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Medical Forum / Diseases and Disorders / Prostate Cancer / January 2004

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luck of the draw

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c palmer - 26 Jan 2004 06:49 GMT
i got a phone call a couple of months ago from a person who my surgeon
suggested that he call me about discussing prostate cancer.  he got the
bad news and since i had the treatment that he was looking at, he wanted
to know more about it.  

his psa was in the 5's, T1c, gleason 6.  sounds good for the RP w/nerve
sparing.

well, he had the RP done last tuesday and got home friday.  he wrote me
this weekend and said that our notes were the same as to what took
place, so no surprises there.  

the doctor already had the path report before he left friday and went
over it with him.  he said that the prostate gland was heavy with
cancer, but gland contained and that there was a spider web around the
nerves and it was entangled, so nerve sparing was out.  the surgeon was
surprised at what he saw - that his psa did not reflect the cancer he
encountered.  

he is going in monday to have the staples removed and has a list of more
questions to ask him.  the surgeon is a straight forward person and will
post anything that can be used.

on a personal note, it really brings home the point that it truly is the
luck of the draw.  that could have been me instead.  my psa was in the
6's and i had cancer throughout the gland, but had not developed the
tumor nodes.  it brought back the feelings of when i was in service and
the other person bought it.  you feel sad, but at the same time have
mixed emotions.

~ curtis

knowledge is power - growing old is mandatory - growing wise is optional
jimhoney - 26 Jan 2004 10:41 GMT
That's a tough break for him.  First time I have heard of such a case.
Will he take comfort that his life has been spared, or will he wish
he had done nothing and taken his chances?

jimhoney

> i got a phone call a couple of months ago from a person who my surgeon
> suggested that he call me about discussing prostate cancer.  he got the
[quoted text clipped - 29 lines]
>
> knowledge is power - growing old is mandatory - growing wise is optional
Outlivecancer - 29 Jan 2004 22:26 GMT
At least you were kind and knowledgable
to talk to him.Sounds like you gave him good energy too.The other thing of
course is that he went for the RP and then surprise he relly needed aggressive
approach.I went through a lot of stuff but my uro was like not a hand
holder.End result is 4 mo's later testing less than.01
so how complain.But I still have these PTSD feelings and Dreams maybe similiar
to what your feeling?
c palmer - 30 Jan 2004 00:31 GMT
hi outlivecancer - when you are talking about PTSD, are you talking
about the stress of the cancer treatment or the feelings that was
brought back from vietnam?

i can not speak for anyone else.  i'm not going to try to say it was any
better or worse in what happen over there.  all i know is that the
feelings i had over there, came back when i got the news of doom - so to
speak.  i felt like i was in a situation of doom in nam and didn't think
i was coming home again.  i can't explain, it is just a feeling you get.
and then to be told that you had cancer and, of course, we all know what
the outcome of that is if you don't get treated, but the bullet is
coming with your name on it.  

anyway, it brought up similar feelings and then the original feelings
worked there way into the new feelings and left me to try to sort it
out.  all the while, you get it with post surgery depression and hormone
depression.  

the good news is that i feel like i'm winning the battle now and it's
appears to be getting better.  

on this note - we have talked about how the VA takes care of the vet.
well, i went in back last year in sept and told them i was have PTSD and
had it for some time but it was a lot worse.  what did they do?  not a
thing........and made an appt for me in feb 2004.  i then went to the
patient advocate representative they have, in case, you feel there is a
problem  that was in early october after i had my last surgery from the
complications of the RP (excessive scaring) i told the advocate that i
didn't think it was right that i wasn't being treated for what i've
describe on the feelings i'm having and what did they do?
nothing...........never got back with me, no phone call, no
letter......nothing.   well, here it is.....also feb, so i get to go in
for my regular scheduled visit.  i wonder if they will do anything THIS
time.

~ curtis

knowledge is power - growing old is mandatory - growing wise is optional
Outlivecancer - 30 Jan 2004 03:43 GMT
Yes I think PTSD is PTSD,I was blaming the GA early on but now I can see the
fear sx and all are classic so for anyone else they can judge for themselves
and God Bless but some of us have old feelings restimulated by this journey and
you know your right about wisdom,As for dealing with institutions like hmos and
the VA what a
great opportunity to use the feelings,
right?
 
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