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Medical Forum / Diseases and Disorders / Prostate Cancer / March 2004

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"Dry" orgasms

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Doug Taylor - 07 Feb 2004 04:17 GMT
I've read many posts in this n.g. about incontinence, E.D., viagra, etc.,
but not much about dry orgasms.

I'm approaching a year post IMRT treatment, and the good news is I'm totally
continent and can achieve a decent erection. The bad news is that the "dry"
(meaning whatever that paltry clear fluid is that comes out is) orgasm I get
lasts about a nanosecond and feels about as good as a sneeze. Check that -
I've had plenty of sneezes that were much more satisfying. More like
scratching an itch.  Definitely NOT bells and whistles

I mentioned previously that I sometimes smoke pot to boost the libido, and
that does act as a true aphrodisiac and helps make sex pleasurable.
Otherwise, the only satisfaction I get is the vicarious thrill of pleasing
my wife. Maybe it's payback for mis-spent youth when I got my rocks off and
fell asleep leaving a frustrated partner awake.

So, anybody else have blah experiences with dry orgasms?
gourd_dancer - 07 Feb 2004 04:11 GMT
Sorry, Doug, I can only say more intense after seeds and IMRT.....

Mike
> I've read many posts in this n.g. about incontinence, E.D., viagra, etc.,
> but not much about dry orgasms.
[quoted text clipped - 13 lines]
>
> So, anybody else have blah experiences with dry orgasms?
Keith Lundy - 07 Feb 2004 15:05 GMT
Doug...if the radiation destroys all the glandular tissue (cells) in the
prostate gland, it destroys the ablity to produce ejaculate...it would
make sense ten that if you have ejaculate then you have glandular cells
remaining...if you have glandular cells remaining they MAY carry the
same prostate cancer or could have new prostate cancer at some
time...radiation oncologist will tell you that the small amounts of
ejaculate produced after treatment might change slightly into a clearer
stream and reduce but they don't expect any to be present at all....we
must be thankful for not having the incontinence problem as well as
being able to have an erecton at all.

Keith Lundy/So. California
40 Proton Beam Radiation Treatments
Loma Linda  Univ.Med Ctr..3/03-5/03
Bob Oaks - 07 Feb 2004 15:42 GMT
> Doug...if the radiation destroys all the glandular tissue (cells) in the
> prostate gland, it destroys the ablity to produce ejaculate...it would
[quoted text clipped - 10 lines]
> 40 Proton Beam Radiation Treatments
> Loma Linda  Univ.Med Ctr..3/03-5/03

This is interesting because when I had my one month followup yesterday, I
got a slightly different story from my oncolonogist.  I have a pretty good
amount of ejaculate (clear).  I assumed this would gradually decrease over
time to nothing, but he said (or at least I think he said) that at this
point, it would not get much worse.  I thought the seeds would destroy the
entire prostate, but he said the goal was to destroy the cancer and leave as
much healthy prostate as possible.  Did I misunderstand him?  I was a little
surprised by this, but thankful as long as it works in destroying the
cancer!
Keith Lundy - 07 Feb 2004 16:59 GMT
I had large amounts of ejaculate when I was where you are last May....I
have noticed a radical decrease to a dribble since then...

Keith Lundy/So. California
40 Proton Beam Radiation Treatments
Loma Linda  Univ.Med Ctr..3/03-5/03
Doug Taylor - 09 Feb 2004 01:24 GMT
> I had large amounts of ejaculate when I was where you are last May....I
> have noticed a radical decrease to a dribble since then...

This is my experience as well, and it is this dribble that I have the
problem with.  As the ejaculate continues to decrease, the orgasm becomes
increasingly quicker and decreasingly intense because (at least this is how
it feels to me) there is not much stuff to pump.

But I suppose we are all different and experience everything uniquely and
subjectively; otherwise there wouldn't be 10 responses to the original post
all over the map.

Anyhow, I'm continent and can get an erection much as before, so for that
I'm thankful.
MH - 07 Feb 2004 05:22 GMT
Well, Doug.... at least you can get a decent erection.  That's more than
some of us can do.  I can reach an orgasm without the erection... but, as
you say, it's not what it was before.  It's nice... but it takes so much
work to get there.... sometimes I just wonder why I bothered.  Blah, indeed!

MikeH <who misses the feeling of an erection>

> I've read many posts in this n.g. about incontinence, E.D., viagra, etc.,
> but not much about dry orgasms.
[quoted text clipped - 13 lines]
>
> So, anybody else have blah experiences with dry orgasms?
Steve Kramer - 07 Feb 2004 13:30 GMT
All orgasms are dry after RRP.  I just assumed they were dry after radiation
too.

I've never had nanosecond orgasms before or after RRP.

Signature

Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA  .1  .1  .1  .3  .4  .8
EBRT 05-07/2002 @ 47
PSA  .3 .2  .2  .2 .3
Erection 05/12/2003 @ 48
HTbegins 07/21/2003 @ 48
PSA  .1
Lupron 7/03, 8/03, 12/03

> I've read many posts in this n.g. about incontinence, E.D., viagra, etc.,
> but not much about dry orgasms.
[quoted text clipped - 13 lines]
>
> So, anybody else have blah experiences with dry orgasms?
Leonard Evens - 07 Feb 2004 15:55 GMT
> I've read many posts in this n.g. about incontinence, E.D., viagra, etc.,
> but not much about dry orgasms.
[quoted text clipped - 13 lines]
>
> So, anybody else have blah experiences with dry orgasms?

I don't think the decrease in intensity of the orgasm is a function of
whether it is wet or dry.   As we are always reminded, orgasm takes
place in the brain.   Undoubtedly, changes in the local area and the way
your mind/body reacts to them will have an effect.   Also, anxiety about
how things will work out may have an effect.  Some experimentation about
how you go about it may help, or just the passage of time may make a
difference.
Wakeley Purple - 07 Feb 2004 21:07 GMT
> So, anybody else have blah experiences with dry orgasms?

It's definitely not the same, but not "blah" for me. I'm not complaining,
since I'm only a month post-op, and consider myself lucky to have anything
at all.

What I think is missing is the intense pre-ejaculation "ache" of what I
always assumed was the gland producing the fluid, something like the way
salivary glands feel when you're really hungry and eat something.

While we're on the R-rated side of the forum, I've been interested how much
I'm noticing that the mental part of arousal is really important. I'm much
more likely to get an erection doing foreplay stuff with the wife than by
physical manipulation, which barely works at all.

Signature

Wake

PSA 3.8, 11/2003 @58yrs
Biopsy positive 5% in 1 of 10 cores
T1c Gleason 3+3
RRP 1/12/04
Pathology agreed with biopsy + Negative margins
Erection 1/30/04

David S - 08 Feb 2004 02:22 GMT
   At first my experience was exactly the same as yours.  Don't blink or
you will miss it.  After a few weeks/months the intensity did get better,
but it is definitely not the same as before (no erections by the way).
Also, at least in my case, it literally takes over an hour of stimulation to
produce an orgasm.  Also, it is my experience that the pleasurable feeling
in the penis is not anywhere near what it was before the surgery.  When I
had my annual physical with my internist a couple weeks ago he told me that
this was not normal and that I needed to see the urologist again.  If work
ever calms down some I will do that, but I am not sure what he can do about
it?
   Good luck to you.
   Thank you.
David S.

> I've read many posts in this n.g. about incontinence, E.D., viagra, etc.,
> but not much about dry orgasms.
[quoted text clipped - 13 lines]
>
> So, anybody else have blah experiences with dry orgasms?
Robert Austin - 08 Feb 2004 05:03 GMT
Hello all -

I opted for cyro surgery, which in the surgeons words were, "I turned
that sucker into a ball of ice, so there are no nerves left.
Evidently he did a good job of it, because nothing works for me other
than the pump and I've tried everything except muse.

Now on the positive side:  For the first few months there was not much
to be said for the orgasms.  This quite rapidly changed until I'm back
to normal.

Don't try to analyze the situation to much, that could only add to the
problem.

Bob Austin

Age 74
PSA 7 Free PSA 12
1st round of biopsies clear, 2nd. 2 positives
Gleason 9
Cryosurgery 03/11/03
Post Op PSA's .04 & .01
RobertBob.Austin@NoSpam.Att.Net
Beverley - 08 Feb 2004 06:23 GMT
You're trying too hard. Just relax. And maybe don't use anything
(alcohol/pot) because sometimes things like that can actually backfire and
cause you to not have the same sensations. I'm going to say it's not like
being 25 again. It's going to be different. We've had lots of blah
experiences but there have also been so very good ones. Talk to your partner
and explain what you are feeling or rather not feeling. I think a willing
partner makes a big difference. Just try to not think about it so much and
just enjoy the sensation. Don't worry about feeling an orgasm. If it
happens - great, if it doesn't then try again later.
Bev

> I've read many posts in this n.g. about incontinence, E.D., viagra, etc.,
> but not much about dry orgasms.
[quoted text clipped - 13 lines]
>
> So, anybody else have blah experiences with dry orgasms?
Outlivecancer - 08 Feb 2004 13:39 GMT
ok it has been 6 monthes and viagra gives me a little nonstuffable orgasm.Since
I am testing"undectable"and continent I am trying to be patient as it can take
another 2 years.And feel lucky,also uros can do alot.I also still have soreness
where the urethra was slit for catheter and discovered I had arthriitis
emphasyma and GERD.Ahhh well patience this recovery thing is 3 yards and a
cloud of dust.
pennskeCT - 11 Feb 2004 20:15 GMT
patience after being patients is tough..

but i've read a few posts of success after 2+ years and used that to
foster hope. i had a seral nerve graft - no nerves spared. for 2 years
nothing (except with caverject), now levistra and viagra are resulting
in (in the words of one of the previous posters) a "stuffable"
product.
and orgasms are different post RRP, and not just the dry element.

Bill Penn, born April 56
Sept 2001: No symptoms, unit functions working well.
Fitness - running / biking 6 days a week. 5'10.5", 170 lbs
Trail marathon 15 months earlier.
09/01   Routine Physical  - PSA  8.0, DRE negative
10/01   Follow-up  - PSA  9.2, f PSA - 6%, DRE negative  
11/01   DRE positive, TURP, seven cores,  
11/13/01  Diagnosed, T2c, Gleason 8 (4+4), RP recommended
12/01  Second Opinion (uro), DRE postive, confirmed diagnosis,
treatmetn alternatives
12/01  Third opinion (radiation oncologist), DRE postive, confirmed
diagnosis, recommended RP
01/14/2002    RRP & seral nerve transplant (by second opinion
urologist), lymph nodes & margins negative, Gleason 7 (4+3)
Post-RRP PSA -
    03/02  -  ND (<0.1)
    09/02  -  ND (<0.1),
    04/03  -  ND (<0.1)
    09/03  -  0.03
    03/04  -  TBD....

> ok it has been 6 monthes and viagra gives me a little nonstuffable orgasm.Since
> I am testing"undectable"and continent I am trying to be patient as it can take
> another 2 years.And feel lucky,also uros can do alot.I also still have soreness
> where the urethra was slit for catheter and discovered I had arthriitis
> emphasyma and GERD.Ahhh well patience this recovery thing is 3 yards and a
> cloud of dust.
c palmer - 14 Feb 2004 02:43 GMT
hi folks - i was going to address this when i got back from the cruise
and the wife went to the hospital, so i didn't get the chance.

i had a very intense talk with my surgeon about this very subject and
what everyone is describing is along the same lines as to what we are
facing as a group - regardless of the type of treatment.  

i, too, echo the same feelings as everyone else.  definitely not the
same.

so, with that said, i put the surgeon on the block for some answers.
here is what he told me.

he stated that they do not know where the nerves are in that part of the
body - plain and simple.  now, they do know where the erections nerves
are, but there are a lot of micro nerves and those, the surgeon can not
see.  he just cuts the cancer out and remove the micro nerves that in
that cancer site.  

he stated that could be one reason why one person may feel something
different than another person and well as the change of intensity.

he went on to explain that yes, the orgasm is in the brain, but in the
male's body, the prostate is the orgasm center.  
the best way i can explain what he said and tie it together is if you
look at the diagrams in dr. walsh's book on the subject of how the RP is
done,  they show drawings of the erectile nerves but also show nerve
bundles going into the prostate as well.  the drawing shows these nerve
bundles are cut, but doesn't say what they are or where they go to.  the
surgeon told me that the prostate provides a feedback loop for the male.
that one can feel the buildup of fluid and the contractions through the
prostate which in turn the nerves carry the feelings back to the brain.
all that is gone now and what we have left is some feedback nerves in
the pelvis and that depends on what was done and mood of the brain at
the time.
 
that may explain why one doesn't get those earth shaking, drop to your
knees type orgasms.  

he was the only one so far, that took about 10 minutes, to explain the
process and how it all ties together.

we hadn't had the subject pop up on the newsgroup that was this direct
that i could just say what i did without it sounding like i was in a
classroom teaching.  i hope that made sense.  i certainly don't want to
come off as a know it all, because i don't, but i do ask questions - a
lot of questions, until i get the answer.  

for what it's worth - i did ask two other doctors the same question and
got a canned response.  how has your doctors address this subject?  that
would be interesting to hear because they should be interested  in the
treatment of the whole person, not just the cancer.

i'm sure there is more to this subject that what has been said.

~ curtis

knowledge is power - growing old is mandatory - growing wise is optional
Lorelei - 14 Feb 2004 16:10 GMT
but what if they didn't have an RP and it still seems "dry"?
Lori
> hi folks - i was going to address this when i got back from the cruise
> and the wife went to the hospital, so i didn't get the chance.
[quoted text clipped - 54 lines]
>
> knowledge is power - growing old is mandatory - growing wise is optional
c palmer - 14 Feb 2004 19:33 GMT
hi lori - regardless which type of treatment we chose - RP, radiation,
or freezing.  the purpose of the treatment is to destroy the cancer
cells.  and each of these treatments is going to do that job in order to
be called a success.

the catch is - in order to destroy the cancer cell, you have to destroy
the prostate cell because the cancer cells are intermingled with
prostate itself.  

bottom line - if the prostate cell is damaged or destroyed in the
process of treatment, then it will not be producing the prostate fluid
that it did if at all.  and also the nerves that were in the area of the
prostate are damaged or gone too.

what the medical group is doing is trying to save the erectile nerves
outside the prostate.  the nerves inside the prostate are toast and
whatever feeling one may have had will be altered as the nerves die off
or removed.  

hope this explanation helps.

~ curtis

knowledge is power - growing old is mandatory - growing wise is optional
johng - 14 Feb 2004 20:09 GMT
> i had a very intense talk with my surgeon about this very subject and
> what everyone is describing is along the same lines as to what we are
> facing as a group - regardless of the type of treatment.
>
> i, too, echo the same feelings as everyone else.  definitely not the
> same.

I don't agree that you should say, literally, "everyone else."    I do agree
that there are some aspects of all this that are not well explained to most
of us  ahead of time.    I don't know if it's good or bad that we don't know
what we're in for.

JohnG
c palmer - 14 Feb 2004 22:41 GMT
hi john - i agree with you on the 'everyone' term.  i should have
changed it to most people or something that doesn't compass all.  

i was just agreeing with the concept of what everyone had experience and
wanted to share what i had found out.

i have often wondered, including myself, that if i had known what i know
now about what damage was all going to be done, i wonder what treatment
i would have opted for, if any.    ????

the surgeon was right - the day he told me i had prostate cancer.  that
my life would never be the same and it hasn't.

~ curtis

knowledge is power - growing old is mandatory - growing wise is optional
Doug Taylor - 15 Feb 2004 16:06 GMT
> the surgeon was right - the day he told me i had prostate cancer.  that
> my life would never be the same and it hasn't.

Amen.  And this would apply to "everyone" I'm sure.
Adrian - 19 Feb 2004 02:54 GMT
Thankyou, thankyou for this explanation !
Like many others, I'm sure, I have experienced exactly the same thing.
It used to be truly earth shattering for me and I loved it dearly.

Yes I have erections now and reasonably good ones but the orgasms
themselves might be 30% of what they were before.

Sure I'm grateful for this but I knew there was much more to this than
nerve sparing and everything should feel the same.

At decision time all I could think of was quick action and saving my
life.
Would do the same thing again I'm sure.
MH - 19 Feb 2004 03:01 GMT
> Thankyou, thankyou for this explanation !
> Like many others, I'm sure, I have experienced exactly the same thing.
[quoted text clipped - 9 lines]
> life.
> Would do the same thing again I'm sure.

Sometimes I truly wonder what I would do if faced with the exact same
situation again..... and knew what I know now.  I guess it's good we can't
see into the future.

MikeH
Steve Kramer - 19 Feb 2004 11:02 GMT
I guess it depends on the rest of what you have in life.  Trading sex for
life is sometimes a difficult thing to ponder.  Trading life for death?
Well, I just have a little more that I wanna do.

Signature

Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA  .1  .1  .1  .3  .4  .8
EBRT 05-07/2002 @ 47
PSA  .3 .2  .2  .2 .3
Erection 05/12/2003 @ 48
HTbegins 07/21/2003 @ 48
PSA  .1
Lupron 7/03, 8/03, 12/03

>
> > Thankyou, thankyou for this explanation !
[quoted text clipped - 16 lines]
>
> MikeH
Doug Taylor - 19 Feb 2004 14:30 GMT
>Sometimes I truly wonder what I would do if faced with the exact same
>situation again..... and knew what I know now.  I guess it's good we can't
>see into the future.

As they say, "hindsight is always 20-20."  But when I hear of PCa
patients in their 40's with bone mets, I have no problem living with
and accepting less intense sexual orgasms and an otherwise healthy
body.  It's all a matter of degree and perspective.

--dt
MH - 19 Feb 2004 23:19 GMT
> >Sometimes I truly wonder what I would do if faced with the exact same
> >situation again..... and knew what I know now.  I guess it's good we can't
[quoted text clipped - 4 lines]
> and accepting less intense sexual orgasms and an otherwise healthy
> body.  It's all a matter of degree and perspective.

I have the utmost respect and sympathy for those facing advanced PCa and all
its horrible consequences.  I don't ever want to come across as downplaying
other peoples' problems and struggles. Whatever we are faced with, we can
always look around and find someone else suffering a worse fate.  But that
doesn't diminish the struggle that each of us has to deal with in his own
life, nor his right to feel pain and loss.

You are fortunate that you can still experience less  intense sexual
orgasms.
I struggle with the depression at times... and perhaps I whine too much.
But I have no other group to talk to that will understand what I'm feeling
like you guys will be able to.  I wish I had a real-life support group in my
area, but I don't.   There is an USToo group in a nearby city, but it was
not a particularly uplifting experience the times I tried it.  I'm really
sorry that I come off so negatively at times.  I want to be upbeat and
encouraging to others.

I value life.  I want to be alive.  But I'm just having a hard time dealing
with the loss of my sexuality.  I'm sure others here can identify... but you
all seem to be able to get a handle on it somehow... and move on.  I haven't
gotten to that point all the time yet... Perhaps that's just a weakness on
my part.  I'd like to be a stronger person.

When I get very low.... and feel the loss more intensely... it is easy for
my mind to slip into that place where I begin to think I might have
preferred to have retained my sexual function for a few more years rather
than living longer with such an incredible loss.  :-(  And I don't think for
a minute that I'm the only man to have gone through this and to have had
those occasional thoughts.

I'm sorry.  Please forgive me for being so down.  My heart aches for those
who are dealing with such harsh, life-threatening situations.   I just need
a place to be able to share this part of *my* struggle... and hope for a bit
of support.... or perhaps just a swift kick in the butt! ;P

My very best to all...
MikeH
johng - 20 Feb 2004 06:20 GMT
> When I get very low.... and feel the loss more intensely... it is easy for
> my mind to slip into that place where I begin to think I might have
> preferred to have retained my sexual function for a few more years rather
> than living longer with such an incredible loss.  :-(  And I don't think for
> a minute that I'm the only man to have gone through this and to have had
> those occasional thoughts.

No,  you aren't the only person who had those thoughts.

My situation wasn't the same as yours, but I certainly thought that at times in
the first year post-surgery.   In fact, it was some of those thoughts that
brought me to this newsgroup, because I was trying to find out how other people
dealt with  it.   I had done some reading in this newsgroup before my surgery,
so I knew it was here, but that's when I started to follow it semi-regularly.

I'm not sure I'm qualified to give advice on the topic, though, because my body
eventually healed.   And it's still doing so.

Although it wasn't exactly the loss of sexual function that bothered me.   It
was the prospect of other losses that go with it -- of things that wouldn't be
the same again.   Some days I was convinced that I could get used to the loss of
sexual function, and that it might simplify things if it went away entirely.
Except that there was another person involved, so that would make it worse, not
better.   But my thoughts on the subject weren't always the same, day after day.

I wish I knew of something worth saying.     Well, I can say that activity
helps, and brooding doesn't.   (I did plenty of the latter, but was actually
quite upbeat when I was physically active.)

You're in the thoughts and prayers of a lot of us.   As are those people dealing
with advanced PCa.   It's terrible to be so helpless to help, but we can't turn
our backs on you!

JohnG
MH - 20 Feb 2004 13:11 GMT
> I wish I knew of something worth saying.     Well, I can say that activity
> helps, and brooding doesn't.   (I did plenty of the latter, but was actually
[quoted text clipped - 3 lines]
> with advanced PCa.   It's terrible to be so helpless to help, but we can't turn
> our backs on you!

Hi, John....
I think anyone here who has gone through this is *qualified* to speak about
it, and I appreciate your kind reply.  I'm delighted to hear that your body
is healing.... and that things are coming back.  How long ago was your
surgery?

Yes, activity does help.  When I'm busy, I don't have the time to ponder on
it, and that's a good thing, as you said!  But there are still those moments
as I drift off to sleep at night.... or when I awaken in the early morning
and can't go back to sleep...  I've been working part-time, but will start a
full-time job soon, and perhaps that will help.  But it's still something I
need to *deal with*, you know?  I can keep pushing it to the back of my
mind... or I can keep busy, busy, busy.... but, in the end, won't I still
have to come to some sort of acceptance of it?

Thoughts and prayers are always appreciated.  I was struck by a part of a
post of humorous sayings someone sent me yesterday.  There was a statement:
"I know God won't give me more than I can handle, but sometimes I wish He
didn't have such confidence in me."

Take care, JohnG..... and thanks again for your words... just knowing that
someone else can understand my feelings helps more than you know!

MikeH
JohnG - 20 Feb 2004 17:37 GMT
> Hi, John....
> I think anyone here who has gone through this is *qualified* to speak about
> it, and I appreciate your kind reply.  I'm delighted to hear that your body
> is healing.... and that things are coming back.  How long ago was your
> surgery?

Surgery was just over two years ago.   The first year was not nearly so
good as the 2nd one.

> Yes, activity does help.  When I'm busy, I don't have the time to ponder on
> it, and that's a good thing, as you said!  But there are still those moments
[quoted text clipped - 4 lines]
> mind... or I can keep busy, busy, busy.... but, in the end, won't I still
> have to come to some sort of acceptance of it?

I sometimes thought about Winston Churchill and what I thought I
remembered from one of his biographies.   He implied that he was
sexually nonfunctional the latter part of his life, and he credited what
he was able to do with having all the energy that would otherwise go
into sex being channeled instead into his other activities, which in
addition to leading a country at war, included a lot of writing,
painting and other hobbies, and boozing & schmoozing.  

So unless Churchill was completely wrong about where his energy came
from, I was thinking there could be a plus side.   But his problem
wasn't exactly the same as my problem, and there was another person
involved in this, too.

And then I remember that Churchhill was quite the energetic person
earlier in his life, too, when he was at least sexually functional
enough to make babies.  

> Thoughts and prayers are always appreciated.  I was struck by a part of a
> post of humorous sayings someone sent me yesterday.  There was a statement:
> "I know God won't give me more than I can handle, but sometimes I wish He
> didn't have such confidence in me."

Ha!   I'll remember that one.

JohnG
Steve Kramer - 20 Feb 2004 07:47 GMT
> I'm sorry.  Please forgive me for being so down.  My heart aches for those
> who are dealing with such harsh, life-threatening situations.   I just need
> a place to be able to share this part of *my* struggle... and hope for a bit
> of support.... or perhaps just a swift kick in the butt! ;P

I hope we, or at least I, did not give the impression that you were in the
wrong place for and audience willing to listen and understand demonstrations
of depression or, for that matter, a swift kick in the butt!  As far as I'm
concerned, I'm here for either, .... or both.

The other thing about hindsight, is that only those who are alive have any.

SRK
MH - 20 Feb 2004 12:55 GMT
> > I'm sorry.  Please forgive me for being so down.  My heart aches for those
> > who are dealing with such harsh, life-threatening situations.   I just
[quoted text clipped - 9 lines]
>
> The other thing about hindsight, is that only those who are alive have any.

No, Steve..... neither you nor anyone else has given me that impression....
on the contrary..... If anything, I guess *I* feel ashamed to come here with
my whining about loss of sexual function when there are people dealing with
life and death issues.

I really admire so many of you.... you have no idea.  I read your posts...
and you seem to have such strength in the face of adversity.  Each of us is
wired differently... and all my life I have seen the glass as half empty.
So I guess it should come as no surprise that I'm having a difficult time
with this.  It's a part of my life that is gone... kaput... fini.... I need
to be able to just *accept* that and find other things to be enjoyed.  But I
seem to always wind up back at my own pity party... grieving for what can
never be again.

I see a therapist.  I'm taking anti-depressants.  Believe it or not, they
actually help... no telling where I'd be without them.  I just hope that
five years from now, I'm not still in the same spot... and sometimes that
thought makes the idea of not being at all quite appealing.

My best to all...
MikeH
Steve Kramer - 20 Feb 2004 16:51 GMT
> No, Steve..... neither you nor anyone else has given me that impression....
> on the contrary..... If anything, I guess *I* feel ashamed to come here with
> my whining about loss of sexual function when there are people dealing with
> life and death issues.

I would not, if I were you, feel ashamed to come here with an honest
description of what you are going through.  I have seen very little of what
I would call "whining" in this newsgroup and none of it from you.
Incontinence is one of the worst things a man can got through, according to
my PCa reading.  Sexual dysfunction is second.  Death is already an accepted
occurrence and therefore, probably not in the top four or five.  Everyone
knows none of us is getting off this earth alive.  So, feel free to continue
to consider your problems as important.  They are important to all of us.

> I see a therapist.  I'm taking anti-depressants.  Believe it or not, they
> actually help... no telling where I'd be without them.  I just hope that
> five years from now, I'm not still in the same spot... and sometimes that
> thought makes the idea of not being at all quite appealing.

I trust a lot more in the meds than the psychoanalysis (sorry Doc Henry EV
if you're still around).  No amount of psycholanalysis has every helped my
wife beginning a long time ago with our GP, then psychologists, then
psychiatrist.  But, changing meds have been real attention-getters.  I
suspect you are a lot better off hear than on a couch.  But, I quickly admit
I could be WAY OFF here.

Signature

Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA  .1  .1  .1  .3  .4  .8
EBRT 05-07/2002 @ 47
PSA  .3 .2  .2  .2 .3
Erection 05/12/2003 @ 48
HTbegins 07/21/2003 @ 48
PSA  .1
Lupron 7/03, 8/03, 12/03

Jack - 01 Mar 2004 00:34 GMT
> > No, Steve..... neither you nor anyone else has given me that
>  impression....
[quoted text clipped - 24 lines]
> suspect you are a lot better off hear than on a couch.  But, I quickly admit
> I could be WAY OFF here.

Enjoyed reading these 17 postings.  I had my prostate removed three
years ago in April and am still not completely dry (one pad a day,
unless I'm real active - no pad at night). I'm 61 years old. I haven't
had a natural erection since before my surgery.  Pump works, but not
the same.  Viagra and it's competitors don't help much.  I still have
an interest in having sex with my wife, but without an erection, it's
hard to do more than foreplay.  I haven't had a climax with her since
before the surgery.  If I really work at it, I can have a dry climax
with masterbation, but it isn't easy to achieve and really not the
same.  She can't bring me to climax that way.  Have a real hard time
finding the right place to rub (if you know what I mean).

I haven't seen many posts (been reading this forum for a couple of
years) from others with my problem until today.

I don't think he (Doctor) spared my nerves, although he says he has
over a 90% success rate.  Very interested in the comments about the
prostate's place in a climax.  Makes sense that with out one, it would
be very different.  My doctor has not explained this to me this way.

After three years, I see little hope in improvement.  My wife is very
understanding and we do have a sex life, but nothing like it was
before.
Steve Kramer - 01 Mar 2004 01:17 GMT
Welcome, Jack (assuming you're a new "Jack" -- and about the 5th "Jack").

Sounds like you've got Strike One (incontinence) and Strike Two (impotence).
I also have two strikes, impotence and recurrence.  But, I think you are
lucky indeed that you have a wife who works with you on the impotence end of
it.

Signature

Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA  .1  .1  .1  .3  .4  .8
EBRT 05-07/2002 @ 47
PSA  .3 .2  .2  .2 .3
Erection 05/12/2003 @ 48
HTbegins 07/21/2003 @ 48
PSA  .1
Lupron 7/03, 8/03, 12/03

> years ago in April and am still not completely dry (one pad a day,
> unless I'm real active - no pad at night). I'm 61 years old. I haven't
> had a natural erection since before my surgery.
MH - 01 Mar 2004 03:13 GMT
> Welcome, Jack (assuming you're a new "Jack" -- and about the 5th "Jack").
>
> Sounds like you've got Strike One (incontinence) and Strike Two (impotence).
> I also have two strikes, impotence and recurrence.  But, I think you are
> lucky indeed that you have a wife who works with you on the impotence end of
> it.

Amen!
MikeH
MH - 01 Mar 2004 03:12 GMT
> I haven't seen many posts (been reading this forum for a couple of
> years) from others with my problem until today.
[quoted text clipped - 7 lines]
> understanding and we do have a sex life, but nothing like it was
> before.

Hi, Jack....
Have you tried injections?
I have another year to go before making a decision on an implant, but I've
talked to several guys who have had them and have not found a single one who
was not thoroughly pleased with it!
I wish you well...
MikeH
Alan Meyer - 25 Mar 2004 05:59 GMT
> ...
> Enjoyed reading these 17 postings.  I had my prostate removed three
[quoted text clipped - 9 lines]
> finding the right place to rub (if you know what I mean).
> ...

My own sex life is struggling at best, pretty much what Jack
describes, though it's early for me.  I'm only 2 months post
radiation and still with lots of Lupron in my system.  I'm hoping
the Lupron will wear off, the radiation damage will heal, and it
will get better in a few months.

In the meantime, I'd like to propose a different solution that
might work for some of you.  Concentrate on making things
pleasurable for your wife.  Concentrate on turning her on and
bringing her to a strong orgasm.  In the first place it will be as
strong a turn on for yourself as you're likely to experience,
and in the second, there is a real, if vicarious, satisfaction.
It's sort of like using her fully functional sexual organs to
satisfy both of you.

This requires a wife who is interested in and relaxed about
sex.  I know some of you don't have that good fortune.  But
for those who have a shot at it, it's worth trying.

   Alan
 
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