightened b/c his dear little couisin ( she was only
six) died from a seizure in her sleep back in July. I am sure that this is
playing on his mind.He did have an MRI a while ago b/c they suspected a
mitrocondrial l disorder thankfully it was all clear, but his neru said that
we need to stay in touch. He also wants to do another MRI depending what the
EEG shows or does not show. We are lucky that we have a great  pediatric
diabetic team at Monash in Clayton, Victoria  Australia.

> Jeff
rk - 28 Nov 2006 14:12 GMT
: Hi, have not posted for ages..
: My son had a huge  seizure the other day and his levels were low, but only
[quoted text clipped - 5 lines]
: Cheers
: Helen from OZ

Hi Helen...

Sorry your son and you had to experience such an event.  Unfortunately it
more then likely won't be the last. (praying that it will!) What Tim said is
very true.  With children they have very rapid changes in their glucose one
minute they might be 400 and you give them a correction bolus and they can
drop to 30 in a matter of a hour. (had that happen to me as an adult, not
fun!)
I've also been out, forgotten to eat, was stuck on the freeway and
everything
went all weirdo on me... thankfully after a few I "thought" duh! test you
idiot!
I did and I was at 31(1.7mmol).  I found a hot juice box in the glovebox,
drank it and
normally this would knock me up approx 30pt but this time for whatever
reason
it knocked me up 100 or so, anyhow in the end after about 45mins I was
sitting
at 145mg (8mmol).   After talking to my endo about it he explained that even
though we aren't aware often, T1's liver's will kick in and dump glucose
even
if we pass out to help bring us back up and for us to wake up if we go out.
Often
over time, T1's livers just stop working when we allow them to over-work to
keep
us out of hypocity.  This also happens with Hypo-unawareness which is why
when
this happens YOU have to allow yourself to run 200+ (over 11mmol) for a few
times
after a hypo to allow the body to build back up awareness (sadly, this is
the ONLY
fix!)

As for the numbness and tingling.. it is possible even though your son
hasn't been
diabetic very long that he might have the early signs of neuropathy.  A good
neurologist
can rule this out with a EMG test.  (sort of painful, but needed) What have
his bg's
been running? If he's bouncing all over (ie:40-400) then it's very possible.
From my
own observation, T1's that bounce alot have more tendancy to get
complications then
those of us that either are hypo proned (stay on the very low side) or dka
proned (stay
on the high side) more then bouncing.

One suggestion... if he is bouncing you might want to discuss with your sons
endo about
pumping.  Many children in the US are put immedately on the pump at
diagnosis to help
better control their glucose during their honeymoon and after.  While it's
expensive no
matter what country you live in... its about the best thing we have for an
artifical pancreas.
Studies prove T1's that have rapid changes are often fixed when they begin
pumping.  As
a young boy... it makes it so much easier to play sports and allows them
much more freedom
to eat as the other kids his age do... of course within reason.. Just a
thought..

Maybe call his Endo and further discuss it with them.

Give your son and you our best.. take care.

Signature

Reisa, T1, Animas IR1250 Pumper
DX-5/00 ASD-7/00
A1C: 6.2% (8/24/06)
Daily CHO: 150-200gm
TDD: 34-38u

shoppa@trailing-edge.com - 28 Nov 2006 18:42 GMT
> As for the numbness and tingling.. it is possible even though your son
> hasn't been
> diabetic very long that he might have the early signs of neuropathy.

Just to make life complicated, numbness and tingling are also
hypoglycemia symptoms. Numb lips is one of the textbook symptoms, and
one of my personal non-textbook symptoms is numb calfs.

Tim.
Helen - 29 Nov 2006 05:34 GMT
>> As for the numbness and tingling.. it is possible even though your son
>> hasn't been
[quoted text clipped - 5 lines]
>
> Tim.

Yes, that is correct, but the problem is that when he gets these symptoms he
is the normal range.
Larry - 28 Nov 2006 19:02 GMT
Reisa: I like the way you sign off with your diabetes profile. I wish
everyone did that ie. T1, T2, Prediabetic etc etc. That way we know
where someone is "coming from". I am very guilty not doing it but
should. Any idea how to get more of us to do it? I suggest
age.type.when dx.drugs.a1c. and bcn y/n

Larry/62yrs/T2/DX2000/metformin/actos/a1c7.0/bcn/y
(bcn=better control needed)

> "Helen" <nospam@nospam.com> wrote in message
> news:456c19e5$1$23531$afc3c87@news.optusnet.com.au...
[quoted text clipped - 82 lines]
> Daily CHO: 150-200gm
> TDD: 34-38u
Ozgirl - 28 Nov 2006 20:11 GMT
> Reisa: I like the way you sign off with your diabetes profile. I wish
> everyone did that ie. T1, T2, Prediabetic etc etc. That way we know
[quoted text clipped - 4 lines]
> Larry/62yrs/T2/DX2000/metformin/actos/a1c7.0/bcn/y
> (bcn=better control needed)

I have sigs, forget to use most fo the time as I frequent
other newsgroups as well.
Signature

Ozgirl -Type 2 - DX 2000 - No Diabetic Meds - A1c 4.8
Lots of exercise and a nutritious carb-controlled diet.
"Remember, just because you say so, doesn't make it true."

Donna B - 28 Nov 2006 20:40 GMT
In alt.support.diabetes on Wed, 29 Nov 2006 07:11:52 +1100  in Msg.#
<12mp61ld0al51d5@news.supernews.com>, "Ozgirl" <are_we_there_yet@maccas.com>
wrote:

> I have sigs, forget to use most fo the time as I frequent
> other newsgroups as well.

I have that issue, too!!

Signature

Donna B  : ^>  <*>
06-07-06 Diagnosis T2 hbA1C 8.1, D&E & Metformin 500mg.
09-11-06 hbA1C 5.0

Irregular Verb Conjugation:
I am firm in my beliefs. You are obstinate. She/he is pig-headed.

Donna B - 28 Nov 2006 20:14 GMT
In alt.support.diabetes on 28 Nov 2006 11:02:24 -0800  in Msg.#
<1164740544.160036.40430@j72g2000cwa.googlegroups.com>, "Larry"
<boelkowj@aol.com> wrote:

> Reisa: I like the way you sign off with your diabetes profile. I wish
> everyone did that ie. T1, T2, Prediabetic etc etc. That way we know
[quoted text clipped - 4 lines]
> Larry/62yrs/T2/DX2000/metformin/actos/a1c7.0/bcn/y
> (bcn=better control needed)

So, you don't like mine? <g>

Signature

Donna B  : ^>  <*>
06-07-06 Diagnosis T2 hbA1C 8.1, D&E & Metformin 500mg.
09-11-06 hbA1C 5.0

Irregular Verb Conjugation:
I was mistaken. You were wrong. He/she is an idiot - bless his/her heart.

rk - 29 Nov 2006 12:56 GMT
Thank you Larry,

I'm a simple person and still use OE for my ng reader.
You can have your sig for a certain ng and that way
I don't have to worry about putting it each time.. instead
when it needs changing I just modify it and keeps on
working :)

I think all we can do is just ask others to do the same.
I agree it does make it much easier LOL though, there
are only a few of us T1's... so logic of deduction tells
me the rest are T2's :) -- how I keep it straight. really
isn't that hard. <g>

Signature

Reisa, T1, Animas IR1250 Pumper
DX-5/00 ASD-7/00
A1C: 6.2% (8/24/06)
Daily CHO: 150-200gm
TDD: 34-38u

: Reisa: I like the way you sign off with your diabetes profile. I wish
: everyone did that ie. T1, T2, Prediabetic etc etc. That way we know
[quoted text clipped - 91 lines]
: > Daily CHO: 150-200gm
: > TDD: 34-38u
Cheri - 29 Nov 2006 18:40 GMT
I have OE but it's an old version. 4 point something, which I'm
comfortable with, but I've never been able to figure out how to do a
different sig for different newsgroups. I wonder if it can be done with
my reader? If it can be, could you please explain how? TIA

--
Cheri
rk wrote in message
<1sfbh.5249$1s6.4850@newsread2.news.pas.earthlink.net>...
>Thank you Larry,
>
[quoted text clipped - 3 lines]
>when it needs changing I just modify it and keeps on
>working :)
rk - 29 Nov 2006 18:49 GMT
I'm not sure either Cheri, but check under at the top toolbar
Tools>Options>Signatures and then I put in my signature
go to advanced and click on just the newsgroup I want and
it's there.. showing up in here.

HTH

Signature

Reisa, T1, Animas IR1250 Pumper
DX-5/00 ASD-7/00
A1C: 6.2% (8/24/06)
Daily CHO: 150-200gm
TDD: 34-38u

:I have OE but it's an old version. 4 point something, which I'm
: comfortable with, but I've never been able to figure out how to do a
[quoted text clipped - 12 lines]
: >when it needs changing I just modify it and keeps on
: >working :)
Cheri - 29 Nov 2006 22:27 GMT
OK thanks Reisa. I think mine is so old that it doesn't have that
option. You can get to signature only under stationery in mine, and
there are only a couple of things you can do there. Thanks anyway. I
appreciate it. :-)

--
Cheri

rk wrote in message ...
>I'm not sure either Cheri, but check under at the top toolbar
>Tools>Options>Signatures and then I put in my signature
>go to advanced and click on just the newsgroup I want and
>it's there.. showing up in here.
>
>HTH
TigerLily - 29 Nov 2006 23:24 GMT
tools...... options.......... signatures.......
then you can set the signature up for your regular
mail and another one for the news groups..... you
click on advanced to select which newsgroups and
what mail for each signature that you create

i have 3 newsgroup servers.... i can set up a
different sig file for each server

kate

> OK thanks Reisa. I think mine is so old that it doesn't have that
> option. You can get to signature only under stationery in mine, and
[quoted text clipped - 11 lines]
> >
> >HTH
Ozgirl - 30 Nov 2006 00:02 GMT
> tools...... options.......... signatures.......
> then you can set the signature up for your regular
[quoted text clipped - 4 lines]
> i have 3 newsgroup servers.... i can set up a
> different sig file for each server

I set one up for news only and the first email I sent the
sig went into  it. I can't figure why. Unless you have to
set a sig, even a blank one, for every mail and news
account. It seemed to take "default" literally.
TigerLily - 30 Nov 2006 00:11 GMT
hmmmmmmm i had to go to advanced and select if the
signature was for newsgroups or e-mail

i think if you leave it to default it goes to both
newgroups and email

Signature

Join us in the Diabetic-Talk Chatroom on UnderNet
/server irc.undernet.org --- /join #Diabetic-Talk
More info: http://www.diabetic-talk.org/
http://www.diabetic-talk.org/freeveggies.htm
I have no medical qualifications beyond my own
experience.
Choose your advisers carefully, because experience
can be
an expensive teacher.

> > tools...... options.......... signatures.......
> > then you can set the signature up for your regular
[quoted text clipped - 9 lines]
> set a sig, even a blank one, for every mail and news
> account. It seemed to take "default" literally.
Ozgirl - 30 Nov 2006 00:39 GMT
> hmmmmmmm i had to go to advanced and select if the
> signature was for newsgroups or e-mail

That's what I did. But when I sent an email it popped into
that as well.
Ma¢k - 30 Nov 2006 15:12 GMT
[Default] On Thu, 30 Nov 2006 11:02:58 +1100, "Ozgirl"
<are_we_there_yet@maccas.com> Maniacally Screamed the following like a
drunken "Ozgirl" <are_we_there_yet@maccas.com> into the madness of
usenet:

>> tools...... options.......... signatures.......
>> then you can set the signature up for your regular
[quoted text clipped - 9 lines]
>set a sig, even a blank one, for every mail and news
>account. It seemed to take "default" literally.

Don't set any sig as the default sig.  just creat multiple signatures.
Then just before click the send button have the cursor where you want
to attach you sig and then click the sig button and choose from the
drop down list.

Signature

Mâck©® Deltec CoZmore Pumper
Type 1 since 1975
http://www.alt-support-diabetes.org
http://www.diabetic-talk.org
http://www.insulin-pumpers.org
http://www.pandora.com  enter "Jason & Demarco"

"To announce that there must be no criticism of the
President, or that we are to stand by the President
right or wrong, is not only unpatriotic and servile,
but is morally treasonable to the American public."
...Theodore Roosevelt

        (o ô)  
--ooO-(_)-Ooo--------------------

"I don't know half of you
half as well as I should like;
and I like less than half of you
half as well as you deserve."
             ....Bilbo Baggins

DISCLAIMER If you find a posting or message from me
offensive, inappropriate, or disruptive, please ignore it.
If you don't know how to ignore a posting, complain to
me and I will be only too happy to demonstrate...
.

Ozgirl - 30 Nov 2006 21:18 GMT
> [Default] On Thu, 30 Nov 2006 11:02:58 +1100, "Ozgirl"
> <are_we_there_yet@maccas.com> Maniacally Screamed the following like a
[quoted text clipped - 19 lines]
> to attach you sig and then click the sig button and choose from the
> drop down list.

I don't see anywhere is OE where you can remove the default.
I have one sig and it is saying it is the defaullt.
Alan S - 30 Nov 2006 22:33 GMT
>> [Default] On Thu, 30 Nov 2006 11:02:58 +1100, "Ozgirl"
>> <are_we_there_yet@maccas.com> Maniacally Screamed the
[quoted text clipped - 27 lines]
>I don't see anywhere is OE where you can remove the default.
>I have one sig and it is saying it is the defaullt.

One of the few I may be able to help with.

In OE click on "create message"

On your toolbar at the top there should be a button titled
"Insert Signature"; it may be shortened to "Insert".

If not, right-click on a blank spot on the toolbar and
select "customise". Follow the directions to add "Insert
Signature" to the toolbar buttons list.

Then, follow Mack's instructions.

You won't get a choice until you create extra sigs.

Make sure that in Tools->Options->Signatures you have not
checked "Add signatures to all outgoing messages" so that
you can choose at the time of sending.

Cheers, Alan, T2, Australia.
d&e, metformin 1000mg, ezetrol 10mg
Everything in Moderation - Except Laughter.
--
http://loraldiabetes.blogspot.com/
http://loraltravel.blogspot.com/
latest: Pompeii, Amalfi, Bari
Ma¢k - 01 Dec 2006 20:47 GMT
[Default] On Fri, 01 Dec 2006 09:33:31 +1100, Alan S
<loralgtweightandcarbs@gmail.com> Maniacally Screamed the following
like a drunken Alan S <loralgtweightandcarbs@gmail.com> into the
madness of usenet:

>>> [Default] On Thu, 30 Nov 2006 11:02:58 +1100, "Ozgirl"
>>> <are_we_there_yet@maccas.com> Maniacally Screamed the
[quoted text clipped - 50 lines]
>d&e, metformin 1000mg, ezetrol 10mg
>Everything in Moderation - Except Laughter.

This will work.
Cheri - 30 Nov 2006 00:13 GMT
My newsreader is OE 4.72 There is no tools....options....signatures.
Mine is tools...stationery...signatures. When you click on signatures,
you can set one signature for email, and one signature for newsgroups.
There is no advanced option there, but thanks for trying to help. :-)

--
Cheri

>tools...... options.......... signatures.......
>then you can set the signature up for your regular
[quoted text clipped - 6 lines]
>
>kate
Ozgirl - 30 Nov 2006 00:39 GMT
> My newsreader is OE 4.72 There is no tools....options....signatures.
> Mine is tools...stationery...signatures. When you click on signatures,
> you can set one signature for email, and one signature for newsgroups.
> There is no advanced option there, but thanks for trying to help. :-)

Cheri - upgrade ;)
Alan S - 30 Nov 2006 01:25 GMT
>> My newsreader is OE 4.72 There is no
>tools....options....signatures.
[quoted text clipped - 6 lines]
>
>Cheri - upgrade ;)

Is it like cars? Is there a re-sale market for antique or
veteran email software?

:-)

Cheers, Alan, T2, Australia.
d&e, metformin 1000mg, ezetrol 10mg
Everything in Moderation - Except Laughter.
--
http://loraldiabetes.blogspot.com/
http://loraltravel.blogspot.com/
latest: Pompeii, Amalfi, Bari
Helen - 29 Nov 2006 05:33 GMT
> : Hi, have not posted for ages..
> : My son had a huge  seizure the other day and his levels were low, but
[quoted text clipped - 20 lines]
> drop to 30 in a matter of a hour. (had that happen to me as an adult, not
> fun!)

I can only imagine.

> I've also been out, forgotten to eat, was stuck on the freeway and
> everything
> went all weirdo on me..

Hell, that's dangerous..

>. thankfully after a few I "thought" duh! test you
> idiot!
[quoted text clipped - 26 lines]
> hasn't been
> diabetic very long that he might have the early signs of neuropathy.

Yeah, this thought has crossed my mind..I will discuss it with his neuro

>  A good
> neurologist
[quoted text clipped - 3 lines]
> been running? If he's bouncing all over (ie:40-400) then it's very
> possible.

He is all over the place...it does not make an ounce of sense b/c we really
monitor his diet and he is active.
He is on novo rapid (6 units) and protophane ( 12 units) both AM and PM. We
are doing 2 AM BGL's this week to get a clearer picture and he just had his
diet reveiwed by the dieticitcan who was hapy with it.
He does have coeliacs disease AND an underactive thyroid, so he copped the
trippple auto immune thing ( I have a thyroid disorder, nanna has coeliacs
and grand dad is type one diabetic..such great geneitc stock  huh!)
> From my
> own observation, T1's that bounce alot have more tendancy to get
[quoted text clipped - 12 lines]
> matter what country you live in... its about the best thing we have for an
> artifical pancreas.

Yes, we have put our names down on the waiting list for a pump...it maybe
about a year before it happens,,I think he may do well with it.

> Studies prove T1's that have rapid changes are often fixed when they begin
> pumping.  As
> a young boy... it makes it so much easier to play sports and allows them
> much more freedom
> to eat as the other kids his age do... of course within reason.. Just a
> thought..

It is a good thought and I am quite into the idea.

> Maybe call his Endo and further discuss it with them.
>
> Give your son and you our best.. take care.

Thanks rk. He has the EEG on friday and he is not happy about it...I
explained what they do and he has had an MRI before and I told him that an
EEG is no way near as intrusive...
cheers
Helen
Ozgirl - 29 Nov 2006 06:13 GMT
He is all over the place...it does not make an ounce of
sense b/c we
> really monitor his diet and he is active.
> He is on novo rapid (6 units) and protophane ( 12 units) both AM and
> PM.

Can kids take Lantus? My daughter's partner and a 15 yr old
friend both switched and found control way easier.
Helen - 29 Nov 2006 10:17 GMT
> He is all over the place...it does not make an ounce of
> sense b/c we
[quoted text clipped - 5 lines]
> Can kids take Lantus? My daughter's partner and a 15 yr old
> friend both switched and found control way easier.

I asked our endo about this, as my fahter in law is on it and raves about
it. Our endo said it is only suitable when kids are on four injections a
day, currently he is only on two and  we want to keep it that way  for as
long as we can. I would mean he would have to do them at shcool and he is
not yet ready for this maturity wise, He would most likely forget and would
most likely resent doing them that many times a day.
He does give himself his own needles but still can not draw them up on his
own. Lantus is used with a pen, but they still have to dial it up....
rk - 29 Nov 2006 13:11 GMT
OUCH!!!...

Okay.. I'm going to play doctor here LOL...

Your endo is TOTALLY WRONG! Lantus is really only
to be a ONCE a day shot... but many do better on 2
a day...

another thing from your other post to me was... is he
on fixed dosages? If so.. he really needs to be self-adjusting.
Do you guys carb count? You'll have to learn this prior to
pumping because its really the only way to work the insulin
with pumping.. but it does far better then any other method.

if not, I'll give you an example..

You'll see my TDD in my sig.. means I take TOTAL of 34-38u
of ALL my insulin a day.  which is FAR less then your son..he's
smaller (I can guarantee you!) then I am.. LOL

So... say for my breakfast this morning.. I had 1 wheat bagel
which was 48gm (I do NOT subtract fiber) 2 eggs w/cheese and
green onion with 3 sausages and about 3tsp of ketchup.

Bagel = 48gm
eggs = 2gm (1gm each)
sausage  - 0gm
ketchup = 12gm (4gm per 1tsp)
---------------------------------
62gm total

my carb to insulin ratio in the morning is 14:1 meaning I can have
14gm of carbs to every 1u of insulin.  So, I take 62/14 = 4.42u for
that I would keep it at 4.4u since I pump and can get the 4.4u (nice
huh?) Otherwise if I were on injections I would do 4u and do a
correction bolus later or 5u and make sure I didn't go to low after.
Or if I had syringes that did .5u I'd do 4.5u which basically would be
just about perfect.

Now if I were running say a bit too high say 210mg then I would add
in my correction factor and add that amount to my insulin dose for my
meal to help bring me back down.

This gives you the freedom to correct as needed and make the meal
insulin what it needs to be by carbs.

As far as his basal -- honestly I've forgotten how to calculate that since
pumping and I've loaned out my one Insulin book that I normally use but
I can look it up if you'd like.  Because personally.. I think your son is on
TOO MUCH basal insulin at 12u 2x a day ... at my weight and height.. I'm
only at 18u basal a day and they say I should be on 28u -- and no I'm not
sensitive.. I have other health issues that I have to calculate in also... I
have
the multiple autoimmune problems as well.

I hope this helps... I'll try to help further if you have more questions.

Signature

Reisa, T1, Animas IR1250 Pumper
DX-5/00 ASD-7/00
A1C: 6.2% (8/24/06)
Daily CHO: 150-200gm
TDD: 34-38u

:
: > He is all over the place...it does not make an ounce of
[quoted text clipped - 15 lines]
: He does give himself his own needles but still can not draw them up on his
: own. Lantus is used with a pen, but they still have to dial it up....
TigerLily - 29 Nov 2006 16:35 GMT
you are forgetting the extra 3 shots for
meals...... that makes 4 shots a day, something
that Helen said she doesn't think her son is ready
for

insulatard aka NPH is a basal AND bolus
intermediate acting insulin that covers meals in
part and basal in part....... his use of
insulatard is spot on

kate
Signature

Join us in the Diabetic-Talk Chatroom on UnderNet
/server irc.undernet.org --- /join #Diabetic-Talk
More info: http://www.diabetic-talk.org/
http://www.diabetic-talk.org/freeveggies.htm
I have no medical qualifications beyond my own
experience.
Choose your advisers carefully, because experience
can be
an expensive teacher.

> OUCH!!!...
>
[quoted text clipped - 52 lines]
>
> I hope this helps... I'll try to help further if you have more questions.

news:456d5e34$1$5749$afc38c87@news.optusnet.com.au...

> : > He is all over the place...it does not make an ounce of
> : > sense b/c we
[quoted text clipped - 15 lines]
> : He does give himself his own needles but still can not draw them up on his
> : own. Lantus is used with a pen, but they still have to dial it up....
rk - 29 Nov 2006 17:56 GMT
I didn't forget anything and my post was spot on!

Signature

Reisa, T1, Animas IR1250 Pumper
DX-5/00 ASD-7/00
A1C: 6.2% (8/24/06)
Daily CHO: 150-200gm
TDD: 34-38u

: you are forgetting the extra 3 shots for
: meals...... that makes 4 shots a day, something
[quoted text clipped - 128 lines]
: > : own. Lantus is used with a pen, but they still
: have to dial it up....
Helen - 30 Nov 2006 01:36 GMT
> OUCH!!!...
>
[quoted text clipped - 3 lines]
> to be a ONCE a day shot... but many do better on 2
> a day...

Really? I will have to drill him when I see him next..

> another thing from your other post to me was... is he
> on fixed dosages? If so.. he really needs to be self-adjusting.
> Do you guys carb count? You'll have to learn this prior to
> pumping because its really the only way to work the insulin
> with pumping.. but it does far better then any other method.

Okay, we will most likely learn  this when we get the pump.

> if not, I'll give you an example..
>
> You'll see my TDD in my sig.. means I take TOTAL of 34-38u
> of ALL my insulin a day.  which is FAR less then your son..he's
> smaller (I can guarantee you!) then I am.. LOL

Yeah..you could say that..LOL, but he will one day be of adult size.

> So... say for my breakfast this morning.. I had 1 wheat bagel
> which was 48gm (I do NOT subtract fiber) 2 eggs w/cheese and
[quoted text clipped - 32 lines]
> have
> the multiple autoimmune problems as well.

Do you, what are they if you don't mind me aksing? You do not have to answer
of course...It is a bummer having more than one auto immune condition.

> I hope this helps... I'll try to help further if you have more questions.

Thanks, what you have told me is very informative and it really has got me
thinking that the pump is the best way to go..I hope we do not have to wait
too long...
I expressed my concerns about my sons ability to use it and he ( our endo)
said "Can he use a computer or a mobile phone?"
I laughed and said"Yeah, better than me!"
He replied "Then he will have no problems, he will pick it up quickly and
his quality of life will improve vaslty"
So heres hoping that we get it happening as soon as possible. Thanks for
taking the time to answer my questions, address my concerns and explain how
you calculate the carbs..'
Take care
Cheers
Helen from Oz

> : > He is all over the place...it does not make an ounce of
> : > sense b/c we
[quoted text clipped - 19 lines]
> his
> : own. Lantus is used with a pen, but they still have to dial it up....
rk - 30 Nov 2006 03:00 GMT
: > OUCH!!!...
: >
[quoted text clipped - 5 lines]
:
: Really? I will have to drill him when I see him next..

yep... feel free to go to http://www.lantus.com to read up more on it.

: > I
: > have
: > the multiple autoimmune problems as well.
:
: Do you, what are they if you don't mind me aksing? You do not have to answer
: of course...It is a bummer having more than one auto immune condition.

I don't mind.  T1DM, Ankylosing Spondylitis, Raynaud's Syndrome and
Premature
Ovarian Failure.  As well as being HLA-B27 postitive, which I passed onto my
daughter and at 15yrs old she developed Hashimoto's Thyroidism and also has
PCOS.  She's currently 19yrs old now.  Gotta LOVE them genes :) NOT!

: > I hope this helps... I'll try to help further if you have more questions.
:
[quoted text clipped - 12 lines]
: Cheers
: Helen from Oz

You're more then welcomed.. Yep, he shouldn't have any problems at all. You
can let him know that it's such a relief NOT to have to take an injection at
mealtime
or leaving notes about remembering to take your shot before bedtime.  Every
3 days
you change your site, fill your set and away you go!!! no fuss no muss..
Gotta tell ya,
a time back, I was running high and needed to inject a correction to see if
it was the
pump or not.. well I actually sat and fussed to myself that it was going to
hurt because
inserting the infusion set doesn't hurt at all!!! I think I've felt 3 in the
4yrs I've been
pumping... Hope you're able to push a bit to get pumping.. I think you'll
like the freedom
also of knowing he'll do better..

Take care.

Reisa

: > : > He is all over the place...it does not make an ounce of
: > : > sense b/c we
[quoted text clipped - 19 lines]
: > his
: > : own. Lantus is used with a pen, but they still have to dial it up....
Helen - 01 Dec 2006 12:40 GMT
> : > OUCH!!!...
> : >
[quoted text clipped - 23 lines]
> has
> PCOS.  She's currently 19yrs old now.  Gotta LOVE them genes :) NOT!

Oh, sorry to hear that, how are you fairing? I have hashimoto's  as well! It
started as Graves disease and after years of that, it packed up and now I am
on Thyroxin for the rest of my life, as I imagine you ae too?  Years ago, my
graves disease was  so bad they wanted to take out my thyroid, but b/c I am
a singer I did not wish to risk my vocal chords being damaged, so I chose
the meds...How do you feel if you  miss your thyroxin? I feel very , very
tired , flat and grumpy...Is this how you feel? I have  been feeling heaps
better now I am taking it every day...
These "defective" Genes are a total pain..

> : > I hope this helps... I'll try to help further if you have more
> questions.
[quoted text clipped - 43 lines]
>
> Take care.

Thanks  Rei..Pumps sound great..
your advice has eased my concerns
Have a great week end!
Cheers
Helen from Oz

> Reisa
>
[quoted text clipped - 28 lines]
> : > : own. Lantus is used with a pen, but they still have to dial it
> up....
Ozgirl - 28 Nov 2006 20:08 GMT
> Hi, have not posted for ages..
>  My son had a huge  seizure the other day and his levels were low,
> but only
> 3.5 mml. They say that this is not really low enough to cause a
> seizure. Any ideas? He has been in good heatlh until
recently and has
> been getting head aches,tingling and  numbness. He is
having an EEG
> this week..I am going out of my mind thinking that he may
have
> developed epilepsy now as well.
> He has had diabetes for three years.He is nine...
> Cheers
> Helen from OZ

Helen, wait for the results of all testing and conflab with
endo and neurologist. I hope everything turns out well. It
doesn't seem a low enough bg for a seizure but all will
become clear after his tests, I'm sure. Hugs.
Helen - 29 Nov 2006 05:35 GMT
>> Hi, have not posted for ages..
>>  My son had a huge  seizure the other day and his levels
[quoted text clipped - 17 lines]
> doesn't seem a low enough bg for a seizure but all will
> become clear after his tests, I'm sure. Hugs.

Thanks Ozgirl..The EEG is on this Friday and I hope they can give us the
results on the day.
cheers]
Helen from Oz
Ma¢k - 28 Nov 2006 20:55 GMT
[Default] On Tue, 28 Nov 2006 22:13:37 +1100, "Helen"
<nospam@nospam.com> Maniacally Screamed the following like a drunken
"Helen" <nospam@nospam.com> into the madness of usenet:

>Hi, have not posted for ages..
> My son had a huge  seizure the other day and his levels were low, but only
[quoted text clipped - 5 lines]
>Cheers
>Helen from OZ

Luckily, testing to rule out epilepsy is simple.  So get it done and
ease your mind one way or the other.  And if he does have epilepsy,
the sooner he starts proper treatment, the safer he will be.

That being said, it's most likely as some of the others have said. The
kid went lower than was actually tested at which caused the seizure
and then rebounded.  His liver released some stored glycogen and
brought his BG up back up.  Unfortunately  the other symptoms you are
describing "getting head aches,tingling and  numbness" are also
symptoms of hypos. Low BGs.  In Oz I do not know what is available to
you as far as BG testing methods go.  But you should at this point
increase the child's BG testing frequency to find out when he is
experiencing these lows.  If you have to take a finger stick reading
once every hour for 3 days straight to get the patterns recorded then
do it.  But there is an alternative.  Minimed has what is called a
Continuous Blood Glucose Monitor System.  CBGMS, that you wear just
like an insulin pump for 3 days at a time.  It takes continuous
readings all day and night for up to 36 hours, then you return to your
doctor and download the readings to his computer and graph them and
you will see exactly how his BG levels are changing and when.  With
this information maybe with 2 or 3 studies like this spread out over a
few months you will be able to fine tune his insulin doses so as to
eliminate these hypos.  And yes you can use these studies to fine tune
insulin injections via syringes just as easily as you can use this to
fine tune someone using an insulin pump.  Of course you will also be
keeping a record of his exact meals, snacks and exercise patterns as
well.

Can you tell us exactly what type of insulin the child takes?  and how
you determine how much insulin he takes per dose?  Is it based on a
set dose every time? or dose it change based on both his premeal BG
reading and his total carbs eaten measured in grams of carbs?

If the doctor has the child taking a set amount of a fast acting
insulin every dose regardless of what the child's current BG and meal
is, you are running the risk of hypos every time.  Fast acting
insulins and set doses do not work.  If that is the type of medical
advice you are getting, you'll need to find a doctor that actually
knows what the hell they are doing.

I also do not see the child's age mentioned.  When the child hits
puberty you will have to pay close attention to changing BG levels.
Pumping makes puberty much easier for type 1s.  

I highly recommend http://www.childrenwithdiabetes.org and
http://www.diabeticmommy.org and http://www.insulin-pumpers.org if you
have not already read them.  There are a lot of parents and doctors
and nurses of type 1 children participating in the insulin-pumpers web
site discussion forums.  And they will help even if your child is not
pumping.

Signature

Mâck©® Deltec CoZmore Pumper
Type 1 since 1975
http://www.alt-support-diabetes.org
http://www.diabetic-talk.org
http://www.insulin-pumpers.org
http://www.pandora.com  enter "Jason & Demarco"

"To announce that there must be no criticism of the
President, or that we are to stand by the President
right or wrong, is not only unpatriotic and servile,
but is morally treasonable to the American public."
...Theodore Roosevelt

        (o ô)  
--ooO-(_)-Ooo--------------------

"I don't know half of you
half as well as I should like;
and I like less than half of you
half as well as you deserve."
             ....Bilbo Baggins

DISCLAIMER If you find a posting or message from me
offensive, inappropriate, or disruptive, please ignore it.
If you don't know how to ignore a posting, complain to
me and I will be only too happy to demonstrate...
.

Helen - 29 Nov 2006 05:47 GMT
> [Default] On Tue, 28 Nov 2006 22:13:37 +1100, "Helen"
> <nospam@nospam.com> Maniacally Screamed the following like a drunken
[quoted text clipped - 16 lines]
> ease your mind one way or the other.  And if he does have epilepsy,
> the sooner he starts proper treatment, the safer he will be.

Yes, I am lucky that he has a good neuro who rang me as soon as he could and
orgnaised the EEG as soon as possible.He did say to me on the  phone that
his BGL was really not low enough to really cause a seizure.

> That being said, it's most likely as some of the others have said. The
> kid went lower than was actually tested at which caused the seizure
> and then rebounded.  His liver released some stored glycogen and
> brought his BG up back up.

I am hoping this is the case and it probrably is...

>Unfortunately  the other symptoms you are
> describing "getting head aches,tingling and  numbness" are also
> symptoms of hypos.

Problem is, he gets these symptoms when he is well within the normal range
and/or a tad on the high side.

> Low BGs.  In Oz I do not know what is available to
> you as far as BG testing methods go.  But you should at this point
> increase the child's BG testing frequency to find out when he is
> experiencing these lows.  If you have to take a finger stick reading
> once every hour for 3 days straight to get the patterns recorded then

We have the Optimum testing kits and they give a reading in ten
seconds...Our measurements are different, we measure in mml...don't know how
that
translates to US measurements...

> do it.  But there is an alternative.  Minimed has what is called a
> Continuous Blood Glucose Monitor System.  CBGMS, that you wear just
[quoted text clipped - 9 lines]
> keeping a record of his exact meals, snacks and exercise patterns as
> well.

That sounds like a good way to go and I will discuss this with his endo at
our next appointment. We  have already decided on getting a pump next year,

> Can you tell us exactly what type of insulin the child takes?  and how
> you determine how much insulin he takes per dose?  Is it based on a
> set dose every time? or dose it change based on both his premeal BG
> reading and his total carbs eaten measured in grams of carbs?

He is on 6 units of novo rapid and 12 units of protophane AM and PM, we will
be most likely adjusting his insulin soon. His last HbAc was higher than we
would like, but he has a hypo every day..SO there does need to be a good
reveiw of his BGL's, hence we are doing 2AM readings at the mo...We should
be doing lunch time readings, however, when he is at shcool he will not do
them even though I have asked his teacher to remind him. He is being a tad
non complient at the moment..I think he has Burn out.
I can't blame him..he has several other auto immune diseases too so he feels
very hard done by.

> If the doctor has the child taking a set amount of a fast acting
> insulin every dose regardless of what the child's current BG and meal
[quoted text clipped - 13 lines]
> site discussion forums.  And they will help even if your child is not
> pumping.
Ma¢k - 29 Nov 2006 06:27 GMT
[Default] On Wed, 29 Nov 2006 16:47:21 +1100, "Helen"
<nospam@nospam.com> Maniacally Screamed the following like a drunken
"Helen" <nospam@nospam.com> into the madness of usenet:

>>Unfortunately  the other symptoms you are
>> describing "getting head aches,tingling and  numbness" are also
>> symptoms of hypos.
>
>Problem is, he gets these symptoms when he is well within the normal range
>and/or a tad on the high side.

then the group needs to hold off on most suggestions except for
increased BG testing, until you hear from the neuro doc.

>> Low BGs.  In Oz I do not know what is available to
>> you as far as BG testing methods go.  But you should at this point
[quoted text clipped - 6 lines]
>that
>translates to US measurements...

you multiply your numbers by 18 to get my numbers your 3.5 X 18 is 63
mg/dl in my numbers.  my 120 divided by 18 is 6.66 in your numbers.

>> do it.  But there is an alternative.  Minimed has what is called a
>> Continuous Blood Glucose Monitor System.  CBGMS, that you wear just
[quoted text clipped - 12 lines]
>That sounds like a good way to go and I will discuss this with his endo at
>our next appointment. We  have already decided on getting a pump next year,

Now I like my coZmore and RK likes her Animas (if I remember
correctly).  They both have a built in meal and correction bolus
feature.  My meter is attached to my pump.  So when I test it sends
the BG reading directly to the pump, then I tell it how many grams of
carbs I am eating or if between meals I just tell it to skip that data
and calculate a correction dose(bolus) and the pump does the math for
me and then delivers the correct amount of insulin.  Working closely
with the endocrinologist/diabetic specialist when first starting out
on a pump is how you get the pump correctly programmed.

>> Can you tell us exactly what type of insulin the child takes?  and how
>> you determine how much insulin he takes per dose?  Is it based on a
[quoted text clipped - 7 lines]
>be doing lunch time readings, however, when he is at shcool he will not do
>them even though I have asked his teacher to remind him.

That CGMS will get you around that problem.

He is being a tad
>non complient at the moment..I think he has Burn out.
>I can't blame him..he has several other auto immune diseases too so he feels
>very hard done by.

we all go through that.  Do you have anything like diabetic camp in
your part of the world?  something like this?:
http://www.floridadiabetescamp.org/

we have many of them here for all different age groups.

Signature

Mâck©® Deltec CoZmore Pumper
Type 1 since 1975
http://www.alt-support-diabetes.org
http://www.diabetic-talk.org
http://www.insulin-pumpers.org
http://www.pandora.com  enter "Jason & Demarco"

"To announce that there must be no criticism of the
President, or that we are to stand by the President
right or wrong, is not only unpatriotic and servile,
but is morally treasonable to the American public."
...Theodore Roosevelt

        (o ô)  
--ooO-(_)-Ooo--------------------

"I don't know half of you
half as well as I should like;
and I like less than half of you
half as well as you deserve."
             ....Bilbo Baggins

DISCLAIMER If you find a posting or message from me
offensive, inappropriate, or disruptive, please ignore it.
If you don't know how to ignore a posting, complain to
me and I will be only too happy to demonstrate...
.

Helen - 29 Nov 2006 10:20 GMT
> [Default] On Wed, 29 Nov 2006 16:47:21 +1100, "Helen"
> <nospam@nospam.com> Maniacally Screamed the following like a drunken
[quoted text clipped - 77 lines]
> we all go through that.  Do you have anything like diabetic camp in
> your part of the world?  something like this?:

Yeah we do, he went on one early this year and had a great time..He is going
on one again in Jan next year...
They are great!!
Alan S - 29 Nov 2006 08:12 GMT
>We have the Optimum testing kits and they give a reading in ten
>seconds...Our measurements are different, we measure in mml...don't know how
>that
>translates to US measurements...

Hi Helen

Below I've included a standard post on conversions between
our numbers and US ones to help. Before I add that, one
place you might find useful is the Reality Check group. They
are young adults with diabetes, based in Victoria. Some are
type 2 but most are type 1 - their more recent experiences
may be helpful.

The web-site is www.realitycheck.org.au, their forum is at
http://realitycheck.org.au/phpBB2/viewforum.php?f=1

Now, for conversions:

The conversion rate can be done either by multiplying by 18
(so 5.5 mmol becomes 99, but I usually round to the nearest
5, so 5.5 => 100) or divide by .0555 if you want to get
totally accurate. The exact multiplier is 18.018.

Other ones you will find useful here are cholesterol and
triglycerides:

Cholesterol   divide by 0.0259 or multiply by 38.6
Triglycerides divide by 0.0113 or multiply by 88.5
Glucose       divide by 0.0555 or multiply by 18.02

Source: http://www.globalrph.com/conv_si.htm#top 

You will occasionally see people here talking about lipids
ratios; remember to use those conversions before applying to
US numbers. For triglycerides/HDL, good for us is under 1.3,
but for US figures it's under 3.

I usually write the corresponding BG figure in brackets for
clarity, for example 6.1 (110).

Finally, a quick ready reckoner:
40   2.2
45   2.5
50   2.8
55   3.1
60   3.3
65   3.6
70   3.9
75   4.2
80   4.4
85   4.7
90   5.0
95   5.3
100  5.6
110  6.1
120  6.7
130  7.2
140  7.8
150  8.3
160  8.9
170  9.4
180  10.0
190  10.5
200  11.1
250  13.9
300  16.7
350  19.4
400  22.2

And the other way:
2     36
2.5   45
3     54
3.5   63
4     72
4.5   81
5     90
5.5   99
6    108
6.5  117
7    126
7.5  135
8    144
8.5  153
9    162
9.5  171
10   180
10.5 189
11   198
12   216
13   234
14   252
15   270
20   360
25   450
30   541

Cheers, Alan, T2, Australia.
d&e, metformin 1000mg, ezetrol 10mg
Everything in Moderation - Except Laughter.
--
http://loraldiabetes.blogspot.com/
http://loraltravel.blogspot.com/
latest: Pompeii, Amalfi, Bari
Helen - 29 Nov 2006 10:24 GMT
Thanks Alan!!

>>We have the Optimum testing kits and they give a reading in ten
>>seconds...Our measurements are different, we measure in mml...don't know
[quoted text clipped - 102 lines]
> http://loraltravel.blogspot.com/
> latest: Pompeii, Amalfi, Bari
Kurt - 28 Nov 2006 21:16 GMT
> Hi, have not posted for ages..
>  My son had a huge  seizure the other day and his levels were low, but only
[quoted text clipped - 5 lines]
> Cheers
> Helen from OZ

Hi Helen,

Sorry to here about your son's problems. As much as I'd like to offer
an opinion on what the problem is, it would be wrong for me to do so.
There are too many things I don't know about your son's conditions that
only a doctor who is treating him will be able to take into account.  I
do know that headaches are one symptom of a hypo but a headache could
also be a symptom of many other things.  Sounds like you are doing the
absolute best you can by making sure that professional doctors are on
his side and doing tests to determine what the exact cause of the
seizure is and was.

I'm sorry to hear your are going out of your mind, that is a normal
reaction no doubt but try to be as calm as possible especially around
him.  It's tough, I know that from persona experience but until all the
tests come in there is not much you can do.  All I can really do here
is to send out some good thoughts your way...and that's something I
will do right now.

Hang in there and my wishes are that you get some answers and they are
ones who put your mind at rest.

Best,
Kurt
Helen - 29 Nov 2006 05:51 GMT
>> Hi, have not posted for ages..
>>  My son had a huge  seizure the other day and his levels were low, but
[quoted text clipped - 21 lines]
> his side and doing tests to determine what the exact cause of the
> seizure is and was.

Yeah, being that it was his first and that he has had some odd neurological
symptoms in the past, we can not let it pass. His neuro and endo are both a
bit concerned b/c his BGL at the time of the seizure was not that low.

> I'm sorry to hear your are going out of your mind, that is a normal
> reaction no doubt but try to be as calm as possible especially around
[quoted text clipped - 5 lines]
> Hang in there and my wishes are that you get some answers and they are
> ones who put your mind at rest.

Thanks Kurt. He has his EEG on Friday and I really hope that they can tell
us then and there what the results are. You know how they usually  make you
wait to see the specialist on the follow up visist for the results? , Well I
am going to insist that they tell me on the day so that I am not going nuts
on the week end.
Cheers
Helen from OZ

> Best,
> Kurt
Uncle Enrico - 29 Nov 2006 05:23 GMT
Hi Helen,

As a sufferer of both diabetes and epilepsy, my sympathies are with you and
your son.

I'm no expert on epilepsy mainly because there are so many varieties and
levels of intensity to the condition. I've been diagnosed as having temporal
lobe seizures with no obvious lesions or causes that can be seen with an MRI
or EEG. My neurologist said, "I dunno why you have them."

There are two newsgroups dedicated to the problem:  alt.support.epilepsy
and uk.people.support.epilepsy

I haven't been on either group in awhile. I take Tegretol and I'm mostly
stable. I'm much more involved with my diabetes.

There are a number of surprising situations that will precipitate seizures
including too much television watching, so you might want to do a google
search or ask questions on those two newsgroups.

God bless and best wishes.

> Hi, have not posted for ages..
> My son had a huge  seizure the other day and his levels were low, but only
[quoted text clipped - 6 lines]
> Cheers
> Helen from OZ
parulmca@gmail.com - 29 Nov 2006 06:28 GMT
Dear Uncle Enrico
your question about 'Diabetes' got me thinking. I know people
personally who have suffered due to this but I guess not everyone would
understand the challenges till faced with similar circumstances.
Anyways, I did a bit of research and found an article which says
'Diabetes is a life-long disease marked by high levels of sugar in the
blood. It can be caused by too little insulin (a hormone produced by
the pancreas to regulate blood sugar), resistance to insulin, or both'.
I found  this article at
http://medical-health-care-information.com/encyclopedia/D/Diabetes.asp
Maybe you would want to read more about it there. I hope it's helpful
in some way to you.

> Hi Helen,
>
[quoted text clipped - 28 lines]
> > Cheers
> > Helen from OZ
Alan S - 29 Nov 2006 08:14 GMT
>Dear Uncle Enrico
> your question about 'Diabetes' got me thinking. I know people
[quoted text clipped - 8 lines]
>Maybe you would want to read more about it there. I hope it's helpful
>in some way to you.

Piss off spammer.

Alan, T2, Australia.
Chris Malcolm - 29 Nov 2006 09:26 GMT
> Hi Helen,

> As a sufferer of both diabetes and epilepsy, my sympathies are with you and
> your son.

> I'm no expert on epilepsy mainly because there are so many varieties and
> levels of intensity to the condition. I've been diagnosed as having temporal
> lobe seizures with no obvious lesions or causes that can be seen with an MRI
> or EEG. My neurologist said, "I dunno why you have them."

> There are two newsgroups dedicated to the problem:  alt.support.epilepsy
> and uk.people.support.epilepsy

> I haven't been on either group in awhile. I take Tegretol and I'm mostly
> stable. I'm much more involved with my diabetes.

> There are a number of surprising situations that will precipitate seizures
> including too much television watching, so you might want to do a google
> search or ask questions on those two newsgroups.

I see BBC TV has started giving warnings before image sequences that
might provoke a seizure. Even a barrage of flash photography in a news
bulletin item can do it.

Signature

Chris Malcolm        cam@infirmatics.ed.ac.uk              DoD #205
IPAB,  Informatics,  JCMB, King's Buildings, Edinburgh, EH9 3JZ, UK
[http://www.dai.ed.ac.uk/homes/cam/]

Helen - 29 Nov 2006 10:25 GMT
> Hi Helen,
>
[quoted text clipped - 17 lines]
>
> God bless and best wishes.

Thank you..we find out on friday...I will post here either way..
cheers
helen
>> Hi, have not posted for ages..
>> My son had a huge  seizure the other day and his levels were low, but
[quoted text clipped - 6 lines]
>> Cheers
>> Helen from OZ
Uncle Enrico - 29 Nov 2006 15:18 GMT
> Thank you..we find out on friday...I will post here either way..
> cheers
> helen

A reassuring note about seizure meds if this therapy becomes necessary.

I take two pills a day and am well controlled. It's like I don't have the
problem any more. I rarely think about it.
It took me two weeks for my body to adjust to the meds--a little tiredness.
But after that adjustment period, I don't notice them at all and life is
wonderful. I take a blood test every six months to check my blood level for
the med.

Most of the meds have been around for a long time, are well tolerated and
often available in low cost generic form.
 
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