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Medical Forum / Diseases and Disorders / Diabetes / March 2006

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Bad advice

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MaryL - 08 Mar 2006 20:06 GMT
I am giving exams this week and wanted to take a book to read while students
are working on their exams.  Bernstein is high on my list of "want to read"
books, but I didn't want to carry anything that heavy (literally and
figuratively) with me, so I picked a very small book from the many unread
paperbacks on my bookshelf.  This one is called "Understanding Diabetes," by
Marie Clark.  Wow!  Talk about bad advice.  For example, I found this advice
on page 72:  "Base your meals on starchy foods -- fill up on these.  This
means such foods as bread, potatoes, rich, pasta, noodles, oats, crackers,
breakfast cereals.  These all provide starch, fibre, vitamins (especially B)
and minerals."  Then, on page 77, I found this:  "Some airlines offer
'special diabetic' meals on the plane.  It is actually better to avoid them
because they can be low in carbohydrate -- caterers often do not realize
that balance is the main thing, not cutting down on carbohydrate.  Also it
is a good idea to take extra caroyhdrate in your hand lugage."

I still have a lot to learn, but I have learned enough to know where this
book should go.  Into the trash!

MaryL
Jenny - 08 Mar 2006 20:55 GMT
Wow!  Talk about bad advice.  For example, I found this advice
> on page 72:  "Base your meals on starchy foods -- fill up on these.  This
> means such foods as bread, potatoes, rich, pasta, noodles, oats, crackers,
> breakfast cereals.  These all provide starch, fibre, vitamins (especially B)
> and minerals."  

That was excellent advice in 1972 for a type 1 diabetic on insulin who
was injecting a huge dose of insulin once a day without access to a
blood sugar meter.  For anyone in today's world though . . .

But that's the advice I was getting from my doctor in 1998, which is why
picking up Bernstein back then and reading his pages full of common
sense advice about carbs and blood sugar--immediately verified by my
brand new blood sugar meter, changed my life, and probably saved my
eyes, nerves, kidneys and the rest of it.

--Jenny

http://www.phlaunt.com/diabetes  Diabetes Info

http://www.alt-support-diabetes.org/newlydiagnosed.htm Get Your Blood
Sugar Under Control
Roger Zoul - 08 Mar 2006 23:38 GMT
:: MaryL wrote:
:: Wow!  Talk about bad advice.  For example, I found this advice
[quoted text clipped - 6 lines]
:: who was injecting a huge dose of insulin once a day without access
:: to a blood sugar meter.  For anyone in today's world though . . .

I don't see why that was excellent advice in 1972 for a T1.  Explain,
please?

:: But that's the advice I was getting from my doctor in 1998, which is
:: why picking up Bernstein back then and reading his pages full of
[quoted text clipped - 8 lines]
:: http://www.alt-support-diabetes.org/newlydiagnosed.htm Get Your Blood
:: Sugar Under Control
Susan - 08 Mar 2006 23:50 GMT
> :: MaryL wrote:
> :: Wow!  Talk about bad advice.  For example, I found this advice
[quoted text clipped - 9 lines]
> I don't see why that was excellent advice in 1972 for a T1.  Explain,
> please?

I think she did; home meters weren't available, higher doses of insulin
were used, and lows were harder to predict and control.  Carbs kept type
1s from hypos and all that can ensue.

Susan
Roger Zoul - 09 Mar 2006 01:21 GMT
:: x-no-archive: yes
::
[quoted text clipped - 17 lines]
:: insulin were used, and lows were harder to predict and control.
:: Carbs kept type 1s from hypos and all that can ensue.

That's actually more info.  Still, I don't see why one couldn't do
essentially the same thing with smaller doses of insulin and carbs.  I don't
claim to understand T1s, though.

:: Susan
Ma¢k - 09 Mar 2006 12:43 GMT
On Wed, 8 Mar 2006 20:21:46 -0500, "Roger Zoul"
<rogerzoul2@hotmail.com> Huffed and Puffed the following into the
madness of usenet:

>:: I think she did; home meters weren't available, higher doses of
>:: insulin were used, and lows were harder to predict and control.
[quoted text clipped - 3 lines]
>essentially the same thing with smaller doses of insulin and carbs.  I don't
>claim to understand T1s, though.

They do NOW.  With the help of meters.  People have been injecting
insulin long before BG meters existed.  The earliest home testing was
urine testing.  The problem with that was that by the time even small
amounts of glucose showed up in the urine at a level that could be
tested it was already far to high in the person Blood and was over the
renal thresh hold.  Which is somewhere around 150 mg/dl if I remember
correctly.  I was told back then that small amounts were fine but to
avoid large amounts.  So for quite a number of years, following the
standard of advice at the time I was keeping my Blood glucose around
150 or higher almost all the time.

When the testing standards changed and BG meters came out I brought it
down.  And that's when I found that I needed larger and larger doses
of the type insulins that were available to me at the time.  But the
dietary advice still did not change, eat lots of carbs.  Funny thing,
when your BG is always high like mine was, you are not eating much of
anything.  So it wasn't the diet that was the problem.  Thankfully
they came out with rDNA type insulins which actually worked for me.

Signature

Mâck©® Deltec CoZmore Pumper
Type 1 since 1975
http://www.alt-support-diabetes.org
http://www.diabetic-talk.org
http://www.insulin-pumpers.org

"To announce that there must be no criticism of the
President, or that we are to stand by the President
right or wrong, is not only unpatriotic and servile,
but is morally treasonable to the American public."
...Theodore Roosevelt

        (o ô)  
--ooO-(_)-Ooo--------------------

"I don't know half of you
half as well as I should like;
and I like less than half of you
half as well as you deserve."
             ....Bilbo Baggins

Jesus never hated anyone.
           

Roger Zoul - 09 Mar 2006 13:44 GMT
:: On Wed, 8 Mar 2006 20:21:46 -0500, "Roger Zoul"
:: <rogerzoul2@hotmail.com> Huffed and Puffed the following into the
[quoted text clipped - 27 lines]
:: problem.  Thankfully they came out with rDNA type insulins which
:: actually worked for me.

Thanks for the info, Mâck.  So there is a historical standard-of-care thing
involved here, too.
Ma¢k - 09 Mar 2006 14:31 GMT
On Thu, 9 Mar 2006 08:44:55 -0500, "Roger Zoul"
<rogerzoul2@hotmail.com> Huffed and Puffed the following into the
madness of usenet:

>:: On Wed, 8 Mar 2006 20:21:46 -0500, "Roger Zoul"
>:: <rogerzoul2@hotmail.com> Huffed and Puffed the following into the
[quoted text clipped - 30 lines]
>Thanks for the info, Mâck.  So there is a historical standard-of-care thing
>involved here, too.

absolutely.  What we consider to be the acceptable standards today are
nothing like what was acceptable when I was first diagnosed.  There
were "mavericks" in the field who advocated tighter control and lower
carb diets but they were frowned upon for the longest time by the main
stream docs and the ADA.  The ADA is only just beginning to change
it's literature on lowering carb consumption and distinguishing
between type 1 diets and type 2 diets.

Signature

Mâck©® Deltec CoZmore Pumper
Type 1 since 1975
http://www.alt-support-diabetes.org
http://www.diabetic-talk.org
http://www.insulin-pumpers.org

"To announce that there must be no criticism of the
President, or that we are to stand by the President
right or wrong, is not only unpatriotic and servile,
but is morally treasonable to the American public."
...Theodore Roosevelt

        (o ô)  
--ooO-(_)-Ooo--------------------

"I don't know half of you
half as well as I should like;
and I like less than half of you
half as well as you deserve."
             ....Bilbo Baggins

Jesus never hated anyone.
           

W. Baker - 09 Mar 2006 17:28 GMT
Ma?k <stopthespam@shootspammers.com> wrote:
: On Thu, 9 Mar 2006 08:44:55 -0500, "Roger Zoul"
: <rogerzoul2@hotmail.com> Huffed and Puffed the following into the
: madness of usenet:

: >Ma?k wrote:
: >:: On Wed, 8 Mar 2006 20:21:46 -0500, "Roger Zoul"
[quoted text clipped - 31 lines]
: >Thanks for the info, M?ck.  So there is a historical standard-of-care thing
: >involved here, too.

: absolutely.  What we consider to be the acceptable standards today are
: nothing like what was acceptable when I was first diagnosed.  There
[quoted text clipped - 3 lines]
: it's literature on lowering carb consumption and distinguishing
: between type 1 diets and type 2 diets.

When I ws diagnosed type 2 in the mid 80s the doctor I finally worked
with, who was a researcher as well as treating people, was encouraging
tight control, which seems to have been quite new at eht time and he said
that we stil don't have all teh research in on its value, but you should
aim for it.  I had no meter, just teh bg Chemstrips, which gave a kidn of
general bg level, so you knew if you went high or low, but without much
precision.  

Wendy
Alan S - 09 Mar 2006 20:52 GMT
>The ADA is only just beginning to change
>it's literature on lowering carb consumption

Slightly.

> and distinguishing between type 1 diets and type 2 diets.

I hope you are correct. I haven't noticed any change on that
one yet on their web-pages. Is there different advice being
promulgated directly or via educators?

Cheers, Alan, T2, Australia.
d&e, metformin 2x500mg
Signature

Everything in Moderation - Except Laughter.

Kurt - 09 Mar 2006 23:59 GMT
> >The ADA is only just beginning to change
> >it's literature on lowering carb consumption
[quoted text clipped - 6 lines]
> one yet on their web-pages. Is there different advice being
> promulgated directly or via educators?

As you probably already know about me, I believe that the ADA has some
excellent advice for someone who is new to diabetes. Using their
internal search engine there is also an abundant amount of information
for those who are more experienced and want to dig further.  What I've
noticed in terms of "changes" is they drive home the point more than
ever before about the individual and working with a professional team
to determine one's particular needs.

A friend of mine was just diagnosed this week (Type 2) and is a bit
overwhelmed.  I sent her to diabetes.org (and will tell her about this
place soon) and espcially to their "diabetes learning center" which is
a very simplistic, but clear primer for someone who has just been hit
with "the news."  Here's a slice from that site within a site that is
clear and seems to jive with what many in here are saying.  This is one
of the first pages that greets a viewer:

- You can still eat the foods you love.

- Watch serving sizes, especially for carbs.

- No two meal plans are alike -- see a dietitian to make your very own
meal plan.

- Check your blood sugar to see how your food choices affect blood
sugar.

- If your meal plan isn't working for you, talk to your dietitian about
making a new one."  
 
Best,
Kurt
Roger Zoul - 10 Mar 2006 03:31 GMT
::: The ADA is only just beginning to change
::: it's literature on lowering carb consumption
[quoted text clipped - 24 lines]
:
: - You can still eat the foods you love.

People shouldn't 'love' foods, IMO.

: - Watch serving sizes, especially for carbs.

That's good.

: - No two meal plans are alike -- see a dietitian to make your very own
: meal plan.

That's true, though I'm distrustful of dietitians.

: - Check your blood sugar to see how your food choices affect blood
: sugar.

Good.  Didn't mention frequency though, but I'd guess that's elsewhere on
the site.

: - If your meal plan isn't working for you, talk to your dietitian
: about making a new one."

Why is it that a dietitian is the only option recommended?  There are a LOT
of good sources for making meal plans for diabetics.

: Best,
: Kurt
MaryL - 10 Mar 2006 03:42 GMT
> Why is it that a dietitian is the only option recommended?  There are a
> LOT of good sources for making meal plans for diabetics.
>
> : Best,
> : Kurt

When I was first diagnosed, my doctor gave me prescription for the
outpatient diabetes education series offered by one of the local hospitals
(a prescription because my insurance covers the training when it is
prescribed but not without a prescription).  One of the sessions included
individual meetings with a dietician/nutritionist.  She advocated what I
considered to be a high level of carbs, and I had already started to learn
about the relationship between diabetes and carbs.  She was very skeptical
about everything I said.  I still see her when I go to some of the evening
meetings, and she seems to be genuinely pleased that I have lost so much
weight and have my BG under tight control (and have not needed any
medication for a year), but she is still highly dubious about the
relationship to carbs and still advocates far more carbs than I am getting.

MaryL
Roger Zoul - 10 Mar 2006 09:24 GMT
::: Kurt wrote:
::::
[quoted text clipped - 17 lines]
:: but she is still highly dubious about the relationship to carbs and
:: still advocates far more carbs than I am getting.

That was exactly my experience with a dietitian.  Frankly, too many of them
just don't get it for me to trust them as a group.
Chris Malcolm - 11 Mar 2006 13:19 GMT
> ::: Kurt wrote:
> ::::
[quoted text clipped - 17 lines]
> :: but she is still highly dubious about the relationship to carbs and
> :: still advocates far more carbs than I am getting.

> That was exactly my experience with a dietitian.  Frankly, too many of them
> just don't get it for me to trust them as a group.

They are rote trained in a simplified model of human nutrition by
people who were themselves trained to teach that material to them. The
number of institutional steps and time lags between a modern
understanding of nutrition which takes into account recent research
mean that in general it would hard for them to be less than fifteen
years out of date. It's not their fault. It's the fault of an ossified
educational bureaucracy which regarded major revisions of scientific
opinion as so unlikely that they didn't need to devise a method of
coping with them.

In fact I suspect those in charge do realise the problem, and are
currently sitting in committees asking each other "But how can we
revise our guidelines without opening us to the charge that we've been
giving positively harmful advice to some people? And are you really
sure that if we just wait another fifteen years the scientists won't
change their minds back again?"

Signature

Chris Malcolm cam@infirmatics.ed.ac.uk +44 (0)131 651 3445 DoD #205
IPAB,  Informatics,  JCMB, King's Buildings, Edinburgh, EH9 3JZ, UK
[http://www.dai.ed.ac.uk/homes/cam/]

Alan S - 10 Mar 2006 04:43 GMT
>> >The ADA is only just beginning to change
>> >it's literature on lowering carb consumption
[quoted text clipped - 38 lines]
>Best,
>Kurt

Hi Kurt.

I'm underwhelmed I'm afraid.

It's a start, no more. In that same section, this is still
the "Rate your plate" advice - and no mention is made
anywhere of different dietary needs for T1 and T2, only of
different insulin and meds needs. How difficult would it be
for them to have seperate sections?

http://www.diabetes.org/all-about-diabetes/chan_eng/i3/i3p3.htm
"Meal Improvement: Rate Your Plate
An easy way to plan meals is to rate your plate:
•         Is about one-fourth of your plate filled
with carbs such as bread, noodles, rice, corn, fruit, and
milk?
•          Is one-fourth of your plate filled with
main-dish (protein) foods such as meat, poultry, fish, or
meat substitute?
•          Is at least half of your plate filled with
vegetables (salad or cooked vegetables such as carrots,
broccoli, or spinach)?"

At least they now add this at the end - but they still want
carbs as a quarter of the plate:

"Because how much you eat can make a big difference in your
blood sugar level, especially with foods high in
carbohydrate. There's no need to skip these foods -- just
watch those serving sizes!"

Surely the premier diabetes advisory and research
organisation in the world can do better.

Here, in full, is their "Carbs count" section. See if you
can find the bit that says to test to find out how much they
count:
http://www.diabetes.org/all-about-diabetes/chan_eng/i3/i3p2.htm
"Carbs Count!
A key message for people with diabetes is "Carbs Count."
Foods high in carbs (carbohydrates) -- bread, tortillas,
rice, crackers, cereal, fruit, juice, milk, yogurt,
potatoes, corn, peas, sweets -- raise your blood sugar
levels the most.

For many people, having 3 or 4 servings of a carb choice at
each meal and 1 or 2 servings at snacks is about right.

Remember to keep an eye on your total number of servings.
For example, if you choose to have dessert, cut back on
potatoes.

Round out your meals with a serving of
•         meat (such as fish or chicken) or meat
substitute (such as beans, eggs, cheese, and tofu) about the
size of a deck of cards and
         
•          vegetables (such as broccoli or lettuce).
There's no limit on vegetables that are raw or made without
fat.


Here is a meal that has 4 carb choices. (pic of plate of
food)
The carb choices are in bold print. 3 small tortillas (3
carbs) with meat, salsa, lettuce, and chopped tomato 1/3 cup
of rice (1 carb)

Serving sizes make a difference—take a look at the serving
size guide below.
Carb Choice     Serving Size     Example(each has 15 grams of
carb)
Bread            1 slice       1 small tortilla
Starchy side dishes         
  rice or noodles 1/3 cup     1/3 cup spaghetti
  corn            1/2 cup     1/2 large ear of corn
Fruit          1/2 cup or 1 piece   1 small apple
Milk          1 cup (8 ounces)     1 carton
Sweets           2-inch square 1 small piece of cake
     Amount to equal 15 grams of carbs
(check the food label)     2 small cookies

Cheers, Alan, T2, Australia.
d&e, metformin 2x500mg
Signature

Everything in Moderation - Except Laughter.

Kurt - 10 Mar 2006 06:00 GMT
> >As you probably already know about me, I believe that the ADA has some
> >excellent advice for someone who is new to diabetes. Using their
[quoted text clipped - 31 lines]
>
> I'm underwhelmed I'm afraid.

Don't be afraid. :)

> It's a start, no more.In that same section, this is still
> the "Rate your plate" advice - and no mention is made
> anywhere of different dietary needs for T1 and T2, only of
> different insulin and meds needs. How difficult would it be
> for them to have seperate sections?

That's a question you would have to ask them.  They do separate Type 1
and Type 2 on the very first page but obviously they do not see the
dietary needs for the two different types the same way as you, and many
here, do.  Perhaps they will align themselves more to your way of
thinking in the future, but that's yet to be seen.

> http://www.diabetes.org/all-about-diabetes/chan_eng/i3/i3p3.htm
> "Meal Improvement: Rate Your Plate
[quoted text clipped - 11 lines]
> At least they now add this at the end - but they still want
> carbs as a quarter of the plate:

Again, they have come up with this plan based on what they, as an
organization, feel is good advice.  Is it good for you? For me? Maybe
not.  But for the masses who are much different at managing their
diabetes (if they do at all) it is probably a huge step in the right
direction for basic nutrition.  Is it right to aim for the broadest
target and forget those of us on the fringe who really tighten down the
screws in our quest to manage this disease? Sorry I ask so many
questions that I do not know the answers to.

> "Because how much you eat can make a big difference in your
> blood sugar level, especially with foods high in
> carbohydrate. There's no need to skip these foods -- just
> watch those serving sizes!"

Many here choose portion control over elimination.  Personally, I
don't.  But that's just me.

> Surely the premier diabetes advisory and research
> organisation in the world can do better.

Maybe they feel this is their best advice to the general diabetes
community.  My feeling has always been that the ADA site is a good
starting point for general information.  If someone is going there to
get specific diabetes advice for their particular needs then they are
making a big mistake.

> Here, in full, is their "Carbs count" section. See if you
> can find the bit that says to test to find out how much they
[quoted text clipped - 6 lines]
> potatoes, corn, peas, sweets -- raise your blood sugar
> levels the most.

> For many people, having 3 or 4 servings of a carb choice at
> each meal and 1 or 2 servings at snacks is about right.
[quoted text clipped - 31 lines]
>       Amount to equal 15 grams of carbs
> (check the food label)     2 small cookies

I see your point and they should probably put more emphasis here on
testing to see how the foods affect your numbers.  They do discuss that
but redundancy here wouldn't hurt.

I have been accused in here on more than one occasion of being a
cheerleader for the ADA.  I do think they have a good general site but
I wouldn't shake my pom-poms at them and shout "Give me an A, give me a
D...."

It's a big organization and they do bear quite a burden since they are,
as you say, the premier diabetes advisory and research organization in
the world, to offer up to anyone with diabetes a wealth of important
and healthy information.  I'm sure in some areas they really do come up
short.   Hopefully there will be more people like you and me who are
micromanaging our diabetes to outstanding results that can alert them
to how they can do better.  

Best,
Kurt
Roger Zoul - 10 Mar 2006 09:45 GMT
::: As you probably already know about me, I believe that the ADA has
::: some excellent advice for someone who is new to diabetes. Using
[quoted text clipped - 69 lines]
: diabetes (if they do at all) it is probably a huge step in the right
: direction for basic nutrition.

I disagree completely with you. The diabetic masses will never read this.
The masses, who have diabetics that is, largely don't get information
online.  Also, the masses are on pill or insulin mainly due to eating poorly
and not following even this advice.  The easier thing to do for the masses
is to tell them to cut their total carb intake drastically and avoid certain
foods.  They'll gain control and come off meds (largely, for T2s, anyway).

http://www.diabetesincontrol.com/modules.php?name=News&file=article&sid=3529

 Is it right to aim for the broadest
: target and forget those of us on the fringe who really tighten down
: the screws in our quest to manage this disease? Sorry I ask so many
: questions that I do not know the answers to.

But that's not what they're doing and what they are doing isn't working.
This stupid advise is what's helpong people to kill themselves slowly while
raising healthcare costs.

:: "Because how much you eat can make a big difference in your
:: blood sugar level, especially with foods high in
[quoted text clipped - 3 lines]
: Many here choose portion control over elimination.  Personally, I
: don't.  But that's just me.

The masses will not be able to do portion control. Only a few can truly
handle that while eating goodly amounts of carbs. Hence, elimination (though
not really elimination because you can eat fibrous veggies) is how carb
portion control is handled.

:: Surely the premier diabetes advisory and research
:: organisation in the world can do better.
:
: Maybe they feel this is their best advice to the general diabetes
: community.

Who is they?  Obviously, they aren't diabetics who are interested in long
life.

 My feeling has always been that the ADA site is a good
: starting point for general information.  If someone is going there to
: get specific diabetes advice for their particular needs then they are
: making a big mistake.

There are so many other options that I don't see why anyone needs to go
there.  I will tel you that the masses aren't.

[snip]

: I see your point and they should probably put more emphasis here on
: testing to see how the foods affect your numbers.  They do discuss
: that but redundancy here wouldn't hurt.

The fact of the matter is that so much testing isn't needed if you don't eat
so many carbs (perhaps not true for a T1).  One actually gets improved
quality of life in that one can maintain health, eat in a normal fashson,
and not have to stick so often.  For this, one simply has to quit "loving"
foods (ie, give up carby foods).

: I have been accused in here on more than one occasion of being a
: cheerleader for the ADA.  I do think they have a good general site but
[quoted text clipped - 4 lines]
: are, as you say, the premier diabetes advisory and research
: organization in the world,

So?  What that means is they have the potential to do great harm.  With
masses, the odds will always lean toward doing more harm than good.  Hence,
what info they dispense is critical.  And they fail miserably, IMO.

to offer up to anyone with diabetes a
: wealth of important and healthy information.

"Healthy information"?

 I'm sure in some areas
: they really do come up short.   Hopefully there will be more people
: like you and me who are micromanaging our diabetes to outstanding
: results that can alert them to how they can do better.

You really do sound like a poster boy, Kurt.  Why?
Kurt - 10 Mar 2006 19:17 GMT
> ::: As you probably already know about me, I believe that the ADA has
> ::: some excellent advice for someone who is new to diabetes. Using
[quoted text clipped - 71 lines]
>
> I disagree completely with you.

Oh horrors! :)

>The diabetic masses will never read this.
> The masses, who have diabetics that is, largely don't get information
> online.  Also, the masses are on pill or insulin mainly due to eating poorly
> and not following even this advice.  The easier thing to do for the masses
> is to tell them to cut their total carb intake drastically and avoid certain
> foods.

Easier?  Don't think so.

Who will tell them that?  What is your definition of drastically?  How
will they know which foods to avoid unless they test to find out which
foods affect them the most?

>They'll gain control and come off meds (largely, for T2s, anyway).

What one eats is important, but exercise plays a huge factor with
control and management, too.

> http://www.diabetesincontrol.com/modules.php?name=News&file=article&sid=3529
>
[quoted text clipped - 4 lines]
>
> But that's not what they're doing and what they are doing isn't working.

How do you know this?  Based on what?

> This stupid advise is what's helpong people to kill themselves slowly while
> raising healthcare costs.

Pretty serious charge.  So you assume that the people you speak of are
following their advice?

> :: "Because how much you eat can make a big difference in your
> :: blood sugar level, especially with foods high in
[quoted text clipped - 5 lines]
>
> The masses will not be able to do portion control.

If they can't do that then they probably won't be able to drastically
reduce their carb intake as you suggest.

>Only a few can truly
> handle that while eating goodly amounts of carbs. Hence, elimination (though
> not really elimination because you can eat fibrous veggies) is how carb
> portion control is handled.

It's an ongoing debate/confusion in here about what a goodly amount of
carbs really is.  Many here have said they eat a moderate amount of
carbs which I've seen the numbers 100-120 as what many consider
"moderate."  It would help if you assigned some numbers or percentages
to your definitions.

> :: Surely the premier diabetes advisory and research
> :: organisation in the world can do better.
[quoted text clipped - 4 lines]
> Who is they?  Obviously, they aren't diabetics who are interested in long
> life.

Do you really believe that the leading organization for diabetes isn't
interested in helping people with diabetes live a long life?  Wow.

>   My feeling has always been that the ADA site is a good
> : starting point for general information.  If someone is going there to
[quoted text clipped - 3 lines]
> There are so many other options that I don't see why anyone needs to go
> there.  I will tel you that the masses aren't.

What are the other options, Roger?  If you say their professional
medical team I would agree with you.  The ADA is a reference site, not
a doctor's office.  My advice is first and foremost to see and listen
to your medical team.

If you ever have the time you can take a look at what my personal
diabetes "pyramid".  This is how I see the pecking order of my diabetes
management. (sorry for the long link but someone told me that a tinyurl
doesn't archive very well.

http://groups.google.com/group/alt.support.diabetes/browse_frm/thread/cfe6aa40bb
39ef23/3a5cf488be40eb76?q=kurt+pyramid&rnum=3#3a5cf488be40eb76


> [snip]
>
[quoted text clipped - 7 lines]
> and not have to stick so often.  For this, one simply has to quit "loving"
> foods (ie, give up carby foods).

Easier said then done and I don't know what most professional medical
people would think of your advice to just "give up carby foods."  And
from what I read here, most still do test quite often.  My definition
of quite often is 4-8 times a day.

> : I have been accused in here on more than one occasion of being a
> : cheerleader for the ADA.  I do think they have a good general site but
[quoted text clipped - 20 lines]
>
> You really do sound like a poster boy, Kurt.  Why?

And you sound like you have blinders on and the only way to deal with
diabetes is to eliminate all but a few carbs from one's diet.  Nowhere
do you mention exercise or working with a professional medical team,
Roger. Why?

Look, we obviously differ in terms of how we feel about treating
diabetes.  That is one of the good things and bad things about this
newsgroup.  Some of us get so attached to our methods and opinions that
it's hard to see any other way.  I do not work for the ADA but I find
much good in what they do and what they say.  You don't feel that way?
Fine.  There is room for both of us here.  No doubt I will do nothing
to change your opinions and I can assure you that you will not change
mine.  The best we can both do is be honest and truthful with our
opinions and smart enough to be clear when communicating to newbies
that they are in fact just opinions and we are not doctors.

Best,
Kurt
Ozgirl - 10 Mar 2006 21:25 GMT
> It's an ongoing debate/confusion in here about what a goodly amount of
> carbs really is.  Many here have said they eat a moderate amount of
> carbs which I've seen the numbers 100-120 as what many consider
> "moderate."  It would help if you assigned some numbers or percentages
> to your definitions.

The best number of carbs is what an individual can handle
without raising the bg's significantly at any point after
food ingestion. It should be a regimen that provides more
than sub optimal nutrition, it should be something a person
can live with to prevent failure. And it should be an amount
that doesn't put further stress on sick beta cells.

It should be something that covers all the above even when
sick, injured etc. If one is very active then the basic
sick/injured plan can be adapted to cover the extra
activity. If the optimally-nutritional, carb-modified diet
doesn't allow excellent bg control then it is time to
explore more/different exercise and meds. In my opinion no
plan should be less than optimal in nutrition.
Roger Zoul - 11 Mar 2006 06:18 GMT
::::: As you probably already know about me, I believe that the ADA has
::::: some excellent advice for someone who is new to diabetes. Using
[quoted text clipped - 86 lines]
: will they know which foods to avoid unless they test to find out which
: foods affect them the most?

Come now...there's plenty of published work on doing this.  Where does one
start? Dr. Bernstein?  Dr. Atkins. Geez...

:: They'll gain control and come off meds (largely, for T2s, anyway).
:
: What one eats is important, but exercise plays a huge factor with
: control and management, too.

Refer them to the books I've mentioned. There are plenty of others, too.

http://www.diabetesincontrol.com/modules.php?name=News&file=article&sid=3529

::   Is it right to aim for the broadest
::: target and forget those of us on the fringe who really tighten down
[quoted text clipped - 5 lines]
:
: How do you know this?  Based on what?

See the link above.

:: This stupid advise is what's helpong people to kill themselves
:: slowly while raising healthcare costs.
:
: Pretty serious charge.  So you assume that the people you speak of are
: following their advice?

I remember the advice that was given to me, and the advice that is still
given now, the fear of fat, sat or not, and the almost encouraging nature of
pushing folks to so-called whole grains, etc.

:::: "Because how much you eat can make a big difference in your
:::: blood sugar level, especially with foods high in
[quoted text clipped - 8 lines]
: If they can't do that then they probably won't be able to drastically
: reduce their carb intake as you suggest.

Wrong.  Cutting carbs is the easy path to portion control for many T2s.  Not
everyone, but many.

:: Only a few can truly
:: handle that while eating goodly amounts of carbs. Hence, elimination
[quoted text clipped - 6 lines]
: "moderate."  It would help if you assigned some numbers or percentages
: to your definitions.

My purpose here in this ng is not to set guidelines...there is lots of
information available on how to go about this, why must I do so here?  You
want to protect the ADA by forcing me to tell them exactly what to put on
their website when this information is widely available?  Should I point out
to you that I'm a well-controlled T2 who has used this information?  Should
I point out to you that I'm no exception (as far as usenet is concerned,
that is)?

:::: Surely the premier diabetes advisory and research
:::: organisation in the world can do better.
[quoted text clipped - 7 lines]
: Do you really believe that the leading organization for diabetes isn't
: interested in helping people with diabetes live a long life?  Wow.

Yes.  For some amazing reason, they have blinders on.

::   My feeling has always been that the ADA site is a good
::: starting point for general information.  If someone is going there
[quoted text clipped - 5 lines]
:
: What are the other options, Roger?

See above, Kurt.

 If you say their professional
: medical team I would agree with you.

That could be BIG trouble.  That your problem - you just buy the party line
hook, line, and SINKER.

The ADA is a reference site, not
: a doctor's office.  My advice is first and foremost to see and listen
: to your medical team.

There you go with that again...the pat answer, given by those who seek to
cover their a.ses rather than pass out useful info.

: If you ever have the time you can take a look at what my personal
: diabetes "pyramid".  This is how I see the pecking order of my
: diabetes
: management. (sorry for the long link but someone told me that a
: tinyurl
: doesn't archive very well.

I will look, but not tonight.

http://groups.google.com/group/alt.support.diabetes/browse_frm/thread/cfe6aa40bb
39ef23/3a5cf488be40eb76?q=kurt+pyramid&rnum=3#3a5cf488be40eb76


:: [snip]
::
[quoted text clipped - 12 lines]
: from what I read here, most still do test quite often.  My definition
: of quite often is 4-8 times a day.

I don't care what your advice is, or what definitions you use.  But most
diabetics need to drastically cut carbs and increase exercise. Remember,
most of the people are on SAD before getting dx, so even going to 120 g per
day is a drastic cut.  Think for a moment about people drinking cokes all
day, eating junk food, pasta, rice, etc. They are eating excessive carbs in
addition to excessive calories.  That ADA site recommends bagels, BAGELS.
Control is so much easier to achieve is one isn't playing with fire and
dancing around the issues.

Again, I don't need to state numbers here because there are better places to
get such info.

::: I have been accused in here on more than one occasion of being a
::: cheerleader for the ADA.  I do think they have a good general site
[quoted text clipped - 24 lines]
: And you sound like you have blinders on and the only way to deal with
: diabetes is to eliminate all but a few carbs from one's diet.

Is 40g a day a few carbs?  Perhaps it is you who needs to work on
definitions.

Nowhere
: do you mention exercise or working with a professional medical team,
: Roger. Why?

1) This info is well known and easy to find (and the ADA could point it
out). I don't need to mention it in this post.
2) Professional medical teams can be bad news if the main person - the
patient, isn't up on his/her game.  Why depend so heavily on others when it
is first and foremost, the patients resonsibility?

: Look, we obviously differ in terms of how we feel about treating
: diabetes.  That is one of the good things and bad things about this
: newsgroup.  Some of us get so attached to our methods and opinions
: that
: it's hard to see any other way.

Hey, I started out as a new T2 working it from their way.  I found my way to
where I am now.  I did the LF thing and followed their recs, but that
doesn't mean they aren't poor. Hence, I have both perspectives to work from.
Apparently, you only have one.

 I do not work for the ADA but I find
: much good in what they do and what they say.  You don't feel that way?
: Fine.  There is room for both of us here.  No doubt I will do nothing
: to change your opinions and I can assure you that you will not change
: mine.  The best we can both do is be honest and truthful with our
: opinions and smart enough to be clear when communicating to newbies
: that they are in fact just opinions and we are not doctors.

So?  How many doctors don't have a clue about treating diabetes?  Plenty
don't.

: Best,
: Kurt
Kurt - 11 Mar 2006 06:46 GMT
> Come now...there's plenty of published work on doing this.  Where does one
> start? Dr. Bernstein?  Dr. Atkins. Geez...

Well, that's where we differ.  I've read both of these "commercial"
books and wouldn't recommend their advice to anyone I know with
diabetes.  All in my opinion of course.

I don't buy any organization or school of thought "hook, line, and
sinker" as you have accused me of.  Nor do I dismiss the advice of my
endocrinologist because in your opinion he represents "the man."  We
all have to do what we feel is right and I truly do respect your
decision to investigate and follow what you feel is the best way to
treat your diabetes.

Best,
Kurt
Chris Malcolm - 13 Mar 2006 14:34 GMT
>> Come now...there's plenty of published work on doing this.  Where does one
>> start? Dr. Bernstein?  Dr. Atkins. Geez...

> Well, that's where we differ.  I've read both of these "commercial"
> books and wouldn't recommend their advice to anyone I know with
> diabetes.  All in my opinion of course.

If I was allowed to keep only one book on diabetes it would be
Bernstein's. I found much more helpful advice and explanation there
than in any other single source (I'm counting asd as a multiple source
:-) I can understand someone preferring another book, but you say you
wouldn't recommend it to anyone you know with diabetes. Sounds as
though you think it's seriously bad.

What do you find so bad about it?

Signature

Chris Malcolm cam@infirmatics.ed.ac.uk +44 (0)131 651 3445 DoD #205
IPAB,  Informatics,  JCMB, King's Buildings, Edinburgh, EH9 3JZ, UK
[http://www.dai.ed.ac.uk/homes/cam/]

Nicky - 10 Mar 2006 13:09 GMT
>Again, they have come up with this plan based on what they, as an
>organization, feel is good advice.  Is it good for you? For me? Maybe
>not.  But for the masses who are much different at managing their
>diabetes (if they do at all) it is probably a huge step in the right
>direction for basic nutrition.

Kurt, if I were the friend you've just sent off to a website that caters for
the lowest common denominator, I'd be well peeved with you.

Nicky.

Signature

A1c 10.5/5.4/<6  T2 DX 05/2004
1g Metformin, 100ug Thyroxine
95/74/72Kg

Kurt - 10 Mar 2006 18:52 GMT
> >Again, they have come up with this plan based on what they, as an
> >organization, feel is good advice.  Is it good for you? For me? Maybe
[quoted text clipped - 4 lines]
> Kurt, if I were the friend you've just sent off to a website that caters for
> the lowest common denominator, I'd be well peeved with you.

Well, I happen to think that the ADA is a good starting point so I owe
it to my friend to advise her to go there.  I don't think they cater to
the lowest common denominator, but they do offer someone who was just
diagnosed a place to "begin" to understand this complex disease.  Do
you remember when you were first diagnosed?  I do.  Lots of information
to try and absorb.

My feeling is that it's her doctors job to help her with those first
steps.  I also worked it out that within 2 days she got in to see my
endo who specializes in diabetes.  No simple task as he is one of the
best and very busy.  I'll tell her about this place after she gets in
control and has a better understanding about this disease.  There is a
lot of good information here by people who have had diabetes for many
years, but there are also a lot of posts from scammers, spammers, and
trolls.  She's smart, she'll be able to navigate, but for right now I'm
advising her to take it slow and listen to her medical team that she is
assembling.  I can do that in good conscience and don't think down the
road she will be peeved about my initial advice.

Best,
Kurt
Ozgirl - 10 Mar 2006 21:17 GMT
>> "Kurt" <kurtwheeling1965@hotmail.com> wrote in message

news:1141970438.093490.86920@i40g2000cwc.googlegroups.com...
>> >Again, they have come up with this plan based on what they, as an
>> >organization, feel is good advice.  Is it good for you? For me?
>> >Maybe not.  But for the masses who are much different at
managing
>> >their diabetes (if they do at all) it is probably a huge
step in
>> >the right direction for basic nutrition.
>>
>> Kurt, if I were the friend you've just sent off to a website that
>> caters for the lowest common denominator, I'd be well
peeved with
>> you.
>
> Well, I happen to think that the ADA is a good starting point so I owe
> it to my friend to advise her to go there.  I don't think they cater
> to the lowest common denominator, but they do offer
someone who was
> just diagnosed a place to "begin" to understand this
complex disease.
> Do you remember when you were first diagnosed?  I do.
Lots of
> information to try and absorb.

What if the ADA was the only place that person ended up
going to for information? What if they had high bg's and
were now sitting around a 7.0-7.5 A1c as a result of eating,
let's say the rate-your-plate-regimen? Let's say their
doctor looks at their lower A1c and says great! You are
doing well. Do you think that person would change anything?
After all, a large diabetic association recommends the
regimen, the doctor justifies it by the pat on the back but
still the patient progresses and gets complications.

From personal experience amongst type 2's I know outside of
internet, they accept the complications as part and parcel
of their condition. They have diabetes and therefore they
expect all the complications that go with it because...
their doctor said they were doing well, the ADA (and similar
organisations) laid out the diet etc.

I have no problem telling friends about the ADA and the
likes but point out that they need to educate themselves
further and adapt diet and exercise to achieve an A1c that
gives them a better chance of avoiding complications.   A
good doctor is not one who pats a person on the back for
having sub optimal bg's. But the average new diabetic
doesn't know that.
Kurt - 10 Mar 2006 21:58 GMT
> >> "Kurt" <kurtwheeling1965@hotmail.com> wrote in message
> >>
[quoted text clipped - 29 lines]
> What if the ADA was the only place that person ended up
> going to for information?

Why would that be the only place they go?  If they were diagnosed by a
doctor they would (or should at least) be given some basic information.
When I was diagnosed I was told about a number of diabetes programs
and encouraged by my doctor to enroll in them as well as read, read,
read.

But hypothetically, let's say someone is diagnosed and left on their
own and went only to the ADA site.  I still contend there is some very
good basic information there.  If they are online they would also have
the ability to google a lot of information, especially the other major
diabetes organizations such as Joslin.

>What if they had high bg's and
> were now sitting around a 7.0-7.5 A1c as a result of eating,
> let's say the rate-your-plate-regimen?

It would probably be an improvement, but not in keeping with the
recommendations on the site.  The ADA advises:

"The better your glucose control, the less likely you are to develop
complications of diabetes.  An A1C in the sevens (7s), however, does
not represent good control.  The ADA goal is less than 7 percent.  The
closer your A1C is to the normal range (less than 6 percent), the lower

your chances of complications.  However, you increase your risk of
hypoglycemia, especially if you have type 1 diabetes.  Talk with your
health care provider about the best goal for you."

>Let's say their
> doctor looks at their lower A1c and says great! You are
> doing well. Do you think that person would change anything?

I can't speak for doctors that would settle for 7.5% being a good
thing.  No doubt there are some that think it is, but it's not in
keeping with what the ADA advises.

> After all, a large diabetic association recommends the
> regimen, the doctor justifies it by the pat on the back but
> still the patient progresses and gets complications
> From personal experience amongst type 2's I know outside of
> internet, they accept the complications as part and parcel
> of their condition.

That's unfortunate, but like with most diseases there are far too many
that just ignore their condition and consider failure as inevitable.
ASD is filled with those who don't feel that way.

>They have diabetes and therefore they
> expect all the complications that go with it because...
> their doctor said they were doing well, the ADA (and similar
> organisations) laid out the diet etc.

That's your feeling, but let me ask you this: If someone with diabetes
is willing to just get all their health care needs from the ADA site
and chooses to ignore the goals the ADA sets and their advice to work
with a doctor, dietician, and exercise...do you think they are really
going to follow the diet on the site? My feeling is they would not.  If
they had the kind of discipline to change their woe they would, like
you and so many others here do, go in search of finding out exactly
what they need to do to achieve the best health possible.

> I have no problem telling friends about the ADA and the
> likes but point out that they need to educate themselves
> further and adapt diet and exercise to achieve an A1c that
> gives them a better chance of avoiding complications.

Excellent advice and that is also what I did when I talked to my newly
diagnosed friend.

>A
> good doctor is not one who pats a person on the back for
> having sub optimal bg's. But the average new diabetic
> doesn't know that.

Agreed. And I don't doubt for a minute that there are many GP's who
miss the boat with their advice because diabetes is not their
speciality and they are not up on the most current thinking.  The
average new diabetic, IMO, is not like the people in here.  And there's
the rub.  Many doctors complain that they have a hard time getting
their patients to follow their instructions and advice.  Not just in
diabetes, but with health in general.  How many people are obese yet
will do nothing about it?  How many people smoke and even though they
know that it is killing them, refuse to quit smoking?  How many
sedentary people know they should do some kind of exercise but it's
just too inconvenient?  And on and on...

I'm not defending doctors who settle for less than perfect, but do we
put the burden of that soley on them? Maybe doctors need to be trained
more in "tough love"...but how heavy handed can they be without totally
alienating their patient?

We have had this "discussion" about the ADA in here many many times and
I keep seeing the same arguments on either side.  Probably a good
reason for that as there are two sides to most issues.

I'd like to end this post with a question to you, Ozgirl, before I use
up all the available bandwith on Usenet :)  Would you recommend this
newsgroup to someone who just found out they had diabetes on the first
day of their diagnosis?  

Best,
Kurt
Ozgirl - 10 Mar 2006 22:21 GMT
> I'd like to end this post with a question to you, Ozgirl, before I use
> up all the available bandwith on Usenet :)  Would you recommend this
> newsgroup to someone who just found out they had diabetes on the first
> day of their diagnosis?

Absolutely. Birds of a feather stick together and all that.
The friends I associate with are similar people to me. They
are tough-skinned, they can discern, they have similar sense
of humour etc. If the person was not a friend I would still
recommend it but tell them that it's not alt.support.huggies
andkissies and to expect to find good and bad, politeness
and rudeness etc. But some damn good information :)

I don't think you can beat the immediacy of usenet, chat
rooms etc when you need to know something now. You can learn
in a few hours of back and forthing what might take you a
month to find out from your doctor. What about the person
who accidentally takes a hefty dose of short acting insulin
at bedtime instead of long acting. I've seen it happen, I've
seen that person talked through the "incident" and then off
to bed. It doesn't replace ringing the emergency room but
the advice can be just as quickly obtained.

Someone wants some examples of filling but low carb snacks.
Why wait weeks for the dietician when you are hungry (but
unsure) right now? Having seen Jennifer's advice I wish that
had been the first thing I saw for diabetes management.
Kurt - 11 Mar 2006 05:14 GMT
> > I'd like to end this post with a question to you, Ozgirl,
> before I use
[quoted text clipped - 26 lines]
> unsure) right now? Having seen Jennifer's advice I wish that
> had been the first thing I saw for diabetes management.

Thanks for your well worded answer.

Personally I would never recommend this newsgroup to someone until they
first spent some time under the guidance of their doctor and doing some
exploratory searching on their own, at their own pace.  This place is a
good source of lots of information, but it is unfiltered and presented
without knowing the person's needs who is on the receiving end of it or
the credentials of the person giving it.  Someone who is confused about
diabetes and newly diagnosed will not know the good information from
the bad at first.  It's a virtual Tower of Babel in here with many loud
voices who have found what works for them and believing that is the
only way.  Yes there is the obligatory YMMV tacked on, but it is often
times preached from a bully pulpit.  Does that mean the reader has to
buy it?  Of course not.  I wouldn't have wanted to come here when I was
first diagnosed because not only did I not have all the answers like
some here seem to proclaim, I didn't even have the mindset to ask the
right questions.

The one good thing about this disease is that you don't have to know
everything on the first day of diagnosis.  Advice here can be helpful
but it also could be misleading and dangerous.  Your example about
someone who took a hefty dose of short acting insulin by mistake and
came here to find out what to do is frightening to me.  The first call
should be to their doctor, the second to the emergency room.  Coming to
an unmoderated newsgroup filled with lots of strangers with no medical
credentials is no place to get advice about insulin dosages when time
is of the essence.  By the time they got a response they might already
be in severe hypo land.  I'm sure it's happened here and luckily, as
you report, the person got good information.  But what if the first
person to answer him or her was one of our resident nutjobs and gave
them bad info?

Now, after someone has had time to work with their doctor and do some
searching at their own pace, then I would have no problem sending them
here.  But, selfishly, I would have them read what I wrote and is
posted on the ASD site, right after they read Jennifer's advice.

http://www.alt-support-diabetes.org/kurt.htm

Like I said, after my friend gets her bearings I will send her this
way.  I'm sure she will benefit from the diversity of opinions and
advice.  Like you, I too hang with birds of my feather.  She's an
actress who once played someone with diabetes on TV...and ironically is
now one.  :(

Best,
Kurt
Chris Malcolm - 13 Mar 2006 14:42 GMT
> Personally I would never recommend this newsgroup to someone until they
> first spent some time under the guidance of their doctor and doing some
[quoted text clipped - 11 lines]
> some here seem to proclaim, I didn't even have the mindset to ask the
> right questions.

I've heard people chatting about their disorders in bus queues, in
supermarkets, cafes, and pubs. I've heard some incredibly stupid and
ignorant advice being given, and in some cases, gratefully
received. It seems to me that the problem of being given bad medical
advice by a friend, relative, or shop assistant, is both very much
more widespread and more serious than getting it from a newsgroup.

What do you think should be done about that problem?

Signature

Chris Malcolm cam@infirmatics.ed.ac.uk +44 (0)131 651 3445 DoD #205
IPAB,  Informatics,  JCMB, King's Buildings, Edinburgh, EH9 3JZ, UK
[http://www.dai.ed.ac.uk/homes/cam/]

Ozgirl - 13 Mar 2006 21:05 GMT
>> Personally I would never recommend this newsgroup to someone until
>> they first spent some time under the guidance of their
doctor and
>> doing some exploratory searching on their own, at their
own pace.
>> This place is a good source of lots of information, but
it is
>> unfiltered and presented without knowing the person's
needs who is
>> on the receiving end of it or the credentials of the
person giving
>> it.  Someone who is confused about diabetes and newly
diagnosed will
>> not know the good information from the bad at first.
It's a virtual
>> Tower of Babel in here with many loud voices who have
found what
>> works for them and believing that is the only way.  Yes
there is the
>> obligatory YMMV tacked on, but it is often times preached
from a
>> bully pulpit.  Does that mean the reader has to buy it?
Of course
>> not.  I wouldn't have wanted to come here when I was
first diagnosed
>> because not only did I not have all the answers like some
here seem
>> to proclaim, I didn't even have the mindset to ask the
right
>> questions.
>
[quoted text clipped - 6 lines]
>
> What do you think should be done about that problem?

Go to the ADA and have the bad advice justified? Hearing it
from so called authoritarians makes the advice seem better
to a lot of people. As you said, there are many instances of
people chatting to each other about their diabetes and
treatments. I had this loud mouthed, obese man come up to me
in a Chinese restaurant a few years ago. He was sitting at
his table at first with what looked like his two young adult
children. He was calling out "I am excited!" about once a
minute while looking around the room - the young ones looked
highly embarrassed.

Then he wandered around from table to table chatting. When
he reached mine, he said, "I am a diabetic!". I said what a
coincidence, so am I. We got chatting about treatments, diet
etc and he walked away a subdued man. I felt sorry for
bursting his bubble but he said I gave him food for thought.
At the end of his meal he held up his boiled rice bowl to
show me he hadn't touched it, then smiled.
TigerLily - 10 Mar 2006 22:26 GMT
i didn't snip because you had too many points to
be brought out

i was one of those people who followed (like a
lamb) the advice of my nutritionist and the CDA
(Canadian) for what to eat.... the CONCEPT of
eating lower carbs didn't EVEN DAWN on me until i
read of it in these newsgroups (mhd and
asd)........... now, i didn't agree with ultra low
carb, but i have cut my carbs to 100 gms a day,
and i'm doing a lot better for that decision
..........

so, in short, to answer your last question, i sure
wish that when i was a newbie that there WAS this
newsgroup to come to, to learn about how different
people manage their diabetes, and to take what fit
for me from those experiences and use that
information to manage my diabetes

kate
type 1 18 years
(now reusing her needles and her lancet too ! !
! )
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I have no medical qualifications beyond my own
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Choose your advisers carefully, because experience
can be
an expensive teacher.

"Kurt" <.com> wrote in message googlegroups.com...

>
> > >> "Kurt" <kurtwheeling1965@hotmail.com> wrote in message

news:1141970438.093490.86920@i40g2000cwc.googlegroups.com...
> > >> >Again, they have come up with this plan based on what
> > they, as an
[quoted text clipped - 129 lines]
> Best,
> Kurt
Nicky - 11 Mar 2006 17:33 GMT
> I'd like to end this post with a question to you, Ozgirl, before I use
> up all the available bandwith on Usenet :)  Would you recommend this
> newsgroup to someone who just found out they had diabetes on the first
> day of their diagnosis?

Are you kidding? - OF COURSE!

Nicky.

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A1c 10.5/5.4/<6  T2 DX 05/2004
1g Metformin, 100ug Thyroxine
95/74/72Kg

W. Baker - 10 Mar 2006 16:20 GMT
: > On 9 Mar 2006 15:59:22 -0800, "Kurt"
: > >- You can still eat the foods you love.
[quoted text clipped - 16 lines]
: >
: > I'm underwhelmed I'm afraid.

: Don't be afraid. :)

: > It's a start, no more.In that same section, this is still
: > the "Rate your plate" advice - and no mention is made
: > anywhere of different dietary needs for T1 and T2, only of
: > different insulin and meds needs. How difficult would it be
: > for them to have seperate sections?

: That's a question you would have to ask them.  They do separate Type 1
: and Type 2 on the very first page but obviously they do not see the
: dietary needs for the two different types the same way as you, and many
: here, do.  Perhaps they will align themselves more to your way of
: thinking in the future, but that's yet to be seen.

: > At least they now add this at the end - but they still want
: > carbs as a quarter of the plate:

: Again, they have come up with this plan based on what they, as an
: organization, feel is good advice.  Is it good for you? For me? Maybe
[quoted text clipped - 4 lines]
: screws in our quest to manage this disease? Sorry I ask so many
: questions that I do not know the answers to.

: > "Because how much you eat can make a big difference in your
: > blood sugar level, especially with foods high in
: > carbohydrate. There's no need to skip these foods -- just
: > watch those serving sizes!"

: Many here choose portion control over elimination.  Personally, I
: don't.  But that's just me.

: > Surely the premier diabetes advisory and research
: > organisation in the world can do better.

: Maybe they feel this is their best advice to the general diabetes
: community.  My feeling has always been that the ADA site is a good
: starting point for general information.  If someone is going there to
: get specific diabetes advice for their particular needs then they are
: making a big mistake.

: > For many people, having 3 or 4 servings of a carb choice at
: > each meal and 1 or 2 servings at snacks is about right.
[quoted text clipped - 17 lines]
: > carbs) with meat, salsa, lettuce, and chopped tomato 1/3 cup
: > of rice (1 carb)

: I see your point and they should probably put more emphasis here on
: testing to see how the foods affect your numbers.  They do discuss that
: but redundancy here wouldn't hurt.

: I have been accused in here on more than one occasion of being a
: cheerleader for the ADA.  I do think they have a good general site but
: I wouldn't shake my pom-poms at them and shout "Give me an A, give me a
: D...."

: It's a big organization and they do bear quite a burden since they are,
: as you say, the premier diabetes advisory and research organization in
[quoted text clipped - 3 lines]
: micromanaging our diabetes to outstanding results that can alert them
: to how they can do better.  

: Best,
: Kurt

Ihave sniped much of Alan's quotes of lists, etc, for brevity.  

After reading the series in the NY Times a few weeks ago , aobut the
epidemic of type2 diabetes tht is mostly incontrolled going on in my fair
city, I can see teh ADA's point.  Many peole just don't want to give up
their usual eating patterns adn favorite foods adn will just not make any
changes if they think it must be all or nothing, even knowing, form
horrible example, what diabetes cn do to you.  The kind of gentle
approach, like "rate your plate"  gives soemthing easy adn lets eole still
eat some of their favorite strches, but in a limited quantity.  It also
helps those cooking for a family to be able to eat teh same fods as the
family but with a different balance of the foods.  ( I did something like
that when I was first diagnosed and ws loosing 60 lbs and bringing my bgs
back to normal.  Of course, I ws not serving fods with heavy sauces, lots
of butter, etc adn we ate light desserts like a piece of fruit or aslice
of melon.  

For many peole out there, a simple, not as demanding set of regularions
will still be a challange, but one they can meet.  If we were to throw
jennifer's advice at them or demand either a more rigin eating pattern or
lower carbs, we would loose them entirely.  Better try to get the masses
of diabetics into better control than make them feel it is just all too
much and letting all control go.  

Most ADA advice is not for us, who want to take stronger control over out
disease, but , as Kurt says,, it is god for beginners and for resistant
folk who are afraid they will have to give up everything they like.  As
many poor folk seem to be in high risk groupw, either from   diet or
ethnicity, lets let them get some control, easily, and without scaring
them away.  I thik hthat may be a great deal of what is behind the ADA
recommendations.  

I srill see no reason why they can't separate type1 and type 2 diet
recommendations.  

Wendy
Ma¢k - 10 Mar 2006 05:57 GMT
On Fri, 10 Mar 2006 07:52:18 +1100, Alan S
<loralweightandcarbs@optusnet.com.au> Huffed and Puffed the following
into the madness of usenet:

>>The ADA is only just beginning to change
>>it's literature on lowering carb consumption
[quoted text clipped - 9 lines]
>Cheers, Alan, T2, Australia.
>d&e, metformin 2x500mg

Well at least via educators.

Signature

Mâck©® Deltec CoZmore Pumper
Type 1 since 1975
http://www.alt-support-diabetes.org
http://www.diabetic-talk.org
http://www.insulin-pumpers.org

"To announce that there must be no criticism of the
President, or that we are to stand by the President
right or wrong, is not only unpatriotic and servile,
but is morally treasonable to the American public."
...Theodore Roosevelt

        (o ô)  
--ooO-(_)-Ooo--------------------

"I don't know half of you
half as well as I should like;
and I like less than half of you
half as well as you deserve."
             ....Bilbo Baggins

Jesus never hated anyone.
           

Susan - 09 Mar 2006 13:46 GMT
> That's actually more info.  Still, I don't see why one couldn't do
> essentially the same thing with smaller doses of insulin and carbs.  I don't
> claim to understand T1s, though.

First, there would still be the problem, without meters, of balancing
one against the other.  Second, for a type 1, the glucose from protein
also must be countered with insulin, unlike us type 2s, who show no rise
from it.

Susan
Roger Zoul - 09 Mar 2006 16:34 GMT
:: x-no-archive: yes
::
[quoted text clipped - 8 lines]
:: protein also must be countered with insulin, unlike us type 2s, who
:: show no rise from it.

Absolutely.  But it still seems, from an engineering standpoint, that using
less of both is better.  I guess those in the medical profession don't (or
didn't) view things that way.
Susan - 09 Mar 2006 16:44 GMT
> Absolutely.  But it still seems, from an engineering standpoint, that using
> less of both is better.  I guess those in the medical profession don't (or
> didn't) view things that way.

I don't disagree, but that is kind of tangential to what Jenny's point was.

Susan
Roger Zoul - 09 Mar 2006 17:45 GMT
:: x-no-archive: yes
::
[quoted text clipped - 6 lines]
:: I don't disagree, but that is kind of tangential to what Jenny's
:: point was.

Well, I didn't take exception to her point, I was trying to understand its
origins.
Jennifer - 09 Mar 2006 20:25 GMT
Thought a history of glucose meters might interest those in this
discussion.

It's facinating!

http://www.mendosa.com/history.htm

Jennifer
Jenny - 09 Mar 2006 20:46 GMT
> Thought a history of glucose meters might interest those in this
> discussion.
>
> It's facinating!
>
> http://www.mendosa.com/history.htm

It certainly is! Thanks for posting the link.

--Jenny

http://www.phlaunt.com/diabetes  Diabetes Info

http://www.alt-support-diabetes.org/newlydiagnosed.htm Get Your Blood
Sugar Under Control
David - 09 Mar 2006 23:14 GMT
> Thought a history of glucose meters might interest those in this
> discussion.
[quoted text clipped - 4 lines]
>
> Jennifer

I don't know about that guy. He thinks Lifescan meters aren't accurate.

Dave
Alan S - 10 Mar 2006 05:28 GMT
>> Thought a history of glucose meters might interest those in this
>> discussion.
[quoted text clipped - 8 lines]
>
>Dave

Let me put it this way Dave.

Let's hold a poll.

Tick the appropriate box:

Which David do you trust most for advice on diabetes:

o A. David <David@invalid.com>

o B. David  www.mendosa.com/

Would you like to put that to the test? Incidentally, I'm
not denigrating your knowledge on pumping, insulin etc -
just implying that he has a wider range of diabetes
knowledge.

Nobody's perfect. But on the list of those I'd trust for
diabetes information David Mendosa is up there in the top
ten, with people like Edward Reid, Charly Coughran, Jim
Hartman, Quentin Grady, Gretchen Becker and a very few
others.

And, as far as I know, he's not a doctor either; nor are
Gretchen or Quentin. I don't know about the others.

Cheers, Alan, T2, Australia.
d&e, metformin 2x500mg
Signature

Everything in Moderation - Except Laughter.

Alan S - 10 Mar 2006 07:46 GMT
>Thought a history of glucose meters might interest those in this
>discussion.
[quoted text clipped - 4 lines]
>
>Jennifer

My favourite quote from his interview with Suther:

"I think she has passed on now, she was 99 when I met her,
in the '60s,"

If she hasn't - I want to know what she eats:-)

Cheers, Alan, T2, Australia.
d&e, metformin 2x500mg
Signature

Everything in Moderation - Except Laughter.

Alan S - 09 Mar 2006 20:54 GMT
>:: x-no-archive: yes
>::
[quoted text clipped - 12 lines]
>less of both is better.  I guess those in the medical profession don't (or
>didn't) view things that way.

And still don't - mainly because less of both must mean more
fat proportionally.

Cheers, Alan, T2, Australia.
d&e, metformin 2x500mg
Signature

Everything in Moderation - Except Laughter.

Roger Zoul - 09 Mar 2006 21:32 GMT
:: On Thu, 9 Mar 2006 11:34:16 -0500, "Roger Zoul"
:: <rogerzoul2@hotmail.com> wrote:
[quoted text clipped - 17 lines]
:: And still don't - mainly because less of both must mean more
:: fat proportionally.

Yep, there's that too!
Jenny - 09 Mar 2006 00:24 GMT
> :: MaryL wrote:
> :: Wow!  Talk about bad advice.  For example, I found this advice
[quoted text clipped - 9 lines]
> I don't see why that was excellent advice in 1972 for a T1.  Explain,
> please?

Roger,

Well, if you are injecting a large dose of insulin once a day--an
insulin which is a mix of long and short acting insulins--and have no
way of measuring your blood sugar, there is always the danger of hypos
unless you keep pouring a steady stream of carbohydrate down the hatch
to mop up the large amounts of injected insulin.

Don't forget that this was long before DCCT and its then radical idea
that Type 1s would avoid complications by keeping their A1cs below 8%.
That was a radical idea when it emerged, and it only became mainstream
after many years of study showed a profound difference in the
complications between those who kept their blood sugars lower and those
who didn't. But the ability to do that was only made possible by the
advent of home blood sugar meters.

I think that happened sometime in the 80s. I know that I saw my first
blood sugar meter in the labor suite during my second gestational
diabetes pregnancy in 1985 when the nurse kept coming by and sticking me
with a huge, painful lancet to get blood for one. It never occurred to
me this was something you could have at home and use to check your blood
and my doctor certainly never mentioned you could do this.

--Jenny

http://www.phlaunt.com/diabetes  Diabetes Info

http://www.alt-support-diabetes.org/newlydiagnosed.htm Get Your Blood
Sugar Under Control
Roger Zoul - 09 Mar 2006 01:17 GMT
:: Roger Zoul wrote:
::: Jenny wrote:
[quoted text clipped - 19 lines]
:: hypos unless you keep pouring a steady stream of carbohydrate down
:: the hatch to mop up the large amounts of injected insulin.

Well, that makes more sense.

I realize that life is a lot different for a t1 than a t2, but  it still
seems that *not* eating all of those carbs and *not* having to use a large
dose of insulin would be better than doing so. I suppose a t1 might still
need insulin even if not eating carbs, but isn't even a small dose better
than a large one?  You still have some amount of long/slow acting insulin,
right?  Also, will a t1 still need a lose dose of insulin even if eating
very little carbs?

:: Don't forget that this was long before DCCT and its then radical idea
:: that Type 1s would avoid complications by keeping their A1cs below
[quoted text clipped - 3 lines]
:: and those who didn't. But the ability to do that was only made
:: possible by the advent of home blood sugar meters.

Interesting.

:: I think that happened sometime in the 80s. I know that I saw my first
:: blood sugar meter in the labor suite during my second gestational
[quoted text clipped - 3 lines]
:: use to check your blood and my doctor certainly never mentioned you
:: could do this.

Thanks.

:: --Jenny
::
:: http://www.phlaunt.com/diabetes  Diabetes Info
::
:: http://www.alt-support-diabetes.org/newlydiagnosed.htm Get Your Blood
:: Sugar Under Control
Alexander Arnakis - 09 Mar 2006 02:26 GMT
>I realize that life is a lot different for a t1 than a t2, but  it still
>seems that *not* eating all of those carbs and *not* having to use a large
[quoted text clipped - 3 lines]
>right?  Also, will a t1 still need a low dose of insulin even if eating
>very little carbs?

To answer your last question, yes.  Remember, Type 1's don't make any
insulin, and a certain amount is required for basal metabolism.

Before the basal/bolus regimen (Lantus/Humalog etc.), all we had were
insulins that had "peaks." Therefore, we had to time our food to
coincide with these insulin peaks. It was easy to get into a pattern
of "feeding the insulin" and as a result, gaining weight.
Roger Zoul - 09 Mar 2006 02:48 GMT
:: On Wed, 8 Mar 2006 20:17:38 -0500, "Roger Zoul"
:: <rogerzoul2@hotmail.com> wrote:
[quoted text clipped - 9 lines]
:: To answer your last question, yes.  Remember, Type 1's don't make any
:: insulin, and a certain amount is required for basal metabolism.

BTW, that last sentence should have read: "Also, will a t1 still need a high
dose of insulin even if eating very little carbs?"  I think you got that,
though. :)

:: Before the basal/bolus regimen (Lantus/Humalog etc.), all we had were
:: insulins that had "peaks." Therefore, we had to time our food to
:: coincide with these insulin peaks. It was easy to get into a pattern
:: of "feeding the insulin" and as a result, gaining weight.

Very interesting.  Thanks.
Ma¢k - 09 Mar 2006 12:27 GMT
On Wed, 8 Mar 2006 20:17:38 -0500, "Roger Zoul"
<rogerzoul2@hotmail.com> Huffed and Puffed the following into the
madness of usenet:

>I realize that life is a lot different for a t1 than a t2, but  it still
>seems that *not* eating all of those carbs and *not* having to use a large
[quoted text clipped - 3 lines]
>right?  Also, will a t1 still need a lose dose of insulin even if eating
>very little carbs?

If a type 1 does not inject insulin at all, in a couple of days they
will suffer severe DKA, coma and death.  The human body is ALWAYS in
need of some background insulin.  Hence a type 1 taking injections
uses 2 types long acting and short acting.  Long acting insulins are
meant to cover the bodies needs between meals including that time you
are asleep.  short acting is for meals and corrections.

Signature

Mâck©® Deltec CoZmore Pumper
Type 1 since 1975
http://www.alt-support-diabetes.org
http://www.diabetic-talk.org
http://www.insulin-pumpers.org

"To announce that there must be no criticism of the
President, or that we are to stand by the President
right or wrong, is not only unpatriotic and servile,
but is morally treasonable to the American public."
...Theodore Roosevelt

        (o ô)  
--ooO-(_)-Ooo--------------------

"I don't know half of you
half as well as I should like;
and I like less than half of you
half as well as you deserve."
             ....Bilbo Baggins

Jesus never hated anyone.
           

Roger Zoul - 09 Mar 2006 13:21 GMT
:: On Wed, 8 Mar 2006 20:17:38 -0500, "Roger Zoul"
:: <rogerzoul2@hotmail.com> Huffed and Puffed the following into the
[quoted text clipped - 14 lines]
:: meant to cover the bodies needs between meals including that time you
:: are asleep.  short acting is for meals and corrections.

Thanks for the info.  Yes, I do get that T1s need to get insulin and even a
diet low in carbs would still end up with glucose in the blood.  I was just
wondering about the large dose to cover large carb loads, that's all.  It's
still an academic issue for me, as I'm a t2 with good control.
Ozgirl - 09 Mar 2006 20:30 GMT
>:: On Wed, 8 Mar 2006 20:17:38 -0500, "Roger Zoul"
>:: <rogerzoul2@hotmail.com> Huffed and Puffed the following into the
[quoted text clipped - 14 lines]
>:: meant to cover the bodies needs between meals including that time
>:: you are asleep.  short acting is for meals and
corrections.

> Thanks for the info.  Yes, I do get that T1s need to get insulin and
> even a diet low in carbs would still end up with glucose
in the
> blood.  I was just wondering about the large dose to cover
large carb
> loads, that's all.  It's still an academic issue for me,
as I'm a t2
> with good control.

I am not aware that the average type 1 takes large amounts
of insulin. Nowhere near what an insulin resistant type 2
needs.
Roger Zoul - 09 Mar 2006 21:35 GMT
:: Roger Zoul wrote:
::: Ma¢k wrote:
[quoted text clipped - 28 lines]
:: of insulin. Nowhere near what an insulin resistant type 2
:: needs.

The "large" comment was in reference to what the recommended practice was
before BG meters became a common tool for every diabetic.  I think it
largely doesn't apply now, though I do hear of diabetics eating carby foods
and compensating for it with more insulin.