Medical Forum / Diseases and Disorders / Prostate Cancer / January 2004
Berky
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Beverley - 11 Jan 2004 01:24 GMT For those of us who have known Berky, the end is near. Berky's family is asking for prayers, good vibes or whatever you wish to send their way. Hospice is coming in daily and Berky's wife has some additional help from family and close friends. I will keep you posted. Bev
Steve Kramer - 11 Jan 2004 02:06 GMT Thanks Bev. I will be certain to ask for His intercession and thank him again for giving us His warrior.
 Signature Prostate Cancer Survivor (so far), not a doctor PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 PSA .1 .1 .1 .3 .4 .8 EBRT 05-07/2002 @ 47 PSA .3 .2 .2 .2 .3 Erection 05/12/2003 @ 48 HTbegins 07/21/2003 @ 48 PSA .1 Lupron 7/03, 8/03, 12/03
> For those of us who have known Berky, the end is near. Berky's family is > asking for prayers, good vibes or whatever you wish to send their way. > Hospice is coming in daily and Berky's wife has some additional help from > family and close friends. I will keep you posted. > Bev Larry Wheat - 11 Jan 2004 02:32 GMT I arrived at the clubhouse too late to meet Berky, but I can tell he's an amazing person, from reading his website and reading how you folks talk about him.
God bless him.
Larry
> For those of us who have known Berky, the end is near. Berky's family is > asking for prayers, good vibes or whatever you wish to send their way. > Hospice is coming in daily and Berky's wife has some additional help from > family and close friends. I will keep you posted. > Bev MH - 11 Jan 2004 04:14 GMT Thanks for keeping us updated, Bev. Berky and his family are in my thoughts and prayers. He has been such an inspiration to so many! I wish for him a peaceful passage from this misery... and bright, warm sunshine on the other side.
MikeH
> For those of us who have known Berky, the end is near. Berky's family is > asking for prayers, good vibes or whatever you wish to send their way. > Hospice is coming in daily and Berky's wife has some additional help from > family and close friends. I will keep you posted. > Bev c palmer - 11 Jan 2004 05:34 GMT i second that mike. well said.
~ curtis
knowledge is power - growing old is mandatory - growing wise is optional
dale.j. - 12 Jan 2004 00:45 GMT > For those of us who have known Berky, the end is near. Berky's family is > asking for prayers, good vibes or whatever you wish to send their way. > Hospice is coming in daily and Berky's wife has some additional help from > family and close friends. I will keep you posted. > Bev I remember Berky.
I've never learned to say goodby.
Dale J.
 Signature Email: dalej2@mac..com
Gogarty - 14 Jan 2004 18:49 GMT >For those of us who have known Berky, the end is near. Berky's family is >asking for prayers, good vibes or whatever you wish to send their way. >Hospice is coming in daily and Berky's wife has some additional help from >family and close friends. I will keep you posted. >Bev So sorry to learn of it. He certainly fought the battle, valiantly and with good cheer and good humor.
Lorelei - 15 Jan 2004 00:57 GMT >> For those of us who have known Berky, the end is near. Berky's >> family is asking for prayers, good vibes or whatever you wish to [quoted text clipped - 5 lines] > So sorry to learn of it. He certainly fought the battle, valiantly and > with good cheer and good humor. May I ask how long his struggle has been? We are newly diagnosed. I say "we" because my husband, Curt, is my life and soul. My sympathies and prayers to him and his family Lori
Beverley - 15 Jan 2004 01:28 GMT I'm not totally certain but I believe he was diagnosed over 5 years ago and with a PSA that was through the roof. I'm talking about something like 2600. Sorry, I can't remember off the top of my head. He knew what was coming. He made his plans and did everything he needed to do in advance. He also fought the cancer with everything he had. He's been through multiple clinical trials knowing that maybe it might help someone else someday. He's participated in Federal programs to make people more aware of PC, etc. He'd talk to anyone (or group) willing to listen. He's been a real inspiration to so many men. Bev
> >> For those of us who have known Berky, the end is near. Berky's > >> family is asking for prayers, good vibes or whatever you wish to [quoted text clipped - 10 lines] > My sympathies and prayers to him and his family > Lori Steve Kramer - 15 Jan 2004 10:29 GMT Almost exactly 5 years ago, but with a PSA of 1614. He was 68, though. That'll make a huge difference.
 Signature Prostate Cancer Survivor (so far), not a doctor PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 PSA .1 .1 .1 .3 .4 .8 EBRT 05-07/2002 @ 47 PSA .3 .2 .2 .2 .3 Erection 05/12/2003 @ 48 HTbegins 07/21/2003 @ 48 PSA .1 Lupron 7/03, 8/03, 12/03
> >> > >> For those of us who have known Berky, the end is near. Berky's [quoted text clipped - 11 lines] > My sympathies and prayers to him and his family > Lori J - 15 Jan 2004 13:21 GMT > Almost exactly 5 years ago, but with a PSA of 1614. He was 68, though. > That'll make a huge difference. Sorry for butting in but my count is almost 6. I sure hope that doctors are smarter than his was and that Berky's battle will give hope to others here. J
http://tinyurl.com/28xka I was first diagnosed with advanced prostate cancer on the Ides of March, 1998.
Steve Kramer - 16 Jan 2004 00:02 GMT I gotta good memory, but my subtraction aint worth.... You are correct. It was six.
> > Almost exactly 5 years ago, but with a PSA of 1614. He was 68, though. > > That'll make a huge difference. [quoted text clipped - 7 lines] > I was first diagnosed with advanced prostate cancer on the Ides of March, > 1998. Gogarty - 16 Jan 2004 15:28 GMT >I gotta good memory, but my subtraction aint worth.... You are correct. >It was six. Sheesh! Is it not the conventional wisdom that anyone who survives five years is considered as cured?
J - 16 Jan 2004 20:31 GMT > >I gotta good memory, but my subtraction aint worth.... You are correct. > >It was six. > > Sheesh! Is it not the conventional wisdom that anyone who survives five > years is considered as cured? He was Stage 4 when diagnosed. http://tinyurl.com/28xka "bone metastasis to every bone from my skull down to my knees." J
Beverley - 17 Jan 2004 02:05 GMT I think many cancers are considered to be "cured" if there is no sign of the cancer for 5 years. But in a case like this, Berky has just managed to live *with* his cancer for over 5 years. But prostate cancer is never considered to be "cured" just hopefully controlled. Bev
> >I gotta good memory, but my subtraction aint worth.... You are correct. > >It was six. > > Sheesh! Is it not the conventional wisdom that anyone who survives five > years is considered as cured? Steve Kramer - 17 Jan 2004 03:06 GMT Not with Prostate Cancer. Right now the standard is 15 years, and that's only because they haven't yet foun a man with a recurrence at 20.
 Signature Prostate Cancer Survivor (so far), not a doctor PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 PSA .1 .1 .1 .3 .4 .8 EBRT 05-07/2002 @ 47 PSA .3 .2 .2 .2 .3 Erection 05/12/2003 @ 48 HTbegins 07/21/2003 @ 48 PSA .1 Lupron 7/03, 8/03, 12/03
> > > >I gotta good memory, but my subtraction aint worth.... You are correct. > >It was six. > > Sheesh! Is it not the conventional wisdom that anyone who survives five > years is considered as cured? johng - 17 Jan 2004 03:17 GMT > Not with Prostate Cancer. Right now the standard is 15 years, and that's > only because they haven't yet foun a man with a recurrence at 20. The Red Cross will let me donate blood after 5 years if I don't have a recurrence. It seems they're not quite as certain as my friends, doctors, etc. who all assure me I'll be fine. It's kind of refreshing to go to a blood drive and hear them say it. (We sometimes have blood drives right in the building where I work, so I don't have far to walk to get a reality check now and then.)
JohnG
Steve Kramer - 17 Jan 2004 11:47 GMT Leanard and John, or was it Curtis, just had a discussion about this. According to the latter, he had 10 year old stats that indicated that a 5-year span without recurrence was about, I think, 50/50, but a 15-year span was much, much higher. Having never gone a full 1-year span without recurrence, I guess I didn't pay sufficient attention.
 Signature Prostate Cancer Survivor (so far), not a doctor PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 PSA .1 .1 .1 .3 .4 .8 EBRT 05-07/2002 @ 47 PSA .3 .2 .2 .2 .3 Erection 05/12/2003 @ 48 HTbegins 07/21/2003 @ 48 PSA .1 Lupron 7/03, 8/03, 12/03
> > > Not with Prostate Cancer. Right now the standard is 15 years, and that's [quoted text clipped - 8 lines] > > JohnG Steve Kramer - 17 Jan 2004 11:52 GMT Found it. From Curtis:
"chances of cure -50% during first 3 yrs, 80% in first 5 yrs, and 99% at15 year. they went on to say that if you make it to the 10 year mark, that for all practical purposes, it is in effect a cure. "
 Signature Prostate Cancer Survivor (so far), not a doctor PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 PSA .1 .1 .1 .3 .4 .8 EBRT 05-07/2002 @ 47 PSA .3 .2 .2 .2 .3 Erection 05/12/2003 @ 48 HTbegins 07/21/2003 @ 48 PSA .1 Lupron 7/03, 8/03, 12/03
> > > Not with Prostate Cancer. Right now the standard is 15 years, and that's [quoted text clipped - 8 lines] > > JohnG Beverley - 17 Jan 2004 02:08 GMT I wish I could remember but I can't. Seems Robert Young's cancer was about that range when dx'ed and I could have sworn that Berky's PSA was about double Robert's Bev
> Almost exactly 5 years ago, but with a PSA of 1614. He was 68, though. > That'll make a huge difference. [quoted text clipped - 14 lines] > > My sympathies and prayers to him and his family > > Lori Steve Kramer - 17 Jan 2004 03:09 GMT Fortunately (I guess), both are well documented on the Internet. Berky was 3/1/98 and 11/23/99.
 Signature Prostate Cancer Survivor (so far), not a doctor PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 PSA .1 .1 .1 .3 .4 .8 EBRT 05-07/2002 @ 47 PSA .3 .2 .2 .2 .3 Erection 05/12/2003 @ 48 HTbegins 07/21/2003 @ 48 PSA .1 Lupron 7/03, 8/03, 12/03
> I wish I could remember but I can't. Seems Robert Young's cancer was about > that range when dx'ed and I could have sworn that Berky's PSA was about [quoted text clipped - 19 lines] > > > My sympathies and prayers to him and his family > > > Lori c palmer - 17 Jan 2004 08:14 GMT hi bev - you know - it's never been brought up as to the number past 100 or so as far as meaning. we all know what a psa of 6, or 13, or 25 mean, but what about 159, 589, 832, or 1,495 or even 6,000?
in all my years, i have not found a direct relationship to the higher numbers as to how they equate in the very low digits.
but here's is what i've observed.
regardless of what the high number is, if it will respond to treatment, then we are in decent shape. and when it doesn't, then we are in trouble. and the doubling factor is what indicates to us as to how fast the cancer is growing and if we can do something to knock that psa number back down, then we are staying on top of it.
so, with berky and robert young, even though their numbers were different, there is a good chance that they could both live as long without one really outliving the other that much, even though, one had higher numbers. that is what i've learned. and even the low numbers aren't what they seem.
case in point, when my father's psa climbed to 288. that was the highest it ever was. now, there are a lot of folks who have had higher.
my father did respond to lupron, but did go refractive. and even though he was T4c, his psa around the time of his death was about 40 to 50. his organs were starting to shut down and he was passing blood when his psa was in the 30's.
in this part of the staging, it truly is a crap shoot.
if someone else can add more to this area of high psa's, i'm all ears.
~ curtis
knowledge is power - growing old is mandatory - growing wise is optional
J - 17 Jan 2004 23:53 GMT > For those of us who have known Berky, the end is near. Berky's family is > asking for prayers, good vibes or whatever you wish to send their way. > Hospice is coming in daily and Berky's wife has some additional help from > family and close friends. I will keep you posted. > Bev Error on the bottom of this page http://psa-rising.com/voices/maynard_berkowitz.htm J
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