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Medical Forum / Diseases and Disorders / Diabetes / March 2006

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Response from the ADA...

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Kurt - 14 Mar 2006 19:17 GMT
I emailed the thread link to a number of dpeartments and people in the
ADA and plan on doing some more digging to try and reach others.  Here
is one response I got so far from the people who put together the
website.  Take it for what it is...

"Thank you for your impute Kurt.
I work in the online services department and have shared your feedback
of our
website with my department. I must say that many of the things that
people in
your newsgroup want to see on the homepage , are in fact in the site
just not on
the front page. We get approx. 1 million unique visitors to our site
every mo.
Almost everyone of them is there for something different. That is in
part why
there is very little actual information on the homepage but many
choices of
places to go. I hope your newsgroup has been able to find all the
things they
are looking for on our site. One thing I would like to encourage your
group to
do is join our message board. there you will find many of the frank
opinions
that were expressed by your group but in fact are not acceptable from a
political correct point of view.
Again thank you for your feedback."
Amy - 14 Mar 2006 19:37 GMT
Hi Kurt, thanks for posting this.  What is your understanding of this:

"not acceptable from a political correct point of view."  ?

Amy
Kurt - 14 Mar 2006 19:52 GMT
> Hi Kurt, thanks for posting this.  What is your understanding of this:
>
> "not acceptable from a political correct point of view."  ?
>
> Amy

I was a bit confused by that myself.  My interpretation of it - and I
could be wrong - is that even negative and anti-ADA comments are
allowed to be posted without censorship.

Best,
Kurt
Amy - 14 Mar 2006 20:24 GMT
Hi Kurt,

Okay, but is the implication then that the testimonies of diabetics who
maintain good control, but whose methods of control run contrary to the
guidelines of the ADA, are not acceptable?   I'm a bit baffled if so.
Is no one there actually interested in different methodology, as
reflected by at least part of the diabetic community, because that
would not be PC for them?
What better way to improve the study of diabetes, than to get feedback
from those who collect data from their meter and obtain good test
results?

I'm going to assume the letter you received was just an exercise in PR
(as opposed to a definitive statement by the ADA).... otherwise I am
seriously lost in space!  :-)

Thanks for all your input.

Best wishes,
Amy
Ma¢k - 14 Mar 2006 21:13 GMT
>are looking for on our site. One thing I would like to encourage your
>group to  do is join our message board. there you will find many of the frank
>opinions that were expressed by your group but in fact are not acceptable from a
>political correct point of view.
>Again thank you for your feedback."

and you want to trust this crap?

Signature

Mâck©® Deltec CoZmore Pumper
Type 1 since 1975
http://www.alt-support-diabetes.org
http://www.diabetic-talk.org
http://www.insulin-pumpers.org

"To announce that there must be no criticism of the
President, or that we are to stand by the President
right or wrong, is not only unpatriotic and servile,
but is morally treasonable to the American public."
...Theodore Roosevelt

        (o ô)  
--ooO-(_)-Ooo--------------------

"I don't know half of you
half as well as I should like;
and I like less than half of you
half as well as you deserve."
             ....Bilbo Baggins

Jesus never hated anyone.
           

Kurt - 14 Mar 2006 21:52 GMT
> >are looking for on our site. One thing I would like to encourage your
> >group to  do is join our message board. there you will find many of the frank
[quoted text clipped - 3 lines]
>
> and you want to trust this crap?

Hey Captain Happy, I said "take it for what it is"...

Kurt
Ma¢k - 14 Mar 2006 21:56 GMT
>> >are looking for on our site. One thing I would like to encourage your
>> >group to  do is join our message board. there you will find many of the frank
[quoted text clipped - 7 lines]
>
>Kurt

I did, hence the word "crap".

Signature

Mâck©® Deltec CoZmore Pumper
Type 1 since 1975
http://www.alt-support-diabetes.org
http://www.diabetic-talk.org
http://www.insulin-pumpers.org

"To announce that there must be no criticism of the
President, or that we are to stand by the President
right or wrong, is not only unpatriotic and servile,
but is morally treasonable to the American public."
...Theodore Roosevelt

        (o ô)  
--ooO-(_)-Ooo--------------------

"I don't know half of you
half as well as I should like;
and I like less than half of you
half as well as you deserve."
             ....Bilbo Baggins

Jesus never hated anyone.

DISCLAIMER If you find a posting or message from me
offensive, inappropriate, or disruptive, please ignore it.
If you don't know how to ignore a posting, complain to
me and I will be only too happy to demonstrate...
.

           

Roger Zoul - 14 Mar 2006 21:50 GMT
:: I emailed the thread link to a number of dpeartments and people in
:: the ADA and plan on doing some more digging to try and reach others.
:: Here is one response I got so far from the people who put together
:: the website.  Take it for what it is...

I hope you enjoyed wasting your time, but I commend you for being willing to
do it.
Alan S - 15 Mar 2006 00:54 GMT
>I emailed the thread link to a number of dpeartments and people in the
>ADA and plan on doing some more digging to try and reach others.  Here
[quoted text clipped - 23 lines]
>political correct point of view.
>Again thank you for your feedback."

Thanks for trying.

The prose and style (and honesty) indicate someone fairly
low on the totem pole.

I am a member of the ADA forum, and post there irregularly.
As far as I can tell, no ADA staff apart from the moderator
ever read the type 2 section. Possibly he could drop in and
disabuse me of that idea. It is a forum much like ours, but
being moderated is more civil and polite. There are just as
many silly ideas on various aspects of diabetes as we get,
the difference is that they tend to continue without
correction, unlike this forum. The moderator and I will
probably disagree on the definition of "silly". I stop for a
while when I get too frustrated, so I'm on a sabbatical from
it at the moment.

Are you able to get some email addresses - or snailmail if
necessary - of people at the decision making and policy
level?

Cheers, Alan, T2, Australia.
d&e, metformin 2x500mg
Signature

Everything in Moderation - Except Laughter.

Chris J. - 15 Mar 2006 01:55 GMT
>I emailed the thread link to a number of dpeartments and people in the
>ADA and plan on doing some more digging to try and reach others.  Here
>is one response I got so far from the people who put together the
>website.  Take it for what it is...

Kurt, thank you so much for doing this. I've been following that
thread with great interest, though I have not added anything to is as
others have said it better than I could have.
Kurt - 15 Mar 2006 18:42 GMT
Another response...

**************************************************************************
Hi Kurt,

Thank you so much for forwarding this info to us.  I will pass this on
to our online services group for review.  Looks like you started a
great conversation thread there and I'm hoping to print this out and
take home to see what the general public is thinking.

Once again, thank you for your support in working to help educate folks
about the positive aspects of what the ADA does.

Take care,

Jimmy Rhodes
Roger Zoul - 15 Mar 2006 18:55 GMT
:: Another response...

**************************************************************************
:: Hi Kurt,
::
[quoted text clipped - 5 lines]
:: Once again, thank you for your support in working to help educate
:: folks about the positive aspects of what the ADA does.

So, even he is calling you a shill.

:: Take care,
::
:: Jimmy Rhodes
Cheri - 15 Mar 2006 19:50 GMT
:)

--
Cheri

>:: Another response...
>::
[quoted text clipped - 8 lines]
>:: Once again, thank you for your support in working to help educate
>:: folks about the positive aspects of what the ADA does.

>So, even he is calling you a shill.
Quentin Grady - 15 Mar 2006 19:55 GMT
This post not CC'd by email
On Wed, 15 Mar 2006 12:56:10 -0500, "Roger Zoul"
<rogerzoul2@hotmail.com> wrote:

>:: Another response...
>::
[quoted text clipped - 14 lines]
>::
>:: Jimmy Rhodes

G'day G'day Roger,

Don't be too hard on Kurt. His heart is in the right place. Look at
his other posts. IMHO he wants a better ASD and has some thoughts
about how that might happen. Don't we all. He acknowledges his role
with the ADA and is open about it.  The "once again" shows it is a
continuing relationship.  

What Kurt hasn't done is blame other people being horrible to him etc
for his actions.  He accepts full responsibility for them.  The one
thing I would have done long ago if I was in charge of the ADA was to
improve the quality of the shills. It allows us to frankly discuss the
strengths and weaknesses of the ADA without getting the issues tangled
with the demerits of the messenger.

Who knows, the ADA might actually listen to one or two bits of
feedback thanks to his efforts.

Best wishes,    

Signature

Quentin Grady       ^  ^  /
New Zealand,       >#,#< [
                   / \ /\    
"... and the blind dog was leading."

http://homepages.paradise.net.nz/quentin

Kurt - 15 Mar 2006 20:30 GMT
> This post not CC'd by email
>  On Wed, 15 Mar 2006 12:56:10 -0500, "Roger Zoul"
[quoted text clipped - 36 lines]
> Who knows, the ADA might actually listen to one or two bits of
> feedback thanks to his efforts.

Thanks for the support, Quentin.  One point of clarification...I have
never had any contact with anyone at the ADA before.  Yes, I do support
their cause, their mission, and think they provide some, not all, good
information for someone with diabetes.  I have publically declared it
here and privately to friends who have diabetes but never formally or
informally to anyone connected with the ADA. The "once again" is
something that is more of a phrase used in letters to sign off and tie
up the initial thanks at the beginning of the letter.

Once again, thanks for your support. :)  

Best,
Kurt
Quentin Grady - 16 Mar 2006 04:20 GMT
This post not CC'd by email
On 15 Mar 2006 11:30:59 -0800, "Kurt" <kurtwheeling1965@hotmail.com>
wrote:

>Thanks for the support, Quentin.  One point of clarification...I have
>never had any contact with anyone at the ADA before.  Yes, I do support
[quoted text clipped - 9 lines]
>Best,
>Kurt

G'day G'day Kurt,

That probably makes the situation clearer than I did on my first
attempt.  One thing I like about asd is that people who are up front
about what they stand for are likely to get a reasonable hearing even
if at times people might take on protagonistic roles over certain
issues.

I have found some of their expert opinions worth taking note of though
I prefer the AACE guidelines on blood glucose.

Personally I find much of the dumbed down nutrition too irritating to
bear.  There are few things in life important enough to make me angry
these days.  One thing that does it the assumption that since many
people can't understand basic chemistry and nutrition that those who
do don't have very real needs and what's more could actually benefit
from the succinct presentation of factual knowledge which is already
mainstream. The ADA has sponsored research on the Mediterranean
dietary factor and found they gave benefits over the low fat fad yet
they don't achieve prominence.

This is a major reason why I have avoided the "What to do if was in
charge of the ADA thread?"  I prefer to devote my time to where I
believe I can achieve results in a period of time where I'll get to
see results.

Best wishes,

Signature

Quentin Grady       ^  ^  /
New Zealand,       >#,#< [
                   / \ /\    
"... and the blind dog was leading."

http://homepages.paradise.net.nz/quentin

Ozgirl - 15 Mar 2006 20:36 GMT
> Another response...

************************************************************
**************
> Hi Kurt,
>
[quoted text clipped - 9 lines]
>
> Jimmy Rhodes

Where is Jimmy in the pecking order?
Kurt - 21 Mar 2006 02:25 GMT
> > Another response...
> >
[quoted text clipped - 19 lines]
>
> Where is Jimmy in the pecking order?

http://ada.hodesiq.com/why.asp?user_id=#jimmy

I encourage those here who are the most vocal about their dislike of
the ADA to go over to the ADA message boards and make your voices
heard.  Some decry the fact that the ADA site does not adequately or
correctly address the needs of Type 2's who go their for advice and
information.  What better place to challenge the ADA's thinking and
reach the most newbies with another viewpoint?  Seems like the
proactive thing to do.  

Kurt
tpub - 15 Mar 2006 23:37 GMT
To all:

Thought you'd be interested in the Forum Moderator's comments on the
ADA message board:

http://community.diabetes.org/n/pfx/forum.aspx?nav=messages&tsn=1&tid=9610&webta
g=adatype2


"We have even been following a discussion on a.s.d regarding our site,
diabetes.org, and taking it very seriously."

-Tina
tpub - 15 Mar 2006 23:43 GMT
PS: I fully intended to add to your ADA thread that the ADA needs to do
a better job of informing people about type 1.5/LADA, especially since
some believe up to 20% of those diagnosed with type 2 actually have
LADA. But I haven't had a chance to read through the whole thread yet.
Maybe someone else has done so already.

-Tina
Priscilla H. Ballou - 16 Mar 2006 21:21 GMT
> To all:
>
[quoted text clipped - 6 lines]
> "We have even been following a discussion on a.s.d regarding our site,
> diabetes.org, and taking it very seriously."

I can't figure out how to follow a thread there.  I found a message from
Morris Older that seems rather off the wall to me, but I couldn't figure
out how to display the full thread.  Everything seems to be mixed up
together.

Priscilla
morris - 17 Mar 2006 02:56 GMT
Prisicilla,  Although my post was the 19th , chronoligically speaking,
it was in response to the first post on the thread. If you read it
chronologically it may have seemed out of place. In  my allegedly
inferior Google interface, it is fairly clear who I was responding to
by the way the posts are aligned in outline format. I don't have
usenet, so I don't know how the interface there makes that relationship
clear (or really all that I am missing, although I know someone will be
glad to tell me again). Or were you the one using Web TV--I can't quite
remember?

Morris
Chris Malcolm - 17 Mar 2006 12:49 GMT
> Prisicilla,  Although my post was the 19th , chronoligically speaking,
> it was in response to the first post on the thread. If you read it
> chronologically it may have seemed out of place. In  my allegedly
> inferior Google interface, it is fairly clear who I was responding to
> by the way the posts are aligned in outline format.

What you need to know, Morris, is that newsgroup updating is
distributed and asynchronous, so that someone else in another part of
the world can see a response before the original has even
arrived. That's why the newsgroup convention is to quote those parts
of the message you're replying to that are needed to give any reader
the context of their response. That's why googlenews gives you a
specific response interface which lays out the post you're replying to
in proper newgroup quoting style for you to edit.

You'll find that googlenews option in the "reply" option under
"options" at the head of the message.

The no-quote reply option you're using is for other purposes. Replying
to an international newsgroup where people are using a great variety
of newsgroup interfaces is not one of them.

Signature

Chris Malcolm cam@infirmatics.ed.ac.uk +44 (0)131 651 3445 DoD #205
IPAB,  Informatics,  JCMB, King's Buildings, Edinburgh, EH9 3JZ, UK
[http://www.dai.ed.ac.uk/homes/cam/]

morris - 18 Mar 2006 03:39 GMT
Thanks, Chris, for explaining that. I hope that I always will be
learning. Does seeing a response before the original has arrived happen
when  the response is immediate and the original is taking a shorter
route through cyberspace? Or can it happen when I respond to a post a
day later? I thought in my case that it was pretty clear that I was
responding to Kurt's original post, and actually it turns out that
Priscilla's  question was about a post I had made on the ADA board. I
have answered her question I hope clearly enough in a post I just made
to her, which I guess you might not be able to see yet when you read
this!

Morris

> > Prisicilla,  Although my post was the 19th , chronoligically speaking,
> > it was in response to the first post on the thread. If you read it
[quoted text clipped - 22 lines]
> IPAB,  Informatics,  JCMB, King's Buildings, Edinburgh, EH9 3JZ, UK
> [http://www.dai.ed.ac.uk/homes/cam/]
Wes Groleau - 20 Mar 2006 05:55 GMT
> learning. Does seeing a response before the original has arrived happen
> when  the response is immediate and the original is taking a shorter
> route through cyberspace? Or can it happen when I respond to a post a
> day later? I thought in my case that it was pretty clear that I was

Newsservers fetch articles from other newsservers.
Some of them operate on a schedule, every hour, or
or even once a day.  So, a day's delay is possible,
but rare.  An hour's delay happens more often.

Signature

Wes Groleau
  "Ideas are more powerful than guns,
   We would not let our enemies have guns;
   why should we let them have ideas?"
                               -- Jozef Stalin

Priscilla H. Ballou - 17 Mar 2006 21:30 GMT
> Prisicilla,  Although my post was the 19th , chronoligically speaking,
> it was in response to the first post on the thread. If you read it
[quoted text clipped - 5 lines]
> glad to tell me again). Or were you the one using Web TV--I can't quite
> remember?

It was the ADA forum I was talking about.  You don't use Google to read
that, do you?

Priscilla
morris - 18 Mar 2006 03:33 GMT
Priscils,

Ahh, now I understand that you were referring to a thread on the ADA
board, not one here, that you were having trouble making sense of. No I
don't use google there, I don't know that that is even an option,

The threads there are posted chronologically, so when people respond
without referring back to the original response, it can seem out of
context. I try to avoid that, but sometimes slip up . However  in that
forum, the upper right nand corner of the response will say soemthing
like [9584.53>> 9584.52]. Therein the post assigns a number to the new
post, and identifies the post  that is being responded to. Click on the
second mumber and you will see the post that is being responded to.
Usually that will clarify what is going on, although sometimes people
will respond to a post after reading all the other repsonses to that
post and then hit reply to the final post. In that case it will be
addressed to the wrong person and clicking on the second number will
not clarify which post is being responded to.

Does that make sense?

Morris
W.M.McKee - 18 Mar 2006 13:15 GMT
>Priscils,
>
[quoted text clipped - 18 lines]
>
>Morris

Hi Morris,

You can use google here, but it seems a bit cumbersome.... That is why
a newsreader is best. Most of us have newsreaders.

I have this group loaded up on google, as well, in case I take a trip
away from my regular computers and want to check in.... Google is web
based and can be accessed from anywhere a person has web access.

Will, T2
Priscilla Ballou - 20 Mar 2006 00:13 GMT
> >Priscils,
> >
[quoted text clipped - 29 lines]
>
> Will, T2

Will, he uses google to access the newsgroup.  (Check his headers.)  
It's the ADA forum we're talking about.

Priscilla
Priscilla Ballou - 20 Mar 2006 00:11 GMT
> Priscils,
>
[quoted text clipped - 16 lines]
>
> Does that make sense?

Yup.  Thanks!

Priscilla
morris - 16 Mar 2006 01:09 GMT
"there you will find many of the frank opinions that were expressed by
your group but in fact  are not acceptable from a political correct
point of view. "

What the person from the ADA was trying to say here, rather clumsily,
is that there is no censorship on their board of opinions about
diabetes. He means that there is the same range of opinions as on ASD,
even when they are not consistent with what the ADA itself might
recommend.  The frequent posters there  pretty much all accept the idea
of eating to the meter, which is usually called test, test, test here,
although somethere  say test at 1 hour, and others say test at 2.
There are Bernstein advocates, and lo-carbers of all stripes, and
strong proponent of diet and exercise as the first line of defense
against diabetes. Gretchen Becker's books are recommended far more
often than anything the ADA has published. The biggest difference in
viewpoints beteween the 2 boards is that a lot more people who have
just been told they have diabetes and sent off into the world with no
instruction or real advice from their doctors tend to end up there
first when they start looking on the net for information.

The censorship that does exist on that board relates to a couple of
things--you can't say the words f.ck or sh.t there, and you can't get
too far off tangent into a political debate having nothing to do with
diabertes and everything to do with hillary haters and bush bashing,
before the moderator willshut it down.  And the kind of name-calling
that sometimes can go on interminably here is not tolerated there for
very long. Their purpose is to address diabetes issues and they try to
keep the focus there., even if benign side tracks can sometimes go on
for a while.

I post a lot on that board, and occasionaly on this one.  I understand
Alan. S's frustration with that board because there are a lot of new
people posting and they haven't always figured everything out yet.  And
to some extent they have a different viewpoint than Alan does--they
start out with whatever viewpoint they have first been exposed to upon
diagnosis.  I don't always agree with Alan, although usually we're in
the same chapter if not on exactly the same page.  But just as   he
finds that board "silly", I find this one rather silly often enough
that I spend my time there a lot more than here.

I hope the above does not make me a "shill" for the ADA...

Morris
julesagain_2@yahoo.com - 16 Mar 2006 02:17 GMT
Hi Morris,

I liked your post.  When my husband was diagnosed with Type 2 diabetes
about a year ago the first place I went was the ADA site and it was a
godsend.  It has a lot of information that is clear to follow.  My
husband had an A1c of 10.8 at the time and was overweight.  This was
his wake up call {with some nagging from me} he made some important
changes.  Since then he's lost 28 pounds and his last A1c was 6.1!!  We
have worked with our doctor through all of this too and he is amazed by
the progres.  I read this board as well as the ADA's.  This one tends
to be a lot more dicey but there is some good info here if you dig a
little and I'll do whatever it takes to educate myself about this
disease because I don't want to lose my husband.  For us the ADA site
was very helpful and continues to be.  Guess that makes me a shill,
too. :)

Jules

attn spammers: I change my email often so sending me your crap is like
peeing into the wind.

> "there you will find many of the frank opinions that were expressed by
> your group but in fact  are not acceptable from a political correct
[quoted text clipped - 39 lines]
>
> Morris
Kurt - 16 Mar 2006 04:14 GMT
> "there you will find many of the frank opinions that were expressed by
> your group but in fact  are not acceptable from a political correct
[quoted text clipped - 35 lines]
> finds that board "silly", I find this one rather silly often enough
> that I spend my time there a lot more than here.

Great post, Morris.  Thanks for weighing in.

> I hope the above does not make me a "shill" for the ADA...

I hope it does, I could use the company. :)

Best,
Kurt
Roger Zoul - 16 Mar 2006 14:07 GMT
:: "there you will find many of the frank opinions that were expressed
:: by your group but in fact  are not acceptable from a political
[quoted text clipped - 39 lines]
::
:: I hope the above does not make me a "shill" for the ADA...

IMO, it does not.  I think that was very balanced.

:: Morris
 
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