Home | Contact Us | FAQ | Search & Site Map | Link to Us
Sign In | Join | Other 45 Sites in Network
Home
Discussion Groups
General
GeneralCardiologyVisionDentistryPharmacyLaboratoryNutritionAlternative
Diseases and Disorders
AIDSAlzheimer'sArthritisAsthmaCancerBreast CancerDiabetesEpilepsyGlaucomaHepatitisHerpesLupusProstate BPHProstate CancerProstatitisSinusitisTinnitus

Medical Forum / Diseases and Disorders / Prostate Cancer / January 2004

Tip: Looking for answers? Try searching our database.

Berky from Trish

Thread view: 
Enable EMail Alerts  Start New Thread
Thread rating: 
Dwight - 15 Jan 2004 20:25 GMT
I asked Trish if I could post this to our group.  I though you might want to
know more.

--------------------------

The "warrior" was one of the first, and most helpful, to respond to me when
I was diagnosed in 2000.  My family wishes him and his family the very best
and we will have them in our thoughts.  I hope his wisdom endures in his
posts and writings.

Dwight

"Trish Knight" <trishknight1@theobviousyahoo.com> wrote in message
news:mfSMb.443$ii6.288@okepread05...
> Please pray for Berky and his family.  I received word that he's not doing
> very well, and the end is near.  For those who don't know him, Berky
(Maynard
> Berkowitz) was very active in this group -- then took off for a while.  He
> will forever be "Berky the Warrior" (his former signature line) to me --
he
> has fought this fight with such courage and bravery.
>
> Thanks!
>
> Love,
> Trish
John Loomis - 16 Jan 2004 02:09 GMT
Berkard Maynowitz is quite a wonderful person.  He helped me through many
difficult diecisions when I was prognosed.  He also went through many
clinical trials and did his best to help the Medical Community see if any of
the new "idea" were helpful.

Here is a bit....of his wisdom and my childness.

John,
Please do not call the family if phone numbers are present.  I have shared
my friendship from him with all of you.
He is a true Warrior.  I want to be like him!
John Loomis

Too many people confuse sex for love.  I was just pointing out that sex can
be bought most every where, and in Nevada, it's actually legal.  I have
never visited a brothel.

I have a wonderful wife - my only one - and we have been married for 43
years.  We do have very deep feelings about love, even after 43 years, but
now I have been emasculated, and sex is impossible.  Well, maybe with some
aids, but at this time, sex is not that important in our lives, but love
still is.  I am 70, and my wife is 63.  Sometimes all we need is a long
lingering hug, a deep kiss, a loving caress, and sometimes a sexual massage.
But it's there, and like Clinton said, I haven't had sex with that woman -
at least not for two years.

What you do with your hand is not making love, it's having sex.  The two are
not interchangeable.  I still contend that sex and love are two different
things.  The bit about brothels was to point out that sex can be bought,
love cannot.

It's confusing to you, it's also confusing to me.

Berky
Folie ^ Deux
-----Original Message-----
From: John Loomis <jloomis@mcn.org>
Newsgroups: alt.support.cancer.prostate
To: Maynard Berkowitz <berky@nanosecond.com>
Date: Friday, March 31, 2000 3:59 PM
Subject: Re: Sexuality

I do not understand!  I live with my wife, and we have been living like this
for 33 years.  I like to make love with her and I love her too.  I do not
understand your remark and brothels, and such.  What does it have to do with
a
can of beans.  Hey I have a hand, and I can make love to it to....Jeeees
I
am not out to purchase sex, and or whatever it is you speak of.  Just have a
rewarding experience with my wife of many years, and continue in a
relationship
that has been a little broken and upset. Anyway, no hard feelings.  Just
want
to feel hard!  LOL   John Loomis

Maynard Berkowitz wrote:

> Bill,
>
> I have been on hormone therapy for two years now, and I haven't had sex
for
> that whole time.  However, my wife and I make love almost every day.  I
live
> in Nevada, and sex is a commodity that you can purchase at one of the many
> legal brothels.  Love is not sex, and sex is not love.
[quoted text clipped - 3 lines]
>
> billwms@christcom.net wrote in message
<38E2BEF9.C9F7CCCB@christcom.net>...

> Most of message snipped.
> .  It isn't what makes a marriage but certainly is a very nice part.
> >I never realized how much it would mean to me until I lost it.
> >
> >Bill Williams

John,

I have tried for three clinical trials at Univ. of California - San
Francisco.  All three were immune system boosters.

Dendritic Cell therapy, you can read about it at www.dendrion.com
Medarex anti CTLA-4 therapy, www.medarex.com

And lastly Calydon virus trial at, www.calydon.com

I failed the dendritic cell trial since it was aimed at PAP expression on
the surface of the cancer cells, and I don't express that protein.  This one
is also available at UCSF's web site at:
http://cc.ucsf.edu/trials/99554.html

The Anti CTLA-4 trial, has a very tight CD-8 (part of the T cells) cell
count.  Actually, after testing 8 or 10 men, they went back to the drawing
board and widened their requirement for the CD-8 cells, and I was retested,
and failed a second time.  This trial is listed on UCSF's web pages at:
http://cc.ucsf.edu/trials/00551.html

The Calydon virus trial is very much in the running, but because of a sort
of holdup with the FDA, it has been delayed for about 4 weeks, and I hope to
be on it in about two weeks.  It is Phase I, and dose escalation, and since
I'll be one of the first humans to get this stuff, they will give me a very
light dose.  Don't know if it will do me any good.  But a virus does
multiply in the body, and perhaps even the light dose may be as good as the
higher doses.

If nothing pans out with UCSF, my wife and I decided we will go somewhere
else.  UCSF is closest, with a 225 mile one way trip.

I'll do what I have to do, and that's why I call myself:

Berky the Warrior
Folie ^ Deux

John,

I live in Minden, Nevada, about 50 miles south of Reno, and about 9 miles
east of South Lake Tahoe.  The area is called the Carson Valley, and Carson
City is about 12 miles north.

>From my living room window, I can (with the aid of a telescope) watch the
skiers up at Heavenly Valley ski down the slopes.

I have been in this now since the Ides of March 1998.  Since my cancer was
so advanced at diagnosis, there is no way that I can even hope for a cure.
Everything I've been doing is a delaying tactic, and so far, it is working.
Right now, I feel much better than I did two years ago.

Actually, my story has been written up in several places, and the best one
is at www.yourfamilyshealth.com

Look down the opening page for  "What Makes a Man ".  Be aware that this was
written during the time period from Christmas 1998, and New Years 1999,
during a time that I was quite depressed.  The update to that story that
hasn't yet appeared in print is much rosier.

During the intervening 2 years, I have become an activist for our cause.  I
have spoken to about 27 service clubs in Northern California and Nevada,
mostly Rotary Clubs but also Lions Clubs, SIR's Clubs, and others.  The tone
of my speech is this disease can kill, and get yourself tested.  Of course,
it takes 30 minutes for me to tell them that.

By the way, I was 68 when diagnosed, and am 71 now.

Enough about me, where are you on this journey?  I see you are going to
Stanford, and I considered that, but I wanted Eric Small instead of Stamey.
Eric is doing so much in the way of research that I thought my chances were
better with him.  But I still don't expect a cure.

Will I see you at the PCRI Conference in October at Long Beach?

Berky the Warrior
Folie ^ Deux

> I asked Trish if I could post this to our group.  I though you might want to
> know more.
[quoted text clipped - 20 lines]
> > Love,
> > Trish
 
Sign In
Join
My Latest Posts
My Monitored Threads
My Blog
My Photo Gallery
My Profile
My Homepage

Start New Thread
Enable EMail Alerts
Rate this Thread



©2008 Advenet LLC   Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.