It has been a month since I signed in as a "Newly Diagnosed T1c". I
want to thank everyone for the information and support.
We have decided to use the Dana-Farber Cancer Institute after having
gone there for a second opinion. We were very impressed with the
people and the facilities. My wife and I spent the afternoon with a
Radiation Oncologist (Dr. Clair Beard), a Medical Oncologist (Dr.
Phillip Febbo), and a Surgical Oncologist (Dr. Jerome Richie). Dr.
Richie was one of the surgeons I had already identified as being among
the best in the area (others included Douglas Dahl, Martin Sanda, and
John Libertino).
They re-graded the biopsy slides from my first urologist at the New
England Medical Center. There had been two positive sticks out of 14.
One had been graded Gleason 3+4=7 and the other Gleason 4+3=7 with
"perineural invasion not identified". DFCI changed the 4+3 to a 3+4
but found some evidence of perineural invasion.
Dr. Richie recommended against surgery for me. He said that because
of the location of the cancer (the two apex samples) it would be
almost impossible to do a nerve sparing procedure and that conformal
three dimensional external beam treatment (3D XRT) combined with
hormone therapy had fully equivalent 10 year results and offered, in
my case, a better quality of life.
Interestingly enough, the urologist who had originally diagnosed my
cancer had recommended surgery. I asked him if he could do a
nerve-sparing procedure and he said that he always went in with the
intension of sparing the nerves and was "successful most of the time".
In my case, I am sure that when I woke up he would have told me that
he had tried so very hard, but had been unable to spare the nerves.
So sorry.
I have since had an endo-rectal MRI and a bone scan and we will meet
with Dr. Beard in early February to plan my treatment program.
Meanwhile, I will continue to research prostate cancer. Just when I
think I have read everything that has been written about prostate
cancer I run across something new. Most are redundant, and some are
way out, but occasionally one will provide something new and
interesting.
David Hall
T1c
PSA 19
Gleason 3+4=7 on 2 sticks out of 14 with some evidence of perineural
invasion
64 years old
olfart - 24 Jan 2004 23:35 GMT
> It has been a month since I signed in as a "Newly Diagnosed T1c". I
> want to thank everyone for the information and support.
[quoted text clipped - 44 lines]
> invasion
> 64 years old
Looks like you have some heavy hitters in your corner and have a good plan in
the works. Urologists usually seem to favor surgery as mine did. Opinions from a
Medical Oncologist and a Radiation Oncologist got me to agree to HT, IMRT and
Theraseeds. Have been on HT for about a month. Like you I have done alot of
reading and asking. Hope your program goes well-keep us posted.
Age - 67
8/12/02 - PSA 3.7
10/13/03 - PSA 4.69
11/11/03 - PSA 4.8
11/18/03 - Biopsy - 10 cores
one core-25% of core-Gleason 4+4=8
all other cores benign tissue
12/10/03 - Consult - Oncologist
12/16/03 - Consult - Radiation Oncologist
Treatment Plan -
HT - started 12/17/03 - Eulixen & Lupron
Radiation - IMRT to begin 3/14/04 - for 5 wweks
Theraseed implant after Radiation completed
dale.j. - 25 Jan 2004 00:16 GMT
> It has been a month since I signed in as a "Newly Diagnosed T1c". I
> want to thank everyone for the information and support.
Given your age ect you picked the right path of treatment. Good luck
and let us know how it all goes.
Surgery is not for everyone.
Dale J.

Signature
Email: dalej2@mac..com
John Loomis - 25 Jan 2004 00:40 GMT
Hello David Hall,
I was 49 when dx'd and the Urologist reccomended external beam radiation
with hormone "Lupron" injections to shrink the prostate. He also suggested
removal of testicle's since the cancer thrives off testosterone untill it
decides to become hormone independent.
I studied all the facts, and had a 3 month Lupron shot and was ready for
radiation........I got nervous, and decided to seek other professionals and
get their opinions.
I went to the San Francisco Bay Area, and saw one Prostate Cancer Specialist
and he said that surgery was the right answer. I was ready......
Then I went to another Prostate Cancer Specialist, with all the lab work,
and slides and everything. He said that he could help me, and told me that
surgery was a better route.
Yes, I was concerned about nerves, and such, and spread........
Well when I had my surgery in 1999, it took me about 2 years to regain
function of the man thing. I was continent from the day the cath was
removed! I had one set of nerves spared.
I am waiting on my 4 year PSA test result. All others have been 0.01 or
less.(every 6 month get tested)
It is not an easy decision, and I am happy that I am still here, and always
wonder if I chose radiation what my success would be?
I grant you, it is a tough choice and wanted to shre with you my route.
Good wishes, and speedy recovery and freedom from prostate cancer.
Your friend, John Loomis
My story is larger than what I say in this short letter, and you may
understand why.
> It has been a month since I signed in as a "Newly Diagnosed T1c". I
> want to thank everyone for the information and support.
[quoted text clipped - 44 lines]
> invasion
> 64 years old