Even after seven years of undetectable readings, I am still very nervous
about calling my urologist to find out the results of my latest PSA
test. I used to make my wife do it, but the doctor's office won't tell
her anymore because of HIPAA. Fortunately, I can look it up on my
medical group's website, but that requires me to get my primary care
physician to authorize it. So I've been waiting until I have some other
test results before I bug him about it. This time is was almost a month.
Over the phone, they just tell me that the result was "undetectable",
but the web site offers more detailed information. The result is listed
as < 0.1 ng/ml. I've know all along that my urologist doesn't believe
in routine ultrasensitive testing for his post RRP patients, and I'm
fine with that. But I was wndering exactly what the lab was doing.
The test is described as the "Bayer Centaur method". Checking with
google told me very litle, but I do remember something about "third
generation tests". Is it likely that this particular method actually
registers values below 0.1 but they don't bother reporting them, or that
it can't even register such values?
I probably can more or less understand the technical intricacies of
testing if someone can direct me to a good source of information.
Steve Kramer - 30 Jan 2008 21:20 GMT
> I used to make my wife do it, but the doctor's office won't tell her
> anymore because of HIPAA.
I assume you know that they can tell your wife if you want them to. HIPAA
is just bad law, but many medical 'professionals' make it so much worse than
it really is.

Signature
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years
EBRT 05-07/2002 @ 47
PSA .34 .22 .15 .21 .32 PSAD .056 years
Lupron 07/03 (1 mo) 8/03 and every 4 months there after
PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.4 years
Casodex added daily 07/06
PSA <0.04, <0.05, <0.04, <0.04 10/11/07
Non Illegitimi Carborundum
I.P. Freely - 30 Jan 2008 22:18 GMT
>> I used to make my wife do it, but the doctor's office won't tell her
>> anymore because of HIPAA.
>
> I assume you know that they can tell your wife if you want them to. HIPAA
> is just bad law, but many medical 'professionals' make it so much worse than
> it really is.
Mine won't even tell *me* unless I drive to the VA office and present an
ID card in person (even though I know them personally). This must cost
taxpayers and/or vets many millions of dollars (and use up many dead
dinosaurs) every year.
I.P.
BH - 30 Jan 2008 21:58 GMT
>Even after seven years of undetectable readings, I am still very nervous
>about calling my urologist to find out the results of my latest PSA
Leonard, I know what you mean about being nervous about calling to get
the PSA results. I've been nervous for 13 years. I think most of us
deal with varying levels of apprehension about that.
>Over the phone, they just tell me that the result was "undetectable",
I once had a nurse tell me that my results were "normal". The phone
lines probably got pretty warm during the ensuing exchange. Later, I
complained to the Doc, who apologized. What is "normal" for a guy who
has already had RP and SRT? I was livid!
>The test is described as the "Bayer Centaur method".
My HMO uses the Bayer Centaur method, also. The results I got last
evening (via the Internet) was 0.18. They always report to two
decimal places. Maybe there are different types of "Bayer Centaur
Methods"? Or, maybe they are just "rounding"?
>I probably can more or less understand the technical intricacies of
>testing if someone can direct me to a good source of information.
I'm sorry, but I can't help you there, Leonard. Back in the days when
I was getting "undetectable" readings, the actual lab reports were
saying <0.06. I understood that 0.06 was the lowest reading possible
for that test. But, I really have nothing to substantiate that.
BTW, Congratulations on seven years of undetectables! That's GREAT!
Burney
RP in 1995 (age 52)
RT in 2000
ADT (Casodex) 10/06 - 8/07
Latest PSA - 0.18
burney dot huff at mindspring dot com
Steve Jordan - 30 Jan 2008 22:12 GMT
On January 30, Len wrote:
(snip)
> Over the phone, they just tell me that the result was "undetectable",
> but the web site offers more detailed information. The result is listed
> as < 0.1 ng/ml. I've know all along that my urologist doesn't believe
> in routine ultrasensitive testing for his post RRP patients, and I'm
> fine with that. But I was wndering exactly what the lab was doing. The
> test is described as the "Bayer Centaur method".
Search on www.pubmed.gov using the criteria bayer centaur psa. Eight
clinical studies will come up, mostly comparing various lab regimens.
There seems to be a fairly wide variance between them, unfortunately.
A year ago, my lab changed from the DPC Immulite to Roche Electrosys,
don't ask me why. They offered to cross-check so the results on one
specimen could be compared.
My onc's staff failed to tell me about this. I learned of it only
because I had made sure that the lab had been instructed to send copies
of all test results directly to me.
That is one reason why I recommend that pts do not rely upon the medic's
clerical staff to do the necessary. Current example: I had a PSA draw
last Thursday. The medic's shop has the report by now, but the clerical
staff has so far failed to call me as they know is their duty.
Occasionally, the lab fails to send a copy. I thereupon contact a VP in
charge of customer service and politely raise hell. That hellraising
flows down to the staff and I get immediate results.
Sometimes it helps to be cranky. After all, what's involved is our very
lives, and I make no apology.
(snip)
So far as Bayer is concerned: There seems to be several automatic lab
devices under various names involving Advia and Centaur. I'm unable to
establish which is involved or where to find technical information.
I wonder whether Len would make progress if he called someone at the
lab......
Sorry, not very informative. But then we're merely patients, dontcha know.
And lastly, undetectable PSA is =/< 0.05 ng/mL. And that's not just
nasty ol' Strum the "outlier," but several others as well such as
Scholz, McDermed, Bagley, Myers, et cetera.
Regards,
Steve J
"Do not go where the path may lead. Go instead where there is no path
and leave a trail."
-- Ralph Waldo Emerson
jloomis - 31 Jan 2008 02:20 GMT
> Even after seven years of undetectable readings, I am still very nervous
> about calling my urologist to find out the results of my latest PSA test.
I know the feeling well.
I am on a yearly basis....
The last test in Aug. came up less than 0.02
Other tests came up less than 0.01 or something like that....
The Dr. said it is the test that creates the slight difference......hum.....
I get the test done up in a rural town, and not down @ the big city.......
Apparently they have a finer grading test @ Stanford.........hum?
Good wishes,
jloomis
I used to make my wife do it, but the doctor's office won't tell
> her anymore because of HIPAA. Fortunately, I can look it up on my medical
> group's website, but that requires me to get my primary care physician to
[quoted text clipped - 14 lines]
> I probably can more or less understand the technical intricacies of
> testing if someone can direct me to a good source of information.