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Medical Forum / Diseases and Disorders / Diabetes / April 2006

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Autonomic & peripheral neuropathy; rheumatoid arthritis eye problems

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Billie - 08 Apr 2006 03:40 GMT
I was born with a urinary tract abnormality that caused me many problems until it was surgically
corrected when I was 35.  Because of all the *nasty* tests I endured prior to that surgery,
whenever I started having problems with bladder incontinence a few years ago (say like ten+
approximately) I had no desire to go to the urologist about the problem, instead taking care of
it myself with the aids made available to us for the problem.

When I was 22 they found that I also had an atonic bladder, rarely emptying.  An insufficient
nerve supply was also discovered at the same time.  Following the corrective surgery, I
considered things going rather smoothly simply because of having no more nephritis and reflux.

*Today, I am almost totally incontinent.  I asked my endo if this was due to autonomic
neuropathy or not, and he told me to have my urologist make the determination.  Saw my urologist
Tuesday for my lithotripsy follow-up, and he scheduled me for a test that would show him exactly
what my bladder was doing and why.  Had that test done yesterday.  UGH!!!!  NOW I know why I've
put off seeing the uro for so long prior to discovery of the kidney stones.

Anyway, he said my bladder problems were definitely diabetes related, but he will give me a more
detailed report after he has had time to thoroughly study the results.  Just thought I'd share
the good news..... :-)

*My endo also tested my peripheral neuropathy a couple of weeks ago.  He has a neurologist who
comes into the clinic to do the testing and any other neurology stuff.  My endo was wanting to
know the full extent of my neuropathy, and just how much we can realistically do to try to help
it.   Doing the nerve conduction, it was determined that I have moderate to severe in my feet,
legs, hands, and arms (with increasing muscle weakness).  The doctor was able to answer my
questions that I had along the way, and much, very much of my chronic pain is neuropathy
related.  He also added some tests of the muscles in my legs; I could not even feel him insert
the needles (neuropathy *does* have some things in its favor :-).

*I have been having considerable eye problems for the past year, especially the past six months.
My ophthalmologist has checked me very thoroughly for diabetes related problems, but has
reassured me that as of right now, I still show no diabetes related problems.  She said that my
problems are related to my rheumatoid arthritis (onslaught in 64).  The problem lies with my
cornea, requiring multiple different drops a day.  Next week I am to go have an OCT done.  This
is to check on my glaucoma.  My pressure had been running in the 20's prior to my cataract
surgery, but dropped to about 16-18 following the removal.

Guess that is a bit of what's been going on lately with me, along with four kidney stones which
***appear*** to be gone, but will not know for sure until two months from now.  Almost all mid
back pain, bilaterally, has just about disappeared since the last lithotripsy, and that was one
of the chronic pain areas that has had no cause before now;  have been having it for more than
five years without any explanation.  Glad to get rid of that much anyway.  :-)  Things really
can get better even though it doesn't seem like it sometimes.

Billie in AR
Pumping MM 715 with Humalog and loving it!
Symlin 20 u

Signature

bh-wages at swbell.net
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Craig - 08 Apr 2006 09:18 GMT
Hi Billie,
That's (potentially) great news on the kidney stones - relief from back pain
from any cause  is always a plus.

I sympathize with the nerve conduction study. I had one a few years back
unrelated to diabetes and looked and the length of the needles and thought,
"You're going to put that where??!!:-)" - the needle looked like it was able
to pass through my leg at least twice!

Good luck with the eye testing. Here's hoping that things continue to keep
on getting better for you. It  sounds like you've managed to keep your
spirits up through some trying times.

Best wishes,
Craig
Type 2
NSW, Australia

>I was born with a urinary tract abnormality that caused me many problems
>until it was surgically
[quoted text clipped - 75 lines]
> Pumping MM 715 with Humalog and loving it!
> Symlin 20 u
Billie - 08 Apr 2006 13:35 GMT
Thank you Craig.

A little here, a little there.  *s*  While not completely gone, at least maybe they can get
things more manageable.  I've got to take a supplement for *stone prevention* at its best.  ;-)

I still have the lower back pain from an old L5-S1 herniated disc (nerve entrapment), plus a new
bulging disc S? (I cannot remember, and don't know where my mri report is).  I will be seeing
the spine doctor next week, follow-up from the Kyphoplasty surgery last fall.  Also coming up is
an appointment with the pain doctor for a left sciatica block.  That *should* get the back
feeling better.

If there can be anything positive about neuropathy, I guess it is when it has reached the point
that you cannot feel the pain of the zap (nerve conduction) nor the needle sticks of the emg.

It is my understanding that the OCT will only take a few minutes.

Also have an appointment with my rheumatologist next week.  Fun, fun, fun.  *s*

Billie

Pumping MM 715 with Humalog and loving it!
Symlin 20 u

Signature

bh-wages at swbell.net
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

" Craig" <weavers@bigblue.net.au> wrote...

: Hi Billie,
: That's (potentially) great news on the kidney stones - relief from back pain
[quoted text clipped - 13 lines]
: Type 2
: NSW, Australia
W.M.McKee - 08 Apr 2006 22:30 GMT
>I
>Anyway, he said my bladder problems were definitely diabetes related, but he will give me a more
[quoted text clipped - 28 lines]
>Pumping MM 715 with Humalog and loving it!
>Symlin 20 u

Hello, Billie

Sorry to hear about the trouble down at the waterworks... I do not
have that problem, as yet, but I do know about the neuropathy in that
right foot. And, I also know about the eye problems. Although my
retina problem is not the usual diabetes retinopathy, it may have been
caused by the diabetes, nonetheless. The latest is that it was part of
that inflammatory problem that I have had for the last few years and
which led to my diagnosis.

Good news about the disappearance of the back pain... With a little
more luck, you ought to have a glorious Spring!

Wishing you well, as always,

Will, T2
Ozgirl - 08 Apr 2006 23:50 GMT
> Sorry to hear about the trouble down at the waterworks... I do not
> have that problem, as yet,

Yet :) Same here though. But my neighbours probably think I
do :) Every six months I get 9 large cartons delivered,
labelled "INCONTINENCE PRODUCTS" :) They are Jazzy's nappies
(diapers).
Alan S - 09 Apr 2006 04:13 GMT
>> Sorry to hear about the trouble down at the waterworks...
>I do not
[quoted text clipped - 4 lines]
>labelled "INCONTINENCE PRODUCTS" :) They are Jazzy's nappies
>(diapers).

Better to have them delivered than to be standing in the
supermarket queue while the checkout person puts a price
check over the PA:-)

I actually had that happen once for a packet of condoms back
in the early '60s. Before the days of aids, safe sex ads on
TV, and public acceptance in our then incredibly staid
society of the things that weren't "properly" discussed in
public. I think I could have slunk out of that supermarket
under the door, my face would have made Rudolph's red nose
pale by comparison:-)

Cheers, Alan, T2, Australia.
d&e, metformin 2x500mg
Signature

Everything in Moderation - Except Laughter.

Ozgirl - 09 Apr 2006 04:33 GMT
> Better to have them delivered than to be standing in the
> supermarket queue while the checkout person puts a price
> check over the PA:-)

Lol. Even better if they don't give out the size over the
P.A.

Price check register 7! 12 pack of extra small ... ;)
Alan S - 09 Apr 2006 10:12 GMT
>> Better to have them delivered than to be standing in the
>> supermarket queue while the checkout person puts a price
[quoted text clipped - 4 lines]
>
>Price check register 7! 12 pack of extra small ... ;)

Blimey. No acceptable or correct riposte to that one...

Cheers, Alan, T2, Australia.
d&e, metformin 2x500mg
Signature

Everything in Moderation - Except Laughter.

Billie - 09 Apr 2006 01:50 GMT
Will, you can understand why they are checking you out for RA, inflammatory process big-time.
All these years that I have had RA (since '64 with birth of my firstborn), and this is the first
that I knew about the associated eye problems.  Connie didn't even hesitate when I asked her
what was behind my problems.   Too, my intraocular pressure dropped after the cataract surgery.

Well, I came into this world with waterworks problems, so it's nothing new, nor is it anything
serious, mainly just a bother.  Guess it helps with me being homebound.

You know what would usher in Spring in a big way for me........... the completion of getting my
motorized vehicle!!  The company is faxing the forms to my doctor for him to complete.  The guy
that Jim talked to seemed to think that I was more than qualified, even under Medicare.  That is
what my endo said, too, that if anyone needed one, it surely is me.  He made me feel so special
when he said he normally does not do things like that, but for *me* he would.  I'm anxious to
get this show on the road!!  Literally.  *s*

Did I ever tell you that my daughter works for an attorney here?  And the guy she works for went
to college with a bunch from my graduating class, and all know one another.  We discovered all
this out last year when we were getting ready for our class reunion.  Also, the attorney who
represents the hospital (Jim was Risk Management director among other things) also went to
school with them.  Forty-five years later, and we draw this biiiiiiiiig picture!  LOL

Take care,
Billie

Signature

bh-wages at swbell.net

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

: Hello, Billie
:
[quoted text clipped - 12 lines]
:
: Will, T2
 
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