Medical Forum / Diseases and Disorders / Diabetes / March 2006
Well, here goes nothing!
|
|
Thread rating:  |
W.M.McKee - 16 Mar 2006 15:06 GMT Hello group,
I just thought I would let you all know that I am off to the opthalmologist for that retinal exam.... Will keep you all posted as to the outcome, as soon as I can focus again.
Have a good one, everybody!
Will, T2
Cheri - 16 Mar 2006 17:51 GMT I hope everything goes well, Will. Please do let us know.
-- Cheri
W.M.McKee wrote in message ...
>Hello group, > [quoted text clipped - 5 lines] > >Will, T2 Grandpa Chuck - 16 Mar 2006 17:58 GMT >Hello group, > [quoted text clipped - 5 lines] > >Will, T2 I hope it went well for you Will.
 Signature Grandpa Chuck -ô¿ô- ~
The following information is given with the utmost respect for the armed forces and civilians who have died in the current war in Iraq. According to http://icasualties.org/oif/ The number of Americans killed in Iraq as of Mar. 15, 2006 is 2,314. Americans wounded = 16,653 as of 02/07/2006 United Kingdom = 103 Other = 103 Iraqi deaths in excess of 30,000 - probably many more.
Today, March 16, 2006 It has been 1050 days since Bush declared, "Mission Accomplished in Iraq."
W. Baker - 16 Mar 2006 18:58 GMT : Hello group,
: I just thought I would let you all know that I am off to the : opthalmologist for that retinal exam.... Will keep you all posted as : to the outcome, as soon as I can focus again.
: Have a good one, everybody!
: Will, T2 I hope, by the time you read this, you will have had a god report. Opthamologists are not really out to bite you. They can be quite nice.
Wendy-who has long experience with many of them:-)
wmmckee@cox.net - 16 Mar 2006 20:32 GMT > just thought I would let you all know that I am off to the > opthalmologist for that retinal exam.... Will keep you all posted as > to the outcome, as soon as I can focus again. Well, Cheri, Chuck, Wendy, and everyone, thanks for the good wishes! :-)
Good news and not so good news...
The good news is that the left eye is totally fabulous, clear as a whistle and problem free! Another spot of good news is that whatever happened to my right eye is NOT related to the diabetes.
Now, for the not so good news.... I have what the doctor termed a "maculopathy" that has robbed me of much of the center of the field of vision in the right eye. He was careful not to call it macular degeneration, and said my condition was relatively rare. He could not say specifically what caused it, except to say that it is related to a fluid build up behind the retina and in the retina that caused changes in the retina. While he said that the condition is most likely permanent, he did refer me to another super, super cutting edge retina specialist for yet more tests.... There may be some new research going on that could help. In the meantime, I just have to get used to being functionally blind in one eye....
Just think of me as William "Cocles" McKee, or "One-eyed Willie" Ha! I guess the only thing for me to do is laugh, because it sure beats crying. And on the bright side, I still have one very good left eye, as long as the crows of Mordor do not come after me to pluck it out..... I especially thank you, Chris and Alan, for insisting that I go and have the workup done. I do appreciate it. Truly, I do... more than you will ever know. You guys are always OK in my book. :-)
On a personal note, I probably hate going to doctors and dentists as much as anyone who has ever lived, and I might have put this off a while longer, if it had not been for this group. I mean that. You guys are all super. Now, at least I have some peace of mind and the knowledge that whatever happened to that eye, it was not the diabetes, or anything I did, or did not do.... Another piece of good news is that I was told that the chances of having the same thing go wrong with the other eye are extremely remote. This is just the hand of cards I was dealt. Also, I do have a slim reed of hope that there may be a possible treatment, depending upon the next round of tests.
Will, T2
Anil - 16 Mar 2006 20:41 GMT Will,
Nice to see you back with wonderful eyesight. Hope the issue with other eye stays dormant for ever.
> On a personal note, I probably hate going to doctors and dentists as much as > anyone who has ever lived, and I might have put this off a while longer, if > it had not been for this group. I mean that. With that visit now you have become a "Visionary!". I agree with you. The collective wisdom and advice in this group is simply precious!
Anil T2
wmmckee@cox.net - 16 Mar 2006 23:25 GMT > With that visit now you have become a "Visionary!". I agree with you. > The collective wisdom and advice in this group is simply precious! Thanks, Anil. You are wonderful, and you have a truly infectious sense of humor!
I appreciate you and this whole group so much.
Will, T2
Chris J. - 16 Mar 2006 22:09 GMT >> just thought I would let you all know that I am off to the >> opthalmologist for that retinal exam.... Will keep you all posted as [quoted text clipped - 7 lines] >and problem free! Another spot of good news is that whatever happened to my >right eye is NOT related to the diabetes.
>Now, for the not so good news.... I have what the doctor termed a >"maculopathy" that has robbed me of much of the center of the field of [quoted text clipped - 6 lines] >be some new research going on that could help. In the meantime, I just have >to get used to being functionally blind in one eye.... Will, I am truly sorry to hear this... But whatever you do, do go to the specialist.
>Just think of me as William "Cocles" McKee, or "One-eyed Willie" Ha! I guess >the only thing for me to do is laugh, because it sure beats crying. And on [quoted text clipped - 3 lines] >appreciate it. Truly, I do... more than you will ever know. You guys are >always OK in my book. :-) Thanks, Will, I'm glad you went, though I am deeply saddened by the results. I hope it works out for you. Please keep us posted. (and if you don't, we will nag you unmercifully).
>On a personal note, I probably hate going to doctors and dentists as much as >anyone who has ever lived, and I might have put this off a while longer, if [quoted text clipped - 5 lines] >the hand of cards I was dealt. Also, I do have a slim reed of hope that >there may be a possible treatment, depending upon the next round of tests. Will, how bad is it? I'm guessing that you didn't notice it before?
wmmckee@cox.net - 16 Mar 2006 23:20 GMT > Will, how bad is it? I'm guessing that you didn't notice it before? Well, Chris, it is bad enough, so that if that were the only eye that I had, I would be legally and functionally blind... Yet, I still see light,forms, shapes, colors, movement, etc. just not much detail.... So if someone were pointing a gun at me, or coming at me as though to do violence, I would still be able to detect it and hopefully get out of the way! ;-)
Seriously, I first became aware of the developing problem as I was being given avandamet for the diabetes to reduce my BG right after diagnosis a year ago... I don't know if anyone will ever be able to establish a linkeage, between the avandamet and my eye condition, but there was a period there when I had several near accidents and finally had to be driven places for a while. I even ran into the side of an underwater tunnel one time, coming back from the Maryland Eastern Shore. Then, I switched to metformin, and as my diabetes doctor had forecast, the vision improved, so that I could function again, but it never really completely returned to normal in the right eye, although it did improve significantly... Over the last three or four months, especially after having heard your story, I started really paying attention to my own vision, and I realized that if anything, that right eye was starting to get a little worse.... That's why I brought it up that day a few weeks ago, after which you and Alan insisted I go to the opthalmologist's for a thorough workup... I do very much appreciate your concern and advice on that occasion.
The doctor to whom I went today said the damage to the retina did not look anything like the kind of damage he would associate with diabetes, but then again, he huffed and puffed and said how rare this condition of mine was, and that he would not feel comfortable doing anything other than referring me to one of the very top retina specialists in this area. He kept saying over and over that he had no idea of what could have caused it. Sadly, he also stated such conditions do not normally get better, although he would not say it was impossible to hope for improvement.... So, in the next week or so, I shall go to the next doctor up the line and hope the research guys know more than today's doctor did.
I do hope you are having continuing improvement in your eyes, Chris, with each passing day. As you know, we often take our vision for granted, until the possibility of blindness comes to the fore. Even though my situation cannot be laid at the door of diabetes, it underscores the danger that those of us dealing with diabetes especially face. For instance, it really behooves me to take extra good care of my remaining eye, since my spare is gone, so to speak.
Will, T2
Chris J. - 20 Mar 2006 08:22 GMT >> Will, how bad is it? I'm guessing that you didn't notice it before? > [quoted text clipped - 7 lines] >given avandamet for the diabetes to reduce my BG right after diagnosis a >year ago...
>I don't know if anyone will ever be able to establish a >linkeage, between the avandamet and my eye condition, Hmmm... That's Avandia and Metformin. I'd suspect it's just the Avandia, as just having them in the same pill wouldn't make much difference from separate pills taken together.
Avandia (rosiglitazone)*IS* known to cause macular edemas.
A google on : avandia macular turns up loads of links.
http://www.medscape.com/viewarticle/520982 http://www.onlinelawyersource.com/news/avandia-eye-problems.html
I looked into this when I was trying to track down causes for mine. I was given a fraction of an Amaryil pill while in hospital, but I doubt that had anything to do with my case.
> but there was a >period there when I had several near accidents and finally had to be driven >places for a while. I even ran into the side of an underwater tunnel one >time, coming back from the Maryland Eastern Shore. Then, I switched to >metformin, and as my diabetes doctor had forecast, Will, if your Doc didn't recommend that you see an ophthalmologist, under those circumstances, I'd suggest finding a malpractice lawyer.
>the vision improved, so >that I could function again, but it never really completely returned to [quoted text clipped - 5 lines] >go to the opthalmologist's for a thorough workup... I do very much >appreciate your concern and advice on that occasion. I am very sorry it wasn't sooner.
Will, if you have the chance, you might ask the retinal specialist about both the Avandia and Normoglycemic re-entry syndrome.
Were you ever on insulin? The reason I ask is that your case sounds as if it *might* be temporary retinopathy (since cleared up) causing macular edemas. From what I have read, injected insulin is normally a component of normoglycemic re-entry syndrome, BUT, Avandia is a beta stimulator and as such will cause your pancreas to produce more insulin, so *might* trigger it. Just a theory.
>The doctor to whom I went today said the damage to the retina did not look >anything like the kind of damage he would associate with diabetes, but then [quoted text clipped - 6 lines] >or so, I shall go to the next doctor up the line and hope the research guys >know more than today's doctor did. Please let us know how it goes.. when is your appointment?
wmmckee@cox.net - 20 Mar 2006 20:22 GMT > Please let us know how it goes.. when is your appointment? Hi Chris,
The next appointment is at 2:00 P.M. on March 31..... I'll keep you posted. Thanks for your interest and concern.
I hope your eyes are continuing to improve. As you, Wendy, and a few others on here know, there is nothing quite like not being able to see well.
Will, T2
TigerLily - 16 Mar 2006 22:35 GMT Will
you have my prayers that there is a treatment for your eye condition
take care, kate
 Signature Join us in the Diabetic-Talk Chatroom on UnderNet /server irc.undernet.org --- /join #Diabetic-Talk More info: http://www.diabetic-talk.org/ http://www.diabetic-talk.org/freeveggies.htm I have no medical qualifications beyond my own experience. Choose your advisers carefully, because experience can be an expensive teacher.
> > just thought I would let you all know that I am off to the > > opthalmologist for that retinal exam.... Will keep you all posted as [quoted text clipped - 38 lines] > > Will, T2 wmmckee@cox.net - 16 Mar 2006 23:23 GMT > Will > [quoted text clipped - 3 lines] > take care, > kate Thanks so much Kate. And you have mine for your shoulders.... We are, as they say, "the walking wounded".
Will, T2
Cheri - 16 Mar 2006 23:25 GMT Will, I'm sorry about your bad news. How bad is the eyesight in your right eye? I hope your "cutting edge specialist" is able to offer some help for it. I'm curious as to how they determined that your right eye problems are not diabetes related. Take care Will.
-- Cheri
wmmckee@cox.net wrote in message ...
>> just thought I would let you all know that I am off to the >> opthalmologist for that retinal exam.... Will keep you all posted as [quoted text clipped - 39 lines] > >Will, T2 wmmckee@cox.net - 16 Mar 2006 23:52 GMT > I'm curious as to how they determined that your right eye > problems are not diabetes related. That is a good question, Cheri. The doctor I went to was an older gentleman, but he does have an excellent reputation. He simply said he had almost never seen anything quite like it, and that it did not look anything like what he normally saw in diabetic retinopathy, and thus, he could not say it was diabetes related. He spoke in terms of the kind of damage that is caused by fluid buildup behind the retina. At one point, he asked if I had been in any traumas or under severe stress, to which I replied that every day is stressful for me as a lawyer, but not what I would think of as unduly stressful. Over the years, I guess I have had a few severe traumas, but so have a lot of people..... And nothing in the way of severe trauma to the head/eyes in recent years.
I will say that he performed quite a number of tests and fussed over my eyes for quite a long time, probably longer than he spends with most patients....
Will, T2
W. Baker - 17 Mar 2006 00:40 GMT : Now, for the not so good news.... I have what the doctor termed a : "maculopathy" that has robbed me of much of the center of the field of [quoted text clipped - 7 lines] : to get used to being functionally blind in one eye.... : Will, T2 k Will, where are you? I have a great team in NYC that have been preserving my focus in my one remaining eye. If there is something to be done, they weill know about it.
If you want, email me privately at the address abouve and we can talk further if you want .
Wendy
wmmckee@cox.net - 17 Mar 2006 00:48 GMT > Will, where are you? I have a great team in NYC that have been preserving > [quoted text clipped - 5 lines] > > Wendy Thanks, Wendy... I am in Virginia Beach, which is not too far from NYC.
Look for email later on... My eyes are still a little blurry right now.
Will, T2
bantista - 17 Mar 2006 04:45 GMT >> just thought I would let you all know that I am off to the >> opthalmologist for that retinal exam.... Will keep you all posted as [quoted text clipped - 51 lines] > > Will, T2 Hello, Will,
Frankly, this scares the hell out of me, and I expect you as well. I'm sure you have googled what your Doctor told you already, and probably, a lot of the rest of us have as well. Who knows, but I'm not sure I have huge confidence in your guy at this point. I'm glad you have a further referral and can maybe also talk to Wendy's people. Right now, I'm scared to death for you and hoping it doesn't spread to your other eye and that something can be done to bring it under control and, one wishes, reverse some of the damage.
What a kick in the head this is. I just hope something can be done about it now.
I totally understand about not wanting to go to dentists though. They always hurt me. Doctors, not so much, though sometimes they can be unpleasant (prostrate exam by an insensitive caregiver, not recommended as a good time). Colonoscopy. That's big fun. Eye exams and eye surgery have generally not been pleasant experiences, though, the results have been good up to now. But I'm still here making rude noises and stinking up the place from time to time, so I'd have to say, it's better to put up with the temporary inconvenience and discomfort than otherwise.
I'd sure want to follow up on this with some other people, though. Stat.
Best regards, rudy bantista@thuntek.net T2, last A1c 5.9, current bg 143, guessed wrong with that last meal. Two hours and I'm still high. One day to the next things change.
W.M.McKee - 17 Mar 2006 09:52 GMT >Hello, Will, > [quoted text clipped - 26 lines] >T2, last A1c 5.9, current bg 143, guessed wrong with that last meal. Two >hours and I'm still high. One day to the next things change. Thanks for the kind words, Rudy. There is nothing to do, but do what I must to see this thing through with the new specialist. One thing that has been going through my mind, though, is some something I heard a few weeks ago about people having similar complications from taking avandamet. I was on avandamet for about 6 weeks after diagnosis, until it became unavailable. That was when I first started having eye problems of this nature.
Anyway, as in the title of an old book by Joyce Carol Oates, I have to "Play It As It Lays." I am not looking for anyone or anything to blame. I just have to get on with life and hope the other eye holds out for as long as I need it.
Will, T2
Ricavito - 17 Mar 2006 04:47 GMT > > just thought I would let you all know that I am off to the > > opthalmologist for that retinal exam.... Will keep you all posted as [quoted text clipped - 38 lines] > > Will, T2 Oh, I'm so sorry to hear of your troubles Will. You have a wonderful attitude about it, I must say, and I think you are blessed with seeing the bright side--the maculopathy hasn't clouded that element of your vision at all. I will be looking forward to hearing what results from your consultation with the retina specialist.
Best wishes,
Ricavito
W.M.McKee - 17 Mar 2006 09:55 GMT >> Will, T2 > [quoted text clipped - 7 lines] > >Ricavito Thanks for your kindness, Ricavito. I will just have to wait for another week, or so, and see what turns up. Actually, I am far luckier than many people who read this group regularly, and I do not want to seem ungrateful for the comparatively good health I do enjoy. I give the people of this group full credit for helping me to turn around the downhill progression of diabetes. And, if I have indeed lost the effective use of one eye to who knows what, at least I am more likely to retain vision in the other one, as a result of controlling my diabetes.
I'll keep you posted.
Will, T2
Jenny - 17 Mar 2006 15:28 GMT >And, if I have indeed lost the > effective use of one eye to who knows what, at least I am more likely > to retain vision in the other one, as a result of controlling my > diabetes. This seems to be the month for rotten things happening to fine people! So sorry you have to go through this. I too am hoping the retina specialist has better news for you.
--Jenny
http://www.phlaunt.com/diabetes Diabetes Info
http://www.alt-support-diabetes.org/newlydiagnosed.htm Get Your Blood Sugar Under Control
wmmckee@cox.net - 17 Mar 2006 18:24 GMT > So sorry you have to go through this. I too am hoping the retina > specialist has better news for you. Thanks for the concern and good wishes, Jenny. By the way, I really do appreciate all you do every day for this group! You are an inspiration.
I'll keep you posted. :-)
Will, T2
Jenny - 17 Mar 2006 19:37 GMT >> So sorry you have to go through this. I too am hoping the retina >> specialist has better news for you. > > Thanks for the concern and good wishes, Jenny. By the way, I really do > appreciate all you do every day for this group! You are an inspiration. Thanks. I greatly appreciate your kind words!
There's been a bit too much going on this winter, what with ongoing family crises, so I didn't get to do my usual full-immersion winter project. And without the project to work on, this year, posting here has taken over my spare time. Hopefully it does do some good.
I'm looking forward to spring coming and being able to get out again. And next year I really hope things have calmed down to where I can do another project. That's pretty much what I live for.
--Jenny
http://www.phlaunt.com/diabetes Diabetes Info
http://www.alt-support-diabetes.org/newlydiagnosed.htm Get Your Blood Sugar Under Control
Sansi - 17 Mar 2006 08:51 GMT > Good news and not so good news... > > The good news is that the left eye is totally fabulous, clear as a whistle > and problem free! Another spot of good news is that whatever happened to > my > right eye is NOT related to the diabetes. Hullo dear Will, Sorry I am late, just connected. I am so very happy about your good eye, please take very good care. I am sorry about the not good eye. You will be in my prayers too for treatment.
Please take care dear Will, here's a million hugs for you. You are precious. San
W.M.McKee - 17 Mar 2006 10:01 GMT >> Good news and not so good news... >> [quoted text clipped - 10 lines] >Please take care dear Will, here's a million hugs for you. You are precious. >San San, you are the precious one. Thanks for the hugs and prayers. I do hope you are doing better and better yourself, these days.
Will, T2
Alan S - 17 Mar 2006 10:31 GMT >> just thought I would let you all know that I am off to the >> opthalmologist for that retinal exam.... Will keep you all posted as [quoted text clipped - 38 lines] > >Will, T2 Thanks for the news Will, mixed though it is. I hope that the "super, super cutting edge retina specialist" has more optimistic recommendations for the right eye.
Good luck with that visit.
Cheers, Alan, T2, Australia. d&e, metformin 2x500mg
 Signature Everything in Moderation - Except Laughter.
W.M.McKee - 17 Mar 2006 10:46 GMT ay be a possible treatment, depending upon the next round of tests.
>>Will, T2 >> [quoted text clipped - 6 lines] >Cheers, Alan, T2, Australia. >d&e, metformin 2x500mg Thanks, Alan. I have done some asking around about the new doctor to whom I was referred... The concensus seems to be that he is one of the best. If he cannot help, I may see about going to Wendy's doctors in New York....
Hope you are having a good one tonight in Oz, Alan. As it is about 4:45 A.M. here, it must be about 8:45 P.M. of my future evening there...
Will, T2
Alan S - 17 Mar 2006 13:20 GMT >ay be a possible treatment, depending upon the next round of tests. >>> [quoted text clipped - 19 lines] > >Will, T2 Go to sleep, Will:-)
Cheers, Alan, T2, Australia. d&e, metformin 2x500mg
 Signature Everything in Moderation - Except Laughter.
W.M.McKee - 17 Mar 2006 13:34 GMT >>ay be a possible treatment, depending upon the next round of tests. >>>> [quoted text clipped - 24 lines] >Cheers, Alan, T2, Australia. >d&e, metformin 2x500mg W.M.McKee - 17 Mar 2006 13:39 GMT >>ay be a possible treatment, depending upon the next round of tests. >>>> [quoted text clipped - 10 lines] >Cheers, Alan, T2, Australia. >d&e, metformin 2x500mg Thanks, Alan.. I just caught a couple of winks. Now, it's time to get going for the new day.... It must be getting close to your beddie-bye time about now. :-)
You know, that is one of the good things about being awake over here, when most others are sleeping... I get to really have more real-time communications with folks on the West Coast and you guys in NZ and Australia. That's a good thing, I think.
Will, T2
Will, T2
Alan S - 17 Mar 2006 13:47 GMT >>>ay be a possible treatment, depending upon the next round of tests. >>>>> [quoted text clipped - 14 lines] >going for the new day.... It must be getting close to your beddie-bye >time about now. :-) Watching the Australia-South Africa test match. Finishes about 3 am - if I don't collapse by then:-)
>You know, that is one of the good things about being awake over here, >when most others are sleeping... I get to really have more real-time >communications with folks on the West Coast and you guys in NZ and >Australia. That's a good thing, I think. Have a good day, Will
Cheers, Alan, T2, Australia. d&e, metformin 2x500mg
 Signature Everything in Moderation - Except Laughter.
bj - 17 Mar 2006 18:46 GMT > I have done some asking around about the new doctor to > whom I was referred... The concensus seems to be that he is one of the > best. If he cannot help, I may see about going to Wendy's doctors in > New York.... Good luck, best wishes, crossed fingers that he can help you.
I think that loss of sight is at the top of the list of the various dm complications I don't want to get. (not that I want to get any of them....) I think it would be the hardest to adjust to. (but I could be wrong....) bj
wmmckee@cox.net - 17 Mar 2006 18:54 GMT > Good luck, best wishes, crossed fingers that he can help you. > [quoted text clipped - 3 lines] > I think it would be the hardest to adjust to. (but I could be wrong....) > bj Thanks, BJ. Yes, loss of sight is one of the biggies, right up there with coronaries, strokes, and amputations... It behooves us all to be vigilant in maintaining close control of our blood glucose, now that we know we have this disease. Those who ignore the need for control almost uniformly pay a very heavy price, it seems.
Will, T2
Loretta Eisenberg - 17 Mar 2006 00:22 GMT I hope everything came out fine Will. I am awaiting your post on the outcome.
Loretta
-- In tribute to the United States of America and the State of Israel, two bastions of strength in a world filled with strife and terrorism.
wmmckee@cox.net - 17 Mar 2006 00:46 GMT On 16-Mar-2006, "Uncle Enrico" <Uncle@nospam.com> wrote:
> I 'm down a total of 49 pounds since I started my diet and exercise > program [quoted text clipped - 3 lines] > > Eating slow carb has made a huge difference in my overall health. Thanks, Loretta
You must have missed my post on the outcome..... It was basically pretty good as to lack of diabetic retinopathy and a clean bill of health for the left eye. The right eye has a serious case of maculopathy, which means I am functionally blind in that eye, as far as any visual acuity is concerned. There is another referral for more tests, though, and a slim hope of some possibly effective treatment by another specialist. Today's doc was afraid to even touch it, though, saying he had rarely seen something like what I have in the right eye and that he would not feel comfortable in trying to treat it.
I hope you have been having a great day, Loretta.
Will, T2
Nicky - 18 Mar 2006 12:40 GMT > You must have missed my post on the outcome..... It was basically pretty > good as to lack of diabetic retinopathy and a clean bill of health for the [quoted text clipped - 6 lines] > have in the right eye and that he would not feel comfortable in trying to > treat it. Rats! I hope the other specialist is able to do something! Is there anything you need to do to be extra careful with your good eye?
Nicky.
 Signature A1c 10.5/5.4/<6 T2 DX 05/2004 1g Metformin, 100ug Thyroxine 95/74/72Kg
W.M.McKee - 18 Mar 2006 15:25 GMT >> You must have missed my post on the outcome..... It was basically pretty >> good as to lack of diabetic retinopathy and a clean bill of health for the [quoted text clipped - 11 lines] > >Nicky. Hi Nicky,
The only thing I know to do is to be extra vigilant about controlling the BG.... I am still not convinced it is not related to the diabetes, but I guess I shall know more in a few days, when I have seen the other doctor.
Hope you are having a good morning.
Will, T2
|
|
|