hi steve - i wonder if the brother got upset this time. it's obvious he
didn't know what the 18 meant.
boy, you don't know how many times i've tried this year to get something
off the ground on awareness, and it hit tree after tree. i guess it
will have to take somebody's family member to get pca before they take
me seriously.
i feel for the person's brother and 34 is a good chance that if it
hasn't gotten to the bones, it almost certain to have grown out of the
gland and into the body and spread.
the sad news is that his doubling rate is already at 12 months which
means at these numbers is not a good sign either as to his gleason
score. doesn't sound like a 6.
~ curtis
knowledge is power - growing old is mandatory - growing wise is optional
Curtis,
Keep trying to get the work out. Not everyone will hear (or want to
hear!) I am personally responsible for two guys at work having had
their PCa detected and treated. Most of the 30 guys I work with had
their PSAs checked - and most of the women had their husband's PSA
checked.
Ours is not an easy task.
DanR
On awareness, I have lost some friends over trying to persuade them to
get their PSA checked. It still amazes me how people can be so insistent to
not know, to not learn about this kind of thing.
> hi steve - i wonder if the brother got upset this time. it's obvious he
> didn't know what the 18 meant.
[quoted text clipped - 14 lines]
>
> knowledge is power - growing old is mandatory - growing wise is optional
I wonder if the doctor ever told him he had an 18 last year.
[Mount soapbox]
I bet the poor guy was never told at all. Usually the only
report one gets from the lab tests done by a doctor is
"everything is okay."
My HMO (Kaiser Permanente) has a policy of not allowing
anyone other than the doctor to tell the patient anything. If
you call the clinic after a set of tests, they tell you you have to
talk to the doctor, they can't release your own lab information
to you. Of course doctors are harrassed and overworked
and not easy to get to. And not all of them are cooperative.
If you ask Kaiser about the purpose of the rule you are
guaranteed to get some rigamarole about how it's in your
best medical interest to have the doctor and only the doctor
release this information to you, and if he doesn't give you
the info, well, that's in your best interest too.
"What? You think Kaiser might be doing this for it's own
convenience? Why for shame! What a cynical person you
are!"
It seems like the rule in "managed care" is contempt for the
patient.
[Dismount soapbox]
Alan
> hi steve - i wonder if the brother got upset this time. it's obvious he
> didn't know what the 18 meant.
[quoted text clipped - 14 lines]
>
> knowledge is power - growing old is mandatory - growing wise is optional
johng - 19 Dec 2003 04:59 GMT
> My HMO (Kaiser Permanente) has a policy of not allowing
> anyone other than the doctor to tell the patient anything. If
[quoted text clipped - 8 lines]
> release this information to you, and if he doesn't give you
> the info, well, that's in your best interest too.
That stinks. I don't see how that could help Kaiser make more money,
either. Well, come to think of it I can imagine some scenarios, but the ones
I can imagine would also call for some serious jail time for the perps.
In January when I had my one year checkup, it seemed that once again there had
been a miscommunication between the medical lab and the uro clinic, and my PSA
results hadn't gotten to the right place at the right time. It was a
different comedy of errors each time, and each time they came up with the
results before I went home. But my surgeon was annoyed and said I should get
the PSA results myself and hand carry them to his office just to be sure. I
told him I didn't know that was an option. He said I had a more of a right
to see those numbers than anyone else did.
I like that idea, but haven't yet put it to the test. Maybe next month.
> "What? You think Kaiser might be doing this for it's own
> convenience? Why for shame! What a cynical person you
> are!"
>
> It seems like the rule in "managed care" is contempt for the
> patient.
Yup. That's why I don't want to see our country going the way of the Mother
of All Managed Care plans.
Speaking of the Mother of All Battles, it gives us something to think about
when we see the guy who invented that phrase put to the "humilitation" of
having the whole world see him getting some medical attention. The thing
that's humiliating about it for him is that he is no longer in control.
Sounds like Kaiser is trying to do to you what the U.S. Army was doing to
Saddam. The difference of course is that you don't deserve that kind of
treatment.
JohnG
Steve Kramer - 19 Dec 2003 12:04 GMT
As I understand it, he was not told of the 18 a year ago and he was not told
of the 34 this year. He had foot pain and for some reason, maybe education,
HE ASKED HIS DOCTOR what his last PSA was. Doc says '34'. After checking,
he finds the last one was 18.

Signature
Steve Kramer
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA .1 .1 .1 .3 .4 .8
EBRT 05-07/2002 @ 47
PSA .3 .2 .2 .2 .3
Erection 05/12/2003 @ 48
Begin Lupron 07/21/2003 @ 48
PSA .1
> I wonder if the doctor ever told him he had an 18 last year.
>
[quoted text clipped - 46 lines]
> >
> > knowledge is power - growing old is mandatory - growing wise is optional
Dave Perry - 19 Dec 2003 14:56 GMT
Hi Alan,
I doubt very much that Kaiser has policies with the purpose of
annoying its patients for its own convenience. Rather, since Kaiser
is the largest provider of its kind in the nation, they are under
constant observation from various governmental agencies and lawyers
all too eager to find fault for obvious reasons. So, it's not
surprising that Kaiser abide by "the rules" to the letter which often
seems unnecessary to the patient. The recently enacted HIPPA rules
(Health Information Patient Privacy Act) is very strict, so much so
that Kaiser had to make plastic covers for the carts that hold patient
charts so that as the carts are wheeled from one office to another
nobody can see the names on the chart tabs. Contrast this with what I
saw in a private physician's exam room where he had patient records
stored in open boxes on the floor under the exam table where anyone
could look at them. When I call the private physician's office, the
person on the phone (the receptionist?) provides me whatever
information is available (illegally according to HIPPA) whereas at
Kaiser only the doctor can provide such information, also according to
HIPPA. Unfortunately, larger organizations get the black eye because
of their size and we all suffer in the end.
Dave Perry
> I wonder if the doctor ever told him he had an 18 last year.
>
[quoted text clipped - 27 lines]
>
> Alan
He wasn't told about the 18. It was probably a 9 the year before and a 4.5
the year before that.

Signature
Steve Kramer
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA .1 .1 .1 .3 .4 .8
EBRT 05-07/2002 @ 47
PSA .3 .2 .2 .2 .3
Erection 05/12/2003 @ 48
Begin Lupron 07/21/2003 @ 48
PSA .1
> hi steve - i wonder if the brother got upset this time. it's obvious he
> didn't know what the 18 meant.
[quoted text clipped - 14 lines]
>
> knowledge is power - growing old is mandatory - growing wise is optional