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Medical Forum / Diseases and Disorders / Diabetes / January 2006

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My ALA search continues

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Trinity - 01 Jan 2006 02:31 GMT
I know I can buy ALA on line as you have given me the link to ihealth.
But I wanted to see how hard it is to find "offline". No regular
pharmacy carries it. GNC & other health store (I've only gone in 2)
carry ALA; one carries 200mg & the other carries 300mg, but neither of
them are time released. So I may have to go the ihealth route after all.
I wasn't about to buy and waste money.

In delving deeper into neuropathy, I cannot sleep on my left side with
my head on the pillow. I wake up with my ear in total pain, as if I'm
sleeping with it folded (that's what it feels like, but it's not).

Also, apparently I have really bad circulation, as I wake up frequently
because my arms are totally asleep. I've tried sleeping with them at my
sides, bent, etc....

So I really wonder if ALA will have any affect on these symptoms???

Too bad I cannot find any readily available in any store here.

Trinity
Signature

trinitytype2@nospamyahoo.ca
remove nospam
dx Oct 2003, Type 2,
metformin 500mg/2xday
low dose aspirin 3x week
walking 30 min/day
A1C 5.4
40 lbs lost
next goal: gain muscle strength

RK - 01 Jan 2006 03:28 GMT
|I know I can buy ALA on line as you have given me the link to ihealth.
| But I wanted to see how hard it is to find "offline". No regular
[quoted text clipped - 16 lines]
|
| Trinity

Hi Trinity,

Have you tried Evening Primerose yet?  If you have and it didn't work
either, might be time you discussed it with your doctor.  There are meds
that will help with diabetic neuropathy.  Cymbalta and Lycria a just two
of the newest.

Sorry I can't help more, I don't have diabetic neuropathy.

----
RK, T1/pumper/Animas IR1250
Dx 5/2000 - Joined ASD 8/2000
Last A1C - 12.05 (6.3)
No diabetic complications to date
Trinity - 01 Jan 2006 03:33 GMT
> |I know I can buy ALA on line as you have given me the link to ihealth.
> | But I wanted to see how hard it is to find "offline". No regular
[quoted text clipped - 31 lines]
> Last A1C - 12.05 (6.3)
> No diabetic complications to date

yes, I'm taking 2000mg per day. That's why I want to see what ALA does
if anything. I will discuss at next visit. She'll probably refer me to a
neurologist right?

Thanks,
Trinity

Signature

trinitytype2@nospamyahoo.ca
remove nospam
dx Oct 2003, Type 2,
metformin 500mg/2xday
low dose aspirin 3x week
walking 30 min/day
A1C 5.4
40 lbs lost
next goal: gain muscle strength

RK - 01 Jan 2006 04:05 GMT
| > |I know I can buy ALA on line as you have given me the link to ihealth.
| > | But I wanted to see how hard it is to find "offline". No regular
[quoted text clipped - 38 lines]
| Thanks,
| Trinity

Ouch! Yep, time to move on and get better meds if what you're doing isn't
working now.  If your diabetic doc is good enough, they should be able to
just prescribe the meds for you, some do want you to see a neurologist just
to see how much damage has been done, only way to do that is with a EMG.

Have you had other tests done to rule out other problems? Like a pinched
nerve? You only mention your neck and arms, I'm just wondering if it isn't
something else... many neurological issues can make a person diabetic think
they are diabetic related when they aren't.  I learned neuropathy isn't
limited
to diabetics alone.

Best of luck and pls keep us informed.

----
RK, T1/pumper/Animas IR1250
Dx 5/2000 - Joined ASD 8/2000
Last A1C - 12.05 (6.3)
No diabetic complications to date
Trinity - 01 Jan 2006 04:56 GMT
> | > |I know I can buy ALA on line as you have given me the link to ihealth.
> | > | But I wanted to see how hard it is to find "offline". No regular
[quoted text clipped - 61 lines]
> Last A1C - 12.05 (6.3)
> No diabetic complications to date

I know that not all symptoms will be caused by diabetes. It's just that
since dx, I am starting to really pay attention to my body. Just like
the neuropathy in my feet. Until after dx, I had no idea how to even
describe the symptoms of my feet. The burning, and the having to take
off both shoes up to 10 times a day to try to adjust my socks because of
the bunched up feelings. I thought it was just my socks or shoes. Now I
know it's the neuropathy.

So yes, maybe I have a pinched nerve or something. I'm just starting to
be more aware and see more of a pattern so I have an idea where to start.

Ok, so a confession, maybe the arms falling asleep is because of bad
posture in bed. My position is constantly changing with the movement of
my 85 lb dog whose head, arse and legs are every which way. I know some
of you will say AHA, you must move dog out of bed and problem solved!
But I will not do that. Move my "heated" dog "blanket"????? Maybe I'll
train her to sleep at my feet so I have more room near my pillow.

anyways, it's 5 min to 2006, so

HAPPY NEW YEAR TO ALL MY ASD FRIENDS!!!!!!!!!!
Trinity

Signature

trinitytype2@nospamyahoo.ca
remove nospam
dx Oct 2003, Type 2,
metformin 500mg/2xday
low dose aspirin 3x week
walking 30 min/day
A1C 5.4
40 lbs lost
next goal: gain muscle strength

RK - 01 Jan 2006 05:37 GMT
| > | > |I know I can buy ALA on line as you have given me the link to ihealth.
| > | > | But I wanted to see how hard it is to find "offline". No regular
[quoted text clipped - 69 lines]
| the bunched up feelings. I thought it was just my socks or shoes. Now I
| know it's the neuropathy.

Yep, now that snds like neuropathy for sure.  See my neuropathy isn't
anything like that... that's how I knew it wasn't from DM.  I've done the
same thing after dx... learned to watch for various signs my body makes
telling me things.. before I used to just blow it off and not worry about
health issues -- but being diabetic now, I take it all very seriously
because
everything that goes on with my body does in one way or another effect
my glucose readings which if not cared for as well, leaves me open to
diabetic
complications... and I'm just not going to set myself up for that fall.

I'm sorry you're effected by DPN, hopefully I'll never have to add that to
my
list of issues.

| So yes, maybe I have a pinched nerve or something. I'm just starting to
| be more aware and see more of a pattern so I have an idea where to start.

Yes, sometimes taking stock of ailments helps bring perspective to others,
which even if it can't be cared for.. least understanding gives comfort in
knowing
you're not going nuts by imagining things that aren't there.

| Ok, so a confession, maybe the arms falling asleep is because of bad
| posture in bed. My position is constantly changing with the movement of
| my 85 lb dog whose head, arse and legs are every which way. I know some
| of you will say AHA, you must move dog out of bed and problem solved!
| But I will not do that. Move my "heated" dog "blanket"????? Maybe I'll
| train her to sleep at my feet so I have more room near my pillow.

LOL! I'd never suggest removal of the heated doggy blanket! We have 3 dogs
and each sleeps with one of us... My sleeping buddy is the 65lb black lab,
she's
11mons now -- still growing! and some nights when she flops her head on my
arm, I think she's going to break it just from the dead weight.

But you're right, sleeping position is very important.  I sleep in a
recliner most
nights because it's too hard to lay flat for me.  Might try a different
position or
different pillows.

| anyways, it's 5 min to 2006, so
|
| HAPPY NEW YEAR TO ALL MY ASD FRIENDS!!!!!!!!!!
| Trinity

Same right back at you...

----
RK, T1/pumper/Animas IR1250
Dx 5/2000 - Joined ASD 8/2000
Last A1C - 12.05 (6.3)
No diabetic complications to date
Evelyn Ruut - 01 Jan 2006 14:37 GMT
>> | > |I know I can buy ALA on line as you have given me the link to
>> ihealth.
[quoted text clipped - 93 lines]
> HAPPY NEW YEAR TO ALL MY ASD FRIENDS!!!!!!!!!!
> Trinity

Trinity, about the arm falling asleep problem..... I have a serious problem
with that too, because of an injury I just cannot sleep on my right side at
all.   I need an extra pillow.... one of those U shaped neck pillows, and
somehow it prevents my arm being too "scrunched" up.

Also I have a memory foam bed, which has a lot more "give" in it, and
prevents pain from lying on one side all the time.   When it still happens
in spite of all my tricks, I sleep in the recliner for a bit.

Experiment a bit and perhaps a few solutions will come up.

Regards,
Evelyn
Trinity - 01 Jan 2006 20:08 GMT
>>>| > |I know I can buy ALA on line as you have given me the link to
>>>ihealth.
[quoted text clipped - 108 lines]
> Regards,
> Evelyn

I'm going to buy a new pillow for one, and we already replaced the bed
to a sealy's high quality bed. So yes, I will play around with my
position and hopefully a new pillow will help.

Thanks,
Trinity

Signature

trinitytype2@nospamyahoo.ca
remove nospam
dx Oct 2003, Type 2,
metformin 500mg/2xday
low dose aspirin 3x week
walking 30 min/day
A1C 5.4
40 lbs lost
next goal: gain muscle strength

Loretta Eisenberg - 01 Jan 2006 15:56 GMT
Trinity what is ALA.  

Loretta

--
In tribute to the United States of America and the State
of Israel, two bastions of strength in a world filled with strife and
terrorism.
Evelyn Ruut - 01 Jan 2006 16:22 GMT
> Trinity what is ALA.
>
> Loretta

She is referring to Alpha Lipoic Acid.   I use the Jarrows time release
kind.

Regards,
Evelyn
Loretta Eisenberg - 01 Jan 2006 17:26 GMT
Thanks Evelyn

Loretta

--
In tribute to the United States of America and the State
of Israel, two bastions of strength in a world filled with strife and
terrorism.
Evelyn Ruut - 01 Jan 2006 18:27 GMT
> Thanks Evelyn
>
> Loretta

:-)

Happy New Year, Loretta

Ev

> --
> In tribute to the United States of America and the State
> of Israel, two bastions of strength in a world filled with strife and
> terrorism.
Cheri - 01 Jan 2006 19:01 GMT
So do I.

--
Cheri

Evelyn Ruut wrote in message ...

>> Trinity what is ALA.
>>
[quoted text clipped - 5 lines]
>Regards,
>Evelyn
Trinity - 01 Jan 2006 20:09 GMT
> So do I.
>
[quoted text clipped - 12 lines]
>>Regards,
>>Evelyn

I'm surprised that the "health stores" do not carry the time release
kind. I will check out Jarrows.

Thanks,
Trinity

Signature

trinitytype2@nospamyahoo.ca
remove nospam
dx Oct 2003, Type 2,
metformin 500mg/2xday
low dose aspirin 3x week
walking 30 min/day
A1C 5.4
40 lbs lost
next goal: gain muscle strength

morris - 02 Jan 2006 03:19 GMT
I just buy it at Trader Joe' s and "time release" it by spreading the
dose over 2-3 times daily.

The last time I googled ALA and Neuropathy, I found a study comparing
time-released to capsules not formulated that way. For whatver reason
they found that the time-released versions were not as effective.
Totally counter-intuitive, and I couldn't figure out why that could
possibly be.I've also read that ALA breaks down in the body and becomes
ineffective rather quickly, so I am wondering if anyone can construct
reasoning that would explain that study's conclusion? You could
probably find the same study if you looked, but no, I'm not going to go
hunting again for it.

While I did not entirely buy the study's findings, It took it as on
okay to continue saving some money using my manual time release method.
Seems to work pretty well.
Susan - 02 Jan 2006 03:56 GMT
> I just buy it at Trader Joe' s and "time release" it by spreading the
> dose over 2-3 times daily.
[quoted text clipped - 12 lines]
> okay to continue saving some money using my manual time release method.
>  Seems to work pretty well.

I don't know who they were or what they found, but I had not completely
satisfactory results til I switched to time released.  I do know of
other folks, though, who got benefits from the regular stuff.

Susan
Trinity - 01 Jan 2006 19:50 GMT
> Trinity what is ALA.  
>
[quoted text clipped - 4 lines]
> of Israel, two bastions of strength in a world filled with strife and
> terrorism.

Alpha Lipoic Acid. Some here have been using it for neuropathy.
Cheers,
Trinity

Signature

trinitytype2@nospamyahoo.ca
remove nospam
dx Oct 2003, Type 2,
metformin 500mg/2xday
low dose aspirin 3x week
walking 30 min/day
A1C 5.4
40 lbs lost
next goal: gain muscle strength

J.C. Hartmann - 01 Jan 2006 03:55 GMT
> I know I can buy ALA on line as you have given me the link to ihealth.
> But I wanted to see how hard it is to find "offline". No regular
[quoted text clipped - 16 lines]
>
> Trinity

Try www.iHERB.com .

Diabetic peripheral neuropathy is usually associated with pain and
tingling in the toes first. You may have a form of TGN (trigeminal
neuralgia), which is related to the third cranial nerve. It affects the
forehead, ear, and upper part of the face. Your numb arms are more
likely due to a bad sleeping position or pinched nerve than to DPN.

Only a doctor can tell you for sure.

Jim
Mary - 01 Jan 2006 03:59 GMT
Have you talked to an MD about your symptoms?  These symptoms can be
from problems other than diabetic neuropathy.

Mary

>> I know I can buy ALA on line as you have given me the link to ihealth.
>> But I wanted to see how hard it is to find "offline". No regular
[quoted text clipped - 28 lines]
>
> Jim
Jenny - 01 Jan 2006 14:06 GMT
> In delving deeper into neuropathy, I cannot sleep on my left side with
> my head on the pillow. I wake up with my ear in total pain, as if I'm
[quoted text clipped - 3 lines]
> because my arms are totally asleep. I've tried sleeping with them at my
> sides, bent, etc....

Trinity,

While it turns out that pain from pinched nerves is not diabetic
neuropathy, it is also true that people with diabetes have a much higher
incidence of the pinched nerve syndromes than do people without.

In fact, it is looking like nerve entrapment syndromes including carpal
tunnel, tarsal tunnel, and one that you get in the knee whose name I
forget, can be early diabetic complications. It has something to do with
glycosylation of tendons.

I'm not sure about the neck, but I've developed a similar painful neck
problem in the last couple months which is proving hard to cure, added
to my existing trapped nerve in the foot problem. The neck pain seems to
have started when I began to sit in a "comfy chair" instead of my old,
hard rocking chair, when watching football on the tube. A physical
therapist told me that soft chairs can be very hard on the neck as can
sleeping at night on big fluffy pillows. I've reluctantly given up the
comfy chair and I'm hoping I'll see some improvement.

--Jenny

http://www.geocities.com/lottadata4u  Diabetes Info

http://www.alt-support-diabetes.org/newlydiagnosed.htm Get Your Blood
Sugar Under Control
Chris Malcolm - 09 Jan 2006 15:38 GMT
>> In delving deeper into neuropathy, I cannot sleep on my left side with
>> my head on the pillow. I wake up with my ear in total pain, as if I'm
[quoted text clipped - 5 lines]
>>
> Trinity,

> While it turns out that pain from pinched nerves is not diabetic
> neuropathy, it is also true that people with diabetes have a much higher
> incidence of the pinched nerve syndromes than do people without.

> In fact, it is looking like nerve entrapment syndromes including carpal
> tunnel, tarsal tunnel, and one that you get in the knee whose name I
> forget, can be early diabetic complications. It has something to do with
> glycosylation of tendons.

> I'm not sure about the neck, but I've developed a similar painful neck
> problem in the last couple months which is proving hard to cure, added
[quoted text clipped - 4 lines]
> sleeping at night on big fluffy pillows. I've reluctantly given up the
> comfy chair and I'm hoping I'll see some improvement.

Over Xmas I've been a bit of a slug, eating too much, eating too many
carbs, and taking too little exercise. I also got rather depressed by
the number of small joint and muscle pains that seemed to be
developing into permanent residents, such as in certain finger joints,
especially thumbs. I was having to be careful how I approached awkward
door knobs and jar tops.

Two days ago in a fit of righteous enthusiasm I cycled for 40 minutes
up a lot of steep hills. Not strenuously, I'm too old for strenuous,
but slowly, at a walking pace, using my newly acquired very low
"granny" gear on my bicycle. It's well established that on that sort
of cycle run it takes me about 25 minutes to get properly warmed up,
and that at least fifteen minutes of exercising once properly warmed
up is needed for me to feel the benefits.

I was delighted to notice a few hours later that most of my minor
aches and pains had disappeared. I was disappointed to discover
several hours later that I'd developed a few extra aches in the parts
that I'd exercised. Two days later, without any further exercise
beyond housework, the minor aches and pain are still absent, and the
exercise aches have gone too. Although the cycling didn't really exert
my hands at all, my hands are now much freer of pain and stiffness,
and seem to be a lot stronger, although that may be simply that I'm
less scared of hurting them.

I've noticed this effect often before, that bouts of reasonably
substantial exercise of more than half an hour's duration often remove
minor aches and pains which were not exercised. Or to put it another
way, if I subside for too long into an armchair, my whole physiology
starts to degenerate in a way that discourages physical effort.

Were I a woman I'd be well past my reproductive age. I sometimes
wonder if in our 60s we have reached an age at which death is
optional. If you have no particular reason to stay alive, no
enthusiasms, you can simply turn your face to the wall, or in these
days the TV, and quietly slide towards the coffin. In other words,
staying alive and capable takes a bit of effort.

From an evolutionary point of view this seems to be quite a sensible
arrangement :-)

Signature

Chris Malcolm cam@infirmatics.ed.ac.uk +44 (0)131 651 3445 DoD #205
IPAB,  Informatics,  JCMB, King's Buildings, Edinburgh, EH9 3JZ, UK
[http://www.dai.ed.ac.uk/homes/cam/]

Susan Adair - 09 Jan 2006 16:50 GMT
Chris Malcolm wrote
"Were I a woman I'd be well past my reproductive age. I sometimes
wonder if in our 60s we have reached an age at which death is
optional. If you have no particular reason to stay alive, no
enthusiasms, you can simply turn your face to the wall, or in these
days the TV, and quietly slide towards the coffin. In other words,
staying alive and capable takes a bit of effort."

Yes, Chris, you may be on to something.  This is my 60th year; I'm not
at the official marker for 6 months or so, but I'm aware, and not
really happy with the implications.  I've always thought of myself as
'not really showing my age'  because people often think I'm about 10
years younger than I am because my hair has not grayed and I have
retained what I think of  as the grad student attitude.  My body knows
my age however, as my DM diagnosis, my neck and upper back issuse, my
need for more sleep,  the general mild muscle and joint aches can all
testify.   I have less enthusiasm for activity, also, and less interest
in going places where there are lots of people to see new things, like
art exhibts, musical performances, theatre, big parties, all that sort
of thing.  Some of this is probably attributable to my accident and the
brain injury, but my reading on traumatic brain injury seems to suggest
that some of the deficits from damage are similar to changes in the
aging brain.  This is not good to contemplate.

On the other hand, activiy is good for the body and the brain.  It's
fine to be reminded of this regularly.

Susan Adair
Susan Adair - 09 Jan 2006 16:56 GMT
There's a book you might want to look for, Jenny,  Judy Alter - Stretch
and Strengthen
It has much good information on various mechanical body problems and
how to alleviate them, including quite a bit about the neck.  I've been
giving this attention since I had a very good chiropractic fix of neck
and back problems caused by the computer crunch and my incorrect
efforts at straightening up.  There are some fine neck stretches, and
warning of what not to do, and some good shoulder work that go along
with the neck.  

Susan Adair
Evelyn Ruut - 01 Jan 2006 14:33 GMT
>I know I can buy ALA on line as you have given me the link to ihealth. But
>I wanted to see how hard it is to find "offline". No regular pharmacy
[quoted text clipped - 16 lines]
>
> Trinity

Trinity, I buy mine from The Vitamin Shoppe online and it couldn't be easier
or more convenient.   I don't even have to leave my house.   I get the
Jarrows time release and I also buy other supplements from them since they
are cheap, have all kinds of special deals, and the delivery is very quick.

I have been to all the various health food stores around here, and trust me
in that we have quite a few, but nobody seems to stock the particular
products I want.   Some things I can get from my local Sam's club, but for
the most part the specific items we diabetics need are just not stocked
locally and online is the only way to go.

I don't have the link handy, but a quick search should find it for you.

Best Regards,
Evelyn
 
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