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Medical Forum / Diseases and Disorders / Prostate Cancer / September 2007Proton VS Tomotherapy info?
I have been interested in proton because of all the anecdotal testimonies of Loma Linda graduates. According to DeWeese (head of radiation oncology at Hopkins) as well as Coan at Mass General, proton therapy SE are barely as good as IMRT. Their conclusion was that it is "no worse." Well. IMRT leaves 40% impotent at 5 years and that is probably low since most men either lie about such things or many PC patients are too old to care about sex. I visited MWPR in Bloomington Indiana about Proton therapy. The doc gave the speech about less healthy tissue being exposed to radiation and this was the reason Proton is better. I pressed him about the comparable morbidity of IMRT and proton and he reluctantly agreed- the morbidity is the same. Hopkins has the Tomotherapy machine, tho, and this may offer less SE than proton. Tomotherapy is very new and so there are no long term studies. I want to know just how much better than standard IMRT is it. Can it spare the nerves to allow for less ED? HK DX July 12, 07 PSA 4.2 Gleason 3+3 in 2 of 12 cores Involvement <5% Size 50CC >I have been interested in proton because of all the anecdotal testimonies >of [quoted text clipped - 22 lines] > to allow for less ED? > HK There are four (of almost 800) here over the last six years that went the Proton route. Keith Lundy is the one who most often posts here, but rarely. keith340@webtv.net Keith Lundy cwarman89134@gmail.com CW89134 wborglum@sbcglobaldot.net Desert Denizen jeffbalfoort@yahoo.com surfdog  SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 PSAD .056 years Lupron 07/03 (1 mo) 8/03 and every 4 months there after PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.4 years Casodex added daily 07/06 PSA <0.04, <0.05, <0.04 (06/12/2007) Non Illegitimi Carborundum hi steve and group.....i am still around.....lost the group for a long time then found it again...glad to see the spam is gone.....everything is going well.....proton was the best treatment for me.....i still have a sex life without shooting sperm, never had incontinence, bleeding or any problems with other organs....my last psa was 0.64 after almost 4 years post tx.....my oncologist said it would be lower if it weren't for the active sex life....i actively share my story with many men and direct them to read the 10 year proton study treatment results at loma linda....all i hope is that newly dx men will do the research and select the best treatment for them....... > hi steve and group.....i am still around.....lost the group for a long > time [quoted text clipped - 7 lines] > hope is that newly dx men will do the research and select the best > treatment for them....... That's great, Keith. Looks like you nadired right at 6/10th of a nanogram! Every man who comes here for information on Protons, I send your way. I hope you've gotten some inquiries. Thanks for coming back and reporting. SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 PSAD .056 years Lupron 07/03 (1 mo) 8/03 and every 4 months there after PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.4 years Casodex added daily 07/06 PSA <0.04, <0.05, <0.04 (06/12/2007) Non Illegitimi Carborundum thanks steve, i've received a few from curtis and some from men who said read a post of mine from a few years ago.....i occasionally hear from bev and sent her my condolences.....i will occasionally post on my progress but will leave the in depth discussions on pc and treatments to others....i always say, no one has a crystal ball and cannot say how things will turn out for another....the important this is to do the research which will determine what is best for each person...... thanks steve, i've received a few from curtis and some from men who said read a post of mine from a few years ago.....i occasionally hear from bev and sent her my condolences.....i will occasionally post on my progress but will leave the in depth discussions on pc and treatments to others....i always say, no one has a crystal ball and cannot say how things will turn out for another....the important this is to do the research which will determine what is best for each person...... Hello and thanks for the info I have been trying to sort through the present state of radiation therapy. The proton therapy seems great but tomotherapy seems to have some advantages. The degree of 3d imaging that it has built into the system indicates that it may spare healthy tissues to a greater extent than proton or standard IMRT. Studies show it will spare the rectal tissue and bladder to a larger degree. But then you have a CT every day of treatment and this could be an undesirable dose of rads. There seems to be a divide between the clinical data and the anecdotal. Clinical data says that the morbidity with proton is no better than standard IMRT. I cannot find anywhere in the 4-2007 Rossi article from Loma Linda that it states otherwise. This means that impotence at 5 years is 40% (1/2 of which will respond to viagra) - a conclusion confirmed to me personally by 2 proton therapy radiation onclogists, Coan at Mass general and Ko at Bloomington. Anecdotally, so many of the men who have been at Loma Linda seem to be hale and hearty with full erectile function. I would love some pointers to radiation sites with real comparisons or more comparisons of the various proton centers. BTW, Tomotherapy is being developed to work with proton HK loma linda is the longest running center for pca....i don't know how many of the other centers have actually begun using proton for pca patients at this time.....i have spoken to so many former patients who are very proud of being able to have full erectile function.....it is just a fact of life.....oncologist as with most doctors have different opinions on outcomes...... On Sep 21, 4:04 pm, web...@comcast.net wrote: > Hello > and thanks for the info > I have been trying to sort through the present state of radiation > therapy. HK, I had iodine seeds followed by IMRT 11 months ago. My doctor uses a system called Acculoc (http://www.nmpe.com/acculoc.aspx). It uses three gold seeds in addition to the iodine. They show up on two low radiation "port shot" xrays. Each treatment, after the two port shots, the computer positions the bed to precisely put the prostate in the beam. As a testimony, I've had virtually no side effects from my treatment. I had very minor urinary urgency, but not even bad enough to take the Flomax I still have in my drawer. No rectal problems and sex life is as good as it was before. I do use Viagra, but I was using it before the treatment. You may want to look into it. I think it has the advantages of tomotherapy with far less radiation of the CT scan. John
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