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Medical Forum / General / Dentistry / September 2006

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Question about Dentinogenesis Imperfecta

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bobgreen79 - 01 Sep 2006 15:08 GMT
I have a rather advanced case of what was diagnosed as dentinogenesi
imperfecta. I have heard of different treatment options, but from wha
I have heard, it gets extremely expensive.

I do have insurance, but as everybody knows, it only helps just s
much.

I was wondering if anybody knew of someone I could talk to that coul
help me in this situation. Maybe a dental school or something tha
would be interested in an advanced case. The disorder hadnt reall
affected me in the past but is now getting to the point where it i
very painful to eat sometimes. I am only 27 and it really can b
embarrassing.

Any help is GREATLY appreciated

Bob Gree
osiris1741@gmail.co
443-538-230

--
bobgreen7
Steven Bornfeld - 01 Sep 2006 15:16 GMT
> I have a rather advanced case of what was diagnosed as dentinogenesis
> imperfecta. I have heard of different treatment options, but from what
[quoted text clipped - 11 lines]
>
> Any help is GREATLY appreciated!

    Dentinogenesis imperfecta will usually lead to severe loss of tooth
structure by the age of 27 (if not well before).  Yes, treatment is
complex, and usually IMO best handled by a prosthodontic specialist.
You may well find a dental school that would be very happy to treat you
in its prosthodontic training program.
    Fees will be lower than on the outside, but certainly not free.  If you
are near a dental school with a prosthodontic training program, I would
definitely check it out.

Good luck,
Steve

> Bob Green
> osiris1741@gmail.com
> 443-538-2301
bobgreen79 - 01 Sep 2006 18:07 GMT
I have lost much of my tooth structure. I've also lost 3 of my teet
(they kept chipping away). And, funny that you mention it, but I'm 2
years old as well.  I emailed Univeristy of Maryland medical center
They have a program there. Hopefully I'll hear back from them soon

I did have one other question though. Am I looking at dentures? Or d
you think they would go the implant route? Thanks

--
bobgreen7
Steven Bornfeld - 01 Sep 2006 18:24 GMT
> I have lost much of my tooth structure. I've also lost 3 of my teeth
> (they kept chipping away). And, funny that you mention it, but I'm 27
[quoted text clipped - 3 lines]
> I did have one other question though. Am I looking at dentures? Or do
> you think they would go the implant route? Thanks!

    This very much depends.  If the roots are periodontally healthy and you
have enough clinical crown structure (above the gumline) to work with
the prefered route would be crowns.  This can be difficult in situations
such as yours, where the accelerated wear in DI means that besides the
teeth often being worn down to the gumline, this also means that your
jaws have to come closer together in order for your teeth to meet.
    Ideally, a prosthodontist would put you in some kind of interim
appliance--possibly utilizing some kind of bite plate to gradually open
your bite so that crowns of normal dimension could be placed on your
teeth and a normal bite reconstructed.  This is a lot of work, usually
done over a significant length of time.
    Dentures and implants may be options as well, but I would very much
hate to go the denture route in one so young.  It may in fact require a
flexible approach, possibly involving crowns, implants, and perhaps
removable devices as well.  But I'd avoid dentures if at all possible.

Steve
 
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