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Medical Forum / Diseases and Disorders / Diabetes / January 2006

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Pump question

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S Reaves - 23 Jan 2006 19:11 GMT
Hello,

I am new to this group. I have been reading posts and it seams like a
nice mix of type 1 and type 2 posters. Now I have a question about
insulin pumps.

My six year old son was put on the insulin pump the first of last month.
We love it for the most part. But I am having a hard time getting his
basal rate hammered out. I get so close and have a couple of days of
good numbers than BAM he goes high part of the day two days. I adjust
for a week and do it all over again. Or he has a low and I fix that with
just a slight change and than we have highs where the lows were. We work
closely with his endo. They say everything is going good. To keep it up.
Now my question is this... will I be changing basal rates everyday from
now on? And have you had this same problem? About how often do you
change your basal rate. I know that is more than one question. Sorry.
And I know it is different for everyone. Just need a little support from
others who have been there. Thanks
TigerLily - 23 Jan 2006 20:48 GMT
you may want to check with

http://www.childrenwithdiabetes.com/index_cwd.htm
..... they have a section on pumping for children

or

www.insulin-pumpers.org

for more information than we can give you here

there are some pumpers on this board... hopefully
they will chime in soon

kate
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> Hello,
>
[quoted text clipped - 14 lines]
> And I know it is different for everyone. Just need a little support from
> others who have been there. Thanks
David - 23 Jan 2006 23:03 GMT
> Hello,
>
[quoted text clipped - 14 lines]
> And I know it is different for everyone. Just need a little support from
> others who have been there. Thanks

Let me know if you read this message.  if you respond, I'll spend some
time giving you pointers.

dave
David - 24 Jan 2006 02:41 GMT
> Let me know if you read this message.  if you respond, I'll spend some
> time giving you pointers.
>
> dave

I'm glad I didn't waste my time, as you've not responded.

dave
Ma¢k - 24 Jan 2006 00:26 GMT
>Hello,
>
[quoted text clipped - 14 lines]
>And I know it is different for everyone. Just need a little support from
>others who have been there. Thanks

Tig pointed you to http://www.insulin-pumpers.org it's a great
resource for pumpers of all ages.

you don't say how you are making the adjustments.

are you using the advise as stated in the ho to section of the insulin
pumpers web site?  you will see the link to the How to section on the
lower left side of the first page of the site.

which pump are you using?

I was using the minimed 508.  I start using the deltec cozmo tomorrow.

Signature

Mâck©®
Type 1 since 1975
http://www.alt-support-diabetes.org
http://www.diabetic-talk.org
http://www.insulin-pumpers.org

"To announce that there must be no criticism of the
President, or that we are to stand by the President
right or wrong, is not only unpatriotic and servile,
but is morally treasonable to the American public."
...Theodore Roosevelt

        (o o)  
--ooO-(_)-Ooo--------------------

"I don't know half of you
half as well as I should like;
and I like less than half of you
half as well as you deserve."

Jesus never hated anyone.

Vicki Beausoleil - 24 Jan 2006 09:42 GMT
> Hello,
>
[quoted text clipped - 14 lines]
> And I know it is different for everyone. Just need a little support from
> others who have been there. Thanks

It must be tough for a kid - there's more variables than can be counted.
I've been pumping for 2 years and I have been a religous follower of the
information presented on the insulin pumper's website and in the book
"Pumping Insulin" by John Walsh and Ruth Roberts. I also was diagnosed
T1 as an adult, so take my advice with a grain of salt.

The insulin pumper's website will teach you how to test basal rates in a
way that will show exactly how your son's body uses insulin over a 24
hour period. It's rather lengthy and time consuming, but in the long run
it's worth it.

I often have unexplained highs or lows for a short period of time. I
have become adept at using temporary basals for short-term relief. It
could be any number of things that is causing these problems. If the
basal problems don't sort themselves out in a couple of days, or an
obvious reason appears (like illness or a change in exercise) then I
will edit my basal program and test everything all over again. I end up
testing my basal rates at least a couple of times a year, or when
there's a major change in my work or exercise schedule. Exercise is the
biggest variable for me, and using a temporary reduction to offset extra
exercise is the way to go, not making a permanent change in basal rates
unless the change in my environment is permanent.

Work closely with your son's endo. Don't expect the pump to give your
son perfect bgs 24/7 cause it ain't gonna happen. I'm sure you know
that, but I needed to say it. :-)

If you think it's tough now, wait till he hits puberty and the hormones
start kicking in. Make sure your son is involved and explain the hows
and the whys to him. His diabetes control should never become an
unbearable burden, if he stays interested he'll be more likely to have
better control. Try to have him do as much as he can himself.

Vicki
Animas IR1200
Ma¢k - 25 Jan 2006 01:17 GMT
On Tue, 24 Jan 2006 04:42:11 -0500, Vicki Beausoleil
<VBeausoleil@netscape.net> Huffed and Puffed the following into the
madness of usenet:

>> Hello,
>>
[quoted text clipped - 20 lines]
>"Pumping Insulin" by John Walsh and Ruth Roberts. I also was diagnosed
>T1 as an adult, so take my advice with a grain of salt.

There is a teen in my endo's care who is going through puberty and
pumping.  He has damn near perfect control.  He only has a few spikes
and the occasional mild low.

Puberty is the worst time for a type 1 diabetic of either sex.  Before
and after that time, things are not as difficult as you think.
Signature

Mâck©®
Type 1 since 1975
http://www.alt-support-diabetes.org
http://www.diabetic-talk.org
http://www.insulin-pumpers.org

"To announce that there must be no criticism of the
President, or that we are to stand by the President
right or wrong, is not only unpatriotic and servile,
but is morally treasonable to the American public."
...Theodore Roosevelt

        (o o)  
--ooO-(_)-Ooo--------------------

"I don't know half of you
half as well as I should like;
and I like less than half of you
half as well as you deserve."

Jesus never hated anyone.

>
>The insulin pumper's website will teach you how to test basal rates in a
[quoted text clipped - 26 lines]
>Vicki
>Animas IR1200
S Reaves - 27 Jan 2006 12:54 GMT
Hello all,

Sorry it has taken me so long to got back here. We have been struggling
with night time lows. And getting up at 3:00am and waking up a 6 year
old to make him eat three tablets(took almost an hour last night) has me
and him both so tired we fight almost all day!

Dave yes I would like to hear your pointers. And I do come back here and
read these post. Just not as often as I would like. With a 6 year old
that is type 1 I am VERY busy. His school calls me 3 times a day Monday
through Friday. I have been having to call the endo. every other day.
Plus take care of a husband and house. So I can only find time to read
and post a few min. a couple of times a week.

Thank you all for your help! And thank you for letting me know perfect
blood sugars all the time EVERY day is almost impossible. I will still
strive for this. But not beat myself up when it does not happen!

Also thanks for the sight and book info. I am going to go to the sight
and try to find the book. I am a true believer in the more I learn the
better prepared I am.  Just have to say you all are GREAT. Wish I could
give you a great big hug!!
David - 27 Jan 2006 18:10 GMT
> Hello all,
>
[quoted text clipped - 18 lines]
> better prepared I am.  Just have to say you all are GREAT. Wish I could
> give you a great big hug!!

Ok, here we go:

We are only going to discuss ONE thing for now--getting the basal rates
settled down.

The first thing that you must understand is that the pumper will have to
skip a MINIMUM of one meal per day for any time frame that you wish to
nail down the appropriate basal rate, as well as having the pumper go
about the typical activities.  If the activities vary, than make a
mental note of the two extremes in activity level and be prepared to set
up two sets of basal profiles.

The skipped meal(s) allows the pumper to concentrate on getting the
basals set up to provide a constant bg level.  Even someone who has
volatile bg's such as myself can find a basal rate that keeps bg's in
the "normal" range of say, 80-120, indefinitely.  When you eat that
changes everything, so getting the basal rates adjustment means skipping
meals to see how, during a portion of the day, the basal is handling the
 "background" insulin needs of the pumper.  If the basal rate is too
low, adjust it in SMALL increments and test, test, test another day,
skipping the same meal.  Repeat this process for each meal period.
Frequent testing is important during this discovery phase.  Check the
bg's in the middle of the night, too.  It might take several weeks, or
even longer to skip the meals necessary to fine tune the settings.

When it's all dialed in, other factors can turn it all upside down.
Changes in activity.  Eating and bolusing incorrectly.  Illness.  Stress.

No matter what's going on with learning to pump, the most critical bit
of advice I can give is that you MUST GET THE BASAL RATES ADJUSTED
before moving on to fine tune the bolus ratios (carb-to-insulin ratio).
 For example, my ratio is 10:1, meaning for every 10 carbs, I take one
unit of insulin.  Many pumpers will have a lower ratio at breakfast than
the rest of the day due to DP.

That's enough to digest for now.  Please ask for clarifications if you
wish.  Get the Walsh book.  Work with the endo or trainer.

The other issue for pumpers is figuring out a correction bolus, which is
the amount of insulin to take to bring a high bg under control.  That's
expressed as a whole number, like 40.  that would indicate 1 unit would
drop your bg's by 40.  The trick is to realize that it takes upwards of
3 hours for the drop to occur.  don't expect bg's to return to the
desired level in an hour.  If you do, then you'll (the pumper) get hypo
later.  My wife's correction value is around 60 and mine is 38, except
in the middle of the night when it drops to 25, because of the DP.

Enough for now.

dave
 
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