On May 28, 12:58 pm, "Andrew B. Chung, MD/PhD"
<heartd...@emorycardiology.com> wrote:

can this be corrected/reversed?

like i said.. a year ago, i dont recall ANY of this vascular stuff
happening. not even in november. this stuff started exactly the week
all this heart stuff started happening, and the fall, period... etc.

as for strange blood pressure fluctuations.. thats been going on for a
while (since early 2005) and the feeling of just getting off an
elevator.. and SOB since at least later 2004, early 2005.

my mom was saying today she first remembered me complaining about all
of this about 2-3 months after stopping the birth control pill
completely... and yeah, i remember feeling very strange/different
after that.

i dont think this is PH at all now. all this other sh.t is related and
obviously is.. i mean it all fits the pattern.
but still.. PCOS/mets x causing it all out of the blue like that? at
least the vascular? it was my understanding that  most of these types
of problems develop over a period of time.. usually years.. decades.
but so suddenly like this? id think id have had at least 'some'
vascular sympyoms prior to this. i swear to god, i cant think of
anything prior to december, as far as that goes.  i just remember 2
days after that fall and the onset of this other thing.. coming home
from work, and it was very cold out..and i wasnt wearing any gloves or
anything and driving home. my hands wer elike ice (takes forever the
heat to work in that car and besides. its just a 10 minute drive
home), but when i got inside the house.. the warming reaction in my
hands and fingers was really strange. i cant explain it. id never
really had it happen like that before, except many years ago, playing
around in the snow as a kid and almost getting frostbite and tossing
my hands under really hot water, which wasnt exactly a good idea, LOL>
but yeah it felt extreme like that and they felt pretty strange the
rest of the night. so much so, i mentioned something to my mom. they
looked a normal color and the capillary refill seemed normal. just the
feeling.. like the nerves.. or something. but they never responded in
this extreme type of way before. of course when the fingers warm up
from the cold, you're gonna feel stuff like that, but this was way
different.    and throghout my life, ive been very known to have some
of the best circulation and veins..
but within a matter of a couple weeks.. they even started looking all
different. not just little areas here and there.. im talking about
widespread vein appearance changes. they dont 'look' as strong and
healthy as they did before.
for the first time in my life that week, i was feeling like i had all
my blood drained and fingers going numb for no reason and toes. even
my face. that really scared me. then 3 weeks or so later.. a lot of
that subsided and my fingers and everything seemed somewhat back to
normal. i wasnt having any problem doing anything, but i still noticed
a difference. it was like my body was changing before my eyes, for
some unknown reason. and not just seieng i, but you just feel like ..
inside everythings just not working right. even feeling like sh.t all
the time from my auto-immune problems and the PCOS.. id never felt
this way before. this was soemthing o a whole other new category and
even despite feeling 'sick' before all that, i still felt 'healthy'
and 'together'... and strong.

one thing that came back to me was.. back in high school.. after
having a really really bad flu and a bad period.. (may 2000), and id
had an odd episode upon waking up, of really ow blood pressure..
definite blue coloring in my face and around my lips. felt like i was
gonna pass out. id NEVER felt that way in my life. i felt like id been
drugged. i got up that morning to go to school and felt really..
really washed out and strange. not just from the flu.
i jump in the shower.. and i start seeing spots and my arms had a blue
tint to them. i thought.. oh its just the flu.. (how stupid was
that?!?!) and like my heart was trying to over-compromise for the lack
of a freekin blood flow, and id currently had been on amoxicillin for
the flu, and i dont recall taking any of my cold meds that morning...
maybe the night before.. a regular sudafed... but anyways, i felt like
sh.t and i couldnt take off from school.
so later that morning, im sitting in class.. blow my nose and all of
the sudden i feel this hot rush in what feels like my stomach and it
progresses and feels like im about to combust from within. started
sweating and like my skin was burning... i turned blood red and felt
it move all the way to my head, heart racing, skin tingling,.. like
some really, really acute.. fever rush. i felt like i needed to get
some water, right away but couldnt get up. id had my head down on the
desk and refused to even move. after about 5 mins, it subsided and i
thought i was gonna vomit, but nothing happened. and the rest of the
day, everyone said i looked drunk and totally washed out. i went to
the nurse and they refused to even send me home, but... something was
NOT right. i felt kinda better after this little 'attack', but still
felt like id been thru a war inside my body. needless to say, after
that i stopped taking the antibiotic and th sudafed, just in case.
tho, id never ever had a reaction like that to either drug before. so,
i dont think thats what that was.

there'd been a couple other odd little things from before i was on the
pill, but ive mentioned those already. but, those were all tied into
around when i had my period.

im wondering.. if, like i was saying before.. that my vascular and
nervous system are reacting to some strange chemical or hormonal
imbalance.. more of an acute type.

as for my leg.. that things acting up like hell the last day or two.
not sure if its from the heat or what. started hurting and 'itching'
kind of inside and outside and started looking swollen again (though
the pouchy thing never goes away), and i was walking around lastnight
and looked down at my leg and see a little knot in the vein next to my
leg bone, and it looked like a faint bruise... and i touched it and i
could feel it. felt like my moms messed up vein bulges. freaked me
out. id never had that before either. its been feeling more odd.. ever
since i had my period a week and a half or so ago.. but this knot
thing really creeped me out.

i just dont know how the heck to bring allt his up to the doctors..
my current one, i think.. believes im a quack now.
i dont even know where to begin with what tests would need to be done,
theres just too many to be done.. and the doctors wont bring it up
themselves, so i have to, and when i do, they act like there is no
need and start this whole fight about it. even despite the physical
evidence. god forbid a patient suggests certain things.

Cushing's syndrome is neither normal nor common.

Someone with Cushing's syndrome will likely have physical exam
findings suggestive of that diagnosis.

May GOD bless you in HIS mighty way.

Prayerfully in Jesus' awesome love,

Andrew <><
--
Andrew B. Chung, MD/PhD
http://EmoryCardiology.com

"Unlike the 2PD-OMER Approach, weight loss diets can't be combined
with well-balanced diets."
http://HeartMDPhD.com/Love/TheTruth

hey susan,

yeah, they checked me for Cushings back when i was first diagnosed,
but they ruled that out (then.)
however.. my cortisol was 'normal', however it was about 2 numbers
above the highest normal number interval.
my doctor then had an ultrasound done on my kidneys and adrenals to
make sure there were no tumors or any other abnormalities and
everything was supposedly normal. but as for that, i havent had that
checked since. ya better bet i'll be mentioning this again to my new
endo.
because i think something may have been 'overlooked' back then.