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Medical Forum / Diseases and Disorders / Prostate Cancer / December 2003After surgery
I posted a message in November and got a lot of good advice. unfortunately I also received so much spam that I had to cancel my e-mail account. Now I hope to avoid this by using a secondary address. Anyway my question is: I had surgery on Friday at MD Anderson and was discharged on Sunday. A bit short but they said that was the standard. Nervesparing, gleason 6, T2b. OK, after a full day at home feeling miserable but following all the instructions my doctor left me, walking, sitting correct, etc. my scrotum started to swell to the size of a grapefruit. It sort of felt sloshy and was pitch black. It hurt so much that Mondsay night I called the urologist on call, he told me that is normal because now the drain had been removed the fluids go to the scrotum. Put it on ice and it will be better. Tuesday I decided to get a jock strap and voila, the problem was solved. I assume that everybody has the drain removed when they leave the hospital. Is there anybody who had the same problem?? I wonder why there is nothing about this in Walsh's book, the hospitals discharge instructions or on this newsgroup? What else can I expect? The catheter will be removed on Tuesday 23 Dec. The biopsy results will not be known until 19 Feb. Does it normally take this long? Thanks Erik > OK, after a full day at home feeling miserable but following all the > instructions my doctor left me, walking, sitting correct, etc. my scrotum [quoted text clipped - 7 lines] > I wonder why there is nothing about this in Walsh's book, the hospitals > discharge instructions or on this newsgroup? I had some trouble like that after my surgery in Jan 2002. I'm not sure what you mean by sloshy, though. Mine felt hard and painful, and I don't think it changed color that much, at least not to pitch black. One Saturday evening I got concerned enough that I called whichever urologist was on call at the time. He tried to reassure me that I was OK, but I was still concerned. I think I eventually googled up the name for the problem, and my regular uro-surgeon verified it for me. He said not everybody gets it, but some do. I think he and I had an e-mail exchange about it, but I'm not near those e-mails at the moment or I'd look it up to see what it was called. It may or may not be the same thing as you have. If I get a chance, I'll look it up tomorrow. JohnG You have a point there. I guess it's assumed that patients know about edema and how the excess fluid obeys the law of gravity. Keep walking around and it will clear up. As for what else to expect, you know about not sitting upright for more than about 20 minutes, right? Sitting upright makes the catheter press on a bone, and it will get sore. So slouch and walk around a lot. I never bothered to get my pathology report, so I don't know how long it should take. Considering that the holidays are coming up, no wonder it could take until February. If there was evidence of capsular penetration, the surgeon would have seen it. So don't worry about it. Congratulations on what appears to be a good result for you. jimhoney > I posted a message in November and got a lot of good advice. unfortunately I > also received so much spam that I had to cancel my e-mail account. Now I [quoted text clipped - 23 lines] > Thanks > Erik Jim, don't you need the report to see if there were no positive margins? Erik > You have a point there. I guess it's assumed that patients know about > edema and how the excess fluid obeys the law of gravity. [quoted text clipped - 43 lines] > > Thanks > > Erik Erik, After the surgery, the surgeon said it was contained, and he didn't call me after he got the pathology report, whenever that was, so I assume his initial assessment was correct. jimhoney > Jim, > [quoted text clipped - 57 lines] > > > Thanks > > > Erik Mine swelled up like grapefruits while I was in the hospital. I had an extremely attentive nurses aid to took care of it. But ice was the cure. When the cath is removed, you can expect two things. 1. You will experience significant relief that it is finally gone. 2. You will have absolutely no control whatsoever of your urinary function. Bring Depends. Biopsy results didn't take nearly that long for me. I think I had them before I left the hospital.  SignatureSteve Kramer PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 PSA .1 .1 .1 .3 .4 .8 EBRT 05-07/2002 @ 47 PSA .3 .2 .2 .2 .3 Erection 05/12/2003 @ 48 Begin Lupron 07/21/2003 @ 48 PSA .1 > I posted a message in November and got a lot of good advice. unfortunately I > also received so much spam that I had to cancel my e-mail account. Now I [quoted text clipped - 23 lines] > Thanks > Erik Erik, I also had significant scrotum swelling but little discoloration. The swelling lasted for better than two weeks and then suddenly improved. A nurse at the hospital did mention that many individuals have swelling. It wasn't painful but was uncomfortable by virtue of the size. After two weeks I became concerned that it had not improved and called the urologist on call. He was unconcerned and said it was not unusual. The next morning the swelling was gone. I think it unusual not to get the pathology report until 19 February. I received the complete report on Thursday after having surgery the previous Friday. Steve M. > I posted a message in November and got a lot of good advice. unfortunately I > also received so much spam that I had to cancel my e-mail account. Now I [quoted text clipped - 23 lines] > Thanks > Erik There's a surprisingly large amount of cranberry colored fluid floating around inside after surgery which will, thanks to gravity, make it down to your scrotum as you start to get up and walk around. My drain tube bag was practically dry and had been much of the day prior to the middle of the night when I had a major bladder spasm which sent me into a lot of writhing and twitching (the nurse thought I was having a seizure) that lasted about 20 minutes until the morphine kicked in. The next morning my drain tube bag was full of fluid and filled twice again by noon before finally stopping. The doc then pulled out the tube and I went home with no subsequent swelling. The jumping and twitching apparently dislodged all the fluid that was still here and there confined behind various organs and who knows what. That same fluid can easily inflate your scrotum until it is finally absorbed back into your system. Dave Perry > > I posted a message in November and got a lot of good advice. unfortunately I > > also received so much spam that I had to cancel my e-mail account. Now I [quoted text clipped - 23 lines] > > Thanks > > Erik A similar thing happened to me in October (I didn't get the color change), and I posted it on October 21 --- guess you missed it. I called my surgeon and he said "Buy a jock strap." Good going --- you figured it out without calling the doc! You'd think there would be more mention of it, though --- it was a little alarming ... I suspect your path report has already been done --- mine was "reported" the day after my operation, and I believe I had it when I left the hospital. Larry > I posted a message in November and got a lot of good advice. unfortunately I > also received so much spam that I had to cancel my e-mail account. Now I [quoted text clipped - 23 lines] > Thanks > Erik Sorry I missed that. I a guy like Walsh would put it in his book, 'everybody' would know about it. It would save a lot of pain and anxiety, let alone wasted time of our doctors having to call back. Regards, Erik > A similar thing happened to me in October (I didn't get the color > change), and I posted it on October 21 --- guess you missed it. I called [quoted text clipped - 37 lines] > > Thanks > > Erik Same thing happened to me -- but not as much as you. When I was discharged from the hospital the uro said, rather casually, "Oh, and your sac will probably swell up. Don't worry about it, it usually is gone by the time the catheter will be removed (in 15 days time)." He didn't mention ice or any treatment. Sure enuf, it swoll up within 2-4 days of discharge. My drainage tube was removed the day before I was discharged. It was large enuf to be uncomfortable while walking. And sure enuf, within 2 weeks it had subsided, all on its own. Only problem was the swelling left me with an expanded scrotum, with my testicles floating around somewhere within this larger saggy bag. That was just a little disconcerting -- no discomfort. Now, 6 weeks after surgery, things are pretty much back to normal for the scrotum. Hang in there, it will all firm up with a few weeks time. Bruce Bruce, the jock strap did the trick. Everything was back to normal within 24 hours. Even the discoloration. Thanks, Erik > Same thing happened to me -- but not as much as you. > [quoted text clipped - 19 lines] > > Bruce |
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