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Medical Forum / Diseases and Disorders / Prostate Cancer / January 2004Freedom tomorrow
Catheter comes out tomorrow. I've sort of gotten used to it. The irritation is much less than a week ago (callouses?). It sure will be nice to be able to take long walks and excercise without that tube and bag bumping around, inside and out. Now I'm about as stressed about continence as I was about the surgery. At least the appointment is in the morning and I'll have all day to figure out what kind of diapers or pads I'll need. I've got some extra-heavy-duty but I hope I'll be able to get along with lighter-duty ones. I'm planning on going back to work Wed. if I can keep from being soaking wet for a few hours at a time. On a *much* more positive note, I'm proud to announce that Willy has already woken up a couple of times, even before the catheter is out! All it took was a little cuddling with the missus and he remembered what he was supposed to do! I hate to brag about something that lots of us have serious problems with, but I guess we should spread good results around with the bad to give the newcomers some hope. Wake Age 58 PSA 3.8 Biopsy positive 5% in 1 of 10 cores Gleason 3+3 T1c RRP 1/12/04 Pathology agrees with biopsy Negative margins >Catheter comes out tomorrow. I've sort of gotten used to it. The irritation >is much less than a week ago (callouses?). It sure will be nice to be able [quoted text clipped - 25 lines] >Pathology agrees with biopsy >Negative margins Good luck. May your incontinence be insignificant and short lasting. And may Willy keep up the good work. Thank you for putting a smile on my face. Gary Nichols hi wake - glad to hear the great news. you ask if the stress ever stops - the answer is no. if it's not the cancer, then it is the incontinence. if not that, then it is the erections. if not that, it is the future psa tests. and the lists goes on. the great news is that we are in the same boat and at least we got each other to fall back on. great news about willy. hopefully, you will be bragging about using willy at the 30 day mark. that is when my surgeon gave the go ahead. be sure to ask him for the viagra tomorrow and start taking that right away and night time. studies have shown that treatment right after the RRP with 100mg viagra increases the erection success. was in 4/03 issue of JAMA. ~ curtis knowledge is power - growing old is mandatory - growing wise is optional With regard the continence Wake, you might as well just resign yourself to having no control at first and little control later and full control later. Oh, and since Willy is working, don't be surprised that a the lack of control during sex at first.  SignatureProstate Cancer Survivor (so far), not a doctor PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 PSA .1 .1 .1 .3 .4 .8 EBRT 05-07/2002 @ 47 PSA .3 .2 .2 .2 .3 Erection 05/12/2003 @ 48 HTbegins 07/21/2003 @ 48 PSA .1 Lupron 7/03, 8/03, 12/03 > Catheter comes out tomorrow. I've sort of gotten used to it. The irritation > is much less than a week ago (callouses?). It sure will be nice to be able [quoted text clipped - 25 lines] > Pathology agrees with biopsy > Negative margins Wake, good news about Willy. I think that is a positive sign for continence as well. The nerves that affect ED and most nerves that affect continence are in those precious bundles we try to preserve and with Willy functioning it seems your nerve bundles were not seriously traumatized. It is my hypothesis that you regain continence before erections so you ought to be fairly dry from the outset. Anyone out there using four pads/day with a fully functional Willy? Dave Perry > > Catheter comes out tomorrow. I've sort of gotten used to it. The > irritation [quoted text clipped - 29 lines] > > Pathology agrees with biopsy > > Negative margins Hey Wake....... see, told you so... each days is one hundred percent better than the previous <snip> > Now I'm about as stressed about continence as I was about the surgery. <snip> well don't be.... you'll be surprised at the non leak immediately, but expect a little disappointment when dribbles occur, expect dryness to be reality after a week or so, then a little dribble again later and one day you'll say, wow I haven't felt a dribble for three days now. Yes continence comes. Oh btw take a pair of briefs (not boxers) it holds the pad more secure. And don't buy anything unless you're sure .... I have a full pack less three of depends and six pads available for the taking :) <snip> > On a *much* more positive note, I'm proud to announce that Willy has already > woken up a couple of times, even before the catheter is out! <snip> aah the memories of this and the happy feeling .... mmmmm....you may have never had to try to get a marshmallow into a piggy bank ...but you get the idea; expect this sensation for a little while ... sosep Think positive. You may be continent from the get go, especially with the positive signs you have experienced with the other. If you do join Leakers Anonymous, I use Depends Guards for Men. I think it is 52 in a package, costs about $16.00 at CVS. Wear them with briefs, they will not work with boxer shorts. On a bad day I fill one up in two hours. A normal day is one in the morning, change around noon, change that one before driving home from work, and then one for the night (in the beginning I wore the Depends underwear at night). You can tell when it is ready for a change because it gets heavy and weighs down the underwear. When you walk you can feel it hit your thighs. When that happens, get it changed fast. I have gotten busy, did not pay attention, and I have lost count of the accidents. Had two in one day a month ago. If it keeps up for months, I do not recommend the rubber band approach. Thank you. David S. > Catheter comes out tomorrow. I've sort of gotten used to it. The irritation > is much less than a week ago (callouses?). It sure will be nice to be able [quoted text clipped - 25 lines] > Pathology agrees with biopsy > Negative margins Ah, you'll be so glad to get rid of the cath, Wake! I wish you good success with the continence... and hope that Willy will continue to surprise you! Take care, MikeH > Catheter comes out tomorrow. I've sort of gotten used to it. The irritation > is much less than a week ago (callouses?). It sure will be nice to be able [quoted text clipped - 16 lines] > > Wake > Catheter comes out tomorrow. I've sort of gotten used to it. The irritation > is much less than a week ago (callouses?). It sure will be nice to be able [quoted text clipped - 14 lines] > problems with, but I guess we should spread good results around with the > bad to give the newcomers some hope. Great news, but let me respond with my usual unintended pum. Don't be alarmed by ups and downs in this process. It is a good sign that you are showing signs of erectile recovery, but don't expect your progress to be uniform. Most important, don't be discouraged if it isn't. Good luck. > Wake > [quoted text clipped - 6 lines] > Pathology agrees with biopsy > Negative margins Thank to everybody for all the good comments and suggestions. I'm much less stressed this evening, and ready to return to work tomorrow. A mostly successful report about today (after cath came out): Most of the time I feel just like before surgery. I had some minor urgency and control problems because of the enlarged prostate so I was used to controlling it. I can feel the urge to go and control it with the Kegel squeeze just like before. However, as several have mentioned, it's best to start looking for the restroom ASAP after that. I've had a few little leaks. I'm using Super pads (with wings!) and that's handling it just fine. I've had to use about 3 since about 10 this am, but they weren't completely full. Tonight I'll use the "Baby Huey" diapers just in case. On the erection front, I'm going to try to stay off the viagra if I can (don't like drugs). It's more fun to chase the wife around and try for a cheap feel - that's nature's way, isn't it? If that doesn't work I think I'll try the pump. SignatureWake Age 58 PSA 3.8 Biopsy positive 5% in 1 of 10 cores Gleason 3+3 T1c RRP 1/12/04 Pathology agrees with biopsy Negative margins > On a *much* more positive note, I'm proud to announce that Willy has already > woken up a couple of times, even before the catheter is out! All it took > was a little cuddling with the missus and he remembered what he was > supposed to do! I hate to brag about something that lots of us have serious > problems with, but I guess we should spread good results around with the > bad to give the newcomers some hope. Sounds good all around! If Mr Willy decides to take a rest for a while after the catheter comes out, don't get discouraged. Remember what you just told us here. The mechanism is still there. You have evidence! I remember another Mr Willy resembling nothing so much as a piece of Teflon plumbers tape after the catheter came out. If you've ever worked with the stuff, you'll know what I mean. It was a bit alarming, actually. Formless and void. Fortunately, the healing process worked, though it was slow. JohnG |
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