Medical Forum / Diseases and Disorders / Prostate Cancer / October 2007
T = 61
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Steve Kramer - 16 Oct 2007 19:39 GMT Okay, at the prompting of some here, I added a test for testerone to my PSA test. It's 61.
Now, what does that tell me?
Oh, btw, PSA was <0.04 and I know what that means :-)
 Signature PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 PSAD .056 years Lupron 07/03 (1 mo) 8/03 and every 4 months there after PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.4 years Casodex added daily 07/06 PSA <0.04, <0.05, <0.04, <0.04 10/11/07 Non Illegitimi Carborundum
Heather - 16 Oct 2007 21:25 GMT YAHOO on the PSA!!!
As for your testosterone score, haven't a clue because we measure ours differently. I believe here *normal* is around 4.
(note to self......this man is obviously a raging sex maniac, avoid him at all costs.....bwa ha ha).
Cheers.....Heather
> Okay, at the prompting of some here, I added a test for testerone to > my PSA test. It's 61. > > Now, what does that tell me? > > Oh, btw, PSA was <0.04 and I know what that means :-) Alan Meyer - 16 Oct 2007 21:57 GMT > Okay, at the prompting of some here, I added a test for testerone to my PSA > test. It's 61. > > Now, what does that tell me? Congratulations on the PSA.
For what it's worth, I seem to remember that "castrate" level is thought to be 20 or less. I also seem to remember that I went down to about 20 on Lupron.
Your having a 61 makes me wonder if that's why the Casodex had to be added. Perhaps you didn't fail Lupron treatment, but Lupron alone just wasn't enough to bring your testosterone down far enough, so you also needed an anti-androgen to try to keep that testosterone out of the prostate cells.
It is possible that one of the LHRH agonists like Zoladex would be more effective for you than Lupron. This is a question that I expect a urologist or radiation oncologist is highly unlikely to be able to answer. You'd need to consult a real medical oncologist who seriously studies hormone therapy.
Alan
Steve Kramer - 17 Oct 2007 00:56 GMT >> Okay, at the prompting of some here, I added a test for testerone to my >> PSA [quoted text clipped - 19 lines] > to be able to answer. You'd need to consult a real medical > oncologist who seriously studies hormone therapy. Yeah, I have to admit that threw me for a loop.
I've always known I was a natural for testosterone production. :-)
Beverley - 17 Oct 2007 14:58 GMT Testosterone production? Yep! Tall, handsome, and very sexy.
Seriously, I think George fell to about 60 when they had checked his one time, but they weren't about to do anything to raise it! And he wasn't nor had he ever been on HT. Bev
> >> Okay, at the prompting of some here, I added a test for testerone to my > >> PSA [quoted text clipped - 23 lines] > > I've always known I was a natural for testosterone production. :-) Steve Kramer - 18 Oct 2007 21:42 GMT > Testosterone production? Yep! Tall, handsome, and very sexy. Y'outta stay off the wine.
Beverley - 21 Oct 2007 07:07 GMT Hey, I know what you look like and that's more than most of the folks out here. Tall, handsome, and sexy fits your description just fine! Bev (No wine tonight just oil paints and mineral spirits.)
> > Testosterone production? Yep! Tall, handsome, and very sexy. > > Y'outta stay off the wine. Steve Kramer - 21 Oct 2007 12:23 GMT > Hey, I know what you look like and that's more than most of the folks out > here. Tall, handsome, and sexy fits your description just fine! > Bev (No wine tonight just oil paints and mineral spirits.) That would certainly explain it.
Heather - 21 Oct 2007 17:10 GMT >> Hey, I know what you look like and that's more than most of the folks >> out >> here. Tall, handsome, and sexy fits your description just fine! >> Bev (No wine tonight just oil paints and mineral spirits.) > > That would certainly explain it. Hmmm, well he is tall, I will grant you that, Bev. As for the rest, well.......
ROFL!!
MAS - 16 Oct 2007 22:35 GMT It means, ....... erections!
Anytime treatment yields an undetectable reading in our boat that is real good. the longer the better.
Keep it up Steve.
Gourd Dancer
> Okay, at the prompting of some here, I added a test for testerone to my > PSA test. It's 61. > > Now, what does that tell me? > > Oh, btw, PSA was <0.04 and I know what that means :-) Alan Meyer - 17 Oct 2007 23:25 GMT > It means, ....... erections! I think, based on personal experience, that erections are possible even without testosterone.
IIRC my T level went down to 20, and I had a total loss of libido. I could look at a beautiful woman have trouble remembering what I got excited about in the past.
However, if I attempted sex I found, to my great surprise, that after some effort I was able to get into it, was able to get an erection, and was able to complete the act - thus demonstrating that the major sexual organ is located between the ears.
Alan
RalphV - 16 Oct 2007 23:01 GMT > Okay, at the prompting of some here, I added a test for testerone to my PSA > test. It's 61. [quoted text clipped - 15 lines] > PSA <0.04, <0.05, <0.04, <0.04 10/11/07 > Non Illegitimi Carborundum Hello Steve, I think Alan's response is accurate. Most LHRH manufacturers claim 50 ng/dL as castrate level in measuring their product's efficacy. Purists claim that for best efficacy that T level should be < 20 ng/dL.
Before adding Casodex your PSA was marching along at a 1.4 years of doubling time. Now, while blocking the AR with Casodex your PSA dropped to UD and your T remains slightly over castrate level. Alan is right in that another LHRH (Zoladex or Trelstar) might reduce T even further, but since this is working it is better to leave it as is.
Wish you many more UDs PSA!
RalphV www.pcainaz.org/phpbb
Steve Kramer - 17 Oct 2007 01:02 GMT > Before adding Casodex your PSA was marching along at a 1.4 years of > doubling time. Now, while blocking the AR with Casodex your PSA > dropped to UD and your T remains slightly over castrate level. Alan is > right in that another LHRH (Zoladex or Trelstar) might reduce T even > further, but since this is working it is better to leave it as is. Thanks, Ralph. You and Alan have reminded me of a how Casodex works. I had forgotten. That makes perfect sense.
And, I agree that I should leave things well enough alone. I will, of course, get an opinion from a doc, but to tell you the truth, I am starting to feel the effects of ADT2 and would just as soon not take a chance on enhancing them. I took a week-long trip recently and never walked the whole time and I felt physically and emotionally drained at the end of it. Now that I've walked the last few nights (3.9 miles each night), I'm starting to feel better again.
So, I will go into the doctor's office with an eye to staying pat.
 Signature PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 PSAD .056 years Lupron 07/03 (1 mo) 8/03 and every 4 months there after PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.4 years Casodex added daily 07/06 PSA <0.04, <0.05, <0.04, <0.04 10/11/07 Non Illegitimi Carborundum
Larry Sabo - 17 Oct 2007 00:10 GMT >Oh, btw, PSA was <0.04 and I know what that means :-) Fantastic news, Steve! Keep it up... I mean down!
Larry
Bob C. - 17 Oct 2007 01:40 GMT >
> Oh, btw, PSA was <0.04 and I know what that means :-) Outstanding psa numbers Steve, and may they stay that way for a long long time. I always watch for your new numbers, it's good to see someone receiving benefit from the drugs, helps justify living with the SE's.
kh - 17 Oct 2007 13:42 GMT > Okay, at the prompting of some here, I added a test for testerone to my PSA > test. It's 61. > > Now, what does that tell me? 61 is kinda high. 9 months off Lupron I had numbers around 250 to 300, which is considered low-normal. At that level, the cancer was raging and my PSA was climbing fast.
Reminds me, I need to get another T measurement soon.
-kh still having erections and orgasms. Go figure.
Dave P - 17 Oct 2007 14:49 GMT Great news Steve.
Unbelievable news.
How can this be happening.
You went from a agressive type of PCa
and now its knocked out - long term.
Do you need to stay on the hormones?
Is it the other things you have changed? ie. lifestyle, diet, exercise etc.....
Regardless, you once said you had up to 10 years for survival.
You are going to double that and then some.
God Bless
Dave P
Steve Kramer - 18 Oct 2007 21:39 GMT > Great news Steve. > [quoted text clipped - 18 lines] > > Dave P Believe me, Dave, it's a question I ask myself often. As you know, I generally track the key events of all individuals who report them and have been doing so for years. I don't remember any one who:
1. Had an RRP 2. Failed in 1½ years 3. Had EBRT 4. Failed in 1 year 5. Had ADT1 6. Barely survived below 0.1 for three years, but failed 7. Had ADT2 8. Dove to "less than" and stayed there for 1½ years.
What else is different?
1. I started taking 200,000 scoval units of Capsaicin when I started Casodex (I haven't heard of anyone doing that here, so far). 2. I started taking 2,000 IU Vit D a few months ago (too recent to be THE answer). 3. I walk 3-5 miles a day, 3-5 times a week (I'm not sure if anyone here does that while on ADT2) 4. I work full time in a sometimes stressful and sometimes very rewarding job (I'm not sure if anyone does that here while on ADT2 -- maybe due to typical retirement ages of people here). 5. I have at least one Jew, several Baptists, one Methodist, one Seventh Day Adventist, one Greek Orthodox Priest (I think), and a whole bunch of Catholics praying for me.
So, there you have it. I think I am somewhat unique in my cancer's progress. I think I am unique in a couple of my supplements and my exercise. I cannot imagine just working helps, but this whole thing has me scratching my head. I doubt that God has special plans for me any more so you may be quick to scratch that one. But, honestly, if there is a discussion about it, those are the only 5 things that I can fathom.
 Signature PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 PSAD .056 years Lupron 07/03 (1 mo) 8/03 and every 4 months there after PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.4 years Casodex added daily 07/06 PSA <0.04, <0.05, <0.04, <0.04 10/11/07 Non Illegitimi Carborundum
Alan Meyer - 18 Oct 2007 21:55 GMT ...
> What else is different? > > 1. I started taking 200,000 scoval units of Capsaicin when I started > Casodex (I haven't heard of anyone doing that here, so far). > 2. I started taking 2,000 IU Vit D a few months ago (too recent to be THE > answer). Who knows if any of these things actually work, but you might consider adding pomegranate extract to the mix. It's pretty cheap and, I assume, pretty safe.
Alan
Steve Kramer - 18 Oct 2007 22:15 GMT > ... >> What else is different? [quoted text clipped - 8 lines] > consider adding pomegranate extract to the mix. It's pretty > cheap and, I assume, pretty safe. Funny you should mention that. I thought I printed where I can get supplements. I'm thinking of getting them and when (dare I say "if") by PSA starts to head up again, start taking them and see what happens. A one-man, one result study, if you will.
But, alas, I did not print it and now am having a hard time finding it. I thought it was in this thread.
 Signature PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 PSAD .056 years Lupron 07/03 (1 mo) 8/03 and every 4 months there after PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.4 years Casodex added daily 07/06 PSA <0.04, <0.05, <0.04, <0.04 10/11/07 Non Illegitimi Carborundum
BH - 18 Oct 2007 22:43 GMT Here's the link that was recommended in another thread as a source for the extract, Steve. (I neither drink the juice nor take the pills so I have no recommendation. Just providing the link for your convenience.
http://www.lef.org/newshop/items/item00956.html
>Funny you should mention that. I thought I printed where I can get >supplements. I'm thinking of getting them and when (dare I say "if") by PSA [quoted text clipped - 3 lines] >But, alas, I did not print it and now am having a hard time finding it. I >thought it was in this thread. Burney dot Huff at Mindspring dot com
Steve Kramer - 19 Oct 2007 01:14 GMT Thanks, Burney
> Here's the link that was recommended in another thread as a source > for the extract, Steve. (I neither drink the juice nor take the pills [quoted text clipped - 14 lines] > > Burney dot Huff at Mindspring dot com BH - 19 Oct 2007 01:49 GMT >Thanks, Burney No problem, Steve. And, for what it's worth, this guy who claims no particular form of organized religion is wishing you the best, too!
Burney
Burney dot Huff at Mindspring dot com
Steve Kramer - 19 Oct 2007 23:52 GMT >>Thanks, Burney > > No problem, Steve. And, for what it's worth, this guy who claims no > particular form of organized religion is wishing you the best, too! I almost added, "and well wishes from many", but decided that could come across more than one way. One must be sensitive when discussing such things.
I truly appreciate your well wishes.
Steve Kramer - 18 Oct 2007 22:12 GMT > What else is different? > [quoted text clipped - 10 lines] > Day Adventist, one Greek Orthodox Priest (I think), and a whole bunch of > Catholics praying for me. My wife tells me I have to add a #6.
6. I get 8 hours of sleep every night and, generally, the same hours every night.
She wrote her masters thesis on the topic of sleep deprivation, so I guess she knows.
Beverley - 21 Oct 2007 07:10 GMT And one more keeping her fingers crossed for you. Bev
> > Great news Steve. > > [quoted text clipped - 53 lines] > you may be quick to scratch that one. But, honestly, if there is a > discussion about it, those are the only 5 things that I can fathom. chasjac too - 27 Oct 2007 11:16 GMT Hello, Steve:
I've been away, so I'm just catching up on stuff here. That's great news about your latest PSA.
Now I'm going to read over what folks say about the T score.
--charlie
 Signature 6/2006 PSA 5.2, DRE suspicious 7/2006 Biopsy: 2 of 10 positive, Gleason 7(3+4) 11/2006 LRP: Clear margins PSA < 0.01 on 1/2007, 3/2007, 6/2007, 9/2007 so far, so good ...
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