Medical Forum / Diseases and Disorders / Diabetes / January 2006
My ALA search continues
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Trinity - 01 Jan 2006 02:31 GMT I know I can buy ALA on line as you have given me the link to ihealth. But I wanted to see how hard it is to find "offline". No regular pharmacy carries it. GNC & other health store (I've only gone in 2) carry ALA; one carries 200mg & the other carries 300mg, but neither of them are time released. So I may have to go the ihealth route after all. I wasn't about to buy and waste money.
In delving deeper into neuropathy, I cannot sleep on my left side with my head on the pillow. I wake up with my ear in total pain, as if I'm sleeping with it folded (that's what it feels like, but it's not).
Also, apparently I have really bad circulation, as I wake up frequently because my arms are totally asleep. I've tried sleeping with them at my sides, bent, etc....
So I really wonder if ALA will have any affect on these symptoms???
Too bad I cannot find any readily available in any store here.
Trinity
 Signature trinitytype2@nospamyahoo.ca remove nospam dx Oct 2003, Type 2, metformin 500mg/2xday low dose aspirin 3x week walking 30 min/day A1C 5.4 40 lbs lost next goal: gain muscle strength
RK - 01 Jan 2006 03:28 GMT |I know I can buy ALA on line as you have given me the link to ihealth. | But I wanted to see how hard it is to find "offline". No regular [quoted text clipped - 16 lines] | | Trinity Hi Trinity,
Have you tried Evening Primerose yet? If you have and it didn't work either, might be time you discussed it with your doctor. There are meds that will help with diabetic neuropathy. Cymbalta and Lycria a just two of the newest.
Sorry I can't help more, I don't have diabetic neuropathy.
---- RK, T1/pumper/Animas IR1250 Dx 5/2000 - Joined ASD 8/2000 Last A1C - 12.05 (6.3) No diabetic complications to date
Trinity - 01 Jan 2006 03:33 GMT > |I know I can buy ALA on line as you have given me the link to ihealth. > | But I wanted to see how hard it is to find "offline". No regular [quoted text clipped - 31 lines] > Last A1C - 12.05 (6.3) > No diabetic complications to date yes, I'm taking 2000mg per day. That's why I want to see what ALA does if anything. I will discuss at next visit. She'll probably refer me to a neurologist right?
Thanks, Trinity
 Signature trinitytype2@nospamyahoo.ca remove nospam dx Oct 2003, Type 2, metformin 500mg/2xday low dose aspirin 3x week walking 30 min/day A1C 5.4 40 lbs lost next goal: gain muscle strength
RK - 01 Jan 2006 04:05 GMT | > |I know I can buy ALA on line as you have given me the link to ihealth. | > | But I wanted to see how hard it is to find "offline". No regular [quoted text clipped - 38 lines] | Thanks, | Trinity Ouch! Yep, time to move on and get better meds if what you're doing isn't working now. If your diabetic doc is good enough, they should be able to just prescribe the meds for you, some do want you to see a neurologist just to see how much damage has been done, only way to do that is with a EMG.
Have you had other tests done to rule out other problems? Like a pinched nerve? You only mention your neck and arms, I'm just wondering if it isn't something else... many neurological issues can make a person diabetic think they are diabetic related when they aren't. I learned neuropathy isn't limited to diabetics alone.
Best of luck and pls keep us informed.
---- RK, T1/pumper/Animas IR1250 Dx 5/2000 - Joined ASD 8/2000 Last A1C - 12.05 (6.3) No diabetic complications to date
Trinity - 01 Jan 2006 04:56 GMT > | > |I know I can buy ALA on line as you have given me the link to ihealth. > | > | But I wanted to see how hard it is to find "offline". No regular [quoted text clipped - 61 lines] > Last A1C - 12.05 (6.3) > No diabetic complications to date I know that not all symptoms will be caused by diabetes. It's just that since dx, I am starting to really pay attention to my body. Just like the neuropathy in my feet. Until after dx, I had no idea how to even describe the symptoms of my feet. The burning, and the having to take off both shoes up to 10 times a day to try to adjust my socks because of the bunched up feelings. I thought it was just my socks or shoes. Now I know it's the neuropathy.
So yes, maybe I have a pinched nerve or something. I'm just starting to be more aware and see more of a pattern so I have an idea where to start.
Ok, so a confession, maybe the arms falling asleep is because of bad posture in bed. My position is constantly changing with the movement of my 85 lb dog whose head, arse and legs are every which way. I know some of you will say AHA, you must move dog out of bed and problem solved! But I will not do that. Move my "heated" dog "blanket"????? Maybe I'll train her to sleep at my feet so I have more room near my pillow.
anyways, it's 5 min to 2006, so
HAPPY NEW YEAR TO ALL MY ASD FRIENDS!!!!!!!!!! Trinity
 Signature trinitytype2@nospamyahoo.ca remove nospam dx Oct 2003, Type 2, metformin 500mg/2xday low dose aspirin 3x week walking 30 min/day A1C 5.4 40 lbs lost next goal: gain muscle strength
RK - 01 Jan 2006 05:37 GMT | > | > |I know I can buy ALA on line as you have given me the link to ihealth. | > | > | But I wanted to see how hard it is to find "offline". No regular [quoted text clipped - 69 lines] | the bunched up feelings. I thought it was just my socks or shoes. Now I | know it's the neuropathy. Yep, now that snds like neuropathy for sure. See my neuropathy isn't anything like that... that's how I knew it wasn't from DM. I've done the same thing after dx... learned to watch for various signs my body makes telling me things.. before I used to just blow it off and not worry about health issues -- but being diabetic now, I take it all very seriously because everything that goes on with my body does in one way or another effect my glucose readings which if not cared for as well, leaves me open to diabetic complications... and I'm just not going to set myself up for that fall.
I'm sorry you're effected by DPN, hopefully I'll never have to add that to my list of issues.
| So yes, maybe I have a pinched nerve or something. I'm just starting to | be more aware and see more of a pattern so I have an idea where to start. Yes, sometimes taking stock of ailments helps bring perspective to others, which even if it can't be cared for.. least understanding gives comfort in knowing you're not going nuts by imagining things that aren't there.
| Ok, so a confession, maybe the arms falling asleep is because of bad | posture in bed. My position is constantly changing with the movement of | my 85 lb dog whose head, arse and legs are every which way. I know some | of you will say AHA, you must move dog out of bed and problem solved! | But I will not do that. Move my "heated" dog "blanket"????? Maybe I'll | train her to sleep at my feet so I have more room near my pillow. LOL! I'd never suggest removal of the heated doggy blanket! We have 3 dogs and each sleeps with one of us... My sleeping buddy is the 65lb black lab, she's 11mons now -- still growing! and some nights when she flops her head on my arm, I think she's going to break it just from the dead weight.
But you're right, sleeping position is very important. I sleep in a recliner most nights because it's too hard to lay flat for me. Might try a different position or different pillows.
| anyways, it's 5 min to 2006, so | | HAPPY NEW YEAR TO ALL MY ASD FRIENDS!!!!!!!!!! | Trinity Same right back at you...
---- RK, T1/pumper/Animas IR1250 Dx 5/2000 - Joined ASD 8/2000 Last A1C - 12.05 (6.3) No diabetic complications to date
Evelyn Ruut - 01 Jan 2006 14:37 GMT >> | > |I know I can buy ALA on line as you have given me the link to >> ihealth. [quoted text clipped - 93 lines] > HAPPY NEW YEAR TO ALL MY ASD FRIENDS!!!!!!!!!! > Trinity Trinity, about the arm falling asleep problem..... I have a serious problem with that too, because of an injury I just cannot sleep on my right side at all. I need an extra pillow.... one of those U shaped neck pillows, and somehow it prevents my arm being too "scrunched" up.
Also I have a memory foam bed, which has a lot more "give" in it, and prevents pain from lying on one side all the time. When it still happens in spite of all my tricks, I sleep in the recliner for a bit.
Experiment a bit and perhaps a few solutions will come up.
Regards, Evelyn
Trinity - 01 Jan 2006 20:08 GMT >>>| > |I know I can buy ALA on line as you have given me the link to >>>ihealth. [quoted text clipped - 108 lines] > Regards, > Evelyn I'm going to buy a new pillow for one, and we already replaced the bed to a sealy's high quality bed. So yes, I will play around with my position and hopefully a new pillow will help.
Thanks, Trinity
 Signature trinitytype2@nospamyahoo.ca remove nospam dx Oct 2003, Type 2, metformin 500mg/2xday low dose aspirin 3x week walking 30 min/day A1C 5.4 40 lbs lost next goal: gain muscle strength
Loretta Eisenberg - 01 Jan 2006 15:56 GMT Trinity what is ALA.
Loretta
-- In tribute to the United States of America and the State of Israel, two bastions of strength in a world filled with strife and terrorism.
Evelyn Ruut - 01 Jan 2006 16:22 GMT > Trinity what is ALA. > > Loretta She is referring to Alpha Lipoic Acid. I use the Jarrows time release kind.
Regards, Evelyn
Loretta Eisenberg - 01 Jan 2006 17:26 GMT Thanks Evelyn
Loretta
-- In tribute to the United States of America and the State of Israel, two bastions of strength in a world filled with strife and terrorism.
Evelyn Ruut - 01 Jan 2006 18:27 GMT > Thanks Evelyn > > Loretta
:-) Happy New Year, Loretta
Ev
> -- > In tribute to the United States of America and the State > of Israel, two bastions of strength in a world filled with strife and > terrorism. Cheri - 01 Jan 2006 19:01 GMT So do I.
-- Cheri
Evelyn Ruut wrote in message ...
>> Trinity what is ALA. >> [quoted text clipped - 5 lines] >Regards, >Evelyn Trinity - 01 Jan 2006 20:09 GMT > So do I. > [quoted text clipped - 12 lines] >>Regards, >>Evelyn I'm surprised that the "health stores" do not carry the time release kind. I will check out Jarrows.
Thanks, Trinity
 Signature trinitytype2@nospamyahoo.ca remove nospam dx Oct 2003, Type 2, metformin 500mg/2xday low dose aspirin 3x week walking 30 min/day A1C 5.4 40 lbs lost next goal: gain muscle strength
morris - 02 Jan 2006 03:19 GMT I just buy it at Trader Joe' s and "time release" it by spreading the dose over 2-3 times daily.
The last time I googled ALA and Neuropathy, I found a study comparing time-released to capsules not formulated that way. For whatver reason they found that the time-released versions were not as effective. Totally counter-intuitive, and I couldn't figure out why that could possibly be.I've also read that ALA breaks down in the body and becomes ineffective rather quickly, so I am wondering if anyone can construct reasoning that would explain that study's conclusion? You could probably find the same study if you looked, but no, I'm not going to go hunting again for it.
While I did not entirely buy the study's findings, It took it as on okay to continue saving some money using my manual time release method. Seems to work pretty well.
Susan - 02 Jan 2006 03:56 GMT > I just buy it at Trader Joe' s and "time release" it by spreading the > dose over 2-3 times daily. [quoted text clipped - 12 lines] > okay to continue saving some money using my manual time release method. > Seems to work pretty well. I don't know who they were or what they found, but I had not completely satisfactory results til I switched to time released. I do know of other folks, though, who got benefits from the regular stuff.
Susan
Trinity - 01 Jan 2006 19:50 GMT > Trinity what is ALA. > [quoted text clipped - 4 lines] > of Israel, two bastions of strength in a world filled with strife and > terrorism. Alpha Lipoic Acid. Some here have been using it for neuropathy. Cheers, Trinity
 Signature trinitytype2@nospamyahoo.ca remove nospam dx Oct 2003, Type 2, metformin 500mg/2xday low dose aspirin 3x week walking 30 min/day A1C 5.4 40 lbs lost next goal: gain muscle strength
J.C. Hartmann - 01 Jan 2006 03:55 GMT > I know I can buy ALA on line as you have given me the link to ihealth. > But I wanted to see how hard it is to find "offline". No regular [quoted text clipped - 16 lines] > > Trinity Try www.iHERB.com .
Diabetic peripheral neuropathy is usually associated with pain and tingling in the toes first. You may have a form of TGN (trigeminal neuralgia), which is related to the third cranial nerve. It affects the forehead, ear, and upper part of the face. Your numb arms are more likely due to a bad sleeping position or pinched nerve than to DPN.
Only a doctor can tell you for sure.
Jim
Mary - 01 Jan 2006 03:59 GMT Have you talked to an MD about your symptoms? These symptoms can be from problems other than diabetic neuropathy.
Mary
>> I know I can buy ALA on line as you have given me the link to ihealth. >> But I wanted to see how hard it is to find "offline". No regular [quoted text clipped - 28 lines] > > Jim Jenny - 01 Jan 2006 14:06 GMT > In delving deeper into neuropathy, I cannot sleep on my left side with > my head on the pillow. I wake up with my ear in total pain, as if I'm [quoted text clipped - 3 lines] > because my arms are totally asleep. I've tried sleeping with them at my > sides, bent, etc.... Trinity,
While it turns out that pain from pinched nerves is not diabetic neuropathy, it is also true that people with diabetes have a much higher incidence of the pinched nerve syndromes than do people without.
In fact, it is looking like nerve entrapment syndromes including carpal tunnel, tarsal tunnel, and one that you get in the knee whose name I forget, can be early diabetic complications. It has something to do with glycosylation of tendons.
I'm not sure about the neck, but I've developed a similar painful neck problem in the last couple months which is proving hard to cure, added to my existing trapped nerve in the foot problem. The neck pain seems to have started when I began to sit in a "comfy chair" instead of my old, hard rocking chair, when watching football on the tube. A physical therapist told me that soft chairs can be very hard on the neck as can sleeping at night on big fluffy pillows. I've reluctantly given up the comfy chair and I'm hoping I'll see some improvement.
--Jenny
http://www.geocities.com/lottadata4u Diabetes Info
http://www.alt-support-diabetes.org/newlydiagnosed.htm Get Your Blood Sugar Under Control
Chris Malcolm - 09 Jan 2006 15:38 GMT >> In delving deeper into neuropathy, I cannot sleep on my left side with >> my head on the pillow. I wake up with my ear in total pain, as if I'm [quoted text clipped - 5 lines] >> > Trinity,
> While it turns out that pain from pinched nerves is not diabetic > neuropathy, it is also true that people with diabetes have a much higher > incidence of the pinched nerve syndromes than do people without.
> In fact, it is looking like nerve entrapment syndromes including carpal > tunnel, tarsal tunnel, and one that you get in the knee whose name I > forget, can be early diabetic complications. It has something to do with > glycosylation of tendons.
> I'm not sure about the neck, but I've developed a similar painful neck > problem in the last couple months which is proving hard to cure, added [quoted text clipped - 4 lines] > sleeping at night on big fluffy pillows. I've reluctantly given up the > comfy chair and I'm hoping I'll see some improvement. Over Xmas I've been a bit of a slug, eating too much, eating too many carbs, and taking too little exercise. I also got rather depressed by the number of small joint and muscle pains that seemed to be developing into permanent residents, such as in certain finger joints, especially thumbs. I was having to be careful how I approached awkward door knobs and jar tops.
Two days ago in a fit of righteous enthusiasm I cycled for 40 minutes up a lot of steep hills. Not strenuously, I'm too old for strenuous, but slowly, at a walking pace, using my newly acquired very low "granny" gear on my bicycle. It's well established that on that sort of cycle run it takes me about 25 minutes to get properly warmed up, and that at least fifteen minutes of exercising once properly warmed up is needed for me to feel the benefits.
I was delighted to notice a few hours later that most of my minor aches and pains had disappeared. I was disappointed to discover several hours later that I'd developed a few extra aches in the parts that I'd exercised. Two days later, without any further exercise beyond housework, the minor aches and pain are still absent, and the exercise aches have gone too. Although the cycling didn't really exert my hands at all, my hands are now much freer of pain and stiffness, and seem to be a lot stronger, although that may be simply that I'm less scared of hurting them.
I've noticed this effect often before, that bouts of reasonably substantial exercise of more than half an hour's duration often remove minor aches and pains which were not exercised. Or to put it another way, if I subside for too long into an armchair, my whole physiology starts to degenerate in a way that discourages physical effort.
Were I a woman I'd be well past my reproductive age. I sometimes wonder if in our 60s we have reached an age at which death is optional. If you have no particular reason to stay alive, no enthusiasms, you can simply turn your face to the wall, or in these days the TV, and quietly slide towards the coffin. In other words, staying alive and capable takes a bit of effort.
From an evolutionary point of view this seems to be quite a sensible arrangement :-)
 Signature Chris Malcolm cam@infirmatics.ed.ac.uk +44 (0)131 651 3445 DoD #205 IPAB, Informatics, JCMB, King's Buildings, Edinburgh, EH9 3JZ, UK [http://www.dai.ed.ac.uk/homes/cam/]
Susan Adair - 09 Jan 2006 16:50 GMT Chris Malcolm wrote "Were I a woman I'd be well past my reproductive age. I sometimes wonder if in our 60s we have reached an age at which death is optional. If you have no particular reason to stay alive, no enthusiasms, you can simply turn your face to the wall, or in these days the TV, and quietly slide towards the coffin. In other words, staying alive and capable takes a bit of effort."
Yes, Chris, you may be on to something. This is my 60th year; I'm not at the official marker for 6 months or so, but I'm aware, and not really happy with the implications. I've always thought of myself as 'not really showing my age' because people often think I'm about 10 years younger than I am because my hair has not grayed and I have retained what I think of as the grad student attitude. My body knows my age however, as my DM diagnosis, my neck and upper back issuse, my need for more sleep, the general mild muscle and joint aches can all testify. I have less enthusiasm for activity, also, and less interest in going places where there are lots of people to see new things, like art exhibts, musical performances, theatre, big parties, all that sort of thing. Some of this is probably attributable to my accident and the brain injury, but my reading on traumatic brain injury seems to suggest that some of the deficits from damage are similar to changes in the aging brain. This is not good to contemplate.
On the other hand, activiy is good for the body and the brain. It's fine to be reminded of this regularly.
Susan Adair
Susan Adair - 09 Jan 2006 16:56 GMT There's a book you might want to look for, Jenny, Judy Alter - Stretch and Strengthen It has much good information on various mechanical body problems and how to alleviate them, including quite a bit about the neck. I've been giving this attention since I had a very good chiropractic fix of neck and back problems caused by the computer crunch and my incorrect efforts at straightening up. There are some fine neck stretches, and warning of what not to do, and some good shoulder work that go along with the neck.
Susan Adair
Evelyn Ruut - 01 Jan 2006 14:33 GMT >I know I can buy ALA on line as you have given me the link to ihealth. But >I wanted to see how hard it is to find "offline". No regular pharmacy [quoted text clipped - 16 lines] > > Trinity Trinity, I buy mine from The Vitamin Shoppe online and it couldn't be easier or more convenient. I don't even have to leave my house. I get the Jarrows time release and I also buy other supplements from them since they are cheap, have all kinds of special deals, and the delivery is very quick.
I have been to all the various health food stores around here, and trust me in that we have quite a few, but nobody seems to stock the particular products I want. Some things I can get from my local Sam's club, but for the most part the specific items we diabetics need are just not stocked locally and online is the only way to go.
I don't have the link handy, but a quick search should find it for you.
Best Regards, Evelyn
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