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Medical Forum / Diseases and Disorders / Prostate Cancer / January 2004

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John - 31 Dec 2003 20:00 GMT
Well here I am at 57 and recently diagnosed with PCa.  Gleason 3+3=6
and a 0.5mm in one core with a PSA of 6.  Interestingly, this is the
3rd biopsy that I have had in the last 5 years, the first 2 being
negative.  PSA has gone up and down over the same period, as high as 7
and low of 4 (mostly in the 4 range).  I have decided on a
laparoscopic radical prostatectomy after researching my other options.
My surgery is scheduled for 1/27/2004.

John
Alan Meyer - 31 Dec 2003 21:28 GMT
> Well here I am at 57 and recently diagnosed with PCa.  Gleason 3+3=6
> and a 0.5mm in one core with a PSA of 6.  Interestingly, this is the
[quoted text clipped - 5 lines]
>
> John

John,

Although most pathology slides are _under_ diagnosed rather
than overdiagnosed, you might still want to get a second opinion
on them.  It seems to be very common for people to get second
opinions both on the diagnosis and the treatment, and your
HMO or insurance will probably pay for it.

I had three different pathologists reading the very same slides
giving me readings of 3+3, 3+4, and 4+3.

The PSA up and down could be due to the conditions of the
test.  I had a 10.7 fifteen minutes after a particularly thorough
digital rectal exam, but only 8.7 when tested a couple of weeks
later.  I have been told that having sex up to 48 hours before
an exam can also elevate the PSA.

Sorry about the diagnosis, but it sounds like you've caught it
very early - which gives the best prospects for successful
treatment.  I hope it all works out well for you.

   Alan
Steve Kramer - 01 Jan 2004 01:32 GMT
Welcome to the NG, John.  27th?  Lots of time to study prostate cancer.
It's very important to know almost as much as your doc.

Signature

Wishing you a Happy New Year
Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA  .1  .1  .1  .3  .4  .8
EBRT 05-07/2002 @ 47
PSA  .3 .2  .2  .2 .3
Erection 05/12/2003 @ 48
HTbegins 07/21/2003 @ 48
PSA  .1
Lupron 7/03, 8/03, 12/03

> Well here I am at 57 and recently diagnosed with PCa.  Gleason 3+3=6
> and a 0.5mm in one core with a PSA of 6.  Interestingly, this is the
[quoted text clipped - 5 lines]
>
> John
Dave Perry - 01 Jan 2004 12:02 GMT
John, welcome to the newsgroup from a fellow lap patient.  Had mine
July 15th, 2003.  Looks like you have an elusive little bugger, took
three biopsies to find it.  My PSA went up steadily over a three year
period peaking at 4.9 which prompted my biopsy.  My doc had me get one
more as part of my pre-op physical and it had dropped back to below
4.0.  Go figure.

Good luck with the surgery.  If you have any questions about my
laparoscopic experience feel free to ask.

Take care,
Dave Perry

> > Well here I am at 57 and recently diagnosed with PCa.  Gleason 3+3=6
> > and a 0.5mm in one core with a PSA of 6.  Interestingly, this is the
[quoted text clipped - 5 lines]
> >
> > John
c palmer - 01 Jan 2004 08:36 GMT
welcome john - to the club you didn't want to join.  

LRP's are on the increase and like everything else, they more they use
it and experiment with it, the better it gets.  look at computers as
compared to then and now.  

your numbers look good and from that, i would have to say you have a
bright future, so start making plans for your 100th birthday, but don't
reserve the room yet.  you never can tell, they may go out of business
before then.  :)

~ curtis

knowledge is power - growing old is mandatory - growing wise is optional
John - 01 Jan 2004 14:43 GMT
Thank you for your encouraging comments and suggestions.  I had a
second opinion of the slides performed by Dr. Epstein at Johns Hopkins
and he confirmed the first opinion.  I also spoke to a a radiation
oncologist, who interestingly enough did not try to convince me to
have brachytherapy, but seemed to favor an rp.  My local uro wanted to
do a limited version of cryrotherapy since he felt the disease was
small and localized, but this would need to be confirmed by doing
another needle biopsy taking 80 or more samples. Ouch!  After reading
and researching I became convinced that none of the treatments were
perfect and without complications.  Given the fact that frequently
more Ca is found once the entire prostate is examined, I opted for rp.
From what I have read the laparoscopic procedure may offer some
advantages, I say may because not everyone is in agreement on this
point.  My uro who does regular rp's thinks the procedure is overrated
and claims the only advantage is a week less of catheter time.  Those
performing the procedure have a different opinion.  I am going to have
Dr. Arnon Krongrad in Miami do the operation.  He has a pretty
convincing web site for those looking for more info about lrp, but
that is not the reason for my selection.  He has impressive
credentials and does about 200 of these per year.  In fact on my
scheduled date I am the second in line, so hopefully he will be warmed
up.

John
Alan Meyer - 01 Jan 2004 17:07 GMT
> Thank you for your encouraging comments and suggestions.  I had a
> second opinion of the slides performed by Dr. Epstein at Johns Hopkins
[quoted text clipped - 20 lines]
>
> John

Sounds like you've not only done your homework, but also lined
up some of the best experts in the country to help you out.

Epstein is thought to be among the best PCa pathologists in
the world and Krongrad is (to my knowledge) the leading LRP
man.

I personally think that the choice of doctors is just as important
as the choice of treatments.  Looks like you're going to be okay.

   Alan
dale.j. - 01 Jan 2004 22:53 GMT
> Thank you for your encouraging comments and suggestions.  I had a
> second opinion of the slides performed by Dr. Epstein at Johns Hopkins
[quoted text clipped - 20 lines]
>
> John

At 200 a year he would be quite well practiced at this delicate
procedure.  I think you've made a good choice John.

Dale J.

Signature

Email:  dalej2@mac..com

MH - 01 Jan 2004 14:07 GMT
Welcome to the Newsgroup, John.  It's not the place any man wants to be, but
you'll find lots of support and info here.

If you haven't already done so, be sure to check out www.phoenix5.org for
LOTS of information. Also, Patrick Walsh's *Guide To Surviving Prostate
Cancer* is a great source of information that you can find at most
bookstores.

Sounds like you've been keeping yourself checked and have caught this early.
I had LRP November 21, 2002.... and would do it all the same way if I had it
to do over.  There are pros and cons for all forms of treatment, but in the
end you have to decide what is best for YOU and then move forward!

Take care.... and please feel free to ask questions as they arise!!  Joe
Shaw has a great list of paraphenalia to get for *after* the surgery, such
as the athletic pants that have snaps down both legs..... makes it so easy
when you are dealing with the catheter after surgery.

In retrospect, the surgery was not nearly as bad as I had imagined it to be.
I wish you well.....

MikeH :)
domiha@hotmail.com

> Well here I am at 57 and recently diagnosed with PCa.  Gleason 3+3=6
> and a 0.5mm in one core with a PSA of 6.  Interestingly, this is the
[quoted text clipped - 5 lines]
>
> John
John Ruggiero - 10 Jan 2004 22:41 GMT
Hi John,

I was in your shoes a year ago. The biggest difference between LRP and RRP
IMHO is pain and healing. The minimally invasive nature of LRP cuts your
hospital time by 75% and puts you back on your feet much faster. Less pain,
faster recovery, same or better results... seems like LRP is a no-brainer
decision.

My hospital experiance was as good as these things can be. I do have one
piece of advice for you on the big day: If you wear glasses like I do, give
them to the person you are likely to see first after the procedure. it took
the hospital 8 hrs to get my glasses to me after my procedure.

My hospital roommate had RRP 6 days before I arrived. We were discharged on
the same day. It was very difficult to pretend I was asleep when he ripped
his Uro a new one for not telling him about LRP...

-John

> Welcome to the Newsgroup, John.  It's not the place any man wants to be, but
> you'll find lots of support and info here.
[quoted text clipped - 29 lines]
> >
> > John
dale.j. - 10 Jan 2004 22:56 GMT
John,

You're on the road to recovery.  

I want to say that I had the old RP and was out in 3.5 days, my doc said
I could have gone home in 2.5 days, but I wanted to stay another for the
foood.......anyway I am back to pre-op days now in fact better in the
pee department.  

I wish you many many more years of undetectable PSA

Best regards

Dale J.

> Hi John,
>
[quoted text clipped - 53 lines]
> > >
> > > John

Signature

Email:  dalej2@mac..com

 
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