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Medical Forum / Diseases and Disorders / Cancer / April 2005

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Asymptomatic Myeloma

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Ron Koffler - 06 Apr 2005 21:09 GMT
Hello busy bustling world

I have asymptomatic myeloma but I feel very tired and lethargic with no
pain. I am vy vy tired but haematologist and other docs  put this down to my
age (75) but I never felt this tired before Myeloma ( diagnosed July 04 and
symptoms started Feb 04). It all  happened suddenly after a wonderful 7 week
trip to Tucson  Arizona. Any one in my  position or any helpful comments
from anyone  will be much appreciated. Perplexed North Wales  Ron Koffler
J - 08 Apr 2005 17:35 GMT
> Hello busy bustling world
>
[quoted text clipped - 4 lines]
> trip to Tucson  Arizona. Any one in my  position or any helpful comments
> from anyone  will be much appreciated. Perplexed North Wales  Ron Koffler

Ron, excessive fatiqiue comes with Myeloma
Some websites distinguish between fatigue and tiredness. I assume with fatigue,
a person does not feel refreshed after sleep and with tiredness they do feel
refreshed, but get tireder the more they do.

This UK website describes some of the symptoms
http://www.cancerbacup.org.uk/Cancertype/Myeloma/Causesdiagnosis/Symptoms
I think the above website has a phone number that a person can call to ask
questions.

Myeloma and fatique http://www.myeloma.org.uk/pdf/19%20Fatigue%20July%202004.pdf
(acrobat file format)

This US one shows more (mentions of causes of fatigue in Myeloma) and risks to
organs (iincluding the heart).
http://www.multiplemyeloma.org/about_myeloma/2.04.html

I wonder if they call myeloma "asymptomatic" if there's no pain and bleeding?
(and in particular in the older population).
I wonder if  they don't treat myeloma in UK in the older population or if
there's thought to be co-existing morbitites (ie other serious health problems)
or if the treatments are thought to be more risky than the good that it would
do?

There's also a private ACOR mail list which can be joined. Join, then once they
confirm to you by email, that you're joined, send a message and ask them there
is there's any older gents from UK and how they deal with the fatigue. An/or
what treatments they're getting
http://www.acor.org/mailing.html?l=m (click on myeloma, then instructions on how
to join will show up)

There can be other (co-existing) causes of tiredness too.
a) heart-related
2) sleep apnea which is treatable with a CPAP machine (wake up tired and
sometimes headache)
3) other anemias such as B12 (sublinqual or injections are given)
4) low thyroid
probably more...
Talk to your family phusician about some screenings and your treatment protocol
or how the fatigue can be ameliorated.
PS Don't just add thyroid hormone, if you don't have a thyroid problem. It can
be dangerous for the heart too (too low or too high TSH)..so again work with
your doctor.

Hope this helps.
J-not a doctor.
 
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