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Medical Forum / Diseases and Disorders / Diabetes / March 2006

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Us - 19 Mar 2006 15:30 GMT
Wow!  I'm a Type II diabetic diagnosed a little over year ago.  I was
surprised to find how much conflicting info there is out there.  My doc is
great and he's got me on Byetta, which is working great instead of the
insulin I was on, which worked OK when I followed my routine.  Iwas just
curious about how many people are familiar with Byetta.  It has affected my
appetite and I have to make myself eat sometimes.  Any info on long term
problems with Byetta?
Jenny - 19 Mar 2006 16:02 GMT
> Wow!  I'm a Type II diabetic diagnosed a little over year ago.  I was
> surprised to find how much conflicting info there is out there.  My doc is
[quoted text clipped - 3 lines]
> appetite and I have to make myself eat sometimes.  Any info on long term
> problems with Byetta?

Since no one has been taking it for more than two years, there can't be
any data on long term problems with it.  That's one of the reasons I'm a
bit wary of getting too excited about it.

Looking at drugs like Avandia, it takes at least 5 years until some of
the serious side effects start to appear (like in Avandia's case that it
is dangerous for people with heart failure and can cause macular edema
leading to blindness.)

Right now diabetics find themselves involuntarily enrolled in a lot of
long term experimentation, for example, with the analog insulins that
aren't the same as the human insulin that had been used for decades or
the animal insulins that preceded them. Byetta is another drug that
seems okay but who knows?

One thing we do know is that the FDA is paid for by the drug companies
and under this administration it lives only to serve those drug
companies, approving just about anything that doesn't clearly kill
people (and occasionally approving one that does, until outraged doctors
make them withdraw it, as in Pargluva.)

So if your body is sending you signals that make you think maybe
something not so good is going on, pay attention to them.  Many years
ago in the early 1970s my doctor got me excited about a new form of
birth control.  I tried it, but got a feeling that something was not
right, and had him take it out. It was a Dalkon shield, later withdrawn
from the market because of the deaths it caused. It took me quite a
while to get rid of the infection it gave me, but at least I lived.

--Jenny

http://www.phlaunt.com/diabetes  Diabetes Info

http://www.alt-support-diabetes.org/newlydiagnosed.htm Get Your Blood
Sugar Under Control
Roger Zoul - 19 Mar 2006 18:35 GMT
:: Us wrote:
::: Wow!  I'm a Type II diabetic diagnosed a little over year ago.  I
[quoted text clipped - 13 lines]
:: that it is dangerous for people with heart failure and can cause
:: macular edema leading to blindness.)

Like me controling my diabetes with low carb nutrition and exercise (no
drugs).  A long term study using my own body.  I may be dead by the time to
serious side effects start to appear.
W.M.McKee - 19 Mar 2006 19:33 GMT
>:: Us wrote:
>::: Wow!  I'm a Type II diabetic diagnosed a little over year ago.  I
[quoted text clipped - 17 lines]
>drugs).  A long term study using my own body.  I may be dead by the time to
>serious side effects start to appear.

If it works for you, Roger, more power to you. Most of us are not so
lucky. We really need our meds....

Will, T2
Roger Zoul - 20 Mar 2006 04:01 GMT
:: On Sun, 19 Mar 2006 12:35:51 -0500, "Roger Zoul"
:: <rogerzoul2@hotmail.com> wrote:
[quoted text clipped - 25 lines]
:: If it works for you, Roger, more power to you. Most of us are not so
:: lucky. We really need our meds....

Absolutely!  However, my point was that there isn't any long term research
done on LC diets.  Hence, there is a risk on term, depending on who you
believe.

BTW, I took meds for many years.
Chris Malcolm - 20 Mar 2006 14:24 GMT
> However, my point was that there isn't any long term research
> done on LC diets.  Hence, there is a risk on term, depending on who you
> believe.

Is there any diet whatsoever on which long term research has been done?

Signature

Chris Malcolm cam@infirmatics.ed.ac.uk +44 (0)131 651 3445 DoD #205
IPAB,  Informatics,  JCMB, King's Buildings, Edinburgh, EH9 3JZ, UK
[http://www.dai.ed.ac.uk/homes/cam/]

Roger Zoul - 21 Mar 2006 00:24 GMT
:: Roger Zoul <rogerzoul2@hotmail.com> wrote:
::
[quoted text clipped - 4 lines]
:: Is there any diet whatsoever on which long term research has been
:: done?

Low fat?
Alan S - 21 Mar 2006 04:43 GMT
>Is there any diet whatsoever on which long term research has been done?

Only on the two most important foods known to mankind.

Mum's apple pie (sadly, no longer for this son) and chicken
soup.

All of the others are guesswork.

Cheers, Alan, T2, Australia.
d&e, metformin 2x500mg
Signature

Everything in Moderation - Except Laughter.

Jenny - 20 Mar 2006 15:03 GMT
> Absolutely!  However, my point was that there isn't any long term research
> done on LC diets.  Hence, there is a risk on term, depending on who you
> believe.

True, except that at least there are populations of people who have been
ON low carb diets for many years who are still alive who haven't grown
second heads, or had any organ shrivel up and die, which is a good
starting place.

It's the complete lack of any history with the brand new drugs, rushed
through approval at an FDA we know to be completely in the pocket of the
pharmaceutical companies, that is so worrisome.

Now of course, there is a Catch-22 here. Any new drug will be new for a
while and if no one took it we'd never know if it was good or caused
those side effects. So someone has to take that risk.

What that requires, in my mind at least, is a good assessment of how
much clear good is possible weighed against potential harm suggested by
current data.

In the case of Avandia, for example, it makes a very modest change in
blood sugars for most people and causes significant edema. Edema turns
out to be the mechanism behind the serious problems it causes. Most
doctors told their patients that the edema, as unpleasant as it was
should just be ignored.  It turns out, for some people the edema was
their body's way of signaling this was not a good drug for them.

With Byetta, I'd worry about what the long term effect is of developing
antibodies to the injected substance that might attack my natural GLP-1.
 And I also am concerned that we just plain don't know what it is
doing. The thing about dogs tearing apart the undies of people taking
Byetta for example, suggests that it is doing things to our hormone
systems we can't begin to fathom.

--Jenny

http://www.phlaunt.com/diabetes  Diabetes Info

http://www.alt-support-diabetes.org/newlydiagnosed.htm Get Your Blood
Sugar Under Control
Roger Zoul - 21 Mar 2006 00:25 GMT
:: Roger Zoul wrote:
::: Absolutely!  However, my point was that there isn't any long term
[quoted text clipped - 32 lines]
:: Byetta for example, suggests that it is doing things to our hormone
:: systems we can't begin to fathom.

That's just plain scary.

This ng is a little creepy.
Grandpa Chuck - 19 Mar 2006 17:37 GMT
>Wow!  I'm a Type II diabetic diagnosed a little over year ago.  I was
>surprised to find how much conflicting info there is out there.  My doc is
[quoted text clipped - 3 lines]
>appetite and I have to make myself eat sometimes.  Any info on long term
>problems with Byetta?

Welcome to our not so little family.
I have not heard of Byetta before, but I did want to take the time to
bid you welcome. Be sure to tell us about yourself and to ask any
questions you might have no matter how trivial they may seem. Just
remember that we are not medical professionals. We are here to share
our experience, strength and hope with each other. That is what any
support group is all about.

If you use all the things you will learn about this disease you may
find yourself living a better, healthier life than you have for many
years.

Take care and be well,

Signature

Grandpa Chuck
-ô¿ô-
 ~

The following information is given with the utmost respect
for the armed forces and civilians who have died in the
current war in Iraq. According to http://icasualties.org/oif/
The number of Americans killed in Iraq as of Mar. 16, 2006 is 2,318.
Americans wounded = 16,653 as of 02/07/2006
United Kingdom = 103
Other = 104  
Iraqi deaths are probably in excess of 100,000.

Today, March 19, 2006
It has been 1053 days since Bush declared,
"Mission Accomplished in Iraq."

Alan S - 20 Mar 2006 00:44 GMT
>I have not heard of Byetta before,

Are you serious Chuck? You must read very selectively here.

Cheers, Alan, T2, Australia.
d&e, metformin 2x500mg
Signature

Everything in Moderation - Except Laughter.

Grandpa Chuck - 20 Mar 2006 03:18 GMT
>>I have not heard of Byetta before,
>
>Are you serious Chuck? You must read very selectively here.
>
>Cheers, Alan, T2, Australia.
>d&e, metformin 2x500mg

LOL

To be truthful, I don't pay much attention to the meds that others
take if I am not familiar with them. Since I am currently using eleven
different prescription drugs I am not very interested in others.

Signature

Grandpa Chuck
-ô¿ô-
 ~

The following information is given with the utmost respect
for the armed forces and civilians who have died in the
current war in Iraq. According to http://icasualties.org/oif/
The number of Americans killed in Iraq as of Mar. 16, 2006 is 2,318.
Americans wounded = 16,653 as of 02/07/2006
United Kingdom = 103
Other = 104  
Iraqi deaths are probably in excess of 100,000.

Today, March 19, 2006
It has been 1053 days since Bush declared,
"Mission Accomplished in Iraq."

sharppointy1 - 19 Mar 2006 17:49 GMT
> Wow!  I'm a Type II diabetic diagnosed a little over year ago.  I was
> surprised to find how much conflicting info there is out there.  My doc is
[quoted text clipped - 3 lines]
> appetite and I have to make myself eat sometimes.  Any info on long term
> problems with Byetta?

Hi Us.  I too use Byetta, which along with correct eating and exercise
has brought my A1c down to 6.2 (I'm hopeful that this is the beginnning
of a slide into the 5's!)  I also wonder about the long term effects
from this new class of drug.  As Jenny mentioned, there are no long
term studies because it's so new.  WE are the guinea pigs, and I'm OK
with that.  I am curious, tho, what we'll find out in the long run.  I
have found its appetitie suppresion to be marvelous - I have been able
to lose 40 lbs without feeling deprived - a first for me.  I'm having
trouble lately finding the warm rocks to lay on that I suddenly crave,
though...too much snow & not enough sunshine here....
Billie - 19 Mar 2006 18:49 GMT
Come on down to Arkansas, and I'll share my warm rock with you.... :)
Billie
Pumping MM 715 since 2/2006 and LOVING it!

I'm having
> trouble lately finding the warm rocks to lay on that I suddenly crave,
> though...too much snow & not enough sunshine here....
W.M.McKee - 19 Mar 2006 19:40 GMT
>Come on down to Arkansas, and I'll share my warm rock with you.... :)
>Billie
[quoted text clipped - 3 lines]
>> trouble lately finding the warm rocks to lay on that I suddenly crave,
>> though...too much snow & not enough sunshine here....

Hi there, Billie! :-)

How is it working out with the new pump? I do hope you are OK. I think
of you often down there in Arkansas. I should imagine your springtime
is far more advanced than ours... My redbud is just now starting to
get a hint of bloom...

Will, T2
>^;^<  Great-Granny Grayfur - 20 Mar 2006 01:35 GMT
Hi Will.  Actually our weather is not much different than yours.  We in Northeast Arkansas, next
to the Missouri bootheel, always seem to be where the warm and cold air masses meet, with us on
the northern side of it.  We've had jonquils, but the azaleas are not budding yet, unless they
have within the last couple of days.  I'll take note of it tomorrow when we head down to Memphis
for doctors' appointments.

Oh, this pump is the best thing since sliced bread (whole wheat, low carb, of course :-)!  It
was wonderful to have when we made our trip to Ohio to see the great-grandbabies (Kaitlyn was
four weeks old at the time; Matthew 2.5 y/o :-).  Then, I had a great experience with it in the
hospital last week for my fourth lithotripsy, which I want to write about, but have not felt up
to it until maybe now.  Darn all these illnesses!!!!  Wish I could go *poof* and they'd all be
gone!  Guess if they've hung around for these past forty years, they're planning on still
staying for a while.

How are things going for your daughter?  I wonder about her every now and then when I'm reading
your posts.

Read the good/bad about your eyes, and looking forward to hearing what you eventually find out.
I go in not this week, but the following week because I'm still having so much trouble with my
left eye.  Complicated story of post cataract surgery which is not related to the cataracts or
the surgery, rather related to the autoimmune diseases, especially the rheumatoid arthritis
(never knew of the RA/eye connections before, and I've had RA since I was 22).

Well, moving along......... just got off the phone with my granddaughter in Ohio, and now I need
to get on with reading the posts.

Billie

: Hi there, Billie! :-)
:
[quoted text clipped - 4 lines]
:
: Will, T2
wmmckee@cox.net - 20 Mar 2006 18:54 GMT
On 19-Mar-2006, ">^;^<  Great-Granny Grayfur"
<love.my.kitties@kittycats.org> wrote:

> Hi Will.  Actually our weather is not much different than yours.  We in
> Northeast Arkansas, next
[quoted text clipped - 5 lines]
> we head down to Memphis
> for doctors' appointments.

Hello Billie,

You are an absolute dear and an inspiration to all of us! I am very happy
for you about the success of the pump. We just need to get you well for the
Spring and Summer, so you can enjoy the seasons. It must be very exciting
having great grandchildren :-).... I am still adjusting to being a
grandfather. I simply cannot imagine being a great grandfather....

I don't know which daughter you were asking about. Rachel is still about the
same, living in Huntsville, AL with her mother for now..... That's where her
doctors are, and she seems to need to be there for treatment.

The other daughter, Erin, is still in New Orleans and is a manager with
AmSouth Bank. She is the one with the two little girls, and is finding it
difficult to maintain a high pressure job and be a mom, too. A few days ago,
little Tatiana threw up on her on the way to daycare at the JCC, so Erin had
to go on to work at the bank and make it through the day without her coat
on... She got cold. But then, I am sure you know all about being a mom......

You know about eyes, too. Eyes are things most people take for granted,
until and unless they start not to function... I have my next appointment
with the super dooper retina specialist on March 31, at 2:00 P.M. I guess
I'll know more then....

I hope your eye complications clear up.... It really gets scary when you
cannot see well, as I know all too well.

Hope you are having a good day, Billie.

Will, T2
sharppointy1 - 20 Mar 2006 18:34 GMT
Thanks, Billie!
W.M.McKee - 19 Mar 2006 19:38 GMT
>> Wow!  I'm a Type II diabetic diagnosed a little over year ago.  I was
>> surprised to find how much conflicting info there is out there.  My doc is
[quoted text clipped - 14 lines]
>trouble lately finding the warm rocks to lay on that I suddenly crave,
>though...too much snow & not enough sunshine here....

Hi Barbara,

How are you today? :-)

Just make sure you are getting the right stuff that comes from Gila
Monsters, and not the Komodo Dragon product ;-)

Will, T2
sharppointy1 - 20 Mar 2006 15:42 GMT
Hi Will
I've had a couple of rough patches, but doing well now....my cat Ginger
bit me on the forehead 3-4 wks ago, required stitches and IV
antibiotics again.  As this was the second serious unprovoked no
warning bite, I had her put down.  That was really tough - the no-kill
shelters won't take vicious animals, and she had to be tested for
rabies by law b/c of the bite..(she of course had all her shots &
wasn't an outdoor kitty, but the law is the law).  I was surprised at
how sick i was from this second cat bite infection, and I have been
laying low, but my face and my heart are healing and I feel better now.
As far as Sprig goes, what spring??  It didn't snow when it was
supposed to (Dec -Jan-Feb) and now it won't quit.  Just last Wednesday
our 2 inches turned into 11.5!!
I'm still enjoying the Gila Monster spit :-) - I wonder what
fascinating effects Komodo Dragon spit has??  I do wonder what the long
term effects of Byetta will be - but I can live with the longing for
sunshine and warm rocks....
I hope you have a lovely day, Will.  here's a snowball!
Barbara
Anil - 20 Mar 2006 16:08 GMT
Jenny wrote:

>> The thing about dogs tearing apart the undies of people taking
>> Byetta for example, suggests that it is doing things to our hormone
>> systems we can't begin to fathom.

Barbara you say

sharppointy1>
>> Hi Us.  I too use Byetta
:
>> I've had a couple of rough patches, but doing well now....my cat Ginger
>> bit me on the forehead 3-4 wks ago, required stitches and IV
>> antibiotics again.  As this was the second serious unprovoked no
>> warning bite, I had her put down.

Hmm..Are the pets reacting to some thing we do not know? Just curiously
connecting two threads. No idea if this is just my imagination going
wild.

Anil
sharppointy1 - 20 Mar 2006 18:33 GMT
> Jenny wrote:
>
[quoted text clipped - 17 lines]
>
> Anil

Anil
now you're making me wonder....
I think I remember that cats don't have sweet taste buds, so there goes
that theory.  I do have dogs, so I guess keeping my dirty undies in the
hamper is a good thing!!  :-O
Jenny - 20 Mar 2006 20:04 GMT
> Anil
> now you're making me wonder....
> I think I remember that cats don't have sweet taste buds, so there goes
> that theory.  I do have dogs, so I guess keeping my dirty undies in the
> hamper is a good thing!!  :-O

From what I read about the Byetta/Underwear effect, this isn't a thing
about flavor, but about some chemical being excreted which has some kind
of sexual or aggression message for dogs.

--Jenny

http://www.phlaunt.com/diabetes  Diabetes Info

http://www.alt-support-diabetes.org/newlydiagnosed.htm Get Your Blood
Sugar Under Control
Cheri - 20 Mar 2006 21:15 GMT
I was wondering the same thing Anil. Seems that has happened a couple of
times recently for no apparent reason. The other one was the dogs
attacking each other. My dog has been behaving a little wierdly too.
Pacing around all the time in the last few days, which she normally
doesn't do. Dunno, it might be the weather, since it has been very
unsettled here with occasional thunder, hail, etc.

--
Cheri

Anil wrote in message >Hmm..Are the pets reacting to some thing we do
not know? Just curiously
>connecting two threads. No idea if this is just my imagination going
>wild.
>
>Anil
wmmckee@cox.net - 20 Mar 2006 18:17 GMT
> I've had a couple of rough patches, but doing well now....my cat Ginger
> bit me on the forehead 3-4 wks ago, required stitches and IV
> antibiotics again.  As this was the second serious unprovoked no
> warning bite, I had her put down.

Hello Barbara,

I am so sorry to hear of the problem with the cat bite.... I am very aware
that infections caused by cat bites and scratches can become quite serious.
I once had a case involving a witness who was blind from what her parents
called "cat scratch fever". She was an absolutely beautiful young woman who
was blinded by a runaway infection that she contracted as a result of a cat
scratch when she was 14.... That was simply tragic. No other words for it.

You can keep your snowballs, thank you very much! Winter is out of fashion
over here:-) I am ready for spring!

Will, T2
Loretta Eisenberg - 19 Mar 2006 17:50 GMT
Us I just want to welcome you to our group and let you know I am glad
you found us.  I cant answer the question because I have no idea about
byetta.  I am sure you will get many respsones.

Loretta

--
In tribute to the United States of America and the State
of Israel, two bastions of strength in a world filled with strife and
terrorism.
Billie - 19 Mar 2006 18:39 GMT
Hi......... I have been using Byetta since last September, and it has done
wonders for me, one of which is to counter the extreme hunger that my daily
Prednisone (for the rest of my life) causes.  I lost eleven pounds recently
due to the absence of hunger caused by the Byetta.  I just flat do not want
to eat, and when I do feel hungry, I feel satisfied after just a few bits.

It is hard to judge the effect it has had on my BG because I have had
multiple surgical procedures and infections during this entire time.  I have
been off of it since going on the pump a few weeks ago, and I am amazed at
the hunger I am experiencing.  I have an appointment Monday, and think he
will be starting me on Symilin, which has some similar characteristics of
the Byetta (both put out by the same company).

As for the Byetta, I only had a smidgen of nausea when I first started the 5
mg, but none since then, not even going on up to the 10 mg.  There are two
Byetta yahoo groups if you are interested.  There is a lot of information
exhanged there.

HTH
Billie in AR

> Wow!  I'm a Type II diabetic diagnosed a little over year ago.  I was
> surprised to find how much conflicting info there is out there.  My doc is
[quoted text clipped - 3 lines]
> my appetite and I have to make myself eat sometimes.  Any info on long
> term problems with Byetta?
W.M.McKee - 19 Mar 2006 19:42 GMT
>Wow!  I'm a Type II diabetic diagnosed a little over year ago.  I was
>surprised to find how much conflicting info there is out there.  My doc is
[quoted text clipped - 3 lines]
>appetite and I have to make myself eat sometimes.  Any info on long term
>problems with Byetta?

Hello Us,

You are most welcome.... Fix yourself something you enjoy, put on your
slippers, and pull up a comfortable chair, and relax. You are about to
join a wonderful group of friends, some of whom sometimes may get a
little testy with each other, but almost all of whom really do care
about each other. We are united, in one way or another, by a common
malady, diabetes, either T1 or T2....

Wishing you well and happy usenetting,

Will, T2
 
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