Medical Forum / Diseases and Disorders / Diabetes / March 2006
Things are getting worse, rather than better
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LizardQueen - 05 Mar 2006 14:31 GMT I don't know what's going on, I'm shaking around the clock now. Got almost no sleep last night because of bouts of the shakes plus night sweats (could be female hormones but who knows).
Snacks don't seem to be enough to stop the shakes. And the shakes are not correlating to the meter as much. I'm getting them when I first get up in the AM not even after eating.
If I cut down the carbs I feel worse. If I raise them my bg goes up. I'm at a loss as to how to make myself feel better until I can get in to the docs (Wednesday).
The best I felt was Friday at work. It was busy there so ate a can of soup for lunch (all I had around) that had 40 g carbs in it (and fast ones at that). I spiked at 162 at a half hour (could feel the heat and dizziness so I tested) then dropped 40 pts 10 minutes after that, went up a little at the 2 hour (127), then dropped again, but then my bg was ok the rest of the afternoon and my anxiety went away.
I'm wondering if the relative lack of carbs compared to my previous life is screwing up the serotonin in my brain.
This is horrible, I can't continue like this.
LQ
Cheri - 05 Mar 2006 15:29 GMT I wish I had some advice to give you but I don't since so many foods affect us differently. I have very little tolerance for fast acting carbs and can go quite high fairly fast. I don't get shaky when I'm high, but I do get shaky when I'm low. Hopefully, when you see the doc on Wednesday you'll get some answers.
-- Cheri Take the best, and disregard the rest.
LizardQueen wrote in message <1141569108.119287.227240@t39g2000cwt.googlegroups.com>...
>I don't know what's going on, I'm shaking around the clock now. Got >almost no sleep last night because of bouts of the shakes plus night [quoted text clipped - 21 lines] > >LQ Susan - 05 Mar 2006 15:36 GMT > I don't know what's going on, I'm shaking around the clock now. Got > almost no sleep last night because of bouts of the shakes plus night > sweats (could be female hormones but who knows). Yes, it could be peri. Non stop trembling, along with other stuff (insomnia, waking with chills and sweats, and other stuff) accompanied onset for me.
You should be evaluated medically, maintain a diet you know to be healthy.
Susan
LizardQueen - 05 Mar 2006 16:11 GMT I'm pretty sure it's a serotonin thing (whether from the sudden lack of dietary starch or the female hormone thing, I don't know).
In desperation this AM I emptied half a capsule of 50 mg 5-HTP (had it around from the last time I tried going off the Zoloft) into a glass of water and drank it. 1 hour later the shakes have mostly stopped. I don't feel great but better than I have for the last 24 hours.
I don't like 5 HTP and don't think it's safe (it's an intermediary metabolite of the l-tryptophan --> serotonin process that usually isn't found on this side of the blood/brain barrier) but as an experiment it was an interesting one and that little bit is unlikely to hurt me.
I just hope Doc 2.0 knows his stuff......
This all makes sense in the abstract - high carbs = high levels of tryptophan entering brain, raises serotonin. Sudden low carbs = lower levels of brain serotonin, brain gets pissed off because it's used to the high levels and I start shaking.
I'm paying a heavy price for years of self-medicating with starch, apparently.
Thanks for listening. LQ
Susan - 05 Mar 2006 16:21 GMT > I'm pretty sure it's a serotonin thing (whether from the sudden lack of > dietary starch or the female hormone thing, I don't know). I don't know how you can be sure; you have so many things going on; bg issues, perimenopause and extreme anxiety. All can produce your symptoms.
> In desperation this AM I emptied half a capsule of 50 mg 5-HTP (had it > around from the last time I tried going off the Zoloft) into a glass of [quoted text clipped - 5 lines] > found on this side of the blood/brain barrier) but as an experiment it > was an interesting one and that little bit is unlikely to hurt me. It's very safe, from all I've read, as a serotonin precursor. I'm not sure it's safe to add it to an rx SSRI, however.
> I just hope Doc 2.0 knows his stuff...... > [quoted text clipped - 8 lines] > Thanks for listening. > LQ Good luck.
Susan
Jennifer - 05 Mar 2006 17:27 GMT It could be many things.
It may have nothing to do with carbs or diabetes.
See the doctor.
Jennifer
> I'm pretty sure it's a serotonin thing (whether from the sudden lack of > dietary starch or the female hormone thing, I don't know). [quoted text clipped - 21 lines] > Thanks for listening. > LQ Alan S - 05 Mar 2006 23:28 GMT >It could be many things. > [quoted text clipped - 3 lines] > >Jennifer Beat me to it. I wouldn't wait until Wednesday.
And if the doc doesn't have the answer - ask advice on which specialist the doc thinks you should see.
Cheers, Alan, T2, Australia. d&e, metformin 2x500mg
 Signature Everything in Moderation - Except Laughter.
Nicky - 05 Mar 2006 18:43 GMT > Thanks for listening. Keep talking, if it helps! It sounds awful, you have my full sympathy. The only thing I can think of is chocolate and other serotonin stimulators!
Nicky.
 Signature A1c 10.5/5.4/<6 T2 DX 05/2004 1g Metformin, 100ug Thyroxine 95/74/72Kg
Ozgirl - 05 Mar 2006 20:29 GMT > I'm pretty sure it's a serotonin thing (whether from the sudden lack > of dietary starch or the female hormone thing, I don't know).
> In desperation this AM I emptied half a capsule of 50 mg 5-HTP (had it > around from the last time I tried going off the Zoloft) into a glass > of water and drank it. 1 hour later the shakes have mostly stopped.
> I don't feel great but better than I have for the last 24 hours. > > I don't like 5 HTP and don't think it's safe (it's an intermediary > metabolite of the l-tryptophan --> serotonin process that usually > isn't found on this side of the blood/brain barrier) but as an
> experiment it was an interesting one and that little bit is unlikely
> to hurt me. > [quoted text clipped - 7 lines] > I'm paying a heavy price for years of self-medicating with starch, > apparently. How often are you eating? When I first became symptomatic I was having to eat half hourly, that changed after a while but it made life a heck of a lot easier while I was doing it ont the half hour.
LizardQueen - 05 Mar 2006 22:36 GMT Every 2 1/2, which I think is ok. Bg has been stable as a rock doing that with what I'm eating. As I get near the eating time I get a different feeling which is the "running out of gas" feeling. It's so damn hard to explain and sounds really stupid but there have been 3 or 4 different kinds of shaking I've gotten from this. The "omigod I'm going to climb out of my skin" anxiety went away after 5 days, then I got the fast "blood sugar tanking" one after eating something too carby but I think I've licked that one by figuring out the menu, then there's the "running out of gas" feeling that I still get before I need to eat again, but this new bit is non-meter-or-food correlated. I'll have it before and after I eat without eating making a difference in it.
Maybe this is still the aftershocks of cutting down the carbs, or it could be the lovely perimenopause thing that I am squarely in. Who knows at this point.
I agree with all you guys, I need to get this looked at by a competent doc. I just hope the one that I have an appt with on Wed is competent, unlike my current PCP.
Who knew that eating so well could make me feel so shitty? ;)
It's better this PM, I managed to get a nap in after the AM's 5-HTP experiment. I've also been trying to eat more stuff that has a lot of tryptophan in it (cottage cheese was part of lunch and snack) which may be playing a part.
And no worries, I won't be taking any more of the HTP, I know it doesn't mix with SSRIs.
Thanks for being here, sorry if I sound like a nutcase, I just feel like crap. LQ
P.S. on the bright side, I'm 12 lbs lighter today, without even really trying to lose it.
Susan - 05 Mar 2006 23:31 GMT > Every 2 1/2, which I think is ok. Bg has been stable as a rock doing > that with what I'm eating. As I get near the eating time I get a [quoted text clipped - 12 lines] > could be the lovely perimenopause thing that I am squarely in. Who > knows at this point. I recall that 1.5 - 2 hours was my shaky time til I lost the hypoglycemia. Now it's more like 5 or 6 hours til I realize i NEED to eat.
> I agree with all you guys, I need to get this looked at by a competent > doc. I just hope the one that I have an appt with on Wed is competent, > unlike my current PCP. I hope so, too.
> Who knew that eating so well could make me feel so shitty? ;) Who knew that recovering from eating shitty would take this long!? ;-)
> It's better this PM, I managed to get a nap in after the AM's 5-HTP > experiment. I've also been trying to eat more stuff that has a lot of [quoted text clipped - 10 lines] > P.S. on the bright side, I'm 12 lbs lighter today, without even really > trying to lose it. You're not sounding nutty, just overwhelmed and anxious.
Susan
Chakolate - 05 Mar 2006 21:22 GMT "LizardQueen" <GreenRaven@att.net> wrote in news:1141575085.292961.76180 @v46g2000cwv.googlegroups.com:
> I don't like 5 HTP and don't think it's safe (it's an intermediary > metabolite of the l-tryptophan --> serotonin process that usually isn't > found on this side of the blood/brain barrier) but as an experiment it > was an interesting one and that little bit is unlikely to hurt me. I've been using 5-HTP, 300 mg/day, for nearly a year now, and I love it. Combined with L-tyrosine, it has improved and stabilized my mood and improved my short-term memory and focus tremendously.
Chak
 Signature In science, 'fact' can only mean 'confirmed to such a degree that it would be perverse to withhold provisional assent.' I suppose that apples might start to rise tomorrow, but the possibility does not merit equal time in physics classrooms. --Stephen Jay Gould
Mr. Gantlet - 05 Mar 2006 16:41 GMT please see a doctor if you didn't trust the one you worked with see another. and another and another and another until you find one you trust. if you don't find a doctor that agrees with what you think your treatment should be perhaps it is time to rethink your treatment.
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>I don't know what's going on, I'm shaking around the clock now. Got > almost no sleep last night because of bouts of the shakes plus night [quoted text clipped - 21 lines] > > LQ W.M.McKee - 05 Mar 2006 18:55 GMT >I don't know what's going on, I'm shaking around the clock now. Got >almost no sleep last night because of bouts of the shakes plus night [quoted text clipped - 3 lines] >not correlating to the meter as much. I'm getting them when I first get >up in the AM not even after eating. Hi LQ,
I am so sorry to hear of your continuing distress. Seriously, it sounds like you may be approaching the time for a trip to the ER. If it is as bad as you seem to describe, something is goin on, and it is not good....
Please take care, and keep us posted.
Will, T2
Michelle - 05 Mar 2006 19:50 GMT LQ,
I agree with the others--this thing needs to be evaluated by a competent medical professional. Your description hits me as being a combination of things--perhaps even something that hasn't been kicked around here. But that's just me thinking off the top of my head.
As for the 5HTP, it is very safe, albeit it is not recommended for use with serotonin reuptake inhibitors or MAO inhibitors. There was a study (that unfortunately I cannot locate at the moment) which shows that it performed as effectively as the SSRI's without as many side-effects (the study was done in Europe, I believe). I take it occasionally.
Michelle
Loretta Eisenberg - 06 Mar 2006 00:02 GMT LQ, I dont understand what is going on with you. I dont read very low numbers so I am wondering why you have the shakes.
I hope you get to the doctor and get some answers.
Are you panicking over what is happening with your blood glucose.
Loretta
-- In tribute to the United States of America and the State of Israel, two bastions of strength in a world filled with strife and terrorism.
Julie Bove - 06 Mar 2006 06:45 GMT > I don't know what's going on, I'm shaking around the clock now. Got > almost no sleep last night because of bouts of the shakes plus night [quoted text clipped - 19 lines] > > This is horrible, I can't continue like this. It sounds like you have some sort of other medical problem aside from diabetes. Have you mentioned these symptoms to your Dr.? 162 is hardly what I'd call a spike, especially at 1/2 an hour after eating. I don't think there are very many of us who test then.
-- See my webpage: http://mysite.verizon.net/juliebove/index.htm
Quentin Grady - 06 Mar 2006 09:01 GMT This post not CC'd by email On 5 Mar 2006 06:31:48 -0800, "LizardQueen" <GreenRaven@att.net> wrote:
>The best I felt was Friday at work. It was busy there so ate a can of >soup for lunch (all I had around) that had 40 g carbs in it (and fast >ones at that). I spiked at 162 at a half hour (could feel the heat and >dizziness so I tested) then dropped 40 pts 10 minutes after that, went >up a little at the 2 hour (127), then dropped again, but then my bg was >ok the rest of the afternoon and my anxiety went away. G'day G'day LQ,
Reactive hypoglycemia might be one of the things going on. Reactive hypoglycemia is one of scariest things going. Sometimes there are few symptoms that are recognizable to others. All they might notice at first is some flaccidness of the complexion. My point is that sometimes there is little that portrays the inner turmoil and distress.
Some of the regulars might recall that when I was diagnosed with reactive hypoglycemia it happened when a replacement locum sent me to a specialist who ordered twelve blood tests. I actually had to ask if it included the glucose tolerance test. He said most people didn't volunteer for that test because it could be stressful for some people. Never the less he added the glucose tolerance test. The only test that showed an abnormality was the extra test I had asked for.
Now, there are a couple of lessons for all of us in this situation.
The first and most important is that symptoms can be very deceptive as a basis for diagnosis. The doctor was a respected specialist. He recognised the possibility of at least a dozen different causes that fitted the presenting symptoms. He followed the standard medical procedure of elimination ie checking for a selection of possible abnormalities and then crossing off the ones that turned out to be normal.
The second lesson is more subtle. If I hadn't asked for the glucose tolerance test then the probable diagnosis would have been that the illness was not physiological and it would have been labeled as psychosomatic and I would most likely have been treated inappropriately.
What I guess I am suggesting is to take good care to avoid a short circuit diagnosis ... get a referral to a specialist if you can. Find the real cause. A mistaken diagnosis will often lead to treatment that makes things worse.
Best wishes,
 Signature Quentin Grady ^ ^ / New Zealand, >#,#< [ / \ /\ "... and the blind dog was leading."
http://homepages.paradise.net.nz/quentin
Michelle - 06 Mar 2006 21:17 GMT Although Quentin didn't go so far as to recommend that you ask for a glucose tolerance test, there is much wisdom in his personal experience. I was a lab tech, and it's the one test that will show exactly how your body is reacting to glucose and how soon after ingestion. Ideally, the test should be done in conjunction with insulin levels to get the fullest picture possible. However, much can be inferred about insulin levels from a person's reaction to the glucose challenge. I will warn you, though, (and I suspect this why Quentin didn't go so far as to actually recommend the test) the test is uncomfortable because it will bring on the symptoms you dread so much. So from a scientific standpoint, the test is excellent; from a personal standpoint that may not be true. You have to make the call.
Michelle
P.S. Have you considered thyroid problems? I just did a review of symptoms of hyperthyroidism, and some of what you describe fits. I know that you said that you needed to lose weight, so you probably thought that would rule out being hyperthyroidism. However, the article I read said that someone who is hyperthyroid may be very skinny OR the hyperthyroidism can increase appetite to the point that people can gain lots of weight. Something to consider?
Nicky - 06 Mar 2006 21:32 GMT > I was a lab tech Michelle, could I ask your advice? I've been refused a fasting insulin test, on the basis the lab doesn't do it. How complicated is that test? The lab is a medium-sized hospital one. I'm fairly sure I'm being lied to...
Nicky.
 Signature A1c 10.5/5.4/<6 T2 DX 05/2004 1g Metformin, 100ug Thyroxine 95/74/72Kg
Michelle - 06 Mar 2006 22:59 GMT Hi Nicky,
I worked in a rural hospital, and although our lab didn't perform the insulin test either, we sent it out to reference lab. A reference lab here in the States is a commercial lab that performs the more unusual tests that smaller (or even medium sized) hospitals don't do because it is cost prohibitive to keep the supplies and/or equipment on hand for tests that are rarely requested.
As for the complication of it, although I've never performed the test, it comes under the purview of a chemistry or radioimmunoassay analysis. Depending on the technology, the test may require several steps (not difficult) and reading by a machine, or may be as easy as plunking your sample onto the machine and pressing "start".
Anyway, surely your local hospital uses a reference lab for more rare tests? That would be the question I'd ask.
Hope this helps! Michelle
Nicky - 07 Mar 2006 12:36 GMT > As for the complication of it, although I've never performed the test, > it comes under the purview of a chemistry or radioimmunoassay analysis. [quoted text clipped - 6 lines] > > Hope this helps! Certainly does - thanks!
Nicky.
 Signature A1c 10.5/5.4/<6 T2 DX 05/2004 1g Metformin, 100ug Thyroxine 95/74/72Kg
LizardQueen - 06 Mar 2006 21:34 GMT I'm afraid of the GTT for that very reason - scared that I'll crash so bad that I black out or get sick or whatever. Plus it will trash me for the next 3 days, if the cinnamon heart episode is any indication (about 2 oz of cinnamon candy hearts on an empty stomach sent me from 109 -> 162 -> 111 in 45 minutes).
I'm also scared that if I blow a 200 on it for one early blood pull (even if I'm well under that by the 2 hour mark) that it will be enough to diag me as T2 which I don't want on my record for insurance reasons.
I have been wondering about thyroid, but all Dr. McQuacky (prior one) did was run a TSH which came out fine (.89), not the full thyroid panel that includes the T3 and T4.
I'm going to ask Doc 2.0 about this all on Wednesday.
I'm having a decent afternoon, after a shaky AM. Lunch was a chicken and chickpea salad on lettuce. Tasted like crap :lol: but I had made it in desperation and could easily calculate from the cans involved if it had the 40/30/30 proportions that I would like to stick to. No wheat or dairy in it either. Ate it at 1:15, so far no crash, bg is dead level and I'm not hungry at all, and I only ate a half cup of it.
Whereas this AMs eggs & flax bread breakfast had me shaking at 2 hours and the cottage cheese snack only lasted a half hour.
Looks like it'll be the chickpea salad for breakfast :lol: - anyone have a vomiting emoticon I can borrow?
LQ
Nicky - 07 Mar 2006 12:39 GMT > Looks like it'll be the chickpea salad for breakfast :lol: - anyone > have a vomiting emoticon I can borrow? Ewwww : ) So what's so good about the chickpea salad, then - OK, it's got the right ratios, but is there anything else about it? I'm thinking it's a pretty good mix of fast and slow carbs, with plenty of protein. Fruit, cheese and yoghurt on half a slice of rye might be similar, maybe?
Nicky.
 Signature A1c 10.5/5.4/<6 T2 DX 05/2004 1g Metformin, 100ug Thyroxine 95/74/72Kg
tog - 06 Mar 2006 10:54 GMT Dear LQ,
I hope when you visit the doctor he gives you a thorough examination and a full blood test, including potassium levels etc.
Good luck for Wednesday,
sue
 Signature type2 A1c 5.6/5.8 Metformin1g
>I don't know what's going on, I'm shaking around the clock now. Got > almost no sleep last night because of bouts of the shakes plus night [quoted text clipped - 21 lines] > > LQ Sleepyman - 06 Mar 2006 22:48 GMT >I don't know what's going on, I'm shaking around the clock now. Got >almost no sleep last night because of bouts of the shakes plus night [quoted text clipped - 21 lines] > >LQ I don't know kiddo, I am no doc, but it sounds like something Neurological to me. JMO of course.
Sleepy
------------------------------------------------------------------ It is easier to make a saint out of a libertine than out of a prig. -George Santayana (1863-1952) ------------------------------------------------------------------
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