Paralyzed Diaphragm

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buggsar - 23 Feb 2005 21:15 GMT

My husband was diagnosed with the left side of his diaphram paralyzed.
It has been four years and we still do not know whether it was the
infection that got in his thumb after the doctor operated or the tick
fever he had 6 months later that caused it,It does not really matter
what caused it I guess but my question is.Now his air way in his throat
closes like someone has him held by the throat and he can barely
breathe. We have had every test run that his doctors have ordered and
no one can tell us where to go next. He says he can deal with less air
caused by the paralys but what or where do we go to find out what is
causing his throat to close????? We have run allergy ,, asthma ,, and
heart// broncosopys barium swallow tests you name it and no one is
addressing his inability to breathe. Does anyone out there know where I
should take him now. His throat closing is getting worse.Hope someone
can help us. Thanks

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William Wagner - 23 Feb 2005 21:45 GMT

> My husband was diagnosed with the left side of his diaphram paralyzed.
> It has been four years and we still do not know whether it was the
[quoted text clipped - 10 lines]
> should take him now. His throat closing is getting worse.Hope someone
> can help us. Thanks

I?m no doctor but I?d look into a backup. Some sort of option to
provide another airway in time. Perhaps permanent , perhaps for
emergency. I worked with a chemist whose tongue would swell and cause
problems. His health issue was resolved in time with drugs for sever
episodes . Hope it goes well!

Bill

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Susan - 23 Feb 2005 23:16 GMT

Has he had aggressive testing and treatment for for all possible tick
borne diseases? Dog ticks can cause paralysis, deer tick infections
affect the central nervous system.

Lots of chronic tick borne disease patients report difficulty with the
swallowing reflex, and I've had awkwardness, though not paralysis, of my
own at times in the past.

Susan

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Andrew B. Chung, MD/PhD - 24 Feb 2005 00:31 GMT

> My husband was diagnosed with the left side of his diaphram paralyzed.
> It has been four years and we still do not know whether it was the
[quoted text clipped - 9 lines]
> addressing his inability to breathe. Does anyone out there know where I
> should take him now. His throat closing is getting worse.

Would suggest you ask his doctor(s) to check a C1 esterase inhibitor
activity level. If this is low, it may mean that the problem is
angioedema (Hereditary Angioedema). This condition is treatable once
diagnosed.

>Hope someone
> can help us. Thanks

You are welcome :-)

At His service,

Andrew

--
Andrew B. Chung, MD/PhD
Board-Certified Cardiologist

**
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Terrence Chun, MD - 24 Feb 2005 05:53 GMT

>> My husband was diagnosed with the left side of his diaphram paralyzed.
>> It has been four years and we still do not know whether it was the
[quoted text clipped - 14 lines]
> angioedema (Hereditary Angioedema). This condition is treatable once
> diagnosed.

And if nothing else pans out, there is also the possibility of a diaphragmatic pacer.

- TC, md
Pediatric cardiology, pacing & electrophysiology

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