PCRI Conference

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Steve Jordan - 02 Sep 2007 01:03 GMT

On September 7-9, the Prostate Cancer Research Institute will sponsor a
conference in Los Angeles. See http://prostate-cancer.org/index.html
The medics who will speak there are the cream of the crop of PCa
specialists.

To me, it is virtually incredible that not one word about this has been
published on this NG. Does no one care? Is no one aware of it? If that
is the case, how can we on this NG claim to be PCa activists?

Moreover: PCRI has for some reason decided that they will not offer DVDs
of conference presentations, a terrible departure from history.

Here is a copy of my note to them, if anyone cares:

> Here is the relevant portion of PCRI's mission statement:
>
> "Provide information based upon peer-reviewed medical research,
> literature, and reputable studies that will enable the patient to
> knowledgeably participate with his health care team in developing the
> best individual treatment strategy."
>
> I do not believe that the shocking decision of someone on your staff
> to withhold DVDs of presentations at the pending conference in Los
> Angeles is consistent with that statement, nor was it
> well-considered.
>
> There are probably thousands of PCa patients worldwide who would
> benefit from such records. There can be no reasonable justification
> for withholding them.
>
> As one who is unable to attend the conference, I ask management to
> reconsider.

Steve J

> And, for what it's worth, failure to make such recordings available
> will inevitably cause me to reconsider certain provisions of my will.

Reply to this Message

jloomis - 02 Sep 2007 02:01 GMT

Hi Steve,
First, I have not heard about it!
I am too busy working, making payments to Blue Cross of Calif. and paying
taxes and high prices of fuel, needless to say watching the government
stumble over itself in Iraq.
I do care, and as a cancer survivor and optomist, just had my 8 year PSA
blood test drawn. Just waiting for results.
Sounds lame that they do not have DVD's available.
You think they could get some made and sell them for a profit to help fund
research.........hum.
Actually "I hate to use the word "they".
It takes time and energy to do that and "someone has to deal with it".
John Loomis

> On September 7-9, the Prostate Cancer Research Institute will sponsor a
> conference in Los Angeles. See http://prostate-cancer.org/index.html
[quoted text clipped - 32 lines]
>> And, for what it's worth, failure to make such recordings available
>> will inevitably cause me to reconsider certain provisions of my will.

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california_chief - 02 Sep 2007 06:38 GMT

> To me, it is virtually incredible that not one word about this has been
> published on this NG. Does no one care? Is no one aware of it?

I've been posting PCRI news for some time and have never heard any feedback.

That one arrived in my inbox and I said, "The heck with it."

Reply to this Message

Steve Jordan - 02 Sep 2007 18:43 GMT

On September 1, "california_chief" replied to me:

> I've been posting PCRI news for some time and have never heard any feedback.
>
> That one arrived in my inbox and I said, "The heck with it."

A pity.

Regards,

Steve J

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I.P. Freely - 03 Sep 2007 06:10 GMT

Considering how surprised most doctors and nurses are when we drop a
word like "mets" or "Gleason" or "systolic", and considering their
expressions and even comments when we mention the word, "internet", I
don't think people in white coats understand how much some patients know
-- and/or want to know -- about medicine.

I.P.

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