Medical Forum / Diseases and Disorders / Prostate Cancer / May 2008
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sue mullen - 08 May 2008 16:35 GMT My husband Kevin was dx with aggressive prostate cancer on March 4, 2008. I have been lurking here since that day and have found lots of very helpful information.
March 4th, the day we got the dx, he started one month of Casodex. Two weeks later, on March 17, was the first Trelstar shot and the second one on April 17th. He is going for 44 sessions of IMRT and started radiation on April 28th.
Kevin has a history of migraines and before the dx they had become more frequent. (Maybe because the cancer was already messing with him?) In the last 2 weeks, he has started have a migraine or sinus headache everyday. About two weeks ago he started taking Toprol for the migraines, so far no relief.
Having a migraine or sinus headache everyday isn't fun, but the more important issue is that it is making it very hard for him to get an exercise program started.
Any ideas about the headaches being related to Trelstar or the IMRT?
Thanks, sue
psa 2.2 10/05, 4.1 8/07, 7.9 12/07 DRE 1/24/08 - showed firmess in one area biopsy 2/20/08 - all 12 G9 Casodex - 30 days started 3/4/08 Trelstar 3/1708, 4/17/08 IMRT - 44 treatments started 4/28/08
Steve Jordan - 08 May 2008 17:07 GMT On May 8, Sue wrote:
(snip)
> Having a migraine or sinus headache everyday isn't fun, but the more > important issue is that it is making it very hard for him to get an > exercise program started. > > Any ideas about the headaches being related to Trelstar or the IMRT? I have no medical qualifications other than a history of PCa and also migraines.
I very much doubt that Trelstar or IMRT are causing the headaches, although "headache" is listed as a side effect in 5% of the clinical test subjects. More likely, it's the stress.
See, http://www.rxlist.com/cgi/generic/treldepo.htm
Regards,
Steve J
sue mullen - 08 May 2008 20:11 GMT > On May 8, Sue wrote: > [quoted text clipped - 14 lines] > > See, http://www.rxlist.com/cgi/generic/treldepo.htm Thanks, for some things experience is more important then a medical degree.
Even though he is very calm about his cancer, it might be the stress of handling work/treatments/appointments and home life that is stressing him. As I think about this more, it might even be the fatigue setting in that is making his migranes worse.
Thanks Steve.
sue
Dedman - 08 May 2008 19:39 GMT > My husband Kevin was dx with aggressive prostate cancer on March 4, > 2008. I have been lurking here since that day and have found lots of [quoted text clipped - 26 lines] > Trelstar 3/1708, 4/17/08 > IMRT - 44 treatments started 4/28/08 Sorry to hear it. You must be frightened.
I had IMRT and never experienced any headaches nor do I recall anyone else mentioning them. On the other hand it doesn't seem unreasonable that, given someone had a history of migraines, stress would aggravate them.
 Signature Dedman
** Posted from http://www.teranews.com **
sue mullen - 08 May 2008 20:18 GMT > Sorry to hear it. You must be frightened. Thanks. At first we were both shocked, but are doing ok now.
> I had IMRT and never experienced any headaches nor do I recall anyone else > mentioning them. On the other hand it doesn't seem unreasonable that, given > someone had a history of migraines, stress would aggravate them. Kevin has always been very calm about his prostate cancer. After talking with some people today and doing a little more research, I am leaning towards stree of handling work/treatments/appointment etc as the cause of his increased migranes. Another thought is that fatigue from the IMRT is the cause.
Thanks Dedman!
sue
Steve Kramer - 08 May 2008 23:43 GMT > My husband Kevin was dx with aggressive prostate cancer on March 4, 2008. > I have been lurking here since that day and have found lots of very > helpful information. I am very sorry, Sue. This is certainly devastating to you and Kevin. What is his age, if you don't mind?
> Having a migraine or sinus headache everyday isn't fun, but the more > important issue is that it is making it very hard for him to get an > exercise program started. I don't know what causes migraine headaches, but I have never heard of migraines being a side effect of ADT, RT, or Chemo.
> psa 2.2 10/05, 4.1 8/07, 7.9 12/07 I'm surprosed things did get going with that 4.1, but with a Gleason 9 in all 12, it probably would have made very little difference.
Again, Sue, you have my sympathy. Regardless of his reaction to the treatment, this is going to be a significant change to your lives.
 Signature PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 PSAD .056 years Lupron 07/03 (1 mo) 8/03 and every 4 months there after PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.4 years Casodex added daily 07/06 PSA <0.04, <0.05, <0.04, <0.04, <0.1 2/12/08 Non Illegitimi Carborundum
sue mullen - 09 May 2008 02:42 GMT >> My husband Kevin was dx with aggressive prostate cancer on March 4, 2008. >> I have been lurking here since that day and have found lots of very >> helpful information. > > I am very sorry, Sue. This is certainly devastating to you and Kevin. What > is his age, if you don't mind? Thanks Steve, Kevin turned 65 in March. When we were given the dx we were in shock, but we are both doing ok now. Our acupuncturist said she has never seen anyone as calm about their cancer as Kevin is.
>> Having a migraine or sinus headache everyday isn't fun, but the more >> important issue is that it is making it very hard for him to get an >> exercise program started. > > I don't know what causes migraine headaches, but I have never heard of > migraines being a side effect of ADT, RT, or Chemo. I think his migraines might be from stress. Even though he is calm about the cancer, he is still concerned about the time he is takiing off from work. He is working full time, just leaving a little early each day to go for IMRT. He will be talking to his urologist before getting the next shot, will continue working with our PCP and also our acupuncturist.
>> psa 2.2 10/05, 4.1 8/07, 7.9 12/07 > > I'm surprosed things did get going with that 4.1, but with a Gleason 9 in > all 12, it probably would have made very little difference. Our PCP told him at that point to go see the urologist, but Kevin was traveling alot for work and didn't take the time to make an appointment. Also the PCP had indicated he did not think it was likely to be cancer, wrong thing to say. I hope the wait did not make a difference, but that is in the past.
> Again, Sue, you have my sympathy. Regardless of his reaction to the > treatment, this is going to be a significant change to your lives. Kevin is very upbeat and handling his cancer very well, I do ok most of the time. This has already changed our lives in many ways and we are working on ways to make life easier for both of us. Even though his Radiation Oncologist says the 44 IMRT treatments should be all he needs, we know that for the rest of his life he will have to keep checking that all is still ok.
thanks, sue
Steve Kramer - 09 May 2008 03:19 GMT > Thanks Steve, Kevin turned 65 in March. When we were given the dx we were > in shock, but we are both doing ok now. Our acupuncturist said she has > never seen anyone as calm about their cancer as Kevin is. Sounds like a good man.
But, take care with reality. There have been very few men here who have reacted to the diagnosis with any similarity to they way they have reacted to anything else before or since. Robert Young, a Marine in Korea, went home and broke down as soon as he entered his kitchen by the back door and cried like a baby. I'd estimate more than half became depressed and required medical assistance for that. I myself faced many situations in my life and fared well with all, and to all who knew me, was never phased much by the dx. But, in reality, I was barely maintaining boyancy for more than a year. I suspect his migraines will calm down as time passes.
> I think his migraines might be from stress. Even though he is calm about > the cancer, he is still concerned about the time he is takiing off from > work. He is working full time, just leaving a little early each day to go > for IMRT. Both ADT and IMRT will, by themselves, cause fatigue. IMRT will also cause urinary tract and colon irritation. During RT, I drank gallons of water to combat the irritations. I walked 3-5 miles a day, 3-5 days a week (of course I built up to that before RT). I slept an extra hour every night. In my spare time, I worked 40-50 hours a week. But, I didn't try ADT, IMRT and chemo all at once.
> cancer, wrong thing to say. I hope the wait did not make a difference, but > that is in the past. PCa is a slow growing disease. Even a Gleason 9 would not have grown from 1 core to 12 cores in less than a year (I think).
 Signature PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 PSAD .056 years Lupron 07/03 (1 mo) 8/03 and every 4 months there after PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.4 years Casodex added daily 07/06 PSA <0.04, <0.05, <0.04, <0.04, <0.1 2/12/08 Non Illegitimi Carborundum
sue mullen - 09 May 2008 18:49 GMT > Sounds like a good man. Thanks!!
> But, take care with reality. There have been very few men here who have > reacted to the diagnosis with any similarity to they way they have reacted [quoted text clipped - 5 lines] > by the dx. But, in reality, I was barely maintaining boyancy for more than > a year. I suspect his migraines will calm down as time passes. I am watching him closely and last night pointed out to him that he is probably stressed because of work. He actually agreed(grin). One thing that I think what helps us both cope, is that I have Chronic Fatigue Syndrome and we have been dealing with it together for 20 yrs
Between working with our PCP and our acupunturist, I hope his migranes will ease up. He will also talk to his urologist when he goes for his next shot, but will talk to him before getting the shot.
> Both ADT and IMRT will, by themselves, cause fatigue. IMRT will also cause > urinary tract and colon irritation. During RT, I drank gallons of water to > combat the irritations. I walked 3-5 miles a day, 3-5 days a week (of > course I built up to that before RT). I slept an extra hour every night. > In my spare time, I worked 40-50 hours a week. But, I didn't try ADT, IMRT > and chemo all at once. We got lots of printed information from his Radiation Oncologists office and they also have been very good with any questions either of us has had. We have also both been on the net doing lots of research, so we are aware of possible side effects.
Before the cancer he always took a nap after dinner, but could skip it once in awhile. Now I am making sure he gets his nap "every" night and doesn't have to run any errands during the week.
Exercise is a big problem since he wasn't exercising previously and we both know that exercise is very important since he is taking Trelstar. If he can get the migranes under control, then he should be able to get an exercise program going. We have an eliptical trainer in the house and lot of equipment in our HOA clubhouse.
> PCa is a slow growing disease. Even a Gleason 9 would not have grown from 1 > core to 12 cores in less than a year (I think). I also think this is true, but it really doesn't matter since we can't go back in time.
sue
Heather - 09 May 2008 04:11 GMT >> I am very sorry, Sue. This is certainly devastating to you and >> Kevin. What is his age, if you don't mind? [quoted text clipped - 16 lines] > getting the next shot, will continue working with our PCP and also our > acupuncturist. Hi Sue.....
I started to write earlier because I do suffer from rather nasty migraines and can certainly sympathize with Kevin. And while most of mine are triggered by barometric pressure drops, stress is a real biggie!! And even though Kevin seems to be calm, this has to have hit you both like a ton of bricks. We were in your shoes exactly 5 years ago and I well remember how we felt.
Does Kevin know of any particular triggers for migraines prior to the diagnosis?? Once I was aware of mine, it helped in that I would take my medication sooner. It is often hard to tell whether it is a sinus headache or a migraine if you don't get the visual aura, which I don't. I have had them for 25 years or so.
Have him talk to his doctor to see what other meds he could try for it. I happen to use a rather old one containing ergot, but it works for me. My pharmacist gets them when I do (pressure drop) and she has tried the newer meds, but there are some side effects she didn't like.
All the best to you and hopefully he can get some relief. People who don't get them have no idea how debilitating they are. Not to mention *painful*!!
Cheers.....Heather (wife of Ron)
sue mullen - 09 May 2008 19:06 GMT > I started to write earlier because I do suffer from rather nasty > migraines and can certainly sympathize with Kevin. And while most of > mine are triggered by barometric pressure drops, stress is a real > biggie!! Kevin is also affected by changes in barometic pressure and stress.
And even though Kevin seems to be calm, this has to have hit
> you both like a ton of bricks. We were in your shoes exactly 5 years > ago and I well remember how we felt. Before we got the results of the biopsy, he kept telling himself it would show he has cancer. I was so mad at him for being negative, but it must of helped. It didn't take long for him to accept the dx and be ok with it, he does tend to act like Spock.lol I had problems longer then he did and at strange times I would think "my husband has cancer" and be unsettled. Now that the Radiation Oncologist is being so positive, I am much more relaxed and ok.
> Does Kevin know of any particular triggers for migraines prior to the > diagnosis?? Once I was aware of mine, it helped in that I would take my > medication sooner. It is often hard to tell whether it is a sinus > headache or a migraine if you don't get the visual aura, which I don't. > I have had them for 25 years or so. As I said above, he is affected by changes in barometic pressure and stress and he doesn't get the visual aura. Our PCP just told him to take his relpax at the first sign of a headache, even if he things it is a sinus one.
> Have him talk to his doctor to see what other meds he could try for it. > I happen to use a rather old one containing ergot, but it works for me. [quoted text clipped - 4 lines] > don't get them have no idea how debilitating they are. Not to mention > *painful*!! Our PCP just put him on Toprol a couple of weeks ago and Kevin is supposed to go back in a couple of weeks. The doctor already said that if the Toprol doesn't help, he has other things to give Kevin.
Kevin will also be seeing our acupunturist every week and in the past she has helped with his headaches.
> Cheers.....Heather (wife of Ron) Thanks Heather and I hope Ron continues to do well.
sue
alva36@gmail.com - 09 May 2008 00:14 GMT > Any ideas about the headaches being related to Trelstar or the IMRT? > [quoted text clipped - 7 lines] > Trelstar 3/1708, 4/17/08 > IMRT - 44 treatments started 4/28/08 When I mentioned to my radiation oncologist that my 30 plus years of migraines had come to a screeching halt, he said it was due to the ADT. I was on Zoladex and Casodex at the time. Even when I interrupted the ADT for 8 months, no migraines.
-Les
sue mullen - 09 May 2008 02:47 GMT >> Any ideas about the headaches being related to Trelstar or the IMRT? >> [quoted text clipped - 12 lines] > ADT. I was on Zoladex and Casodex at the time. Even when I > interrupted the ADT for 8 months, no migraines. This is fantastic for you and I only wish the same would be true for Kevin. How long had you been on Zoladex and Casodex when your migraines stopped?
thanks, sue
MikeHi@anon.co.uk - 09 May 2008 08:33 GMT >alva36@gmail.com wrote (quoting Sue): >>> Any ideas about the headaches being related to Trelstar or the IMRT? [quoted text clipped - 8 lines] >>> Trelstar 3/1708, 4/17/08 >>> IMRT - 44 treatments started 4/28/08 Alva wrote:
>> When I mentioned to my radiation oncologist that my 30 plus years of >> migraines had come to a screeching halt, he said it was due to the >> ADT. I was on Zoladex and Casodex at the time. Even when I >> interrupted the ADT for 8 months, no migraines. Sue wrote:
>This is fantastic for you and I only wish the same would be true for >Kevin. How long had you been on Zoladex and Casodex when your migraines >stopped? His Sue
I was diagnosed G9 three years ago - had my primary sources (prostate, seminal vesicle) blasted away into the infinity where they belong by HIFU but there's lymph node inolvement now. My latest PSA is 6.0 and PSAD 0.9. I've had no ADT yet but it may be imminent, and no IMRT.
So I can't compare at all with what Kevin may experience - but I write this for you and Kevin as with similar clinical dx I am in essence fine, and with all the supportive treatment Kevin is receiving I'm sure that in many years to come his Pca will be well under control.
For the migraine - which I've had from time to time all my life (I'm 80 now) and has been quite frequent in recent months. As Heather has already asked, does Kevin get the visual aura, the point being it warns the migraine is about to begin? I do. If he does, he might benefit from the discovery I found which has helped me greatly. As soon as I get it, I drink down all the water I can stomach. The aura then either fails to develop into its usual intensity, or if does, it is for much short duration - and the follow-on headache is very much less and shorter. The whole incident can be finished in twenty minutes. The reason for adopting this treatment is that when I was younger, I noticed I often got migaine when I was playing tennis, which I did a lot, or jogged. Someone told me they were sure migraine was associated with dehydration. So I started watering - the rest, as they say, for me, is history.
So my questions; does Kevin get the aura? If not, does he get any other pre-warning? Is his work, or his play, very active - where he could become dehydrated? (When I took water before i jogged/tennised, and sipped while doing it -no more migraines from that).
In any case, when his migraine begins, he has absolutely nothing to lose by trying lots of water, all the docs say it's good for you anyway!
If it doesn't work for him I also (in the UK) get Maxalt (rizatripan) which one simply puts under the tongue. I have it for when I'm out, and water isn't available. It seems to work well. But I like to lay off drugs when an alternative works.
My kind regards and the very best of wishes to Kevin and your very caring self. MikeHi
sue mullen - 09 May 2008 19:31 GMT > I was diagnosed G9 three years ago - had my primary sources (prostate, > seminal vesicle) blasted away into the infinity where they belong by [quoted text clipped - 5 lines] > fine, and with all the supportive treatment Kevin is receiving I'm > sure that in many years to come his Pca will be well under control. Thank you, we are also sure that everything will be ok. His Radiation Oncologist who is very conservative, told Kevin that he believes the current IMRT plan should be all he needs to get rid of the cancer. We all know that doctors are afraid of lawsuits, so his being so positive means a lot.
> As Heather has > already asked, does Kevin get the visual aura, the point being it > warns the migraine is about to begin? No, he doesn't, but our PCP just told him to take his migrane meds at the first sign of a headache, even if he doesn't think it is a migrane. The doctor is a migrane sufferer himself and like Kevin does, he used to wait and hope the headache would go away.
> So my questions; does Kevin get the aura? If not, does he get any > other pre-warning? Is his work, or his play, very active - where he [quoted text clipped - 4 lines] > lose by trying lots of water, all the docs say it's good for you > anyway! He does not get an aura and he doesn't normally do anything that would dehydrate him. I have been hearing from a lot of people about dehydration and migranes and I am pushing Kevin to increase his water intake. He should be drinking alot anyway because of urinary problems.
> If it doesn't work for him I also (in the UK) get Maxalt (rizatripan) > which one simply puts under the tongue. I have it for when I'm out, > and water isn't available. It seems to work well. But I like to lay > off drugs when an alternative works. We are both big fans of alternative medicine, it is the only thing that has helped me with my Chronic Fatigue Syndrome.
> My kind regards and the very best of wishes to Kevin and your very > caring self. > MikeHi Thanks so much, I am giving Kevin all the postings so he can read them for himself.
sue
I.P. Freely - 10 May 2008 03:25 GMT From http://www.bentham.org/cds/samples/cds1-1/Ferrari.pdf
During therapy with bicalutamide, a nonsteroidal antiandrogen, indicated to treat prostate cancer, headache, dizziness, fatigue, confusion have been reported [185].
Table 6. Percentages of Headache, as an Adverse Effect, that have been Associated with Hormonal Agents and Dopamine Agonists.
The table shows that 7% of headaches caused by Hormonal Agents and Dopamine Agonists were due to bicalutamide (generic Casodex).
Reference 195 is Product Information: Casodex(R), bicalutamide. Zeneca Pharmaceuticals, Wilmington, DE (PI revised 09/2000).
I.P.
Steve Jordan - 10 May 2008 03:50 GMT > From http://www.bentham.org/cds/samples/cds1-1/Ferrari.pdf (snip)
Tomaytoe/tomahtoe.
"Associated with" does not equal "caused by."
See the rxlist site with the reliable information I posted above.
Regards,
Steve J
sue mullen - 10 May 2008 18:11 GMT >> From http://www.bentham.org/cds/samples/cds1-1/Ferrari.pdf > [quoted text clipped - 5 lines] > > See the rxlist site with the reliable information I posted above. rxlist and the Mayo Clinic websites are my favorite places to look.
sue
I.P. Freely - 10 May 2008 23:04 GMT >>> From http://www.bentham.org/cds/samples/cds1-1/Ferrari.pdf >> [quoted text clipped - 7 lines] > > rxlist and the Mayo Clinic websites are my favorite places to look. Caused by, schmaused by ... if I'm trying to resolve a new problem with my racing machines, my garden, or my body, the first thing I look at is the most recent change I made. I don't need no steenkin' proof just yet if that fixes the problem. There are a plethora of ADT drugs on the market; I'd find a way to stop the migraines, then actually ferret out the medical cause and/or just try different meds, depending on my med onc's advice and my trust in same. ADT is fuzzy enough as a treatment to begin with, and its administration protocol is even fuzzier, so I'd worry more about the migraines than about the precise drug or protocol used to deplete my testosterone. I can look for lesser alligators after slaying or deterring the 15-footer in my face, and I'm guessing daily migraines compare to at least a 12-footer. Once the doc has found a way to mitigate the migraines AND suppress my T, then and only then might I feel I have the time and peace of mind to determine whether a given drug has been clinically proved to cause migraine headaches. i.e., if another mainstream ADT drug keeps the T down and replaces the migraines with occasional hangnails or an annual hot flash, I'd let the med schools worry about large population proof.
I.P.
I.P. Freely - 10 May 2008 05:18 GMT > From http://www.bentham.org/cds/samples/cds1-1/Ferrari.pdf > [quoted text clipped - 14 lines] > > I.P. Oops ... that's reference 185 typed with a Bandaid on my "8" finger.
I.P.
sue mullen - 10 May 2008 18:09 GMT > From http://www.bentham.org/cds/samples/cds1-1/Ferrari.pdf > [quoted text clipped - 12 lines] > Pharmaceuticals, > Wilmington, DE (PI revised 09/2000). Kevin only took Casodex(bicalutamide) for a month and had no problems while taking it. His migranes started getting worse after he started the Trelstar. Looking up some of the ADTs on rxlist, mayo clinic etc, it seems they all show headaches as a common side effect.
I am giving him this link to look at further and see if it is any help.
thanks, sue
I.P. Freely - 10 May 2008 22:38 GMT > Looking up some of the ADTs on rxlist, mayo clinic etc, it > seems they all show headaches as a common side effect. RXList reports that 12% of pts on Trelstar report headaches, and that it has not been tested for other drug interactions. See http://www.rxlist.com/cgi/generic/trelstar.htm .
I.P.
Steve Jordan - 10 May 2008 23:51 GMT On May 10, Mike Freely wrote:
>> Looking up some of the ADTs on rxlist, mayo clinic etc, it seems they >> all show headaches as a common side effect. > > RXList reports that 12% of pts on Trelstar report headaches, and that it > has not been tested for other drug interactions. See > http://www.rxlist.com/cgi/generic/trelstar.htm . Yes, do see that link. It will show that Mike is wrong.
The headaches are reported for *12 of 174* of the study cohort. That is 6.9%.
It's a pity that Mike is so anxious to convince the world that -- well, that what? We're all gonna die, die, diddly-aye die?
True enough, but there is no reason at all to roll over and suffer because we fail to take steps to prevent misery.
And so far as drug interactions is concerned: so what is the significance of that? And what should patients do about it?
Regards,
Steve J
"There is nothing sadder than the brutal murder of a beautiful theory by a gang of ugly facts." --Francois, Duc de la Rochefoucauld
mikehi@anon.com - 11 May 2008 18:05 GMT >On May 10, Mike Freely wrote: > >>> Looking up some of the ADTs on rxlist, mayo clinic etc, it seems they >>> all show headaches as a common side effect. Steve wrote:
>> RXList reports that 12% of pts on Trelstar report headaches, and that it >> has not been tested for other drug interactions. See [quoted text clipped - 21 lines] >a gang of ugly facts." >--Francois, Duc de la Rochefoucauld
>On May 10, Mike Freely wrote: > [quoted text clipped - 26 lines] >a gang of ugly facts." >--Francois, Duc de la Rochefoucauld Hi Steve
Mr Freely is, so far as I am aware none other than' I.P.' I am, as I last remembered, the only 'Mike' in this thread. Can I just clear up that your references above to'Mike' were not directed at my very delicate frame? I'm getting a touch of the Kafka's at the moment!
Kind regards MikeHi
Steve Jordan - 11 May 2008 18:29 GMT On May 11, MikeHi wrote:
> Mr Freely is, so far as I am aware none other than' I.P.' I am, as I > last remembered, the only 'Mike' in this thread. Can I just clear up > that your references above to'Mike' were not directed at my very > delicate frame? I'm getting a touch of the Kafka's at the moment! No need for that :-)
The first line in my post of May 10 was
> On May 10, Mike Freely wrote: Kick back, have a Refreshing Beverage.
Regards,
Steve J
sue mullen - 11 May 2008 21:36 GMT It looks like most of the ADT drugs do have headaches as a possible side effect. If it is 5% or 12% it doesn't really matter since Kevin is having headaches.
He will be talking to his urologist about the headache/Trelstar connecton and if it makes sense to try a different ADT. He isn't having any hot flashes, so maybe staying with the Trelstar is the right thing to do. Only he and his urologist can decide this.
In the meantime he is already working with our PCP and will be working with our acupuncturist to deal with his migranes.
Thanks everyone!
sue
mikehi@anon.com - 12 May 2008 00:05 GMT >On May 11, MikeHi wrote: > >> Mr Freely is, so far as I am aware none other than' I.P.' I am, as I >> last remembered, the only 'Mike' in this thread. Can I just clear up >> that your references above to'Mike' were not directed at my very >> delicate frame? I'm getting a touch of the Kafka's at the moment! Steve replied:
>No need for that :-) > [quoted text clipped - 7 lines] > >Steve J OK. I'll ask kh what goes with the Frito-lays.
P.S. I actually think my Mr Freely - the' I.P.' one - has a lot going for his arguments about ADT - (he said, while hastily disappearing behind quickly erected barricade)..
I.P. Freely - 12 May 2008 06:42 GMT >> Yes, do see that link. It will show that Mike is wrong. >> >> The headaches are reported for *12 of 174* of the study cohort. That is >> 6.9%. Steve is right; I misread the chart. No excuse.
But at least I found some data and linked Sue to it. Did anyone else (not in my killfile) even try?
>> It's a pity that Mike is so anxious to convince the world ... Steve, please get a life. I suspect many of the adults here are very tired of your stupid vendetta.
I.P.
mikehi@anon.com - 13 May 2008 12:23 GMT >>> Yes, do see that link. It will show that Mike is wrong. >>> [quoted text clipped - 12 lines] > >I.P. OOOps! There we are. Here we go. AS I thought. I was sitting at home minding my own business when I suddenly saw the name 'Mike' thrown into the ring by Steve when he was having a row with IPF. But Steve assured me he wasn't meaning me (MikeHi) at all, he meant, somehow or other, 'Mike' IPF. (Read thread carefully) BUT as I thought the damage was done. And sure 'nuff read the above - and it's STILL me , quietly having a bath on this occasion, returning and finding I'm still the one wandering, dazed, bloodied and bowed in no-man's land wondering how the hell I got in the middle of all this again while in my bathtub.
To ALL readers of this newsgroup. Here Ye Here Ye. It is NOT I having a vendetta with Steve, IPF or anybody else. I love and respect all and every contributor to the aforesaid ng, and if I didn't aforesay it I meant a.s.p.c. I NEVER uttered or typed a single syllable, word or para on ANY stats about headaches. All I ever did, honest, sob sob, was advise Sue that I have found water to be the best treatment for my migraine. THAT'S ALL! And that's what you get!
I'm getting a migraine again, can't think why, but watch out any repeater of such uncivilised behaviour. My lawyers are the internationally famous, even notorious, Sue Grabbit & Run. So watch it. Get it right.
Mike HI
I.P. Freely - 13 May 2008 16:44 GMT > To ALL readers of this newsgroup. Here Ye Here Ye. It is NOT I having > a vendetta You're in the clear, Mike. No one who's been here for more than a few months had any doubt who Steve was needling yet again. It's been his stock in trade for a few years now, and no one has had much luck persuading him to live up to his promise to knock it off. Those who haven't killfiled him just consider the source and ignore it. Sorry you got some of his spittle splattered on you.
I.P.
Steve Jordan - 13 May 2008 18:32 GMT On May 13, Mike Hi wrote:
(ka-snip)
> To ALL readers of this newsgroup. Here Ye Here Ye. It is NOT I having > a vendetta with Steve, IPF or anybody else. (su-nip)
I very much doubt that anyone has confused Mike Hi and Mike "Freely".
As for "Freely", Mike is his true first name. I prefer to use it on those few occasions when something he has written impels me to respond.
Mike Hi is unaware of the history of the thin-skinned Mike "Freely," who has made it clear that he believes that Bad Persons are out to get him and that he must use a pseudo name and fake address to save himself.
Also note that he did not respond to my wonderment about his proclivity to issue manifestos on perceived problems but rarely if ever to propose solutions. Instead he complained that I was picking on him.
I did not surrender my right to criticize what he writes; I did agree not to pick on him.
Regards,
Steve J
sue mullen - 13 May 2008 23:26 GMT > All I ever did, honest, sob sob, > was advise Sue that I have found water to be the best treatment for my > migraine. THAT'S ALL! And that's what you get! That was good advice and I have heard it many places. The only problem is the more fluid/water he drinks, the more often he has to urinate and that includes at night.
> I'm getting a migraine again, can't think why, but watch out any > repeater of such uncivilised behaviour. My lawyers are the > internationally famous, even notorious, Sue Grabbit & Run. So watch > it. Get it right. LOL......I have been around newsgroups a long time and have no need to run. I am pretty good about figuring out who to pay attention to and who to ignore.
It seem as if Kevin's Toprol is beginning to help. Next up is diarrhea starting from the IMRT.
sue
Steve Kramer - 14 May 2008 00:37 GMT >>>> Yes, do see that link. It will show that Mike is wrong. >>>> [quoted text clipped - 31 lines] > was advise Sue that I have found water to be the best treatment for my > migraine. THAT'S ALL! And that's what you get! I assure you, I don't know what you're talking about. I always thought we got along fine.
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