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Medical Forum / Diseases and Disorders / Prostate Cancer / February 2008

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My story so far

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Bodie - 16 Feb 2008 20:39 GMT
Greetings gentlemen,
my story to date:

General checkup and routine blood test by GP
1 October 2006 PSA 4.9
Visit to urologist (antibiotics for suspected infection) Age 49
PSA increases to 5.03 January 2007
Consultation with urologist (DRE)  who recommends biopsy.
Biopsy 26 January 2007
Diagnosed positive for Prostate Cancer with Gleason rating of 6 (3+3) and a
grading of T2C - had BARELY come out from under the anesthetic when the
urologist suggests Radical Prostatectomy (and makes a booking for surgery).
I was convinced I would not survive the surgery - irrational fear at the
time = Procrastination - Stress - Anxiety - Depression -
Consultation with Radiation Oncologist - very informative May 2007
Treatment Three-dimensional conformal radiotherapy (3D-CRT)
May 2007 5 1/2 weeks
Minor immediate side effects (skin burning just below the coccyx)
First blood works after treatment August 2007 - Age 50
PSA .9
Second blood works February 2008
PSA .1
Oncologist very happy - so am I.
(will be 51 in July)
I am LIVING with the disease rather than dying from it.
Next blood works due in August 2008
I am confident it will have decreased again.

Bodie
South Africa

--
"Certainly there is no hunting like the hunting of man and those who have
hunted armed men long enough and liked it, never really care for anything
else thereafter. You will meet them doing various things with resolve, but
their interest rarely holds because after the other thing ordinary life is
as flat as the taste of wine when the taste buds have been burned off your
tongue."
Hemingway.
Steve Kramer - 17 Feb 2008 00:21 GMT
> Greetings gentlemen,

Greetings, Bodie.  Welcome to our little club.

> Treatment Three-dimensional conformal radiotherapy (3D-CRT)
> May 2007 5 1/2 weeks
> First blood works after treatment August 2007 - Age 50
> PSA .9
> Second blood works February 2008
> PSA .1

That is, as I understand it, just about a perfect line for radiation
therapy.  Good to hear from South Africa.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  <.1  <.1  <.1  .27  .37  .75            PSAD 0.19 years
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32                       PSAD .056 years
Lupron 07/03 (1 mo) 8/03 and every 4 months there after
PSA  .07 .05 .06 .09 .08 .132 .145       PSAD 1.4 years
Casodex added daily 07/06
PSA <0.04, <0.05, <0.04, <0.04, <0.1  2/12/08
Non Illegitimi Carborundum

Bodie - 17 Feb 2008 16:23 GMT
> > Greetings gentlemen,
>
> Greetings, Bodie.  Welcome to our little club.

Thanks, Steve - just another weapon in the arsenal against PCa.
Discussion amongst one's peers provides a better and more informed mindset.

> > Treatment Three-dimensional conformal radiotherapy (3D-CRT)
> > May 2007 5 1/2 weeks
[quoted text clipped - 5 lines]
> That is, as I understand it, just about a perfect line for radiation
> therapy.

Well, it's gone down and seems to still be going down so I'm happy.

>Good to hear from South Africa.

Thanks - a pity you had to. :-)

We have a small support group here in the southen suburbs of Cape Town
called the PSA (Prostate Support Action) Group.
Not very original I know.
We meet once a month, have a few drinks and snacks then listen to a short
lecture/discussion by whichever speaker is arranged for the evening. This
ranges from medical experts to complete laymen to other survivors.
Lately we have been "advertising" in the offices of a few urologists in an
attempt to "get to folks" as soon as they have been diagnosed. This was
identified by our group as a very vulnerable time for PCa patients. (from
experience we know what we felt like when we were diagnosed and the
"perceived"complete lack of support at the time)

Lets hope we can make a difference.

Thanks for the welcome.

Stay healthy and be blessed.

Bodie.
J - 17 Feb 2008 08:01 GMT
> Greetings gentlemen,
> my story to date:
[quoted text clipped - 26 lines]
> Bodie
> South Africa

Gteetings to Bodie in South Africa.
Glad to read that the treatment went well.
Your low numbers are encouraging.
They may be rounding up to .1
Then there's no need to fret the minor fluctuations.
Steve K keeps the data on newcomers in a database.
I'm from other cancer newsgroups.
I was supporting a man whose lady friend had uterine cancer.
She was elderly and had radiation seeds inserted.
She came through the treatment with flying colours.
Tough people you are !
She had a long ways to go to get the treatments and rechecks.
At last word, a year and half later, she was doing well and no recurrence.
I wish you the same and my best for a long and happy, healthy life.
J
Bodie - 17 Feb 2008 16:26 GMT
> > Greetings gentlemen,
> > my story to date:
[quoted text clipped - 29 lines]
> Gteetings to Bodie in South Africa.
> Glad to read that the treatment went well.

Hi J,
thanks for that and yes, so was I. ;-)

> Your low numbers are encouraging.
> They may be rounding up to .1
> Then there's no need to fret the minor fluctuations.

Well they seem to be following the "predicted" norm for the type of
treatment so I'm optimistic.

> Steve K keeps the data on newcomers in a database.
> I'm from other cancer newsgroups.
[quoted text clipped - 4 lines]
> She had a long ways to go to get the treatments and rechecks.
> At last word, a year and half later, she was doing well and no recurrence.

That is great for her and yes, we are a hardy breed. :-)

> I wish you the same and my best for a long and happy, healthy life.
> J

Thank you and may we all go from strength to strength.

Stay well and be blessed.

Bodie.
Alan Meyer - 18 Feb 2008 22:35 GMT
Good news Bodie.

I have read that men whose PSA reaches 0.2 or less after radiation
very rarely get a recurrence.

Your PSA may not drop to zero.  You do still have a prostate.  But
it looks like all the cancer is gone.

> "Certainly there is no hunting like the hunting of man and those who
> have
[quoted text clipped - 8 lines]
> tongue."
> Hemingway.

Hmmm.  An odd quote to be sure.

Hemingway was a pretty extraordinary man.  I read recently that he
was a journalist with the U.S. army during the Battle of the Bulge.
When Germans broke through in his sector and attacked the
command post where he was visiting, he grabbed a Tommy
gun and shot a couple of them, saving the battallion commander's
life.

Guess he practiced what he preached.

  Alan
Steve Jordan - 18 Feb 2008 23:17 GMT
On February 18, Alan Meyer replied to Bodie:

> I have read that men whose PSA reaches 0.2 or less after radiation
> very rarely get a recurrence.
>
> Your PSA may not drop to zero.  You do still have a prostate.  But
> it looks like all the cancer is gone.

I hope so, but keep checking.

I wonder whether Bodie is acquainted with Terry Herbert of YANA (You Are
Not Alone) PCa website fame. Terry moved some months ago from South
Africa to Oz (Australia).

(snip "Papa" Hemingway quote)

> Hmmm.  An odd quote to be sure.
>
[quoted text clipped - 6 lines]
>
> Guess he practiced what he preached.

Yes, quite the man's man. 'Course there just might have been an element
of self-preservation involved.

Warning: Downer follows.

One of my favorite quotes: "The world breaks everyone and afterward many
are strong in the broken places. But those that will not break it kills.
It kills the very good and the very gentle and the very brave
impartially. If you are none of these you can be sure it will kill you
too but there will be no special hurry."

Papa was himself a broken man; he committed suicide in 1961.

Regards,

Steve J
Bodie - 19 Feb 2008 19:39 GMT
> Good news Bodie.
>
> I have read that men whose PSA reaches 0.2 or less after radiation very
rarely get a recurrence.

Good news indeed and a notion I am particularly fond of using as a mantra.
:-D

> Your PSA may not drop to zero.  You do still have a prostate.  But
> it looks like all the cancer is gone.
[quoted text clipped - 13 lines]
>
> Hmmm.  An odd quote to be sure.

Hi Alan,
spent a LARGE part of my life doing just that, hunting men (in the military)

Now I do it part time (in the Police)

It is part of my karma.

Take care and be blessed.

Bodie.

> Hemingway was a pretty extraordinary man.  I read recently that he
> was a journalist with the U.S. army during the Battle of the Bulge.
[quoted text clipped - 6 lines]
>
>    Alan
 
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