Dear Friends,
I have been following this newsgroup for a little over three years and
have found it to be an important part of my prostate history.
I feel that I know so many of you personally and value your knowledge
and help.
Well, here I am again seeking your advice and or input.
In January 2001 I had RRP. After that time my PSA was undetectable
at.001 until October,2003 . In October my PSA started to rise to .15,
the next test was four weeks later in
November, PSA was then .175. Recent test first week in February which
is about ten weeks later results were .198.
Doc said that I should have test again in four weeks so that we could
gain a good estimate of increasing time. Does this seem reasonable?
At what point does one decide on radiation ?
What is involved?
This may be a difficult question but I am a bit confused....where do the
cells go?? Am I risking the cells spreading by waiting another four
weeks? I am 72 years old and have heard that when you are older that
the cancer grows slowly..is that a fact?
Any and all responses will be greatly appreciated. Needless to say I am
anxious and worried.
Thanks to all.
Good health to all.
Marty from Boston
Beverley - 06 Feb 2004 04:56 GMT
Marty take a copy of those PSA results and head over to your friendly
radiologist or radiation-oncologist. Why wait? You aren't 92 with one foot
on the banana peel. Hopefully they can nail it now while it is still in the
pelvic floor. You could have one or two renegade cells that have slipped
beyond the pelvic floor or they might all still be contained therein. Why
give those darn things the opportunity to go someplace else? Kill them now
while you can.
Bev
> Dear Friends,
> I have been following this newsgroup for a little over three years and
[quoted text clipped - 24 lines]
>
> Marty from Boston
c palmer - 06 Feb 2004 07:42 GMT
hi marty - don't go making any reservations with the undertaker yet. he
may die long before hand waiting for you.
i'm serious. you've got a long, long way to go before it gets that bad.
i know what you have said in your post doesn't look good, but you're
getting to the point you need to take a trip to see the radiation boys.
there, they will zap the bad germs and off you go again.
this is what is nice about having the RP. the radiation card can be
played without much fear on radiation damage. then your psa will go
back to undetectable and hopefully stay there for a long, long, long
time.
to which, the undertaker isn't getting your business because you are
having too much fun enjoying life. :)
knowledge is power - growing old is mandatory - growing wise is optional
Steve Kramer - 06 Feb 2004 11:45 GMT
Geez, Marty! Tell him to do the math! I've got more to say about this, but
I'm rushed for time. I'll be back this afternoon.

Signature
Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA .1 .1 .1 .3 .4 .8
EBRT 05-07/2002 @ 47
PSA .3 .2 .2 .2 .3
Erection 05/12/2003 @ 48
HTbegins 07/21/2003 @ 48
PSA .1
Lupron 7/03, 8/03, 12/03
> Dear Friends,
> I have been following this newsgroup for a little over three years and
[quoted text clipped - 24 lines]
>
> Marty from Boston
Leonard Evens - 06 Feb 2004 15:24 GMT
> Dear Friends,
> I have been following this newsgroup for a little over three years and
[quoted text clipped - 9 lines]
> Doc said that I should have test again in four weeks so that we could
> gain a good estimate of increasing time. Does this seem reasonable?
Patrcik Walsh, in guide to Surviving Prostate Cancer, has some
information about this. The Gleason score, which you didn't mention,
and other factors affect the likelihood that the recurrence is local, in
which case radiation may still be able to cure it. He also says that
one study showed that delaying radiation in such cases didn't affect the
outcome much. One thing you do have going for you is that your PSA
increase took more than two years to occur. So even if the cancer has
spread to distant sites, it is likely that you have a long period ahead
without symptoms of metastasis even without treatment. Right now your
doctor is trying to determine the doubling time. From the figures you
give, it seems to be around 10 months, but more another test might pin
it down. The doubling time is sometimes helpful in deciding what to do
next.
You should study everything that Walsh says, but also remember that as a
layman, you may not be able to interpret it as it applies to your case.
Also, some of these things change with new research. In the end you
have to rely on professional advice. If you aren't satisfied with what
your doctor tells you, you should seek second opinions from qualified
professionals.
> At what point does one decide on radiation ?
> What is involved?
[quoted text clipped - 11 lines]
> Marty from Boston
>
Alan Meyer - 06 Feb 2004 18:38 GMT
> Dear Friends,
> I have been following this newsgroup for a little over three years and
[quoted text clipped - 18 lines]
> Any and all responses will be greatly appreciated. Needless to say I am
> anxious and worried.
I also suggest a visit to a radiation oncologist. Ask about how they
can tell if radiation will likely work. Ask about hormones or other
therapies given along with radiation.
I also suggest to everyone that they investigate clinical trials.
I entered a trial at the National Cancer Institute. Apart from the
excellent treatment I got, I also got excellent diagnostic work.
They did many more tests than my HMO did and were able to
tell me more about my cancer than the HMO urologist. For
example, they did a bone scan, CT scan, and some very high
resolution MRI scans in which they were able to show me the
actual tumor and pinpoint spots outside the tumor that might
show metastasis on the MRI image. In my case they were
clear. But had there been significant tumors there, they might
have shown up on the scans and perhaps been able to
pinpoint the radiation to those areas.
You may not qualify for any clinical trials near you, but I think
it's worth inquiring.
Alan