>> I do have high C-Reactive Protien for long time, but also have lupus,
>> sjogrens, and some other stuff to deal with too, but this new thing
[quoted text clipped - 10 lines]
>
> You would have to experience syncope (pass out) first.
While syncope is one of the symptoms associated with the long QT syndrome, it is not
necessary for the diagnosis. The length of the QTc itself does not define it as LQTS,
either.
The long QT syndrome is an inherited genetic disorder that is associated with
symptoms such as seizures, syncope, heart arrhythmias, and sudden death. Using
the diagnosis of "long QT syndrome" has serious implications for a patient in that once
it has been given, it is very hard to "un-give" it.
Prolongation can occur due to metabolic/electrolyte abnormalities, brain injury, or from
taking certain medications.
Normal individuals can also have a QTc interval that falls in the "prolonged" range, but is
still acceptably normal.
If there is any question about whether you have the long QT syndrome, your cardiologist
can use certain tests to raise or lower their level of suspicion for carrying the disorder.
Much of their level of suspicion will also be determined just by asking about your and
your family's history. The only "definitive" (but far from perfect) method is genetic
testing. However, currently there are only about 5 or 6 centers in the world that perform
the testing.
Hope this helps.
- TC, md
Pediatric cardiology, pacing and electrophysiology
Dr. Andrew B. Chung, MD/PhD - 30 Sep 2004 12:41 GMT
> >> I do have high C-Reactive Protien for long time, but also have lupus,
> >> sjogrens, and some other stuff to deal with too, but this new thing
[quoted text clipped - 13 lines]
> While syncope is one of the symptoms associated with the long QT syndrome, it is not
> necessary for the diagnosis.
Correct.
> The length of the QTc itself does not define it as LQTS,
> either.
Correct.
> The long QT syndrome is an inherited genetic disorder that is associated with
> symptoms such as seizures, syncope, heart arrhythmias, and sudden death. Using
> the diagnosis of "long QT syndrome" has serious implications for a patient in that once
> it has been given, it is very hard to "un-give" it.
Correct.
> Prolongation can occur due to metabolic/electrolyte abnormalities, brain injury, or from
> taking certain medications.
Correct.
> Normal individuals can also have a QTc interval that falls in the "prolonged" range, but is
> still acceptably normal.
[quoted text clipped - 3 lines]
> Much of their level of suspicion will also be determined just by asking about your and
> your family's history.
Yes, history of symptoms is what leads to the diagnosis.
Without a history of symptoms either in patient or his/her family, there
is not much motivation for further work-up.
> The only "definitive" (but far from perfect) method is genetic
> testing. However, currently there are only about 5 or 6 centers in the world that perform
> the testing.
Correct.
> Hope this helps.
Thank you for contributing both here and elsewhere, Terrence.
Servant to the humblest person in the universe,
Andrew
--
Dr. Andrew B. Chung, MD/PhD
Board-Certified Cardiologist
http://www.heartmdphd.com/
**
Who is the humblest person in the universe?
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zswbisns@hotmail.com - 30 Sep 2004 15:30 GMT
> >> I do have high C-Reactive Protien for long time, but also have lupus,
> >> sjogrens, and some other stuff to deal with too, but this new thing
[quoted text clipped - 37 lines]
> - TC, md
> Pediatric cardiology, pacing and electrophysiology
Yes, thank you, all the info helps, there have been several sudden
heart attacks on both maternal and paternal family member.
Time and more testing will be in my future.
Thank you for your response.
Aquery