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Medical Forum / Diseases and Disorders / Prostate Cancer / February 2008Where do I go from here?
Hello all, I have followed this newsgroup for the past few years. My past posts concerned stricture problems that were eventually cured with a bladder augmentation with stoma. The latest milestone in my journey is the curtailment of my hormone treatments. Now it's a wait and see or a chemo treatment. I have listed my trials and tribulations. Fortunately I feel fairly well for now. (A lot better than in the past 3 years.) Are there any new options that I should be looking at? Thanks, Frank Previous years - PSA > 3.0 05/01/04 - PSA 12.3 @ 61 06/07/04 - Biopsy G7 (4+3), T1c 06/24/04 - Bone Scan - BS - negative 08/04/04 - Cryo 8/16/04; 9/09/04 - ER - Stricture's 12/01/04 - PSA 0.7 12/27/04 - TURP 01/25/05 - Acute Urinary Retention 02/01/05 - PSA 1.08 03/21/05 - Cystoscopy @ 62 03/25/05; 05/01/05 - ER - Stricture's 05/13/05 - TURP 07/01/05 - Super Pubic 10/25/05 - PSA 6.5 11/14/05 - RRP G8 (4+4) non defined margins 11/30/05 & 12/22/05 - ER - Stricture 12/19/05 - Int. Urethrotomy 01/20/06 - PSA 0.7 03/17/06 - ER - Stricture, Super Pubic installed 03/27/06 - PSA 1.7 @ 63 04/03/06 - Bleeding @ SP Emergency Room 05/01/06 - Prostascint Scan - negative 05/16/06 - Bladder Augmentation with stoma 05/31/07 - BS lower back, neck & rib cage? 06/29/06 - PSA 3.0 ; 08/07/06 - PSA 4.7 08/05/06 - ERT Chest Radiation 5 days 08/10/06 - CHT - daily Casodex & Lupron (3 mo) and 11/10/06 11/10/06 - PSA 7.1: 0.02; 0.08; 0.25; 2.12; PSAD 0.83 years 02/06/07 - Switch to Zolodex (3 mo) ; 04/26/07; 08/07/07 @ 64 09/17/07 - Casodex Stopped 11/06/07 - PSA 4.44 ; 1.21 12/19/07 > Hello all, > I have followed this newsgroup for the past few years. > [quoted text clipped - 3 lines] > The latest milestone in my journey is the curtailment of my hormone > treatments. > 09/17/07 - Casodex Stopped > > 11/06/07 - PSA 4.44 ; 1.21 12/19/07 Hi Frank. Good to see you back, but I wish it was with better news. I'm sort of confused. I understand you stopped Casodex in September. Are you doing Lupron still? Or just Zolodex? And, are you saying your PSA was 4.44 in November and 1.21 in December? What you so from here see what happens. Obviously, there is a chemo decision in your future, but for now, the stoppage of ADT might have thrown the cancer for a temporary loop. You might also look for studies or trials.  SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 PSAD .056 years Lupron 07/03 (1 mo) 8/03 and every 4 months there after PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.4 years Casodex added daily 07/06 PSA <0.04, <0.05, <0.04, <0.04 10/11/07 Non Illegitimi Carborundum To the gym. That may sound facetious, but it's not. We may as well at least *feel* better even if we're not. Exercise won't cure cancer, but it can go a very long ways towards curing the mood of many cancer patients. If you've got it in you mentally, you may as well charge down that hill rather than coasting down it. Family gym trainers are experts at helping doddering, lame, topsy, old farts like many of us feel, walk, and function far better than we can do on our own. They quickly recognize what each new client needs and can do. And no one benefits more quickly from the right kinds of exercise than people who are infirm for no other reason than lack of exercise, which includes most people old enough to get prostate cancer. (That sounds obvious, but it often surprises people that the age group quickest to improve with weight-lifting is nanogenarians.) I.P. > To the gym. > > That may sound facetious, but it's not. We may as well at least *feel* > better even if we're not. Exercise won't cure cancer, but it can go a very > long ways towards curing the mood of many cancer patients. It may not cure cancer, but bone strengthening will delay and fend off for awhile bone cancer, which has got to be the worst part of prostate cancer. SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 PSAD .056 years Lupron 07/03 (1 mo) 8/03 and every 4 months there after PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.4 years Casodex added daily 07/06 PSA <0.04, <0.05, <0.04, <0.04 10/11/07 Non Illegitimi Carborundum >> To the gym. >> [quoted text clipped - 4 lines] > It may not cure cancer, but bone strengthening will delay and fend off for > awhile bone cancer, which has got to be the worst part of prostate cancer. Good point. If not overdone, it may also boost the immune system. I.P. >> To the gym. >> [quoted text clipped - 4 lines] >It may not cure cancer, but bone strengthening will delay and fend off for >awhile bone cancer, which has got to be the worst part of prostate cancer. I go to the gym every morning from Monday to Saturday. If by any chance I cannot go, that day seems really ackward, difficult, uninteresting... I do feel MUCH better after my 1 hour workout. Even if it does not improve my chances on pca (I kind of hope it does...), it anyway does wonders to my overall fitness and mental attitude. Gym everyday: a great move since my retirement... Just > Gym everyday: a great move since my retirement... That's great, as long as you aren't overdoing it or stressing the same muscles on successive days. I found that I got tired over the long haul at 3 gym days every week, but then each one of them was a head-to-toe, max-effort, 4-to-5-hour, multiple-discipline (e.g., weights, cables, Swiss ball, plyometrics, Pilates, circuit, swim, floor ex), non-stop gutbuster -- too much too often for my old carcass. I'm doing great now that I've condensed that into cardio every day plus a 2-hour whole-body gutbuster 2Xweek. As you know, the improvement in every waking moment is dramatic even compared to my pre-gym but highly active years. Not only are we more limber and capable and strong and aerobically fit than most college kids, but our clinical fitness measurements exceed those of many varsity college athletes. We aren't going to survive more years than our cancer-free statistics might predict, but we're sure as hell going to stretch out our feel-good years way beyond those of most people. That's all we can do with the hand we've been dealt, so we may as well benefit from the extra motivation. I also feel privileged to have found a safe, highly beneficial, self-motivating, thrilling, adrenaline-pumping, outdoor sport which keeps my musculoskeletal and cardiovascular systems well tuned much of the year and should remain doable until my cancer actually gets serious about trying to kill me. I also feel fortunate to have finally seen the value in gyms even for ex-gym-haters like myself. I.P. >> Gym everyday: a great move since my retirement... > > I also feel privileged to have found a safe, highly beneficial, > self-motivating, thrilling, adrenaline-pumping, outdoor sport which keeps > my musculoskeletal and cardiovascular systems well tuned much of the year > > I.P. What sport is that IP? I did not catch you mentioning it. It sounds like you are really benefitting from it. Thanks, Steve >>> Gym everyday: a great move since my retirement... >> [quoted text clipped - 5 lines] > What sport is that IP? I did not catch you mentioning it. It sounds like > you are really benefitting from it. For many decades my passsions were extreme dirt biking and snowmobiing, plus intermediate snowboarding and skiiing, several days a week. Windsurfing (all the thrills without the pain) gradually and totally replaced them 20 years ago as a path to adrenaline that I can pursue into old age without destroying my body. Through great effort and focused career management, I've managed to live and pursue all those from 4-7 days a week -- full time the last 20 years -- in their best venues in the nation. I need zero external motivation to stay in shape and eat right. I.P. >> Gym everyday: a great move since my retirement... > [quoted text clipped - 6 lines] >that I've condensed that into cardio every day plus a 2-hour whole-body >gutbuster 2Xweek. I go for a 1 hour workout everyday, using three different "exercise menus" (one for each day) that altogether cover nearly all the equipment at the gym... On top of that, I tend to go to Pilates and Yoga group sessions or take some Turkish bath or sauna. Of course, before everything else, when I arrive at the gym I have an espresso coffee and read a couple of newspapers. Altogether, it takes me some 2 1/2 hours a day. Hence I wrote I could only do this since retirement! >I also feel privileged to have found a safe, highly beneficial, >self-motivating, thrilling, adrenaline-pumping, outdoor sport which >keeps my musculoskeletal and cardiovascular systems well tuned much of >the year and should remain doable until my cancer actually gets serious >about trying to kill me. My outdoor activity is trekking, which I tend to do 2 or 3 days a month - 10 to 15 miles each time. It is a good complement to the gym and I have known some great places this way. Just >That sounds obvious, but it often surprises people >that the age group quickest to improve with weight-lifting is >nanogenarians. > >I.P. Nanogenarians! Thanks I.P. ... I keep learning new stuf fin this newsgroup. And I even improve my knowledge of the English language... Actually, it was not straightforward to find a definition: there is none in thefreedictionary.com or in Wikipedia. Just >> That sounds obvious, but it often surprises people >> that the age group quickest to improve with weight-lifting is [quoted text clipped - 9 lines] > Actually, it was not straightforward to find a definition: there is > none in thefreedictionary.com or in Wikipedia. Sorry about that. I always try to use familiar words, as everyone knows pedantry obfuscates limpidity. ;-) I.P. >>> That sounds obvious, but it often surprises people that the age >>> group quickest to improve with weight-lifting is nanogenarians. [quoted text clipped - 10 lines] > Sorry about that. I always try to use familiar words, as everyone > knows pedantry obfuscates limpidity. ;-) Hey IP......you are confusing poor "Just". Did you mean 90 year olds?? It is spelled "nonagenarian", which I went and double checked in an online dictionary. But we all got the drift. Now I am off to translate those last 3 words into English.....LOL!! Heather >>>> That sounds obvious, but it often surprises people that the age >>>> group quickest to improve with weight-lifting is nanogenarians. [quoted text clipped - 19 lines] > >Heather What? IP does not know everything? He got me fooled for some time... Actually, he is not the only one making that confusion. See: http://www.blurtit.com/q183007.html Just >>Hey IP......you are confusing poor "Just". Did you mean 90 year >>olds?? [quoted text clipped - 12 lines] > Actually, he is not the only one making that confusion. See: > http://www.blurtit.com/q183007.html LOL.....You realize that as a *spelling/grammar freak* I then had to correct that website on two words. Sigh.......the walking dictionary. Hey, how was Quebec City?? We wanted to go this summer, but it is the 400th anniversary of the founding of QC and the rooms are an atrocious price!! Plus I can't get a room at my favourite hotel just outside the wall. Double sigh....... >Hey, how was Quebec City?? We wanted to go this summer, but it is the >400th anniversary of the founding of QC and the rooms are an atrocious >price!! Plus I can't get a room at my favourite hotel just outside the >wall. Hi Heather! I loved Quebec City. The town is great and they have wonderful parks not too far away. I liked particularly the Charlevoix area. I am tempted to go back there this year because of the 400th anniversary (I have free lodging...) but I am probably even more tempted to go to the USA. As you know, I live in Euro land. Last time I was in the USA, some 5 years ago, 1 euro would buy 80 $USA cents. Now it buys nearly 1.5 $USA! This is very tempting as everything becomes much cheaper... I am now starting to check national park destinations in the USA. A lot of alternatives! I hope I manage to come to a conclusion! Cheers. Just >>Hey, how was Quebec City?? We wanted to go this summer, but it is the >>400th anniversary of the founding of QC and the rooms are an atrocious [quoted text clipped - 6 lines] > I loved Quebec City. The town is great and they have wonderful parks > not too far away. I liked particularly the Charlevoix area. We stayed around Malbaie in the Charlevoix area, but I couldn't understand the local *joual* (slang) and I think it was probably Gaspe french.....anyway it rained the whole time we were there (2 days), but it was a lovely area.....a biosphere. > I am tempted to go back there this year because of the 400th > anniversary (I have free lodging...) but I am probably even more > tempted to go to the USA. > As you know, I live in Euro land. Last time I was in the USA, some 5 > years ago, 1 euro would buy 80 $USA cents. Now it buys nearly 1.5 > $USA! This is very tempting as everything becomes much cheaper... Amazing, eh? Our dollar is now equal or worth slightly more than the US one. After years of being on the short end of the stick, I rather like this. You would get the same for your Euro here. I paid $1.50 last year for one. I can't think of anywhere I would like to go in the US now. New Orleans was on the short list. Perhaps go visit Steve K or J......but Arizona would be nicer than Ohio. One of the Carolinas perhaps. We are just digging out from another snowstorm. Steve K sent it. (G) Cheers....Heather (snip) > I can't think of anywhere I would like to go in the US now. New Orleans > was on the short list. It's still a mess..... > Perhaps go visit Steve K or J......but Arizona > would be nicer than Ohio. Correct. Snowbirds always welcome. The number of Canadian licence plates and folks saying "eh" ;-) during winter is amazing. Right now, a few miles from right here, there's a bigtime golf tournament. On t'other side of town, the Super Bowl shortly. But for those not into sports, there's beauty all around. Regards, Steve J > (snip) > >> I can't think of anywhere I would like to go in the US now. New >> Orleans was on the short list. > > It's still a mess..... Yup.....I have a friend that is now back there, but her house was not damaged much and it still took a year. She also has a villa in Spain, sigh. >> Perhaps go visit Steve K or J......but Arizona would be nicer than >> Ohio. [quoted text clipped - 3 lines] > a few miles from right here, there's a bigtime golf tournament. On > t'other side of town, the Super Bowl shortly. Ron would love watching the golf.......what's a *Super Bowl*??? (VBG) > But for those not into sports, there's beauty all around. OK, that did it. Gotta go book my tickets. (G) > Regards, > > Steve J On February 3, Heather replied to me: > Yup.....I have a friend that is now back there, but her house was not > damaged much and it still took a year. She also has a villa in Spain, > sigh. I wonder whether she would consent to adopt me...... >>> Perhaps go visit Steve K or J......but Arizona would be nicer than >>> Ohio. [quoted text clipped - 4 lines] > > Ron would love watching the golf.......what's a *Super Bowl*??? (VBG) A huge money-printing machine with drug-soaked adolescents sacrificing their bodies to It. >> But for those not into sports, there's beauty all around. > > OK, that did it. Gotta go book my tickets. (G) C'mon down. Regards, Steve J >>>Hey, how was Quebec City?? We wanted to go this summer, but it is the >>>400th anniversary of the founding of QC and the rooms are an atrocious [quoted text clipped - 14 lines] >> anniversary (I have free lodging...) but I am probably even more >> tempted to go to the USA. > I can't think of anywhere I would like to go in the US now. It all depends on what you're looking for. Michigan and Maine are beautiful in the winter. San Diego, California and Fort Myers, Florida are Heaven on Earth year round. Colorado or Vermont if you like skiing. Anywhere along the west coast for surfboard and windsurfing. East or west coast and all over Florida for parasailing. There are very few spots on earth more beautiful than the Rocky Mountains, more curious than the Badlands, or more awesome than the Grand Canyon or Mt. Saint Helen. If you're coming in the Summer, there are very few states if any that have nothing to see. I have pledged to see sites around the world once I've seen all that America has to offer me. I suspect I'll not have to worry about getting a passport. Rule Number 1 -- Never ask a Canadian what's in the U.S. (not that you did). >It all depends on what you're looking for. Michigan and Maine are beautiful >in the winter. San Diego, California and Fort Myers, Florida are Heaven on [quoted text clipped - 6 lines] >pledged to see sites around the world once I've seen all that America has to >offer me. I suspect I'll not have to worry about getting a passport. >Rule Number 1 -- Never ask a Canadian what's in the U.S. (not that you did). Hi Steve! I am contemplating travelling, for 2 or 3 weeks, in spring, summer or autumn, with the main purpose of hiking. I am a fan of ecotourism... I am preliminarily checking a few different scenarios: 1 - Fly to Las Vegas and make a 7 day tour covering: Bryce Canyon National Park, Canyon de Chelly National Monument, Grand Canyon National Park, Monument Valley, Zion National Park, or... 2 - Fly to Seattle and make a 10 day tour covering: Banff National Park, Jasper National Park, Lake Louise, Vancouver, Yoho National Park, or... 3 - Fly to Ancorage and make an 8 day tour covering: Denali National Park, Seward, Valdez. I apologise for wandering into Canada! I was not paying attention! The above are organised hiking tours for small groups (max 13). I would add 2 or 3 days at the starting point + a stopover in another location on my way from / to Europe. These are just initial thoughts. Any suggestions are welcome! Just There are very few spots on earth more >>beautiful than the Rocky Mountains, more curious than the Badlands, or >>more awesome than the Grand Canyon or Mt. Saint Helen. > > Hi Steve! > [quoted text clipped - 15 lines] > > I apologise for wandering into Canada! I was not paying attention! WOT???? You apologise for wandering into the Great White North?? I would pick #2, but would fly into a Canadian airport closer to these beautiful hiking spots. Seattle (home of Billy Gates) is a 4 hour bus ride from the Canadian border....guess it would be an hour's plane ride. Elayne was in Seattle for the annual Microsoft MVP wingding that Billy puts on and she travelled by bus. I hear that Bryce Canyon is just amazing!! As is the Grand Canyon. Might as well go while the US dollar is so low. Our Euro/Cdn dollar ratio is the same as when we went to Portugal. Cheers.....and couldn't resist teasing you.....Heather (et famille) >>It all depends on what you're looking for. Michigan and Maine are >>beautiful [quoted text clipped - 39 lines] > > These are just initial thoughts. Any suggestions are welcome! The three you've indicated sound great. Alaska is probably the most beautiful spot on Earth for hiking, but Canada has some really nice places as well, some of which are rarely seen by man. In the US, there is the Appalachian Trail if you want to hike day after day after day. >>>It all depends on what you're looking for. Michigan and Maine are >>>beautiful [quoted text clipped - 44 lines] >as well, some of which are rarely seen by man. In the US, there is the >Appalachian Trail if you want to hike day after day after day. Or, the Cascade Crest Trail from the Canadian border to the Mexican border on the western side of the country. I agree, Alaska is GREAT! But, the Canadian Rockies are absolutely magnificient! And, flying into Edmonton, Calgary, or even Vancouver would be my recommendation. Burney, in WA > Hey IP......you are confusing poor "Just". Did you mean 90 year olds?? > > It is spelled "nonagenarian", which I went and double checked in an > online dictionary. But we all got the drift. Yup, I did. And now we're all cornfewsed, as both nonagenarian and nanogenarian Google up to mean 90-somethings. Go ratiocinate. I.P. >> Hey IP......you are confusing poor "Just". Did you mean 90 year olds?? >> [quoted text clipped - 5 lines] > > I.P. Well, if a nanosecond is one billionth of a second (nano from the Greek nanos, dwarf), what would that make a "nanogenarian." Dictionary dot com does not list a meaning for "nanogenerian" I don't believe. I did see it in Google. -- JerryW >>> Hey IP......you are confusing poor "Just". Did you mean 90 year >>> olds?? [quoted text clipped - 11 lines] > dot com does not list a meaning for "nanogenerian" I don't believe. I > did see it in Google. AHA.....we got him. I used Dictionary.com as well. Just to double check my own (correct) way of spelling it. And Larry knew it too. Ya just can't count on Google for everything (VBG). My dad died at the age of 90 plus 4 weeks. I think he probably would have hit me over the head if I called him a "nonagenarian", grin. cheers......Heather >>That sounds obvious, but it often surprises people >>that the age group quickest to improve with weight-lifting is [quoted text clipped - 11 lines] > >Just Maybe he meant... nonagenarian /nonjnairin, non-/ noun a person between 90 and 99 years old. |
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