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Medical Forum / Diseases and Disorders / Prostate Cancer / November 2007

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Prostate Cancer - a patient's viewpoint

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Envo - 18 Nov 2007 19:22 GMT
If you haven't yet visited this website, I can thoroughly recommend it:

http://homepage.ntlworld.com/graham.a.newman/

(Allow an hour or two to read it all)

Envo
Alan Meyer - 19 Nov 2007 04:12 GMT
> If you haven't yet visited this website, I can thoroughly recommend
> it:
>
> http://homepage.ntlworld.com/graham.a.newman/
>
> (Allow an hour or two to read it all)

I'm sorry to hear of your cancer Envo.

Your website is interesting and well done, however I disagree
with your view that routine PSA testing is not worthwhile.
Although it is true that cancers that will not become life
threatening are often discovered and sometimes treated,
I think that is not caused by having too much information,
but by not having enough.  A rising PSA is suspicious of
cancer but, if it is still close to the normal range, it doesn't
prove cancer and doesn't prove that the cancer is
dangerous.

In your own case, your cancer was apparently not discovered
until it was too late for primary treatment.  I wonder if
that would have been the case if you had gotten PSA tests
every year, especially after you first began to have
urinary symptoms.  If I'm reading your history correctly,
you were tested in 1997 and not again until six years later
in 2003.  They told you your PSA was normal in 1997, though
it sounds like either they didn't tell you the actual numbers,
or else you've forgotten them.  It was not normal in 2003
and the cancer had already spread beyond the prostate.

For most men, there is a rate of increase of PSA which
can tell even more than the PSA itself about whether cancer
is growing.  It is also possible to get a "free PSA" test
that tells how much of the PSA protein is bound to other
proteins and how much is free - another indicator of the
danger.

We can never know for sure, but it seems very possible
that if your PSA had been monitored every year an
alarming rate would have been seen, and possibly an
alarming free PSA - all before the cancer spread beyond
the prostate.

I don't say all this to make you feel bad or to attack your
doctors.  I say it because you are advocating no PSA
tests on your website and I'm not sure the advice you are
giving to others (even though it is the opinion of many in
the British and some in the American medical profession)
is correct.

But, on other topics, let me congratulate you on the birth
of your new granddaughter!

I'm also glad to hear of your 0.1 PSA report.  Some men
are able to benefit from hormone therapy for many years.
I hope you are one of them.

Best of luck to you.

   Alan
Envo - 19 Nov 2007 14:50 GMT
>> If you haven't yet visited this website, I can thoroughly recommend it:
>>
[quoted text clipped - 55 lines]
>
>    Alan

Sorry to disappoint you - it's not my website, but one I came across while
browsing around re my possible future progress.  I had an RP about 3 weeks
ago, and, subject to what the consultant says at the end of Jan., all
appears well so far, except for the usual expected erection and moderate,
but improving,  incontinence problems.

Envo
Alan Meyer - 20 Nov 2007 00:19 GMT
> Sorry to disappoint you - it's not my website, but one I came across
> while browsing around re my possible future progress.

Ah, I misunderstood.

> I had an RP about 3 weeks ago, and, subject to what the consultant
> says at the end of Jan., all appears well so far, except for the usual
> expected erection and moderate, but improving,  incontinence problems.

Excellent.  I'm glad you got treatment in time.

Best of luck.

   Alan
Envo - 20 Nov 2007 12:17 GMT
>> Sorry to disappoint you - it's not my website, but one I came across
>> while browsing around re my possible future progress.
[quoted text clipped - 10 lines]
>
>    Alan
Thanks

Envo
A. Black - 21 Nov 2007 02:45 GMT
"Envo" <awne16...@spamgapblueyonder.co.uk> wrote in message
> Sorry to disappoint you - it's not my website, but one I came across while
> browsing around re my possible future progress.  I had an RP about 3 weeks
> ago, and, subject to what the consultant says at the end of Jan., all
> appears well so far, except for the usual expected erection and moderate,
> but improving,  incontinence problems.

If you are looking for patient histories yananow has a collection
of hundreds.  Pointers to that plus other collections plus individual
histories of interest can be found here.  (I find the ones by doctors
to be
particularly interesting):

  http://palpable-prostate.blogspot.com/2007/02/case-histories.html

If what you are really interested in is others' experience in the
progression
of their incontinence and ED after RP see these two links (the first
is on
incontinence progression and in the second has a portion on ED
progression
in the Mechanisms Behind ED section):

  http://palpable-prostate.blogspot.com/2007/02/post-rp-urinary-incontinence.html

  http://palpable-prostate.blogspot.com/2007/08/ed-after-prostatectomy-part-1.html

As discussed on last page, damage from RP occurs not only during the
surgery
but afterwards due to lack of oxygen and hopefully you are taking
steps to
counteract that.  If not, its not yet too late to start and I would
pursue that
right away and not wait until January.

---
The Palpable Prostate
http://palpable-prostate.blogspot.com
 
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