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Medical Forum / Diseases and Disorders / Prostate Cancer / January 2008A wee poll - daily pad count, post-RP
I fear newbies or lurkers may take an unnecessarily downbeat view of post RP continence prospects after I.P.'s 'surprising' post so, if anyone feels like chalking up their outcome here.....? 0 pads/LRP (stress leaks, but not often). >I fear newbies or lurkers may take an unnecessarily downbeat view of > post RP continence prospects after I.P.'s 'surprising' post so, if [quoted text clipped - 3 lines] > > (stress leaks, but not often). 1 pad that I sometimes throw away dry. 1 diaper + 2 pads for 18 holes of golf. RPP/RT/ADT o pads/ LRP Ron S -- Message posted using http://www.talkaboutsupport.com/group/alt.support.cancer.prostate/ More information at http://www.talkaboutsupport.com/faq.html > I fear newbies or lurkers may take an unnecessarily downbeat view of > post RP continence prospects after I.P.'s 'surprising' post so, if [quoted text clipped - 3 lines] > > (stress leaks, but not often). It might be added that many men who don't have prostate cancer have incontinence problems because of BPH or other reasons. More older women do also, perhaps because they lack the extra sphincters. 3 years after RRP...no pads. (at about 6 months) I think that these folks can read and figure it out. No matter how scared they might be...I can GUARANTEE that I hold the Guiness Book of Records for fear. 0 Pads / RLRP both nerve bundles spared.  SignaturePSA @ 45 yrs. = 4.7 02/06/2007 Biopsy 03/16/2007 G7(3+4),T1c RLRP 06/12/2007 G7(3+4),T2cN0M0 Neg margins PSA 07/16/2007 = <0.1 PSA 09/12/2007 = <0.1 PSA 12/18/2007 = <0.1 0 pads .very rare drip. weak stream sometimes RP 09/12/05 @ 50yrs.old nerve bundles spared SRT 10/07 39 treatments (went well) >I fear newbies or lurkers may take an unnecessarily downbeat view of > post RP continence prospects after I.P.'s 'surprising' post so, if [quoted text clipped - 3 lines] > > (stress leaks, but not often). >I fear newbies or lurkers may take an unnecessarily downbeat view of > post RP continence prospects after I.P.'s 'surprising' post so, if [quoted text clipped - 3 lines] > > (stress leaks, but not often). RP in 2002 at age 64. One nerve spared. Was continent in 48 hours. Had 2 and a half bed-wetting episodes since. Holding capacity less, but manageable. Must get up 2-3 times a night. Everything manageble during the day. Only time I use pads is when I am staying overnight somewhere besides home (only as a precaution against the very rare bed-wetting.) "RP in 2002 at age 64. One nerve spared. Was continent in 48 hours." Show off. :-) > I fear newbies or lurkers may take an unnecessarily downbeat view of > post RP continence prospects after I.P.'s 'surprising' post so, if [quoted text clipped - 3 lines] > > (stress leaks, but not often). Zero pads, no leaks. Welcome to the group, Kusk! SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 PSAD .056 years Lupron 07/03 (1 mo) 8/03 and every 4 months there after PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.4 years Casodex added daily 07/06 PSA <0.04, <0.05, <0.04, <0.04 10/11/07 Non Illegitimi Carborundum >> I fear newbies or lurkers may take an unnecessarily downbeat view of >> post RP continence prospects after I.P.'s 'surprising' post so, if [quoted text clipped - 5 lines] > > Zero pads, no leaks. >I fear newbies or lurkers may take an unnecessarily downbeat view of > post RP continence prospects after I.P.'s 'surprising' post so, if [quoted text clipped - 3 lines] > > (stress leaks, but not often). 0 pads after approximately 3 months following RRP. See my signature. SignatureJerryW Please respond to group; email address is not valid 2/11/04 PSA 2.6, Suspicious DRE (age 62) 2/23/04 Biopsy: Gleason 3+4=7, T2a, left lobe 5/18/04 RRP, Path: Gleason 4+3=7, T2c, both lobes Fully continent by 9/04 PSA through 10/15/07: <0.1 Larry had zero leaks and zero pads after robotic surgery. Jean 0 pads since 6 weeks after RRP/very occasional leak >I fear newbies or lurkers may take an unnecessarily downbeat view of > post RP continence prospects after I.P.'s 'surprising' post so, if [quoted text clipped - 3 lines] > > (stress leaks, but not often). One pad a day a couple months after RP, mostly from stress, physical activity, or bladder spasm. Stayed about the same after salvage radiation to pelvic area, for a couple years. Incontinence slowly increased over the next couple years to two pads daily, then three, and many more if there was a lot of physical activity involved. An average sedentary day finally meant 2-3 pads, an active day meant 5-6 really full pads, and I finally had an artificial sphincter installed. For the couple years since then the norm is a pad a day, and it is dry at the end of most sedentary days and somewhat soiled after an active day. Bladder spasms will still produce some very minor leakage. Continent from Day 1, but Willie hasn't shown up for work yet. >I fear newbies or lurkers may take an unnecessarily downbeat view of > post RP continence prospects after I.P.'s 'surprising' post so, if > anyone feels like chalking up their outcome here.....? >I fear newbies or lurkers may take an unnecessarily downbeat view of > post RP continence prospects after I.P.'s 'surprising' post so, if [quoted text clipped - 3 lines] > > (stress leaks, but not often). Of the 8 or so long-time regular members of our Man-to-Man support group, only one has had ongoing (long term) incontinence problems other than occasional stress leaks. He had RRP followed by RT. He then had a miserable experience with the sling, but seems to be doing well now with the surgically implanted artificial sphincter. SignatureJerryW Please respond to group; email address is not valid 2/11/04 PSA 2.6, Suspicious DRE (age 62) 2/23/04 Biopsy: Gleason 3+4=7, T2a, left lobe 5/18/04 RRP, Path: Gleason 4+3=7, T2c, both lobes Fully continent by 9/04 PSA through 10/15/07: <0.1 We know some uros define "dry" as "needing only one pad a day". If I ever experienced sedentary days (I deliberately avoid them for all the obvious reasons), my one pad would usually get put away dry or nearly so. However, these "occasional stress leaks" I see in this thread are called "incontinence" by many uros and in my book. Would a teenager be satisfied with "occasional stress leaks"? There's no way I'd run around sans a pad if I were risking smelly shorts or a wet spot on my khaki pants. As for older women having the same problem, a "bounce (trampoline) class" I took was full of young women, many of whom had to leave to change pads during class simply because they were mothers. I.P. Low activity and trips to the bathroom every two hours whether I need to go or not, 1 pad/day. Lots of activity and bathroom visits only when I need them, 4 full pads/day. Had LRP July 15, 2003. Dave Perry > I fear newbies or lurkers may take an unnecessarily downbeat view of > post RP continence prospects after I.P.'s 'surprising' post so, if [quoted text clipped - 3 lines] > > (stress leaks, but not often). >I fear newbies or lurkers may take an unnecessarily downbeat view of >post RP continence prospects after I.P.'s 'surprising' post so, if [quoted text clipped - 3 lines] > >(stress leaks, but not often). No pads RP stress leaks, not often - a minor nuisance RP in 1995 (age 52) RT in 2000 ADT (Casodex) 10/06 - 8/07 Latest PSA - 0.13 burney dot huff at mindspring dot com I had the robotic laparoscopic surgery, Jan. 19, 2005. I was continent immediately after the catheter was removed. Had a problem shortly after with an infection, but once the infection was taken care of, I have been continent ever since. Dr. sent me to a therapist prior to surgery to make sure that I did Kegel's correctly. I did them for a month before surgery. Last PSA was .02 -- Message posted using http://www.talkaboutsupport.com/group/alt.support.cancer.prostate/ More information at http://www.talkaboutsupport.com/faq.html >I had the robotic laparoscopic surgery, Jan. 19, 2005. I was continent > immediately after the catheter was removed. Had a problem shortly after > with an infection, but once the infection was taken care of, I have been > continent ever since. Dr. sent me to a therapist prior to surgery to make > sure that I did Kegel's correctly. I did them for a month before surgery. > Last PSA was .02 Good to hear from you again after two years. Three years at < 0.04 is fantastic!!! SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 PSAD .056 years Lupron 07/03 (1 mo) 8/03 and every 4 months there after PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.4 years Casodex added daily 07/06 PSA <0.04, <0.05, <0.04, <0.04 10/11/07 Non Illegitimi Carborundum > I fear newbies or lurkers may take an unnecessarily downbeat view of > post RP continence prospects after I.P.'s 'surprising' post so, if [quoted text clipped - 3 lines] > > (stress leaks, but not often). Leah for Ted: RLRP: 10/15/05 No pads after a few weeks. Good continence. Occasional drip. Wet the bed about 3 times a year. > > I fear newbies or lurkers may take an unnecessarily downbeat view of > > post RP continence prospects after I.P.'s 'surprising' post so, if [quoted text clipped - 10 lines] > No pads after a few weeks. Good continence. Occasional drip. Wet > the bed about 3 times a year. BTW: "A wee poll." Are you Scottish, by any chance? I have a thing for Scotsmen :-) >BTW: "A wee poll." Are you Scottish, by any chance? I have a thing >for Scotsmen :-) Leah, your sense of humor never fails to crack me up. Thank you! Burney RP in 1995 (age 52) RT in 2000 ADT (Casodex) 10/06 - 8/07 Latest PSA - 0.13 burney dot huff at mindspring dot com > I have a thing Aha ... the truth comes out. ;-) NOW will Sy let you tell bawdy jokes? I.P. On Jan 18, 10:18 pm, "I.P. Freely" <fuhgheddabou...@noway.nohow> wrote: > > I have a thing > > Aha ... the truth comes out. ;-) =====> You are absolutely right. And better yet, it would all stand up in a court of law. The argument goes like this: Normally, any property brought into a marriage by a spouse -- like his "thing" -- would remain his "separate" property for the duration of the marriage. An exception is if the property is "transmuted", or altered, in some way. Then it becomes "community property," which is split 50-50 by the partners . . . So which half should I take? :-) Ouch. Seriously, I am "exploring" in therapy my posting of "the-things-that- define-men" jokes here. Doc does think it is a bit weird. Explanation goes back to my childhood, of course -- my mother's not so very well-kept secret of favoring her SONS. Plus, the religious culture that I grew up in -- extremely androcentric. So you want to act like a boy! This woke me up from a long snooze. Actually, I read a book by the "Dear Abby" of the Guardian newspaper, Guy Browning, who seemed to say that what *really* defines a man is his *lawn mower*. Take care. Leah prostatecancerblog.net Newest: "An Old Lady and Her Boy Toy" ----------------------------------------------------------------------------------------------------------------------------------- *Shrinks: People who find you cracked and leave you broke* >"callalily" <lfcjjk@aol.com> wrote > >Seriously, I am "exploring" in therapy my posting of "the-things-that- >define-men" > >Leah Leah, that's easy. Women talk, listen and relate. Men make stuff, break stuff and watch TV. Alex > >"callalily" <lfcjjk@aol.com> wrote >> [quoted text clipped - 5 lines] > Leah, that's easy. Women talk, listen and relate. > Men make stuff, break stuff and watch TV. And most importantly.......Men NEVER ask for directions....aarrgghh!! Heather > And most importantly.......Men NEVER ask for directions....aarrgghh!! > > Heather It's like an appendix -- a holdover from an earlier era. Rugged individualism and self reliance were once a necessary commodity for a man. >> And most importantly.......Men NEVER ask for directions....aarrgghh!! >> [quoted text clipped - 3 lines] > individualism and self reliance were once a necessary commodity for a > man. Bwa ha ha!! Then in that case, men should also develop a sense of direction. Ron can get lost going around the block!! We almost missed a posh dinner a week ago because he got lost in Toronto and we both grew up there. Unlike the UK, we had no Atlas/map with us, and he had studied it before leaving. So how come we were on the WRONG main road?? Because......just because..... Men have no valid answer for having no sense of direction, LOL!! Heather said: "Bwa ha ha!! Then in that case, men should also develop a sense of direction." But you see Heather, aimless wandering is what allowed the cave man to more accurately mimic the prey while on the hunt. (yeah that's the ticket, mimic the prey, I think she bought that.) :-) Ron B. >BTW: "A wee poll." Are you Scottish, by any chance? sorry, Leah, no. > I have a thing for Scotsmen :-) ....I can only offer you the very flimsiest of connections to the Welsh. I'm afraid I was born to disappoint. On Jan 20, 8:28 am, anon. wrote: > > I can only offer you the very flimsiest of connections to the Welsh. ====> Is that you, Rosbif? Not sure why you went undercover. Thought for a moment it was my wee laddie speaking. Have had a few "visitations" already. Never mind about the Welsh thing. A famous geneticist says all you UK folk are made out of the same "clay." Best part is: it's traceable to S. France! Now take that, ya frog. >> I'm afraid I was born to disappoint. Ya' sure? I'll know it when I hear it from Lady R. You folks are too fatalistic. Says in the Economist mag this week: "For the British, happiness is a suspicious transatlantic import ("We don't do happiness," quips one chap)." Now compare this, from the expat writer, Henry Miller: "Perhaps I am still very much of an American. That is to say, naïve, optimistic, gullible. In the eyes of a European, what am I but an American to the core, an American who exposes his Americanism like a sore? Like it or not, I am a product of this land of plenty, a believer in SUPERABUNDANCE, a believer in miracles." Better get set up in the "import" business. Best regards, Leah prostatecancerblog.net > I fear newbies or lurkers may take an unnecessarily downbeat view of > post RP continence prospects after I.P.'s 'surprising' post so, if [quoted text clipped - 3 lines] > > (stress leaks, but not often). I had Robotic Surgery about 18 months ago. Was at 6 pads early on, then gradually improved to one pad when sedentary and as many as four pads in an exercise intense day. Average is around two per day. >I fear newbies or lurkers may take an unnecessarily downbeat view of >post RP continence prospects after I.P.'s 'surprising' post so, if [quoted text clipped - 3 lines] > >(stress leaks, but not often). 0 pads/LRP 2 years ago, virtually never leak Is it too late to respond? I was away and the dog ate my homework. 100% dry in all circumstances 2 weeks post LRP and post salvage radiation. Zero pads of any kind. >I fear newbies or lurkers may take an unnecessarily downbeat view of > post RP continence prospects after I.P.'s 'surprising' post so, if [quoted text clipped - 3 lines] > > (stress leaks, but not often). >Is it too late to respond? Certainly not, Joe - thanks for swelling the numbers. (there's no deadline - everyone's encouraged to post their condition, pads or not) >I was away and the dog ate my homework. > >100% dry in all circumstances 2 weeks post LRP and post salvage radiation. > >Zero pads of any kind. Excellent! That makes a running total of 22 pad-free - 6 using pads. Just over 78% pad-free. > That makes a running total of 22 pad-free - 6 using pads. > > Just over 78% pad-free. So you figure pad-free = dry, even though many of those admit they're *not* dry and say stress incontinence doesn't count? And you got 28 responses while Google and USENET tally only 23? Gee, do you think we've stumbled across one of the problems of gathering continence statistics? I.P. >> That makes a running total of 22 pad-free - 6 using pads. >> >> Just over 78% pad-free. > >So you figure pad-free = dry I figure there's a bit of a problem reconciling 80% pad free with the pronouncement of our hard-bitten pros when they say:- ".. the man who doesnt permanently need pads after an RP is rare" > even though many of those admit they're >*not* dry and say stress incontinence doesn't count? I think I had a stress dribble two weeks ago - half a teaspoon, if that. Why tell a man he's wet when he can tell you he feels dry? >And you got 28 >responses while Google and USENET tally only 23? Gee, do you think we've >stumbled across one of the problems of gathering continence statistics? Yes, counting requires diligence. Use your fingers. no pads: ronju99 Leonard RonB Paul Harry Claude Kuskokwim JerryW + 6 friends Jean (Larry) Bert Ernest BH making progress Leah (Ted) rosbif 007 Joe Price ron (just added!) ------ 24 pads: I.P. Steve K. Bob C. djperry EddieGr 1 of JerryW's friends. ------ 6 All the stupid political polls (and I guess ALL polls) list 'margin of error'...but it just SEEMS right...regardless of individual doctors, that 'rosbif's' tally most accurately reflects what most of us thought. I tend to agree. > All the stupid political polls (and I guess ALL polls) list 'margin of > error'...but it just SEEMS right...regardless of individual doctors, > that 'rosbif's' tally most accurately reflects what most of us thought. >'rosbif's' tally most accurately reflects what most of us thought. So? Since when does being told what we want to hear, especially the claim that stress incontinence is not incontinence, prove anything? Shouldn't we be *concerned*, rather than mollified, when laymen use familiarity and a straw poll, rather than facts, to oppose experts with different opinions? (It's getting to the point that I have to look at tho topic to tell whether I'm in a political or a cancer discussion.) I.P. > All the stupid political polls (and I guess ALL polls) list 'margin of > error'...but it just SEEMS right...regardless of individual doctors, > that 'rosbif's' tally most accurately reflects what most of us thought... Or, we've proven that leaky men don't get near electrical appliances, such as computers. :-) > I fear newbies or lurkers may take an unnecessarily downbeat view of > post RP continence prospects after I.P.'s 'surprising' post so, if [quoted text clipped - 3 lines] > > (stress leaks, but not often). no pads of any kind...ron |
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