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Medical Forum / Diseases and Disorders / Prostate Cancer / January 2004

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Incontinence for men....

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John Loomis - 25 Jan 2004 01:48 GMT
I had an idea that may have been kicked around for men with incontinence. I
do not have the problem!
Why cannot a man be fitted with a bulb like device, that holds the urine
back, and be-able to express himself?
It would resemble a valve like device, that has some kind of on and off
switch, that could be inserted in the penis, and maintain control of urinary
function until control is maintained later.
Like an on and off switch.  I thought of a tube that is collapsed, and then
when handled, the collapsed part could express the urine.
I hope I am not far fetched, but am sorry to hear of many men complaining
about diapers, and dripping.
that some-kinda valve on the outer part, that is allowed to remain, and
needs expressing may help?
What do you think?
I thought of silicon type with an insertion part, that is either screwed in,
and or deflated and inflated, with a valve that is easy to use to let urine
flow.
Maintainable by a man, and such.
Better than diapers, rash, and Foley.........

Just an idea.
John Loomis

All my ideas are those that can be trashed.
olfart - 25 Jan 2004 02:18 GMT
> I had an idea that may have been kicked around for men with incontinence. I
> do not have the problem!
[quoted text clipped - 18 lines]
> Just an idea.
> John Loomis

A while back I saw a device for sale that was a special clamp that went on the
penis-forget  now what is is called, but a few comments posted on the web site
claimed it worked well. I agree that something to control the flow would be a
good and useful item - but..."an insertion part, that is screwed in," brings
tears to my eyes already (:>)
Age - 67
8/12/02 - PSA 3.7
10/13/03 - PSA  4.69
11/11/03 - PSA 4.8
11/18/03 - Biopsy - 10 cores
one core-25% of core-Gleason 4+4=8
all other cores benign tissue
12/10/03 - Consult - Oncologist
12/16/03 - Consult -  Radiation Oncologist
Treatment Plan -
HT - started 12/17/03 - Eulixen & Lupron
Radiation - IMRT to begin 3/14/04 - for 5 wweks
Theraseed implant after Radiation completed
John Loomis - 25 Jan 2004 03:03 GMT
It would be better than diapers.
A soft insert, silicon, that could stop the flow of urine until the valve is
opened.
I do understand the problem of inserts.  I have been there.
My problem is with men depending on diapers;
Why could they not have a flow restrictor placed in the penis that allow the
urine to be passed or stopped?
I see a design that men  could use that is like a small screw built out of
silicon, that is inserted, will not fall out, and with the touch of a finger
can be expressed!
Oh well, depend on depends....
Just trying.

> > I had an idea that may have been kicked around for men with incontinence. I
> > do not have the problem!
[quoted text clipped - 37 lines]
> Radiation - IMRT to begin 3/14/04 - for 5 wweks
> Theraseed implant after Radiation completed
brody - 25 Jan 2004 15:54 GMT
>A while back I saw a device for sale that was a special clamp that went on the
>penis-forget  now what is is called, but a few comments posted on the web site
>claimed it worked well. I agree that something to control the flow would be a
>good and useful item - but..."an insertion part, that is screwed in," brings
>tears to my eyes already (:>)

Try www.geezersqueezer.com

Been using it for two years--works pretty good--no more ridiculous
kegels.  Not a good solution if one is still potent though IMHO.  :-)

brody
Tee Doubleyou - 26 Jan 2004 19:00 GMT
>Try www.geezersqueezer.com
>
>Been using it for two years--works pretty good--no more ridiculous
>kegels.  Not a good solution if one is still potent though IMHO.  :-)
>
>brody

IMHO "ridiculos" Kegel exercices will improve your urinary sphincter
function and you will stop leaking sometimes in  the future.
With this device you are so happy about you will be leaking for the
rest of your life. This is your choice. I have chosen Kegel and
exactly 2 months and 2 days after RPR I am 100% continent.
Tee
peter*pan - 26 Jan 2004 22:55 GMT
If all it took were Kegels, we'd all be dry.  I'm at 8 months, and have done thousands of Kegels.
Dave Perry - 27 Jan 2004 16:07 GMT
I agree.  I believe the Kegels strengthen the muscle but mine was
plenty strong enough before surgery.  I could start/stop the stream at
will after surgery as well as before.  What continence I have now is
not the result of conscious clamping the muscle, rather it results
from the muscle acting on its own because of the awakening of nerves
damaged in surgery.  It is something akin to the muscles in your neck
that keep your head from flopping over.  They are acting all the time
but require no conscious flexing.  Eventually our lone sphincter will
do that and then we are continent.  People with big muscular necks
from lots of flexing are no better at holding their heads up than us
pencil necks.
Dave Perry

> If all it took were Kegels, we'd all be dry.  I'm at 8 months, and have done thousands of Kegels.
Heather - 27 Jan 2004 22:38 GMT
A woman's perspective here........Kegels don't particularly work for us
after childbirth.......why would the doctors think they would work for
men in this case???  I don't think we are built all THAT differently
when it comes to tightening up the muscles.

Why don't some of you look into that tape or patch that the pharmacy
fellow had inserted a while back.  Sorry I can't remember what he called
it, but for women, it is called TVT.  It certainly worked for him.

One of the gurus here will remember what I am talking about.

Cheers....Heather
(in the middle of a ghastly snowstorm, which is supposed to give us a
foot of snow......and it is coming up from the US.......thanks guys,
grin)

> If all it took were Kegels, we'd all be dry.  I'm at 8 months, and have done thousands of Kegels.
joisey@mindspring.com - 28 Jan 2004 04:40 GMT
Dear Incontinent:
I don't know if I'm THAT pharmacy fellow, but I am  a pharmacist  lol!
I had a procedure done last year called the "Male Sling".
The urethra (urine tube)  passes next to the pelvic bone.
A small incision is made at the base of the scrotum, and a
piece of fabric is attached to the pelvic bone with stainless
steel screws, stretched tight over the urethra and screwed down
on the other side.  The effect is like pressing a garden  hose with
your thumb.
The results were instantaneous and dramatic. Overnight I went from
about 6-8 pads a day down to 1 daily just in case.
At Memorial Sloan-Kettering this was done as day-surgery.
I had to be "very careful" about sitting down for about a week,
but the stitches healed and pain disappeared over 7-14 days.
There is lots of info out there, do a Google search for "Male Sling"
Ask your doctor if you are a suitable candidate. Before they gave
me the procedure, they put me through dynamic urine flow tests
where I had to stand in front of an x-ray machine with 2 catheters
inserted. They filled my bladder until I could not hold anymore, then
measured my flow after I "let go" the test took about half an hour
and was painless, but It isn't every day you get to pee in a bucket
with a 3 women in the room (the urologist, the technician and the
x-ray tech).
Its been 8 months since I had this done, and once in a while I have
a bad day, (I still put pads in my undies just in case) but most days
and nights I am dry.

If any one needs help finding links, or is having the surgery and wants
tips on recover, let me know.....joisey

> A woman's perspective here........Kegels don't particularly work for us
> after childbirth.......why would the doctors think they would work for
[quoted text clipped - 14 lines]
> > If all it took were Kegels, we'd all be dry.  I'm at 8 months, and
> have done thousands of Kegels.
Heather - 28 Jan 2004 08:04 GMT
AHA!!  Yep, you are the one.  Couldn't remember the name of the 'male'
operation.......and embarrassing to admit as a genealogist.....I have
one hell of a time with names, grin!!

You inspired me to ask my husband's urologist about the female surgery
called TVT (trans vaginal taping)......40 minute outpatient procedure
and so on.......but decided against it.  For now anyway.  I am one of
those horribly allergic people that keep you in business, grin.  And
with my luck, I would have a 'rejection reaction' to the TVT.  It is not
easy to remove, as you know.  But my gynaecologist and the urologist
told me it was a 'piece of cake' and to have it done.

Thanks for reading my post to 'Incontinent' and explaining, Joisey.

Heather
> Dear Incontinent:
>  I don't know if I'm THAT pharmacy fellow, but I am  a pharmacist  lol!
[quoted text clipped - 43 lines]
> >
> > "peter*pan" <peter*pan@neverland.com> wrote in message

news:24f47129253c43151ddb0d96779d0661@localhost.talkaboutsupport.com...
> > > If all it took were Kegels, we'd all be dry.  I'm at 8 months, and
> > have done thousands of Kegels.
Debbie Trujillo - 26 Jan 2004 23:12 GMT
John at this point wears diapers only as a precaution.  He wears a pad
during the day and diapers at night.  He has walked around the house
without one and talked about "how happy [his] balls [were]."  He does
do the Kegel exercises.  I  don't think he would want to insert
anything - however, I'm going to show him that site.

> >Try www.geezersqueezer.com
> >
[quoted text clipped - 9 lines]
> exactly 2 months and 2 days after RPR I am 100% continent.
> Tee
brody - 27 Jan 2004 14:36 GMT
>>Try www.geezersqueezer.com
>>
[quoted text clipped - 9 lines]
>exactly 2 months and 2 days after RPR I am 100% continent.
>Tee

I had my P removed in 93, then radiation to the bed in 94 coz of
rising psa.  Kegals were helpful at first, but incontinence gradually
got worse and worse.  I read that it takes up to six years for the
negative effects of rad  on continence to become apparent and that was
surely true in my case.  Kegals became useless, so I settled for the
GS.  Maybe I should have substituted the word "degrading" for
"ridiculous."

brody  
gregory - 27 Jan 2004 03:16 GMT
hi john and all,
As it's been said, the issue seems to be that all of these devices do
make a person not train to regain control because of the direct
connection to the body. Now...
If only a device could be made that would hang around your waist like a
belt and held a soft cup of some sort so at least it didn't get your
scrotum soaked. With a one way valve so it didn't leak out. An make it
disposable.... Now that'd be a device!!!
The diaper may be a humbling experience, remember to keep it in
perspective and be grateful for the whole process. I actually prefer
wearing them to underwear because when you get busy nd bend over without
them it leaks down your leg. Now that's a DRAG ON WHEELS! I put my pads
inside them so the superman act isn't a huge deal!
By the way fellow group members, I'm seeing the tiniest of progress!!!
I couldn't measure it enough to say how much but it's there! And after 6
weeks of constant leaking, getting used to the whole pad and diaper
routine has finally settled in. Hopefully my camaraderie with the
opposite sex over p-a-d-s will be closer to being over... greg
 
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