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Medical Forum / Diseases and Disorders / Prostate Cancer / March 2008PSA Doubling, Velocity what it means to us. Outstanding source.
Has everybody on the NG found http://www.pcngcincinnati.org/psa/calculator.html ? I've used it as a valuable easy calculator for PSAV (Velocity) and PSAD (doubling time) for a year or so. But today, for the first time I saw a small line below the calculator saying 'click here' for more information. It was as though it had sprung up at me - like a lamp suddenly appearing, saying 'rub me'. So I did. And behold, up sprung the genie! http://www.pcngcincinnati.org/psa/index.htm. It contains the most detailed research info on one page that I've come across about how PSA, PSAV can be used as a prognosis of future development, at all stages of Pca. With Nomograms to help pedict best treatment. There is so much detail indeed that I pushed the genie back in the bottle after about fifteen minutes when my eyes were glazing over. Will have to return to this Aladdin's cave of PSA riches a few more times to absorb application to my condition. I'd be interested to know if the number of very bright guys in the NG able to juggle scores of statistics with nonchalance have seen this site. If so how they rate it as a fount - because I've never seen any mention of it before in this NG, which is generally all-knowing. My very best wishes to all Mike > Has everybody on the NG found > http://www.pcngcincinnati.org/psa/calculator.html ? [quoted text clipped - 9 lines] > development, at all stages of Pca. With Nomograms to help pedict best > treatment. www.pcngcincinnati.org also provides a really good diagram showing the difference in Gleason numbers that I have referred to often here. And, along the lines of 'the river always recovers it's driftwood' or 'we have come full circle', let me tell you the rest of the story... There once was a man named Robert Young. He was formerly a United States Marine. He went through a less than rewarding marriage and divorce and married a wonderful woman named Caren. I don't recall if he was laid off or transferred, but in any case he had to move to Cincinnati (actually Deer Park, just outside of Cincinnati) for employment purposes at the age of 60. At 61, he was diagnosed on November 23, 1999, with advanced prostate cancer. His PSA was 1000 and his Stage was M1c. He was, in other words, a dead man walking. His reaction was to go home, fall on the kitchen floor and cry. He died 3½ years later on June 15, 2003. But that is not the end of the story. He researched his disease and found exactly where he stood. He came to this very newgroup and received support; and then provided support for many, many people. During his last couple of years, he was one of those people that I highly regarded for my own support as I was introduced to this bastard we call PCa. He was clearly regarded by one and all. About this time, he also noted a lack of information available to the common man on the Internet. He created www.Phoenix5.org. At one time, every time a newbie came to the NG, we would tell him of the 'bible', Walsh's book, and the premier website at Phoenix5. And that was not the end of the story... Later, he realized there was no group in the Cincinnati area for PCa victims to go to for personal support. So, he went to the Wellness Community (http://www.thewellnesscommunity.org/cincinnati/) in Blue Ash (another city just outside of Cincinnati), and started up a support group. Later, after Robert's death, Bob Kanter affiliated with UsToo and renamed the group Prostate Cancer Networking Group of Cincinnati, a chapter of UsToo. Every month, they have experts come in and speak to those in attendance (some times including me). I think I just missed Dr. Snuffy on the 27th. Dammit!! But, they also have a monthy newsletter and publish a website. It is a very sipmlistic site, but has some great information. And now, it is cited here in the NG. Okay, that was anticlimatic. >> Has everybody on the NG found >> http://www.pcngcincinnati.org/psa/calculator.html ? [quoted text clipped - 9 lines] >> development, at all stages of Pca. With Nomograms to help pedict best >> treatment. >www.pcngcincinnati.org also provides a really good diagram showing the >difference in Gleason numbers that I have referred to often here. [quoted text clipped - 40 lines] > >Okay, that was anticlimatic. No Steve, not anticlimatic at all. It's surely inspiring. It's a wonderful storyof tremendous character and determination not to let the bastard (you know which one I mean!) get us down. Your marine had the right stuff we here need to keep going, as much as the treatments. One advantage we have over Robert is that if we hang on not too long now, the ogre surely will be battered into blubbering insensibility by the discoveries now flooding in at exponential lightspeed. Robert Young succumbed, after all the beast had him down for ten before he knew it was there. Yet HE WON - he got up off the floor with courage and drive to leave behind information better enabling others to see the day when the beast would be down and out. Robert has the last laugh! I honour him. We need inspirational stories like Robert's as much as we need the basic information which you Steve among other highly regarded names supply to this grateful NG. On Feb 29, 5:56 am, Mik...@anon.co.uk wrote: > Has everybody on the NG foundhttp://www.pcngcincinnati.org/psa/calculator.html? > I've used it as a valuable easy calculator for PSAV (Velocity) and [quoted text clipped - 17 lines] > My very best wishes to all > Mike The PCNG Cincinnati site certainly is excellent. I also like its links page. There are better calculators, however. That one only works between two points in time and since there are no graphics you can't really assess whether you are applying it to calculate the PSADT over a stretch of time where the growth truly is exponential (an underlying assumption) -- that means your answer could be meaningless. Suggest you check out this 4 part article: http://palpable-prostate.blogspot.com/2007/03/psa-doubling-time-psadt-part-1.html which references the PCNG site and also points to calculators and methods of calculation for PSADT. There is also a calculator page here on various prognostics (not just PSA kinetics) here: http://palpable-prostate.blogspot.com/2007/02/prosate-cancer-calculators.html Additional posts on PSA can be found in the CONTENTS whose link is in red on the right side of every page of the Palpable Prostate site. --- The Palpable Prostate http://palpable-prostate.blogspot.com To save anybody double reading if you've already read threads above, this is just to say Thanks for further info., to A.Black. MikeHi >On Feb 29, 5:56 am, Mik...@anon.co.uk wrote: >> Has everybody on the NG foundhttp://www.pcngcincinnati.org/psa/calculator.html? [quoted text clipped - 49 lines] >The Palpable Prostate >http://palpable-prostate.blogspot.com
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